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Hughes Syndrome - December 2019
Hughes Syndrome - December 2019 December 6 saw a second London Bridge terrorist attack, the first in Borough Market, the second on the other end of the bridge – both within a couple of hundred yards of our hospital, both with slashing knives. It is poignant to reflect on the long and colourful history
Hughes Syndrome - December 2019 December 6 saw a second London Bridge terrorist attack, the first in Borough Market, the second on the other end of the bridge – both within a couple of hundred yards of our hospital, both with slashing knives. It is poignant to reflect on the long and colourful history
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Plasmapheresis not helping
Hello all just following up on here as I'm in tears not only due this being the day my sister transitioned in 2104 just 3 months after my mommy but I'm miserable from this itching and I mean terrible itching especially at night my feet, legs, hands, eyes and even head! I can't believe that none if the
Hello all just following up on here as I'm in tears not only due this being the day my sister transitioned in 2104 just 3 months after my mommy but I'm miserable from this itching and I mean terrible itching especially at night my feet, legs, hands, eyes and even head! I can't believe that none if the
genj65
in
PBC Foundation
5 years ago
Transplant 26/10/19
Sorry this post has taken so long......A very special belated birthday gift for my precious donor. My birthday was on 15/10/ and I could not have wished for a better more precious gift, one I intend to treasure and look after for the donor for the rest of my days. Hi all, as the title says, sorry for
Sorry this post has taken so long......A very special belated birthday gift for my precious donor. My birthday was on 15/10/ and I could not have wished for a better more precious gift, one I intend to treasure and look after for the donor for the rest of my days. Hi all, as the title says, sorry for
Bbsmom
in
British Liver Trust
5 years ago
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Plasmapheresis for itching
I AM NERVOUS HAVING PLASMAPHERESIS THIS FRODAY AT NOON 😬 HAS ANYONE ELSE HAD THIS PROCEDURE DONE. I AM BEING REFERRED BY MY UNIVERSITY OF MICHIGAN HEPATOLGIST DUE TO MY SEVERE ITCHING FROM PBC AS THEYVE TRIED PRESCRIBING SEVERAL MEDICATIONS, CREAMS ETC.. NOTHING WORK SO CROSSINGS MY FINGERS AS I HAVE
I AM NERVOUS HAVING PLASMAPHERESIS THIS FRODAY AT NOON 😬 HAS ANYONE ELSE HAD THIS PROCEDURE DONE. I AM BEING REFERRED BY MY UNIVERSITY OF MICHIGAN HEPATOLGIST DUE TO MY SEVERE ITCHING FROM PBC AS THEYVE TRIED PRESCRIBING SEVERAL MEDICATIONS, CREAMS ETC.. NOTHING WORK SO CROSSINGS MY FINGERS AS I HAVE
genj65
in
PBC Foundation
5 years ago
People of HealthUnlocked | Meet Keith
[i] Hello lovely people, just want to take a moment to thank everyone for sending in their stories, they will all be shared here over the next few weeks - so keep them coming. They are so inspiring. If you'd like to have your story featured here, get in touch on the email at the bottom of this post.
[i] Hello lovely people, just want to take a moment to thank everyone for sending in their stories, they will all be shared here over the next few weeks - so keep them coming. They are so inspiring. If you'd like to have your story featured here, get in touch on the email at the bottom of this post.
MarketingHU
in
HealthUnlocked Blog
5 years ago
Inspiration
I thought I would like to share the following and welcome people's comments.I briefly was diagnosed with ANCA (formerly Wegeners) Vasculitis which has left me with CKD Stage 3 in 2015 and since then I have been through numerous medications including Plasma Exchange and Chemo,Rituximab and various drugs.I
I thought I would like to share the following and welcome people's comments.I briefly was diagnosed with ANCA (formerly Wegeners) Vasculitis which has left me with CKD Stage 3 in 2015 and since then I have been through numerous medications including Plasma Exchange and Chemo,Rituximab and various drugs.I
Keithtim10
in
Vasculitis UK
5 years ago
Plasma exchange
Hi has anyone had plasma exchange for itchy skin (PBC) Thanks Roz X
Hi has anyone had plasma exchange for itchy skin (PBC) Thanks Roz X
Rozm2004
in
PBC Foundation
5 years ago
Had kidney transparent with high risk
Happy to inform all i had a kidney transparent on 26th of june and discharged after one week. Surgery day my chest xray was bad and surgeon refused to do the surgery. That time i was under gone give days of plasma exchange my nephrenology doctor explained to me the risk side of the surgery I said i
Happy to inform all i had a kidney transparent on 26th of june and discharged after one week. Surgery day my chest xray was bad and surgeon refused to do the surgery. That time i was under gone give days of plasma exchange my nephrenology doctor explained to me the risk side of the surgery I said i
Shami
in
Kidney Dialysis
5 years ago
CAPS or Primary APS with Alveolar Hemorrhage
Anyone have CAPS or Primary APS with Alveolar Hemorrhage? Looking for treatment options .... we have done Plasmapheresis, Rituxan, Steroids, Plaquenil, Azathioprine and the Rheumy is now talking of doing IVIG if tomorrows blood work doesn't show an improvement in platelets. Anyone have any experience
Anyone have CAPS or Primary APS with Alveolar Hemorrhage? Looking for treatment options .... we have done Plasmapheresis, Rituxan, Steroids, Plaquenil, Azathioprine and the Rheumy is now talking of doing IVIG if tomorrows blood work doesn't show an improvement in platelets. Anyone have any experience
kiminabmw
in
Hughes Syndrome APS Forum
5 years ago
Argon Plasma Coagulation
I've been asked to go in for a APC in the next few weeks, Dad anyone has this procedure before? What is it for? What is it like and it work? Thanks to anyone who replies. Bob
I've been asked to go in for a APC in the next few weeks, Dad anyone has this procedure before? What is it for? What is it like and it work? Thanks to anyone who replies. Bob
pip-lit
in
British Liver Trust
5 years ago
No Diagnosis
My friend has had symptoms of PSP for at least a year - falling backwards, gaze issues, incontinence, speech, etc. Neurologists have tried plasma exchange, ivig, and given all MRI's CT scans etc. No one seems to be motioning in the direction of PSP other than the first neurologist who asked for second
My friend has had symptoms of PSP for at least a year - falling backwards, gaze issues, incontinence, speech, etc. Neurologists have tried plasma exchange, ivig, and given all MRI's CT scans etc. No one seems to be motioning in the direction of PSP other than the first neurologist who asked for second
Mybeautifulfriend
in
PSP Association
5 years ago
New Treatment Guidelines for Blood Clotting Disorder
Whitney J. Palmer June 13, 2019 EULAR has issued new treatment guidelines for antiphospholipid syndrome, a disorder of the immune system that causes blood clots. Among the recommendations, high risk individuals who carry the antiphospholipid antibody should take low-dose aspirin, even if they are asymptomatic
Whitney J. Palmer June 13, 2019 EULAR has issued new treatment guidelines for antiphospholipid syndrome, a disorder of the immune system that causes blood clots. Among the recommendations, high risk individuals who carry the antiphospholipid antibody should take low-dose aspirin, even if they are asymptomatic
lupus-support1
Administrator
in
Hughes Syndrome APS Forum
5 years ago
New Treatment Guidelines for Blood Clotting Disorder
Whitney J. Palmer June 13, 2019 EULAR has issued new treatment guidelines for antiphospholipid syndrome, a disorder of the immune system that causes blood clots. Among the recommendations, high risk individuals who carry the antiphospholipid antibody should take low-dose aspirin, even if they are asymptomatic
Whitney J. Palmer June 13, 2019 EULAR has issued new treatment guidelines for antiphospholipid syndrome, a disorder of the immune system that causes blood clots. Among the recommendations, high risk individuals who carry the antiphospholipid antibody should take low-dose aspirin, even if they are asymptomatic
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Anti gbm disease and cortical thinning.
Hi, my name is keran and my daughter was diagnosed with good patrures syndrome otherwise known has anti gbm disease 2 years ago, when she was 2 years old. She received plasma exchange and chemotherapy and is currently in remission. Recently had a scan and the left kidney has cortical thinning of the
Hi, my name is keran and my daughter was diagnosed with good patrures syndrome otherwise known has anti gbm disease 2 years ago, when she was 2 years old. She received plasma exchange and chemotherapy and is currently in remission. Recently had a scan and the left kidney has cortical thinning of the
Keranb
in
Parents of Children with Kidney Disease
5 years ago
My story ... journey to a diagnosis
My problems start in January 2008 following the birth of my first child. Over the next 10 years I suffered from pain in joints, pins and needles in my feet and hands and a skin infection every 6 - 9 months. Each time the GP would give me various diagnoses and prescribe me something to get me through
My problems start in January 2008 following the birth of my first child. Over the next 10 years I suffered from pain in joints, pins and needles in my feet and hands and a skin infection every 6 - 9 months. Each time the GP would give me various diagnoses and prescribe me something to get me through
356bubbles
in
Vasculitis UK
6 years ago
Plasma Exchange
Hello everybody ,has anyone had 'Plasma Exchange ' therapy ?
Hello everybody ,has anyone had 'Plasma Exchange ' therapy ?
manitou
in
Behçet's UK
6 years ago
cost of Plasmapheresis in India?
Hi All, I'm facing mild rejection. Does anyone know the cost of single session of Plasmapheresis in India? Also the cost of IVIG and Rituximab? Thanks
Hi All, I'm facing mild rejection. Does anyone know the cost of single session of Plasmapheresis in India? Also the cost of IVIG and Rituximab? Thanks
Balap
in
Kidney Transplant
6 years ago
Transplant Failure due to Tacrolimus
I got my transplant 3 yrs ago from my father with 50 percentage match. Creatinine started rising after an yr and reached 2.2, then biopsy was done which revealed side effect of tacrolimus. Doctor reduced tacrolimus but creatinine continued to rise and reached 18 when I started plasmapheresis and dialysis
I got my transplant 3 yrs ago from my father with 50 percentage match. Creatinine started rising after an yr and reached 2.2, then biopsy was done which revealed side effect of tacrolimus. Doctor reduced tacrolimus but creatinine continued to rise and reached 18 when I started plasmapheresis and dialysis
ashok5085
in
Kidney Transplant
6 years ago
Early treatment
Hi there, I haven't yet been diagnosed with scleroderma, but at this point with the symptoms I'm fairly confident that it's going to be. My first rheumatologist appointment is in a few weeks. I'm 29 and male and here's a quick summary of the symptoms which these began 7 months ago: - Close family history
Hi there, I haven't yet been diagnosed with scleroderma, but at this point with the symptoms I'm fairly confident that it's going to be. My first rheumatologist appointment is in a few weeks. I'm 29 and male and here's a quick summary of the symptoms which these began 7 months ago: - Close family history
Cullimorer
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
I AM ANGRY WITH YOU MY BODY (coping with Lupus)
Melasma
is another skin problem that came and disfigured my face!
Melasma
is another skin problem that came and disfigured my face!
Pipido36
in
LUPUS UK
6 years ago
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