Experiences with

Melasma

Does anyone else have experience of transverse myelitis? In February this year I woke up one morning and could not use my legs. This was quickly followed over 24 hours of a complete shutdown of my body :use of limbs,speech and eventually breathing which meant induced coma for 4 days. At end of coma I

Hi, We saw a new functional medicine doctor who has recommended TPE - Therapeutic Plasma Exchange. Wondering if anyone has tried this route or has any opinions on it. It's very expensive but is something we are considering trying for my husband with Parkinsons. Thoughts? Thank you.

Twice in last 6 months I’ve experienced a big change in leg strength. Once after plasma exchange (which lasted about 2/3 months), and again this week after a diet change. The only benefit was that it has made getting up from a seated position extremely easy. Has anyone else experienced this? No other

Hi! My husband had HSV1 encephalitis in March-April 2023, then anti NMDA encephalitis May-August 2023. He had the steroids, the plasma exchange but it was the Rituximab that finally got it sorted. I’m just looking to connect with anyone that has suffered with it or their families?! We don’t have

Dear All, My GP confirmed I have Melasma on my cheeks and nose. I was prescribed topical treatments which have not worked. That is the Melasma is still the same. I have been coping with this condition for a year now. Has anybody had the same experience? What treatment can you recommend?

I am a 62 year old woman and had pelvic external beam radiotherapy for five weeks ending in March 2023. Since then I have had bowel problems, a bit of urinary incontinence, lymphedema and tingling like sensations in my legs. Bleeding from my anus became worse in December. I have since had a colonoscopy

That's right, I'd never heard of it either. I posted a while back about blood transfusion therapy: [i]https://healthunlocked.com/amneasier/posts/147591737/anti-ageing-turn-back-the-clock-on-disease-and-all-that.[/i] An excellent post. So good, it garnered no interest at all on here. I still can't

Other signs include dry hair that only grows to a certain point (early teens to mid 20s, my hair was longer and would grow quickly), weak nails that are slightly mobile in the nail bed, melasma on face and hypopigmentation/slightly mottled skin on arms and legs.

I came across a reference to "functional autoantibodies" in autoimmune diseases, and started going down rabbit holes on the web to see if I could find out more. I came across this paper which mentioned hypothyroidism and hyperthyroidism in the abstract. Title : As per this post Link : https://www.sciencedirect.com

My husband has had encephalitis for 16 months now and no treatment has worked so far. He has had steroids, IVIG, plasma exchange and rituximab and hes been deteriorating since the day he was diagnosed. Doctors have now said his brain is shrinking but I have not heard this from anyone else with encephalitis

Hi all , im joining due to a close relative being admitted into hospital with confusion and then going into a nose dive into ICU. Doctors have thrown everything to cover a viral and autoimmune and effectively run out of treatment. currently we have not real response at the moment and there are two areas

First I would like to thank all the people in this community for providing excellent advice and encouragement. I had radiation and Lupron in 2020, and my PSA has been good. Unfortunately, in February 2022, I had to be hospitalized due to bleeding in my colon. After receiving a couple of units of blood

Please help!! My APS has turned catastrophi catastrophic. It has shut down my adrenal gland & now my kidneys. I started dialysis last week. They have tried plasma exchange, high dose steriods to no avail. Im still on Warfarin. Has anybody found a way to get it back under control?

This is for melasma on my face. I live in cambridge UK Many thanks Michele

Happy New Year all! Firstly, I want to say sorry in advance to anyone reading this who is having a very difficult encephalitis or post encephalitis time but my thinking is, certainly for any families going through the long horrible journey of encephalitis now, that this might help you look to a potential

Hello, ANCA MPO and Systemic sclerosis positive - No response to methotrexate/steroids  Rituxan infusions June 2022- 6 months later, no response - Repeat Rituxan infusions December December Labs:  ANCA and Scl-70 positive; IgM <25  ESR 93 markedly elevated - ESR Labs: 07/22 through 09/01/22 - "

I was started on these steroids when I was diagnosed with Myasthenia Gravis nine years ago. After a couple of months on doses up to 30mg. My symptoms went away and I was taken off all medication, big mistake. A few months later the MG came back with a vengeance and I was hospitalised for 10 weeks. The

Autoimmune and Paraneoplastic Movement Disorders https://pubmed.ncbi.nlm.nih.gov/29406902/ [i]Movement[/i] disorders are common in patients with autoimmune disorders - affecting the central (brain) and peripheral (body) nervous system. They may be seen in autoimmune disorders triggered by an infectious

[u]Has anyone been diagnosed with Ocular Myasthenia Gravis which may have been a misdiagnosis[/u]? Husband diagnosed with seronegative OMG in 2008 age 38 years. Symptoms of double vision ( Diplopia) and ptosis only over the years. [u]TREATMENT OVER THE YEARS[/u] Mestinon- unsuccessful Immuran

I have melasma, diffuse hair shedding, lethargy. Many thanks.