Plasmapheresis for itching : I AM NERVOUS... - PBC Foundation

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Plasmapheresis for itching

genj65 profile image
9 Replies

I AM NERVOUS HAVING PLASMAPHERESIS THIS FRODAY AT NOON 😬 HAS ANYONE ELSE HAD THIS PROCEDURE DONE. I AM BEING REFERRED BY MY UNIVERSITY OF MICHIGAN HEPATOLGIST DUE TO MY SEVERE ITCHING FROM PBC AS THEYVE TRIED PRESCRIBING SEVERAL MEDICATIONS, CREAMS ETC.. NOTHING WORK SO CROSSINGS MY FINGERS AS I HAVE RARE BLOOD A NEGATIVE BUT MENTIONED TO DR WHO CHECKED MY VEINS AND SHE SAID ME GETTING DONARS CLEANSED BLOOD PUT BACK IN ME SHOULD BE FINE. SO PLEASE SAY PRAYERS I AM ABLE TO GET THROUGH PROCEDURE AND HAVE GOOD RESULTS LIKE NO MORE ITCHING WOULD BE AWESOME 😁

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9 Replies
butterflyEi profile image
butterflyEi

I have not had this procedure so I have no useful information for you, but I wish you well for this afternoon and hope that it gives you some relief from the itching which is such a nightmare.

Let us know how you get on.

best wishes

Bbsmom profile image
Bbsmom

Am actually waiting on a start date for this at the minute, had initial blood tests to check vaccination level and lfts etc last week and just waiting on them calling me with a slot. Be interested to see how you feel it goes although my Consulant i has given me a cast iron guarantee it will help as he has done it on numerous patients in the past, I will be so relieved if it even lessens the intensity of the dreaded itch. Good luck and keep me posted xxx much love

Kate50 profile image
Kate50

I had plasmaphoresis for several years before my transplant in 2015, My blood type is b negative and I never had any problems, your blood is taken out one arm, goes through a huge machine and the plasma is removed, it is then put back in the other arm along with nice new plasma, I didn’t have any problems with it apart from a drop in blood pressure sometimes and it did help with the itching, good luck 🌸🌸

genj65 profile image
genj65 in reply toKate50

Kate50 Goid to here this thanks for the information I will update I have mine tomorrow 10/18/19 afternoon 🙂

Kate50 profile image
Kate50 in reply togenj65

Good luck with the plasmaphoresis xx

genj65 profile image
genj65 in reply toKate50

Thank you!

genj65 profile image
genj65 in reply toKate50

Hello Kate50 I don't see where I updated but plasmaphoresis 3 sessions did nothing for my itching and my co-pay for each was $580 so nothing gained but a $1740 medical bill :-(

How many sesions/treatments did you have? I was told that my difficult veins would be an issue if I tried having them more than once a week. I have heard others mention magnesium spray but not sure what type but they said it help itching so I am going to search on amazon.

Hoping all is well with you! Happy Holidays!!!

EileenUSA profile image
EileenUSA

Thinking of you this morning and hoping the procedure gives you relief. Hugs.

genj65 profile image
genj65 in reply toEileenUSA

EileenUSA thank you I got really week and sick after procedure. The plan is for me to have two more one this coming Friday and the nex Friday. I'm hoping it helps I need and want relief asap!

Hugs to you 🙂

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