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Mantle cell lymphoma (MCL)
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Graves and PBC
has anyone with PBC had radioactive iodine for graves after their PBC diagnosis
has anyone with PBC had radioactive iodine for graves after their PBC diagnosis
dollydaydreams
in
PBC Foundation
6 years ago
Ginger oil
Hi all Just wondered if anyone has tried using ginger oil when massaging and if so do you see any benefits? I’ve just seen an advert for it and it’s advertised as good for lymphatic drainage. Thanks in advance 😄
Hi all Just wondered if anyone has tried using ginger oil when massaging and if so do you see any benefits? I’ve just seen an advert for it and it’s advertised as good for lymphatic drainage. Thanks in advance 😄
Angelil
in
LSN
6 years ago
Cannabis Oils - Best Ones for T-Cell Relapse?
I am wondering if anyone can help point me in the right direction, we are at a loss. My father in law has had a relapse of NHL - TCell 2 years after a bone marrow transplant. His level's aren't balancing out enough to move on with any salvage treatment so we have looked into cannabis oils but finding
I am wondering if anyone can help point me in the right direction, we are at a loss. My father in law has had a relapse of NHL - TCell 2 years after a bone marrow transplant. His level's aren't balancing out enough to move on with any salvage treatment so we have looked into cannabis oils but finding
NHL-TCell
in
Non Hodgkin's Lymphoma Friends
6 years ago
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Three disorders at the same time?
Was told I have Mantel Cell Lymphoma, Marginal Zone Lymphoma, AND Atypical CLL, all at the same time. They missed it for two years. Numerous sinus infections was reason for testing, and now a few months of detailed testing, CT scans etc. Next week will know treatment if recommended to start. Was
Was told I have Mantel Cell Lymphoma, Marginal Zone Lymphoma, AND Atypical CLL, all at the same time. They missed it for two years. Numerous sinus infections was reason for testing, and now a few months of detailed testing, CT scans etc. Next week will know treatment if recommended to start. Was
lsutigers2018
in
CLL Support
6 years ago
What are B-symptoms?
A cross post from Shar0n (Volunteer on Non Hodgkins Lymphoma Friends) https://healthunlocked.com/non-hodgkins-friends/posts/138634747/what-are-b-symptoms?uid=4bbb5369-5fe0-4deb-9832-94389677b246&utm_source=notification&utm_medium=email&utm_campaign=email_individual What are B Symptoms? This is a good
A cross post from Shar0n (Volunteer on Non Hodgkins Lymphoma Friends) https://healthunlocked.com/non-hodgkins-friends/posts/138634747/what-are-b-symptoms?uid=4bbb5369-5fe0-4deb-9832-94389677b246&utm_source=notification&utm_medium=email&utm_campaign=email_individual What are B Symptoms? This is a good
lankisterguy
Volunteer
in
CLL Support
6 years ago
Health Check: should I take vitamin C or other supplements for my cold?
Study evidence for the effectiveness of Vitamin C, Zinc, Garlic, Probiotics, Echinacea and ....... Chicken Soup in reducing the incidence or recovery time for a cold is collated in this article by Clare Collins, Professor in Nutrition and Dietetics, University of Newcastle. Some interesting findings
Study evidence for the effectiveness of Vitamin C, Zinc, Garlic, Probiotics, Echinacea and ....... Chicken Soup in reducing the incidence or recovery time for a cold is collated in this article by Clare Collins, Professor in Nutrition and Dietetics, University of Newcastle. Some interesting findings
AussieNeil
Partner
in
CLL Support
6 years ago
Stories From SickleCellNews Online
My life as a hooligan with sickle cell anaemia http://bit.ly/2BEPwCv I live with sickle cell anaemia – I have no wish to pass on this disease to the next generation (Lakeia Baily PHD, Director, Sickle Cell Consortium) http://bit.ly/2N2CRdP Red Alert: 60 million Nigerians have sickle cell trait http
My life as a hooligan with sickle cell anaemia http://bit.ly/2BEPwCv I live with sickle cell anaemia – I have no wish to pass on this disease to the next generation (Lakeia Baily PHD, Director, Sickle Cell Consortium) http://bit.ly/2N2CRdP Red Alert: 60 million Nigerians have sickle cell trait http
sicklecellnews
in
Sickle Cell Society
6 years ago
Relapsed DLBCL
Hi everyone. I have been well since finishing my treatment for DLBCL in Sept 2016 which was 6 cycles of R chop. Pet/ct scan in November 2016 gave me the all clear. Now after having a lump removed from my shoulder it has shown traces of high grade Lymphoma although it has presented differently from the
Hi everyone. I have been well since finishing my treatment for DLBCL in Sept 2016 which was 6 cycles of R chop. Pet/ct scan in November 2016 gave me the all clear. Now after having a lump removed from my shoulder it has shown traces of high grade Lymphoma although it has presented differently from the
Clementslr
in
Non Hodgkin's Lymphoma Friends
6 years ago
T Cell treatment
Hi, my good friend, who had bowel cancer ten years ago, was unfortunately diagnosed with ALL about six months ago. He was in remission following chemo, then had stem cell transplant. About a month afterwards things went pear shaped quickly. The leukaemia was back with a vengeance! He is now having T
Hi, my good friend, who had bowel cancer ten years ago, was unfortunately diagnosed with ALL about six months ago. He was in remission following chemo, then had stem cell transplant. About a month afterwards things went pear shaped quickly. The leukaemia was back with a vengeance! He is now having T
Marilyn1959
in
Leukaemia Support
6 years ago
Advice if possible please
Hi all Sorry for the long post! I’ve posted a couple of times in the PA forum as have been having blood tests relating to low B12 as had a borderline serum result 192 (181-800) and range of symptoms pointing towards this - tingling and numbness in hands and feet, occasional tingling in head and back
Hi all Sorry for the long post! I’ve posted a couple of times in the PA forum as have been having blood tests relating to low B12 as had a borderline serum result 192 (181-800) and range of symptoms pointing towards this - tingling and numbness in hands and feet, occasional tingling in head and back
Scully12
in
Thyroid UK
6 years ago
A remembrance of P.C. Venkat - plus
Not CLL specific but relevant. https://meetinglibrary.asco.org/record/161582/abstract Circulating tumor DNA to predict timing of relapse in
mantle
cell
lymphoma
. https://meetinglibrary.asco.org/record/162292/abstract A salute to the considerable progress in treatment efficacy and safety in the ten years
Not CLL specific but relevant. https://meetinglibrary.asco.org/record/161582/abstract Circulating tumor DNA to predict timing of relapse in
mantle
cell
lymphoma
. https://meetinglibrary.asco.org/record/162292/abstract A salute to the considerable progress in treatment efficacy and safety in the ten years
ThreeWs
in
CLL Support
6 years ago
Immunotherapy
" for leukemia, breast, lung, cervical, colon and rectal cancer, as well as the serious skin cancer known as melanoma, immunotherapy and other personalized treatments are making progress "slowly but surely," Medical Express https://medicalxpress.com/news/2018-07-toxic-tools-cancer.html
" for leukemia, breast, lung, cervical, colon and rectal cancer, as well as the serious skin cancer known as melanoma, immunotherapy and other personalized treatments are making progress "slowly but surely," Medical Express https://medicalxpress.com/news/2018-07-toxic-tools-cancer.html
Shar0n
Volunteer
in
Non Hodgkin's Lymphoma Friends
6 years ago
Recent SLL/CLL Patient Question
Hello. I found out I have SLL/CLL earlier this year at 31. I had Rituxan treatment shortly after since I have neutropenia I can't seem to shake. I will save this for another post. My lymph nodes are visible but not huge yet. Since I have 11q I have read it can become a bulky disease. Not sure if they
Hello. I found out I have SLL/CLL earlier this year at 31. I had Rituxan treatment shortly after since I have neutropenia I can't seem to shake. I will save this for another post. My lymph nodes are visible but not huge yet. Since I have 11q I have read it can become a bulky disease. Not sure if they
DriedSeaweed
in
CLL Support
6 years ago
Lymphoma Research Foundation - LRF@lymphoma.org - USA - from Ask the Doctor evening dinner programs to 2.5 day Educational Forums
For our USA members, the CLL Society Alerts & site https://cllsociety.org/upcoming-cll-patient-education-programs/ often include notices of upcoming LRF ( Lymphoma Research Foundation ) and LLS ( Leukemia & Lymphoma Society ) events. There are some interesting opportunities recently announced
For our USA members, the CLL Society Alerts & site https://cllsociety.org/upcoming-cll-patient-education-programs/ often include notices of upcoming LRF ( Lymphoma Research Foundation ) and LLS ( Leukemia & Lymphoma Society ) events. There are some interesting opportunities recently announced
lankisterguy
Volunteer
in
CLL Support
6 years ago
The Changing Landscape of Lymphoma - National Conference - VANCOUVER, BC - Saturday, September 15, 2018
The Changing Landscape of Lymphoma National Conference - VANCOUVER, BC https://mailchi.mp/lymphoma/sance-dducation-sur-le-lymphome-ville-de-qubec-2555481?e=7b399e8498 Lymphoma Canada invites you to attend the second annual national conference on lymphoma featuring specialists from across Canada.
The Changing Landscape of Lymphoma National Conference - VANCOUVER, BC https://mailchi.mp/lymphoma/sance-dducation-sur-le-lymphome-ville-de-qubec-2555481?e=7b399e8498 Lymphoma Canada invites you to attend the second annual national conference on lymphoma featuring specialists from across Canada.
lankisterguy
Volunteer
in
CLL Support
6 years ago
Very poorly newbie - Desperate for help
Hello everyone... I've been meaning to post on here for a long time but get extremely overwhelmed and have so much that has happened/is happening that I don't know where to start, trying to gather all the information and put it in to words with declining cognitive impairment and extreme fatigue is so
Hello everyone... I've been meaning to post on here for a long time but get extremely overwhelmed and have so much that has happened/is happening that I don't know where to start, trying to gather all the information and put it in to words with declining cognitive impairment and extreme fatigue is so
Flossles
in
Thyroid UK
6 years ago
monocyte jump
65 year old male, diagnosed 3/12. Watch and wait, monocytes never an issue until last test, jumped from 0.8 to 6.1 in 3 months. WBC 71 and creeping up. Any thoughts? Thanks
65 year old male, diagnosed 3/12. Watch and wait, monocytes never an issue until last test, jumped from 0.8 to 6.1 in 3 months. WBC 71 and creeping up. Any thoughts? Thanks
fishnman
in
CLL Support
6 years ago
PA when IFA and PCA test results are negative
Hi All, I commented on a recent thread that I thought some people had PA even when Intrinsic Factor Antibody test and Parietal Cell Antibody test results were both negative. I speculated that this could be due to an immunoglobulin deficiency leading to inability to produce certain antibodies. I've now
Hi All, I commented on a recent thread that I thought some people had PA even when Intrinsic Factor Antibody test and Parietal Cell Antibody test results were both negative. I speculated that this could be due to an immunoglobulin deficiency leading to inability to produce certain antibodies. I've now
Sleepybunny
in
Pernicious Anaemia Society
6 years ago
Miltion
Hello: I am a 64 year old male. I was diagnosed with Non-Hodgkin's Lymphoma cll in August of 2017. My doctor put me on Improvica. I had some pretty nasty side effects for the first 5 months. I have not had any since early January. My blood work is always good. How long can you live with this? Is there
Hello: I am a 64 year old male. I was diagnosed with Non-Hodgkin's Lymphoma cll in August of 2017. My doctor put me on Improvica. I had some pretty nasty side effects for the first 5 months. I have not had any since early January. My blood work is always good. How long can you live with this? Is there
larry54
in
CLL Support
6 years ago
GCA and tocilizumab withdrawal
Has anyone given up taking tocilizumab (Actemra) and remained in remission or did you get GCA back. Is there a program to reduce injections in stages?
Has anyone given up taking tocilizumab (Actemra) and remained in remission or did you get GCA back. Is there a program to reduce injections in stages?
christine2715
in
PMRGCAuk
6 years ago
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