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Follicular Lymphoma Patient Survey
If you have follicular lymphoma and have been treated with obinituzumab (Gazyva) you can help by completing our survey. Lymphoma Canada is preparing a submission for the panCanadian Oncology Drug Review (pCODR) for: Obinituzumab in combination with chemotherapy, followed by obinutuzumab maintenance
If you have follicular lymphoma and have been treated with obinituzumab (Gazyva) you can help by completing our survey. Lymphoma Canada is preparing a submission for the panCanadian Oncology Drug Review (pCODR) for: Obinituzumab in combination with chemotherapy, followed by obinutuzumab maintenance
LCAdmin
in
Non Hodgkin's Lymphoma Friends
8 years ago
Follicular Lymphoma Patient Survey
If you have follicular lymphoma and have been treated with obinituzumab (Gazyva) you can help by completing our survey. Lymphoma Canada is preparing a submission for the panCanadian Oncology Drug Review (pCODR) for: Obinituzumab in combination with chemotherapy, followed by obinutuzumab maintenance
If you have follicular lymphoma and have been treated with obinituzumab (Gazyva) you can help by completing our survey. Lymphoma Canada is preparing a submission for the panCanadian Oncology Drug Review (pCODR) for: Obinituzumab in combination with chemotherapy, followed by obinutuzumab maintenance
LCAdmin
Lymphoma Canada
in
Lymphoma Canada
8 years ago
Don't know what to do
Hi all need some advice my 15 year old daughter is now attending a hospital school she has not been in full time education for 1half years now she's full time loves it there head has got her on 4 week trail everything was going great until last Tuesday since then couldn't attend going through a bad flare
Hi all need some advice my 15 year old daughter is now attending a hospital school she has not been in full time education for 1half years now she's full time loves it there head has got her on 4 week trail everything was going great until last Tuesday since then couldn't attend going through a bad flare
Hollie121
in
Fibromyalgia Action UK
8 years ago
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Introduction
Hi everyone, my name is Hildegard and I would like to introduce myself. I love to crochet and knit, and I had follicular Non Hodgkins Lymphoma stage 4 since 2004. I did 22 Radiation treatments after surgery to take out my salivary gland out. Then I went to almost 5 years and in 09 it came back it was
Hi everyone, my name is Hildegard and I would like to introduce myself. I love to crochet and knit, and I had follicular Non Hodgkins Lymphoma stage 4 since 2004. I did 22 Radiation treatments after surgery to take out my salivary gland out. Then I went to almost 5 years and in 09 it came back it was
hildegard1921
in
Non Hodgkin's Lymphoma Friends
8 years ago
New to group, but old to DLBCL NHL
Hi, my name is Felicia. I was diagnosed at 24 yrs ago when I was 28 with Stage 1b DLBCL NHL. I had a football size encapsulated tumor in my chest cavity. I had 6 months of PROMACE CYTOBOM, (they don't even use that regiment anymore) & 4 wks of radiation. I was fine for 23 yrs. In Feb 2015, I found
Hi, my name is Felicia. I was diagnosed at 24 yrs ago when I was 28 with Stage 1b DLBCL NHL. I had a football size encapsulated tumor in my chest cavity. I had 6 months of PROMACE CYTOBOM, (they don't even use that regiment anymore) & 4 wks of radiation. I was fine for 23 yrs. In Feb 2015, I found
fwhip14
in
Non Hodgkin's Lymphoma Friends
8 years ago
Aggressive Follicular Lymphoma Now In NIH CAR-T Clinical Trial
In 2011 my 64 year old (at that time) wife was diagnosed with follicular lymphoma. She relapsed within 4 months of R-CHOP (6 cycles) and within 2 months of bendamustine/rituximab/velcade (6 cycles). This is when her oncologist said she had an aggressive form of follicular lymphoma. Next she was in a
In 2011 my 64 year old (at that time) wife was diagnosed with follicular lymphoma. She relapsed within 4 months of R-CHOP (6 cycles) and within 2 months of bendamustine/rituximab/velcade (6 cycles). This is when her oncologist said she had an aggressive form of follicular lymphoma. Next she was in a
wmay13241
in
Non Hodgkin's Lymphoma Friends
8 years ago
World Lymphoma Awareness Day
Today is World Lymphoma Awareness Day: Every 3 minutes someone is diagnosed with a Blood Cancer in the USA.
Today is World Lymphoma Awareness Day: Every 3 minutes someone is diagnosed with a Blood Cancer in the USA.
bkoffman
CLL CURE Hero
in
CLL Support
8 years ago
Going to oncologist
Hey, everyone. I am seeing an oncologist Friday because I think I may have lymphoma? And it pangs me to even mention that. :/ basically, a few months ago, I started feeling very sick and very fatigued. Around the same time some red patches appeared on my left arm and left shoulder, which looked like
Hey, everyone. I am seeing an oncologist Friday because I think I may have lymphoma? And it pangs me to even mention that. :/ basically, a few months ago, I started feeling very sick and very fatigued. Around the same time some red patches appeared on my left arm and left shoulder, which looked like
Michhy
in
Lymphoma Canada
8 years ago
My cancer experience
Cerous uterine cancer surgery February 2016. Chemo/radiation completed the end of June 2016. Clear of cancer as of September 2016.
Cerous uterine cancer surgery February 2016. Chemo/radiation completed the end of June 2016. Clear of cancer as of September 2016.
GrandmaG
in
Pain Concern
8 years ago
watch & wait - immunizations....how long to treatment ?
Hello, I was dx in Jan this year and am still on W & W. My ALC in July was at 9.5, WBC.. 16 down from 19 at dx.... ANC..5.7 HGB...15...PLT .... 201 RBC .... 4.76 all seem to be stable for now. I want to stay healthy especially with my 3 kids still in school, lots of germs coming into my home. What
Hello, I was dx in Jan this year and am still on W & W. My ALC in July was at 9.5, WBC.. 16 down from 19 at dx.... ANC..5.7 HGB...15...PLT .... 201 RBC .... 4.76 all seem to be stable for now. I want to stay healthy especially with my 3 kids still in school, lots of germs coming into my home. What
garrick66
in
CLL Support
8 years ago
CNS Lymphoma awareness
I'm new here. Would be interested in connecting with those who,also have secondary CNS lymphoma I am in remission from DLBC NHL but was unaware that it could cross the blood brain barrier into central nervous system. My bio tells the somewhat scary story. Jennifer
I'm new here. Would be interested in connecting with those who,also have secondary CNS lymphoma I am in remission from DLBC NHL but was unaware that it could cross the blood brain barrier into central nervous system. My bio tells the somewhat scary story. Jennifer
Jennchap1
in
Non Hodgkin's Lymphoma Friends
8 years ago
Vaginitis and SLE
Hi my friends I do have some problems in my vagina but now I have sever pain and imflammation in my vagina and when I urient I feel remain some urien in my uletra I went to GP he said it doesn't about urinary system it's refer trichomonas vaginitis and take me Metronidazole but I don't know if this pill
Hi my friends I do have some problems in my vagina but now I have sever pain and imflammation in my vagina and when I urient I feel remain some urien in my uletra I went to GP he said it doesn't about urinary system it's refer trichomonas vaginitis and take me Metronidazole but I don't know if this pill
asma1364
in
LUPUS UK
8 years ago
Adding additional chemo
I am being treated for CLL for the second time after being in remission for 9 years...which is a blessing. I am currently taking oral Imbruvica... My most recent bone marrow biopsy showed little change after 3 months. If there is still no change in November, my Oncologist will add either .bendamustine
I am being treated for CLL for the second time after being in remission for 9 years...which is a blessing. I am currently taking oral Imbruvica... My most recent bone marrow biopsy showed little change after 3 months. If there is still no change in November, my Oncologist will add either .bendamustine
lyn26041
in
CLL Support
8 years ago
4 weeks post FCR
Hi All, been a tough last 10days, 2 hospital visits with one of them an overnight stay. Temperature has been spiking at 39 and still continues to do so. Doctors are pretty convinced its a virus as the blood results and cultures don't show an infection, and that it will eventually clear. In with the Prof
Hi All, been a tough last 10days, 2 hospital visits with one of them an overnight stay. Temperature has been spiking at 39 and still continues to do so. Doctors are pretty convinced its a virus as the blood results and cultures don't show an infection, and that it will eventually clear. In with the Prof
jackhammer
in
CLL Support
8 years ago
Can Maintenance Trastuzumab be taken during Radiotherapy?
My wife is going under chemotherapy after mastectomy of her left breast (On 26/12/2015). Cancer was T2N2G2, ER/PR negative & HER2 positive. 3 weekly ECx4 & weekly Taxol + Trastuzumab has been completed. Now doctor advice for 25 days Radiotherapy & 3 weekly maintenance Trastuzumab for next 9 months.
My wife is going under chemotherapy after mastectomy of her left breast (On 26/12/2015). Cancer was T2N2G2, ER/PR negative & HER2 positive. 3 weekly ECx4 & weekly Taxol + Trastuzumab has been completed. Now doctor advice for 25 days Radiotherapy & 3 weekly maintenance Trastuzumab for next 9 months.
shashishekhar
in
Breast Cancer India
8 years ago
Confused about Lymphoma
I was in a car accident coming up to 3 months ago, a few days later I woke up and my vision was blurry. I went to the opticians and then the hospital who told me my eyes were absolutely fine but my vision was drastically deteriating due to abnormalities in the brain. There was no sign of trauma so the
I was in a car accident coming up to 3 months ago, a few days later I woke up and my vision was blurry. I went to the opticians and then the hospital who told me my eyes were absolutely fine but my vision was drastically deteriating due to abnormalities in the brain. There was no sign of trauma so the
HANNAHEWEBB
in
LSN
8 years ago
Lymphoma
I was in a car accident coming up to 3 months ago, a few days later I woke up and my vision was blurry. I went to the opticians and then the hospital who told me my eyes were absolutely fine but my vision was drastically deteriating due to abnormalities in the brain. There was no sign of trauma so the
I was in a car accident coming up to 3 months ago, a few days later I woke up and my vision was blurry. I went to the opticians and then the hospital who told me my eyes were absolutely fine but my vision was drastically deteriating due to abnormalities in the brain. There was no sign of trauma so the
HANNAHEWEBB
in
CLL Support
8 years ago
High Lymphocyte levels
I made the big mistake of googling what they were and did and all that came up were different kinds of
Lymphomas
and cancers. since then i have found that it could be due to my Thyroid but surely it would of been noticed earlier (that my Lymphs were high and then monitored) and my thyroid levels are
I made the big mistake of googling what they were and did and all that came up were different kinds of
Lymphomas
and cancers. since then i have found that it could be due to my Thyroid but surely it would of been noticed earlier (that my Lymphs were high and then monitored) and my thyroid levels are
nikki2975
in
Thyroid UK
8 years ago
Share Your Thoughts on Clinical Trials- Take Our Survey
Patient Power’s Andrew Schorr will be speaking again before another major audience – this time in Boston on July 21st to heads of research at pharmaceutical companies and government officials. They know clinical trial participation is very low and they want to hear from patients on how they can help
Patient Power’s Andrew Schorr will be speaking again before another major audience – this time in Boston on July 21st to heads of research at pharmaceutical companies and government officials. They know clinical trial participation is very low and they want to hear from patients on how they can help
tclementi
in
CLL Support
8 years ago
Ibrutinib/Imbruvica brings hope to stem cell transplant patients with chronic graft-versus-host-disease
[i]'FDA granted a fourth Breakthrough Therapy Designation (BTD) for ibrutinib (IMBRUVICA®) as a potential treatment of chronic graft-versus-host-disease (cGVHD) after failure of one or more lines of systemic therapy. The FDA also granted the therapy Orphan Drug Designation for the condition. cGVHD is
[i]'FDA granted a fourth Breakthrough Therapy Designation (BTD) for ibrutinib (IMBRUVICA®) as a potential treatment of chronic graft-versus-host-disease (cGVHD) after failure of one or more lines of systemic therapy. The FDA also granted the therapy Orphan Drug Designation for the condition. cGVHD is
AussieNeil
Administrator
in
CLL Support
8 years ago
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