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New to group
Hi I have just discovered this group and for my first post I though I would post my heart problems story. Last year I was diagnosed with Dilated Cardiomyopathy and had a severe case of heart failure. I had just turned 38 at the time. I had a bad case of flu for a few weeks before the diagnosis. All
Hi I have just discovered this group and for my first post I though I would post my heart problems story. Last year I was diagnosed with Dilated Cardiomyopathy and had a severe case of heart failure. I had just turned 38 at the time. I had a bad case of flu for a few weeks before the diagnosis. All
HarryJK
in
British Heart Foundation
4 years ago
A fascinating podcast on the history and current state of stem cell regeneration.
Did you know humans make around 2 1/2 million red blood cells a second? Did you know the only the stem cell transplant that can currently be done is a bone marrow one? Did you know, at a guess, there have been something like 2 million bone marrow transplants to date. I came across this episode in the
Did you know humans make around 2 1/2 million red blood cells a second? Did you know the only the stem cell transplant that can currently be done is a bone marrow one? Did you know, at a guess, there have been something like 2 million bone marrow transplants to date. I came across this episode in the
Magentas
in
MPN Voice
3 years ago
Netflix - “The Surgeons Cut”
Anyone who has Netflix may have seen this American documentary entitled, “The Surgeons Cut”. Those who are interested in this type of thing, maybe interested in episode 3 of the series. Called, “Living Donor”. Dr Nancy Ascher has devoted her career to organ transplants and transplant research. The first
Anyone who has Netflix may have seen this American documentary entitled, “The Surgeons Cut”. Those who are interested in this type of thing, maybe interested in episode 3 of the series. Called, “Living Donor”. Dr Nancy Ascher has devoted her career to organ transplants and transplant research. The first
Richard-Allen
in
British Liver Trust
4 years ago
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Stem cell transplant saved me
I had stage 4 started with rituxin and bendamustine chemo relapsed had RChop it didn’t work had stem cell transplant have been in remission for 7 years do it!
I had stage 4 started with rituxin and bendamustine chemo relapsed had RChop it didn’t work had stem cell transplant have been in remission for 7 years do it!
patricih
in
Non Hodgkin's Lymphoma Friends
3 years ago
FDA Updates Approval for Lobrena to First Line Treatment for Advanced NSCLC Patients with Changes in ALK
On March 3rd, 2021, the Food and Drug Administration (FDA) approved Lobrena (lorlatinib) for the first line treatment of non-small cell lung cancer (NSCLC) which has spread outside of the lungs that has a change in ALK identified by an FDA approved test. The FDA based their approval on the results of
On March 3rd, 2021, the Food and Drug Administration (FDA) approved Lobrena (lorlatinib) for the first line treatment of non-small cell lung cancer (NSCLC) which has spread outside of the lungs that has a change in ALK identified by an FDA approved test. The FDA based their approval on the results of
Miranda_GO2
Partner
in
Lung Cancer Support
4 years ago
Seeking information & support re Pancoast Tumour.
I am a newbie and am wondering if there might be others out there in the same position? I have recently been diagnosed with a Pancoast tumour in my right lung. Biopsies & tests have shown the staging to be T4 N2. I have been told that this is non-operable and can only be treated on a palliative basis
I am a newbie and am wondering if there might be others out there in the same position? I have recently been diagnosed with a Pancoast tumour in my right lung. Biopsies & tests have shown the staging to be T4 N2. I have been told that this is non-operable and can only be treated on a palliative basis
Jillyjonks
in
Lung Cancer Support
4 years ago
No Antibody response first dose for Autoimmune R A patients
Very anxious now regarding the vaccine they gave said there is no evidence that Ra patients will have some or any antibody response to the vaccine , had Pfizer 7 wks ago and my instincts told me to be worried about leaving the second for 12 weeks for CEV people immunsurpressed auto immune kidney transplant
Very anxious now regarding the vaccine they gave said there is no evidence that Ra patients will have some or any antibody response to the vaccine , had Pfizer 7 wks ago and my instincts told me to be worried about leaving the second for 12 weeks for CEV people immunsurpressed auto immune kidney transplant
trace58
in
NRAS
4 years ago
Bubbles or foam in urine.
Hi, I hope everyone is doing well. I had my kidney transplant about 5 months ago. My urine has always foam or bubbles (I'm not sure) in there. There is also no protein in my urine. My doctor's told me the only way there will be foam in my urine is when there is protein in it. They too find it unusually
Hi, I hope everyone is doing well. I had my kidney transplant about 5 months ago. My urine has always foam or bubbles (I'm not sure) in there. There is also no protein in my urine. My doctor's told me the only way there will be foam in my urine is when there is protein in it. They too find it unusually
K___B
in
Kidney Disease
4 years ago
New member trying to get their head round things !
I’ve just found out I’m on the
lung
transplant
list. Feeling a little overwhelmed by it all and would love to find out more from others in similar circumstances any coping mechanisms.
I’ve just found out I’m on the
lung
transplant
list. Feeling a little overwhelmed by it all and would love to find out more from others in similar circumstances any coping mechanisms.
Lucky2050
in
National Foundation for Transplants
4 years ago
TRAVELLING ABROAD, POST LIVER TRANSPLANT.
Hello there everyone. I was wondering if anyone has had any experience with health insurance while travelling to America and other places where insurance is extremely expensive and sometimes extortionately so. I received a list of recommended providers from the administrators on here but I seemed to
Hello there everyone. I was wondering if anyone has had any experience with health insurance while travelling to America and other places where insurance is extremely expensive and sometimes extortionately so. I received a list of recommended providers from the administrators on here but I seemed to
Hidden
in
British Liver Trust
4 years ago
After 2nd Vaccine Antibodies
As a kidney transplant In the USA, whose responsibility is it to test me to find out if my body has made antibodies after the second covid vaccine? Also, how long do I have to wait to be tested for antibodies?
As a kidney transplant In the USA, whose responsibility is it to test me to find out if my body has made antibodies after the second covid vaccine? Also, how long do I have to wait to be tested for antibodies?
Hidden
in
Kidney Transplant
4 years ago
Dad diagnosed with stage 4 small cell
Hi everyone My dad has recently been diagnosed with stage 4 small cell lung cancer. He has an 11.5cm tumour in his lung. so far we know the cancer has spread to the lymph nodes and the liver. He is not very well he has lost his voice, doesn’t have much appetite, can’t walk very far. He is either in bed
Hi everyone My dad has recently been diagnosed with stage 4 small cell lung cancer. He has an 11.5cm tumour in his lung. so far we know the cancer has spread to the lymph nodes and the liver. He is not very well he has lost his voice, doesn’t have much appetite, can’t walk very far. He is either in bed
LouG83
in
The Roy Castle Lung Cancer Foundation
4 years ago
coping with anxiety and depression due to a child needing a kidney transplant
Anyone have a child awaiting kidney transplant? How do you deal or cope with all the emotions, not to mention anxiety and depression? Our 12 year old needs a kidney and my husband is not a match. I am a blood type match however, I have scar tissue on my kidneys from many many infections and I am over
Anyone have a child awaiting kidney transplant? How do you deal or cope with all the emotions, not to mention anxiety and depression? Our 12 year old needs a kidney and my husband is not a match. I am a blood type match however, I have scar tissue on my kidneys from many many infections and I am over
Crissylately
in
Parents of Children with Kidney Disease
4 years ago
Help make a drug to treat GvHD available to patients
You can help make a drug to treat GvHD available to patients in Canada, regardless of where you live. CLL Canada, along with an alliance of 8 other blood cancer organizations, is preparing patient input submissions for the Canadian Agency for Drugs and Technologies (CADTH) and Institut national d'excellence
You can help make a drug to treat GvHD available to patients in Canada, regardless of where you live. CLL Canada, along with an alliance of 8 other blood cancer organizations, is preparing patient input submissions for the Canadian Agency for Drugs and Technologies (CADTH) and Institut national d'excellence
CLL_Canada_Group
in
CLL Support
3 years ago
Post Lobectomy
Hi all, I had a right lower open surgery lobectomy last July and fortunately advised they removed the mass completely and no further treatment required. It was found to be non-small-cell lung cancer – squamous cell carcinoma. I have since had several scans due to chest infections and a cough which does
Hi all, I had a right lower open surgery lobectomy last July and fortunately advised they removed the mass completely and no further treatment required. It was found to be non-small-cell lung cancer – squamous cell carcinoma. I have since had several scans due to chest infections and a cough which does
GillBo
in
The Roy Castle Lung Cancer Foundation
4 years ago
Lung cancer cells have differential signaling responses to KRAS inhibitor treatment.
Genetic alterations of the KRAS gene are some of the most common mutations in lung cancer patients, but unfortunately these patients have few effective treatment options. Drugs that target the G12C mutation in KRAS have shown some activity in lung cancer; however, alternative signaling pathways are often
Genetic alterations of the KRAS gene are some of the most common mutations in lung cancer patients, but unfortunately these patients have few effective treatment options. Drugs that target the G12C mutation in KRAS have shown some activity in lung cancer; however, alternative signaling pathways are often
2greys
in
Lung Conditions Community Forum
4 years ago
Lung transplantation for patients with severe COVID-19
Case studies and autopsy results are confirming that, in some cases, COVID-19 can cause such severe
lung
damage that patients require a
lung
transplant
to survive.
Case studies and autopsy results are confirming that, in some cases, COVID-19 can cause such severe
lung
damage that patients require a
lung
transplant
to survive.
2greys
in
Lung Conditions Community Forum
4 years ago
Auto Stem Cell transplant?
Hi, Curious to know if anyone out there has had R-chop, then relapsed and the next line of treatment recommended was SCT? I've been battling Marginal Zone lymphoma (2016), transformed to DLBCL (2018) and now it's back again. The auto process sounds very scary (dangerous), and with a 30-50% success rate
Hi, Curious to know if anyone out there has had R-chop, then relapsed and the next line of treatment recommended was SCT? I've been battling Marginal Zone lymphoma (2016), transformed to DLBCL (2018) and now it's back again. The auto process sounds very scary (dangerous), and with a 30-50% success rate
skinkade
in
Non Hodgkin's Lymphoma Friends
3 years ago
Thriving with Congestive Heart Failure and a Left Ventricular Assist Device as I await a Heart Transplant.
Hi all- I am a retired dental surgeon with Congestive Heart Failure. I currently have a Left Ventricular Assist Device and am hoping for a call for a heart transplant in the next few weeks. I will be glad to share my experiences over the past twenty years with any of you. I have had 2 aortic valve replacement
Hi all- I am a retired dental surgeon with Congestive Heart Failure. I currently have a Left Ventricular Assist Device and am hoping for a call for a heart transplant in the next few weeks. I will be glad to share my experiences over the past twenty years with any of you. I have had 2 aortic valve replacement
Hidden
in
British Heart Foundation
4 years ago
Ongoing liver assessment stress
Over the last few weeks my husband has been assessed on an outpatient basis to see whether he's suitable for a liver transplant. His last test was this week on Wednesday when he had to do a treadmill test to see how fit his heart is. Just by chance we were looking at his medical record on line and
Over the last few weeks my husband has been assessed on an outpatient basis to see whether he's suitable for a liver transplant. His last test was this week on Wednesday when he had to do a treadmill test to see how fit his heart is. Just by chance we were looking at his medical record on line and
Corrine1
in
British Liver Trust
4 years ago
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