Search
Search
About
Log in
Join
Experiences with
Lung transplant
Posts
Communities
4,727 public posts
Filter results
recurring aceties
my son has decompensated cirrhosis and goes to a hospice once a week to get fluid drained - he has a permanent drain fitted . He is getting worried as the last three weeks they’ve drained 5. 7. Then 8 litres. Does this mean his liver is getting worse ? I’ve read that a TIPS procedure could help -
my son has decompensated cirrhosis and goes to a hospice once a week to get fluid drained - he has a permanent drain fitted . He is getting worried as the last three weeks they’ve drained 5. 7. Then 8 litres. Does this mean his liver is getting worse ? I’ve read that a TIPS procedure could help -
Mango5cm
in
British Liver Trust
2 years ago
Join Us! Tuesday, October 11th, Gathering HOPE, a Social Hour
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social Hour hosted now on our ZOOM link this coming Tuesday, October 11th, at 5pm
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social Hour hosted now on our ZOOM link this coming Tuesday, October 11th, at 5pm
Michelezeh
Partner
in
Lung Cancer Support
2 years ago
Desperate for answers
Husband still have mental issues after 6 months from having a kidney transplant. His personality go from one extreme to the next and he makes a strange humming noise and he says he cannot stop it and does not have any control over his moods and believe me he can be very unbearable at times. He has
Husband still have mental issues after 6 months from having a kidney transplant. His personality go from one extreme to the next and he makes a strange humming noise and he says he cannot stop it and does not have any control over his moods and believe me he can be very unbearable at times. He has
Hairme
in
Kidney Transplant
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
alvesco
hi has anyone used a preventer inhaler called Alvesco is it any good. I have tried quite a few different inhalers recently a few of them have serevent in them that doesn’t suit me it tightens my chest immediately. Just looking for one that I haven’t tried.
hi has anyone used a preventer inhaler called Alvesco is it any good. I have tried quite a few different inhalers recently a few of them have serevent in them that doesn’t suit me it tightens my chest immediately. Just looking for one that I haven’t tried.
Hol21
in
Lung Conditions Community Forum
2 years ago
4th shots of Pfizer, Moderna vaccines provide near equal protection — Israeli study
Sheba-led research team says that 6 months after boosters, ‘antibody levels and cumulative vaccine efficacy do not differ between the two vaccines’
NATHAN JEFFAY Booster shots developed by Pfizer and Moderna provide near equal protection against COVID-19, according to Israeli research.
Sheba-led research team says that 6 months after boosters, ‘antibody levels and cumulative vaccine efficacy do not differ between the two vaccines’
NATHAN JEFFAY Booster shots developed by Pfizer and Moderna provide near equal protection against COVID-19, according to Israeli research.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
CLL Society interview - Dr. Shahzad Mustafa on What it Means to be Immunocompromised for Patients with CLL/SLL January 13, 2023
Dr. Shahzad Mustafa on What it Means to be Immunocompromised for Patients with CLL/SLL January 13, 2023 https://cllsociety.org/2023/01/dr-shahzad-mustafa-on-what-it-means-to-be-immunocompromised-for-patients-with-cll-sll/ https://youtu.be/DSOKTmffc-s - In this interview, Dr. Brian Koffman spoke
Dr. Shahzad Mustafa on What it Means to be Immunocompromised for Patients with CLL/SLL January 13, 2023 https://cllsociety.org/2023/01/dr-shahzad-mustafa-on-what-it-means-to-be-immunocompromised-for-patients-with-cll-sll/ https://youtu.be/DSOKTmffc-s - In this interview, Dr. Brian Koffman spoke
lankisterguy
Volunteer
in
CLL Support
2 years ago
Liver Transplant consent letter & liver types
hi, my partner has just been accepted onto the transplant list with a UKELD of 56 and blood group A (this is relevant as have been told the wait for this group is shorter). He has just had the consent form and agonised for ages over which boxes to tick in terms of what livers to accept. It seems so ungrateful
hi, my partner has just been accepted onto the transplant list with a UKELD of 56 and blood group A (this is relevant as have been told the wait for this group is shorter). He has just had the consent form and agonised for ages over which boxes to tick in terms of what livers to accept. It seems so ungrateful
Rshc
in
British Liver Trust
2 years ago
Advice needed
I had kidney transplant 3 months ago and it has been a living hell.I have ibs to begin with and for three months my intestines have been getting destroyed from meds.I have chronic watery diarrhea to the point that i cant leave my home for more then 2 hours and if i do i need to have a bathroom close
I had kidney transplant 3 months ago and it has been a living hell.I have ibs to begin with and for three months my intestines have been getting destroyed from meds.I have chronic watery diarrhea to the point that i cant leave my home for more then 2 hours and if i do i need to have a bathroom close
Parkerbarker
in
Kidney Transplant
2 years ago
MRI QUESTION
I had a kidney transplant in 1978 and it failed in 32 days. I was put on hemo with fistula access and mesh graft access. I also was on peritoneal dialysis first and for a short time while hospitalized. In 1982 I had another kidney transplant. At the time of discharge from the hospital I was given a
I had a kidney transplant in 1978 and it failed in 32 days. I was put on hemo with fistula access and mesh graft access. I also was on peritoneal dialysis first and for a short time while hospitalized. In 1982 I had another kidney transplant. At the time of discharge from the hospital I was given a
Hidden
in
Kidney Transplant
2 years ago
help with changing hospitals
hi, I’ve been listed for liver transplant in Birmingham. I’m currently being treated for cancer in Liverpool Aintree. They have made so many mistakes it’s unbelievable… They didn’t do bloods for hepatitis and after 16 months of cancer Birmingham discover this is the primary cause. They ruptured
hi, I’ve been listed for liver transplant in Birmingham. I’m currently being treated for cancer in Liverpool Aintree. They have made so many mistakes it’s unbelievable… They didn’t do bloods for hepatitis and after 16 months of cancer Birmingham discover this is the primary cause. They ruptured
Zechariah123
in
British Liver Trust
2 years ago
DLA renewal
Hi wondering if anyone has had a successful DLA claim for their child post liver transplant? Daughter was born with Biliary atresia and had a liver transplant a year and a half ago.
Hi wondering if anyone has had a successful DLA claim for their child post liver transplant? Daughter was born with Biliary atresia and had a liver transplant a year and a half ago.
Ducks123
in
Children's Liver Disease Foundation
2 years ago
Preparations afoot for my stem cell transplant
I've finally got dates for my sct. I have a CT scan next week in preparation for radiotherapy to shrink my spleen . That will be followed by 6 days of radiotherapy as an out patient then 24 Jan I get admitted and start chemo. Donor cells getting infused a few days later. I knew all along this was going
I've finally got dates for my sct. I have a CT scan next week in preparation for radiotherapy to shrink my spleen . That will be followed by 6 days of radiotherapy as an out patient then 24 Jan I get admitted and start chemo. Donor cells getting infused a few days later. I knew all along this was going
Scaredy_cat
in
MPN Voice
2 years ago
Coughing and lung cancer - really frustrating for my Dad ..
hi , my DaD , who has Stage 4, has been ccughing quite a bit in the last couple of days. He had a pleural water removal a couple of weeks ago and worried this may be building again. Anything you've all found that may alleviate some of the coughing symptoms , that i know he finds really frustrating
hi , my DaD , who has Stage 4, has been ccughing quite a bit in the last couple of days. He had a pleural water removal a couple of weeks ago and worried this may be building again. Anything you've all found that may alleviate some of the coughing symptoms , that i know he finds really frustrating
Vip1
in
The Roy Castle Lung Cancer Foundation
2 years ago
Update on progress with MF and the FEDORA clinical trial
So to recap, I was diagnosed with primary MF in October 2022 and asked to join a new clinical trial called FEDORA. After many tests including a BMB, ultrasound on my abdomen, chest X-ray etc. I started on the pre medication of 400mg/day (in one dose) of Fedratinib in capsule form. This was the first
So to recap, I was diagnosed with primary MF in October 2022 and asked to join a new clinical trial called FEDORA. After many tests including a BMB, ultrasound on my abdomen, chest X-ray etc. I started on the pre medication of 400mg/day (in one dose) of Fedratinib in capsule form. This was the first
Flyingsteamer
in
MPN Voice
2 years ago
Feel like I am waiting for the next tragedy
I am recovering from a bad accident. Every time I go home from the hospital something goes wrong. My lung collapsed twice. I am home again after lung surgery and surgery on some of my broken ribs. Now I am worried the incisions aren’t healing. I am trying to stay positive but the anxiety wins. It has
I am recovering from a bad accident. Every time I go home from the hospital something goes wrong. My lung collapsed twice. I am home again after lung surgery and surgery on some of my broken ribs. Now I am worried the incisions aren’t healing. I am trying to stay positive but the anxiety wins. It has
Raez13
in
Anxiety and Depression Support
2 years ago
Please join us Tuesday September 20th for our Lung Cancer Living Room, Resistance to Targeted Therapy and Immunotherapy. What Happens Next?
Hello, Please join us Tuesday, September 20th, for our Living Room discussion. We will have speaker Dr. David Gandara, from UC Davis Cancer Center. Dr. Gandara will be speaking on "Resistance to Targeted Therapy and Immunotherapy. What Happens Next? ". The conversation will be detailing resistance
Hello, Please join us Tuesday, September 20th, for our Living Room discussion. We will have speaker Dr. David Gandara, from UC Davis Cancer Center. Dr. Gandara will be speaking on "Resistance to Targeted Therapy and Immunotherapy. What Happens Next? ". The conversation will be detailing resistance
Michelezeh
Partner
in
Lung Cancer Support
2 years ago
Looking for information
I had my kidney transplant April, 2019. In the last couple of months I have had issues with being so cold that I need a coat or a heating pad. Then after about half an hour, I am so warm it's almost as if I have a horrible sunburn, especially on my back. Is this from the anti-rejection meds?
I had my kidney transplant April, 2019. In the last couple of months I have had issues with being so cold that I need a coat or a heating pad. Then after about half an hour, I am so warm it's almost as if I have a horrible sunburn, especially on my back. Is this from the anti-rejection meds?
Ynnep
in
Kidney Transplant
2 years ago
Long time on wait list
Hoping to hear from people who waited a long time for a liver transplant. Husband has been on the list for 15 months now, and I'm not sure either of us can stand this much longer. He's been called once, about 3 months ago, so at least they haven't forgotten about him, but it's so hard watching him get
Hoping to hear from people who waited a long time for a liver transplant. Husband has been on the list for 15 months now, and I'm not sure either of us can stand this much longer. He's been called once, about 3 months ago, so at least they haven't forgotten about him, but it's so hard watching him get
Talpa120
in
British Liver Trust
2 years ago
Join Us! Lung Cancer Walk/Runs this Fall
Hi there! My name is Bridget and I'm part of the events team here at GO2 Foundation. I'm excited to share that we have three, in-person walk/runs coming up where you can connect with your local lung cancer community. Participation is free for anyone who has received a lung cancer diagnosis and we'd
Hi there! My name is Bridget and I'm part of the events team here at GO2 Foundation. I'm excited to share that we have three, in-person walk/runs coming up where you can connect with your local lung cancer community. Participation is free for anyone who has received a lung cancer diagnosis and we'd
bpurchGO2
in
Lung Cancer Support
2 years ago
protecting against infection
Since I had my kidney transplant 2 years ago during Covid and I’m over 70 years old,I have had to be particularly careful about getting infections. Now that Covid is subsiding and people are going back to normal, I’m not sure how careful I need to continue to be. Before transplant, I had a robust immune
Since I had my kidney transplant 2 years ago during Covid and I’m over 70 years old,I have had to be particularly careful about getting infections. Now that Covid is subsiding and people are going back to normal, I’m not sure how careful I need to continue to be. Before transplant, I had a robust immune
ProudAmma
in
Kidney Transplant
2 years ago
1
...
30
31
32
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Lung Conditions Community Forum
869 results
British Liver Trust
710 results
The Roy Castle Lung Cancer Foundation
493 results
View top 10 communities
Sort by
Most Relevant
Newest