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Newbie - confused and needing advice
I'm desperately confused and frightened, and looking for advice. Probably quite a long post coming up (sorry). I'm currently 42 and have been pregnant twice in ten years - once with my first boy naturally after three years TTC and again with my second son following an IVF cycle two years ago. I have
I'm desperately confused and frightened, and looking for advice. Probably quite a long post coming up (sorry). I'm currently 42 and have been pregnant twice in ten years - once with my first boy naturally after three years TTC and again with my second son following an IVF cycle two years ago. I have
Anonymoususername2
in
Endometriosis UK
2 years ago
Anagrelid to Interferon and Hashimoto.
I’m seriously thinking of changing from Anagrelid to interferon. I’ve always had heart palpitations from Anagrelide. All doctors to date said no interferon (I have Hashimoto) and no HU ( I have inborn anaemia). When I tried it once, I had nasty neurological side effects. Now I found a new MPN
I’m seriously thinking of changing from Anagrelid to interferon. I’ve always had heart palpitations from Anagrelide. All doctors to date said no interferon (I have Hashimoto) and no HU ( I have inborn anaemia). When I tried it once, I had nasty neurological side effects. Now I found a new MPN
Anag
in
MPN Voice
2 years ago
TT or RAI
HiI have Graves disease - diagnosed 30 Sept 22 with zero TSH and high TRAB count. Carbimazole 40mg less than 3 weeks and neotrophils dropped with slightly raised AST and ALT liver enzymes. Endo told my GP to stop that and go on PTU. One week on only beta blockers then started 400mg PTU. Liver enzymes
HiI have Graves disease - diagnosed 30 Sept 22 with zero TSH and high TRAB count. Carbimazole 40mg less than 3 weeks and neotrophils dropped with slightly raised AST and ALT liver enzymes. Endo told my GP to stop that and go on PTU. One week on only beta blockers then started 400mg PTU. Liver enzymes
MsPeartree
in
Thyroid UK
2 years ago
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lymphocytic colitis
hi there my husband has been recently diagnosed with lymphocytic colitis in his large intestine he’s in chronic pain he’s had tests mri biopsies done and he hardly eats he’s losing weight he has no energy his tummy is hard most days he’s in constant pain can anyone suggest anything to help him he’s been
hi there my husband has been recently diagnosed with lymphocytic colitis in his large intestine he’s in chronic pain he’s had tests mri biopsies done and he hardly eats he’s losing weight he has no energy his tummy is hard most days he’s in constant pain can anyone suggest anything to help him he’s been
Natsteveo
in
Bowel Disease Support
2 years ago
Hashimoto's and CT scan with Iodine Containing Contrast Materials
I had a CT scan in August. No one warned me that this would involve an IV with an Iodine Containing Contrast solution. No one had any idea how this would affect me with regard to thyroid levels. In other words, I encountered the usual apathy with regard to being a thyroid patient and what my needs
I had a CT scan in August. No one warned me that this would involve an IV with an Iodine Containing Contrast solution. No one had any idea how this would affect me with regard to thyroid levels. In other words, I encountered the usual apathy with regard to being a thyroid patient and what my needs
kferrer
in
Thyroid UK
2 years ago
Iron Levels
I am on a reduction program for pramipexole, and it’s going really well. I’m taking gentle iron every other night. I also have some codeine tablets and I take one at bedtime. However I had surgery about eight weeks ago. I had my second full iron panel blood test about four weeks ago. My ferritin levels
I am on a reduction program for pramipexole, and it’s going really well. I’m taking gentle iron every other night. I also have some codeine tablets and I take one at bedtime. However I had surgery about eight weeks ago. I had my second full iron panel blood test about four weeks ago. My ferritin levels
RestlessMe
in
Restless Legs Syndrome
2 years ago
liquid radioactive iodine therapy
hello. I’m booked in at Mount Vernon hospital on November 14th for RAI. I’m totally rubbish at swallowing tablets so they have agreed to give it to me as a liquid. I’m now getting anxious it may be a massive beaker full and May taste disgusting Has anyone else had it this way and if so what was
hello. I’m booked in at Mount Vernon hospital on November 14th for RAI. I’m totally rubbish at swallowing tablets so they have agreed to give it to me as a liquid. I’m now getting anxious it may be a massive beaker full and May taste disgusting Has anyone else had it this way and if so what was
Titch121
in
Thyroid Cancer Support
2 years ago
feeling defeated
I’ve had RLS for a long time and it’s gotten worse over time. So I’ve tried the gamut of drugs from Clonazepam to codeine , Ropinarole, O God that was a nightmare.I’m now on Gabapentin 1500 mg nightly and was on Tramadol 200 nightly till recently when it was switched to hydromorphone 1mg every 4 hrs
I’ve had RLS for a long time and it’s gotten worse over time. So I’ve tried the gamut of drugs from Clonazepam to codeine , Ropinarole, O God that was a nightmare.I’m now on Gabapentin 1500 mg nightly and was on Tramadol 200 nightly till recently when it was switched to hydromorphone 1mg every 4 hrs
Muftah36
in
Restless Legs Syndrome
2 years ago
My PMR and GCA story so far...
I've had GCA twice so far, and I think I'm going down with it again at present. I've had PMR since October 2009, when I began to get a constant and increasingly painful backache after having a very bad case of the flu. The backache soon spread to my shoulders and by the end of 2009, I had to use a
I've had GCA twice so far, and I think I'm going down with it again at present. I've had PMR since October 2009, when I began to get a constant and increasingly painful backache after having a very bad case of the flu. The backache soon spread to my shoulders and by the end of 2009, I had to use a
MiniSpec
in
PMRGCAuk
2 years ago
Toxic poppy seeds are sending people to hospital in Australia. A reminder that dietary supplements are considered as foods, not drugs
If you are using supplements to hopefully manage your CLL, here is an example of why what's natural can make you very ill and why you need to ensure that you obtain your supplements from a reputable source. Along with their use in foods and drinks, poppy seeds are the source of medically important chemicals
If you are using supplements to hopefully manage your CLL, here is an example of why what's natural can make you very ill and why you need to ensure that you obtain your supplements from a reputable source. Along with their use in foods and drinks, poppy seeds are the source of medically important chemicals
AussieNeil
Partner
in
CLL Support
2 years ago
Ashwaganda?
I just saw someone posting on another site that Ashwaganda has really helped their RLS. Does anyone have any thoughts on this please? I currently take Tramadol but only when desperate as I don't really want to be dependent on any drug if I can avoid it. However I have had to appreciate that I am taking
I just saw someone posting on another site that Ashwaganda has really helped their RLS. Does anyone have any thoughts on this please? I currently take Tramadol but only when desperate as I don't really want to be dependent on any drug if I can avoid it. However I have had to appreciate that I am taking
Seaview20
in
Restless Legs Syndrome
2 years ago
Can gabapentin intensify RLS?
I’ve been phasing on to gabapentin since the summer whilst I came off ropinerole (been off ropinerole for 2 months). My gabapentin dose has been at 1800mg for 3 weeks (2pm, 5pm & 8pm on Doc’s suggestion) and during the night I invariably am awake for 2-4 hours with the most intense RLS, worse than before
I’ve been phasing on to gabapentin since the summer whilst I came off ropinerole (been off ropinerole for 2 months). My gabapentin dose has been at 1800mg for 3 weeks (2pm, 5pm & 8pm on Doc’s suggestion) and during the night I invariably am awake for 2-4 hours with the most intense RLS, worse than before
Indigirl99
in
Restless Legs Syndrome
2 years ago
Fed up
Just came back from physiotherapy appointment. Spinal scan clear which is brill. Bloods, high markers being discussed with rheumatologist. Very low vitamin D and folic acid gp being advised to make prescription. After 6 years of random investigation we are back at fibromyalgia, discussion about management
Just came back from physiotherapy appointment. Spinal scan clear which is brill. Bloods, high markers being discussed with rheumatologist. Very low vitamin D and folic acid gp being advised to make prescription. After 6 years of random investigation we are back at fibromyalgia, discussion about management
Coffeemum
in
Fibromyalgia Action UK
2 years ago
Night time Codeine.
Hi - I have been been on prescription 2x30mg Codeine Phosphate for about 18 months (for my RLS). They now do not work as efficiently as when I first started but I absolutely do not want to increase my dose. In fact, I would like to reduce down to 30mg a night. My tablets are so tiny, that it is impossible
Hi - I have been been on prescription 2x30mg Codeine Phosphate for about 18 months (for my RLS). They now do not work as efficiently as when I first started but I absolutely do not want to increase my dose. In fact, I would like to reduce down to 30mg a night. My tablets are so tiny, that it is impossible
coconutty5
in
Restless Legs Syndrome
2 years ago
Post op catheter and bowel movement
I had laparoscopy 5 days ago for excision of endometriosis from the pouch of Douglas and right uterosacral ligament. Unfortunately I was in a lot of pain post op and struggled to get out of the bed alone and ended up with 2L urine retention and went home (after a failed attempt without a catheter) 3
I had laparoscopy 5 days ago for excision of endometriosis from the pouch of Douglas and right uterosacral ligament. Unfortunately I was in a lot of pain post op and struggled to get out of the bed alone and ended up with 2L urine retention and went home (after a failed attempt without a catheter) 3
Saffie123
in
Endometriosis UK
2 years ago
Advice on Medichecks Results Please
Hello, my first time posting! As advised on this forum I stopped Meds 24hrs before test, it was at 9.20 in the morning. The only supplement I take is Colecalciferol 800unit capsules prescribed by GP as at one point I had extremely low vitamin D. I’m on Levothyroxine 100mcg daily (Accord). I was diagnosed
Hello, my first time posting! As advised on this forum I stopped Meds 24hrs before test, it was at 9.20 in the morning. The only supplement I take is Colecalciferol 800unit capsules prescribed by GP as at one point I had extremely low vitamin D. I’m on Levothyroxine 100mcg daily (Accord). I was diagnosed
Grizzermum
in
Thyroid UK
2 years ago
Iodine in yoghurt...and the possibility of it interfering with correct blood test result.
I am dairy free and I have just had my Thyroxine reduced from 125 mg to 100mg. My question is that the Tesco plant based soya plain yoghurt that I normally would have, now has iodine added. One fifth of a pot, my normal consumption, contains 45.0µg iodine. I am due to have a retest to see if the reduction
I am dairy free and I have just had my Thyroxine reduced from 125 mg to 100mg. My question is that the Tesco plant based soya plain yoghurt that I normally would have, now has iodine added. One fifth of a pot, my normal consumption, contains 45.0µg iodine. I am due to have a retest to see if the reduction
Knip
in
Thyroid UK
2 years ago
new to lupus and diagnosis: pain and what to do!
Hello, I have been diagnosed with lupus from a skin rash I get with the sun. However I am currently waiting for a Rheumatology appointment as I have chronic pain in lumbar spin, SI joint, and cervical pain. I am currently in a massive flare and I can’t find comfort. Walking gentle is ok, sitting is agony
Hello, I have been diagnosed with lupus from a skin rash I get with the sun. However I am currently waiting for a Rheumatology appointment as I have chronic pain in lumbar spin, SI joint, and cervical pain. I am currently in a massive flare and I can’t find comfort. Walking gentle is ok, sitting is agony
M0wnt
in
LUPUS UK
2 years ago
Atrophied Kidney
Hi there I had a CT scan of my lower back as I keep getting sharp back pain that is relieved after a bowel movement. No sign of kidney stones I have small scared kidneys and life time uti's (age 49) It says my left kidney is Atrophied. My doctor had said that my kidney function of 66 is fine
Hi there I had a CT scan of my lower back as I keep getting sharp back pain that is relieved after a bowel movement. No sign of kidney stones I have small scared kidneys and life time uti's (age 49) It says my left kidney is Atrophied. My doctor had said that my kidney function of 66 is fine
Hidden
in
Kidney Disease
2 years ago
Chemo side effects and opioid intolerance
Hi all. This is my first post. I was diagnosed with Stage 4 ovarian cancer in September and have just had my first chemo. I have had chronic pains in my legs that normal painkillers haven't touched. I'm opioid intolerant but took codeine an hour after metoclopramide hoping this would work but sadly
Hi all. This is my first post. I was diagnosed with Stage 4 ovarian cancer in September and have just had my first chemo. I have had chronic pains in my legs that normal painkillers haven't touched. I'm opioid intolerant but took codeine an hour after metoclopramide hoping this would work but sadly
Demelzatheseagull
in
My Ovacome
2 years ago
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