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AMA negative but ANA positive
Hi there, I was diagnosed with PBC just over two years ago, which was such a shock to me me as I had no idea about this condition (only visited doctor for a routine check-up 😧!!) Have been on Urso ( 2 years) but my ALP and GGT are still high!! Had biopsy and fibroscan 10.1 Specialist says I am
Hi there, I was diagnosed with PBC just over two years ago, which was such a shock to me me as I had no idea about this condition (only visited doctor for a routine check-up 😧!!) Have been on Urso ( 2 years) but my ALP and GGT are still high!! Had biopsy and fibroscan 10.1 Specialist says I am
Liz_K
in
PBC Foundation
2 years ago
Urso and pain
I have been taking urso now for 6 months. I still get a pain almost daily in my liver area. Sometimes it's a sharp stab that makes jump and other times it's just a dull ache. I wonder to myself when it happens is my liver getting worse and its constantly on my mind. Does this happen to anybody else?
I have been taking urso now for 6 months. I still get a pain almost daily in my liver area. Sometimes it's a sharp stab that makes jump and other times it's just a dull ache. I wonder to myself when it happens is my liver getting worse and its constantly on my mind. Does this happen to anybody else?
Meeru2007
in
PBC Foundation
2 years ago
ELF's
Any thoughts on ELF blood tests v Fibroscan, i want to see if 2 years of good diet, weight loss, no drink etc has made a difference, everytime I get a Fibroscan I am dissappointed as the KPA is going up not down, I just want to try and find out why and thought should I get the advanced Liver blood tests
Any thoughts on ELF blood tests v Fibroscan, i want to see if 2 years of good diet, weight loss, no drink etc has made a difference, everytime I get a Fibroscan I am dissappointed as the KPA is going up not down, I just want to try and find out why and thought should I get the advanced Liver blood tests
Ruggerhead
in
British Liver Trust
2 years ago
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Frustration with appointments
The QE hospital at Birmingham asked for a follow up liver cancer scan this was arranged by my cirrhosis consultant, I had the scan on 1st April saw my cirrhosis consultant on 13th May happy with the cirrhosis and had forwarded the scan to QE for my telephone consultation on the 18th with QE. I also had
The QE hospital at Birmingham asked for a follow up liver cancer scan this was arranged by my cirrhosis consultant, I had the scan on 1st April saw my cirrhosis consultant on 13th May happy with the cirrhosis and had forwarded the scan to QE for my telephone consultation on the 18th with QE. I also had
oap74
in
British Liver Trust
2 years ago
Worried and
I am wondering what are criteria for
liver
transplant
? I keep ask my doctor if I need this he keeps saying no. He told my damage of liver out of 10 is 8.5 so I think its big.
I am wondering what are criteria for
liver
transplant
? I keep ask my doctor if I need this he keeps saying no. He told my damage of liver out of 10 is 8.5 so I think its big.
Bazinga89
in
British Liver Trust
2 years ago
Ascites
Hi me again :( So Ascites, my hubby has now probably been drained at least 5 times since his proper diagnoses of Alcoholic Cirrhosis back in Jan/Feb & near death spell in hospital in April! Whiles in hospital for 3 weeks he was drained twice of a hell of a lot of fluid! We then saw the consultant beginning
Hi me again :( So Ascites, my hubby has now probably been drained at least 5 times since his proper diagnoses of Alcoholic Cirrhosis back in Jan/Feb & near death spell in hospital in April! Whiles in hospital for 3 weeks he was drained twice of a hell of a lot of fluid! We then saw the consultant beginning
Blossom0410
in
British Liver Trust
2 years ago
Lung transplant second opinion update.
Saw the very nice team at the Royal Papworth following the Harefields decision to delist me. Where do i begin? First of all what a place, futuristic, buzzing with energy and you just knew you were in a different league. They haven’t said yes but more importantly not a no either. Bottom line is they
Saw the very nice team at the Royal Papworth following the Harefields decision to delist me. Where do i begin? First of all what a place, futuristic, buzzing with energy and you just knew you were in a different league. They haven’t said yes but more importantly not a no either. Bottom line is they
Mrbojangles
in
Lung Conditions Community Forum
2 years ago
decompensated cirrhosis - aching
Partner diagnosed 22.12.22 decompensated alcohol related cirrhosis. Stopped drinking then. Bloods slowly improving until a bit of a crisis 3 weeks ago when he was suffering from awful edema (he previously couldn't take water tablets due to low sodium). He is back home and bloods are now looking better
Partner diagnosed 22.12.22 decompensated alcohol related cirrhosis. Stopped drinking then. Bloods slowly improving until a bit of a crisis 3 weeks ago when he was suffering from awful edema (he previously couldn't take water tablets due to low sodium). He is back home and bloods are now looking better
Rshc
in
British Liver Trust
2 years ago
Alcohol free beers???????
Hi all, well I think I know what the answer will be/should be.. So my husband with Alcoholic decompensated cirrhosis who has been dry now well over a month (well done him x) But has now been getting the Heineken 0.0 beers which are actually 0.05 ABV. Sooooooo not completely ethanol free are they! He
Hi all, well I think I know what the answer will be/should be.. So my husband with Alcoholic decompensated cirrhosis who has been dry now well over a month (well done him x) But has now been getting the Heineken 0.0 beers which are actually 0.05 ABV. Sooooooo not completely ethanol free are they! He
Blossom0410
in
British Liver Trust
2 years ago
Me again!!
Just something niggling me so sorry for troubling the forum but I just need things to be clear so I can deal with my illness without being in constant worry. My fibroscan result was a reading of 36.6. I was told that I had NASH with Fibrosis but it is compensated. If it was cirrhosis, would he have told
Just something niggling me so sorry for troubling the forum but I just need things to be clear so I can deal with my illness without being in constant worry. My fibroscan result was a reading of 36.6. I was told that I had NASH with Fibrosis but it is compensated. If it was cirrhosis, would he have told
Robert1220
in
British Liver Trust
2 years ago
It remains enigmatic.
Hallo Everyone, and Thank you again to Fibro2021, I have read your very numerous and various responses to people, and admire your clarity and that you never patronize! I begin to see how hypertensive portal gastropathy, is somewhat serious, perhaps more serious than that which is occuring in my colon
Hallo Everyone, and Thank you again to Fibro2021, I have read your very numerous and various responses to people, and admire your clarity and that you never patronize! I begin to see how hypertensive portal gastropathy, is somewhat serious, perhaps more serious than that which is occuring in my colon
JonBechstein
in
British Liver Trust
2 years ago
Is fibrosis f2 reversible?
Had fibroscan today. Score of 9.2. Is this reversible? I was pleased it wasnt cirrhosis. I was told it was mild fibrosis but online charts indicate f2 as 'significant fibrosis with evidence of progressive liver disease' I have AIH & am taking budesonide 9mg daily. My LFTs have started to normalise so
Had fibroscan today. Score of 9.2. Is this reversible? I was pleased it wasnt cirrhosis. I was told it was mild fibrosis but online charts indicate f2 as 'significant fibrosis with evidence of progressive liver disease' I have AIH & am taking budesonide 9mg daily. My LFTs have started to normalise so
Bigbluemonkey
in
British Liver Trust
2 years ago
Spirinolactone question
I am on the
liver
transplant
waiting list (6m and counting.) Last year I was put on spirinolactone to deal with ascites, which it has done very efficiently, however, I have just had a call from the specialist's secretary asking me to stop taking it...
I am on the
liver
transplant
waiting list (6m and counting.) Last year I was put on spirinolactone to deal with ascites, which it has done very efficiently, however, I have just had a call from the specialist's secretary asking me to stop taking it...
taar
in
British Liver Trust
2 years ago
PBC suspecting
Hi, I am very worried about my liver tests, and possibly PBC. I have been having yearly blood tests since 2008 (except 2019 and 2020), LFT were always normal, until November 2021, my AST, ALT, was about 3 times the norm and GGT was 4 units up. The tests were repeated in January, enzymes went slightly
Hi, I am very worried about my liver tests, and possibly PBC. I have been having yearly blood tests since 2008 (except 2019 and 2020), LFT were always normal, until November 2021, my AST, ALT, was about 3 times the norm and GGT was 4 units up. The tests were repeated in January, enzymes went slightly
Cat1966
in
PBC Foundation
2 years ago
Any young adults with kidney transplant?
Would like to exchange experience and how did you cope/adjust with life
Would like to exchange experience and how did you cope/adjust with life
vision22
in
Kidney Transplant
2 years ago
My father has Peripheral t cell lymphoma
My father has Peripheral t cell lymphoma of stage 4 Doctor started 6 cycles of CHOEP . Does Stem cell transplant is the permanent cure ?
My father has Peripheral t cell lymphoma of stage 4 Doctor started 6 cycles of CHOEP . Does Stem cell transplant is the permanent cure ?
NikhilSantosh
in
CLL Support
2 years ago
Use of adjustable bed with cirrhosis and COPD
Hi, I've recently been diagnosed with alcohol related cirrhosis. Had a long conversation with my consultant last week and apparently I'm at stage A which is quite good to hear. I have a gastroscopy booked for 26th to check for varices and will be having a bone scan, vitamin check and tests to check
Hi, I've recently been diagnosed with alcohol related cirrhosis. Had a long conversation with my consultant last week and apparently I'm at stage A which is quite good to hear. I have a gastroscopy booked for 26th to check for varices and will be having a bone scan, vitamin check and tests to check
eileenet49
in
British Liver Trust
2 years ago
Autoimmune hepatitis 19 year old
Hello to everyone, I'm new here and we got my sons diagnosis yesterday after 5 months of him being unwell and a blood test showing extremely high liver enzyme levels. I wonder if there is anyone ( maybe even of a similar age) with the same condition as I'd really like him to talk to others and I would
Hello to everyone, I'm new here and we got my sons diagnosis yesterday after 5 months of him being unwell and a blood test showing extremely high liver enzyme levels. I wonder if there is anyone ( maybe even of a similar age) with the same condition as I'd really like him to talk to others and I would
MicheleG33
in
British Liver Trust
2 years ago
Trace ascites
Just wondering if anyone knows what trace ascites means exactly. It was reported on my wifes mri,she has stage 3 cirrhosis caused by pbc,diagnosed 4 years ago.Has 6 month ultrasounds and mris alternatively, first time seeing this on a report,thank you
Just wondering if anyone knows what trace ascites means exactly. It was reported on my wifes mri,she has stage 3 cirrhosis caused by pbc,diagnosed 4 years ago.Has 6 month ultrasounds and mris alternatively, first time seeing this on a report,thank you
Mikec1960
in
PBC Foundation
2 years ago
Cirrhosis LFTs came back as normal but still worried
I spoke with my consultant today as I'd not had my blood results from last month. He told me my Liver function tests showed now as normal but said I'm probably still border line decompensated as LFTs don't matter. I asked him about hypertension as I have normal portal vein flow and normal flow through
I spoke with my consultant today as I'd not had my blood results from last month. He told me my Liver function tests showed now as normal but said I'm probably still border line decompensated as LFTs don't matter. I asked him about hypertension as I have normal portal vein flow and normal flow through
thelad73
in
British Liver Trust
2 years ago
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