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Livedo reticularis
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Quick deterioration
4 weeks after his last admission hubby eventually agreed to go back to hospital. I'm shocked at how frail he now is, shuffling across to the bathroom. Can't get a sense of his liver health. Apparently diuretics stopped, giving him albumin, and there is some kidney damage? They then have to reinstate
4 weeks after his last admission hubby eventually agreed to go back to hospital. I'm shocked at how frail he now is, shuffling across to the bathroom. Can't get a sense of his liver health. Apparently diuretics stopped, giving him albumin, and there is some kidney damage? They then have to reinstate
MrsWorried
in
British Liver Trust
2 years ago
Marmite and cirrhosis
Serious question. Next to tabasco, Marmite is one of those foodstuffs that I really couldn't do without. I know the vit B12 in it is very good for your liver but I'm also aware that it's full of salt. I've been avoiding asking this question probably because I know what the answer will be but I really
Serious question. Next to tabasco, Marmite is one of those foodstuffs that I really couldn't do without. I know the vit B12 in it is very good for your liver but I'm also aware that it's full of salt. I've been avoiding asking this question probably because I know what the answer will be but I really
wurzle
in
British Liver Trust
2 years ago
Cirrhosis stopping with no alcohol
Hello everybody31 M, drink heavy for little years with some rehab months I think i have liver problems, been dizzy, nauseous, have white band on nails Stop drinking since 2 more than two months Can liver improve even if it's cirrhosis ? Can we live a "normal" life with ? If things goes wrong can a transplant
Hello everybody31 M, drink heavy for little years with some rehab months I think i have liver problems, been dizzy, nauseous, have white band on nails Stop drinking since 2 more than two months Can liver improve even if it's cirrhosis ? Can we live a "normal" life with ? If things goes wrong can a transplant
gcaius
in
British Liver Trust
2 years ago
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Post Liver Transplant
I am worried about how my hands, body and voice always shaky and is been 5 weeks after my operation. I get dizzy when I am standing at one place for long. I would like to know from someone who has been in my position if I honestly will go back to being the same. Like going gym, lifting weight, playing
I am worried about how my hands, body and voice always shaky and is been 5 weeks after my operation. I get dizzy when I am standing at one place for long. I would like to know from someone who has been in my position if I honestly will go back to being the same. Like going gym, lifting weight, playing
Kamx
in
British Liver Trust
2 years ago
Starting treatment
Hello everyone, I've been on W&W Since Jan 2020. Two weeks ago at my consultation my consultant said its time for treatment, that week I had a CT scan, blood tests and an echo heart test. My next step I assumed would be a meeting regarding my treatment, however she called today to say I need a pet
Hello everyone, I've been on W&W Since Jan 2020. Two weeks ago at my consultation my consultant said its time for treatment, that week I had a CT scan, blood tests and an echo heart test. My next step I assumed would be a meeting regarding my treatment, however she called today to say I need a pet
mfc86
in
CLL Support
2 years ago
Liver pain, elevated liver enzymes and ultrasound
Hello everyone. My boyfriend has been complaining of pain under his lower right rib. Pain was not severe just on and off. He got his blood test done and results showed elevated liver enzymes. He was booked for an ultrasound. We are waiting for the results but really scared. He is 39 and healthy overall
Hello everyone. My boyfriend has been complaining of pain under his lower right rib. Pain was not severe just on and off. He got his blood test done and results showed elevated liver enzymes. He was booked for an ultrasound. We are waiting for the results but really scared. He is 39 and healthy overall
Iamsarah
in
British Liver Trust
2 years ago
REFERRED
does any one know how quick it is to get to see liver transplant team at QE hospital after being referred be liver DR at hospital
does any one know how quick it is to get to see liver transplant team at QE hospital after being referred be liver DR at hospital
lonmallin50
in
British Liver Trust
2 years ago
For those who have beaten the odds and are surviving hepatocellular carcinoma.
Any pearls or tips from those who are beating the odds and surviving hepatocellular carcinoma? I was diagnosed 3 months ago and am currently on immunotherapy. I've tried not to get buried in the statistics regarding hepatocellular carcinoma. As I realize there are many who are beating the statistics
Any pearls or tips from those who are beating the odds and surviving hepatocellular carcinoma? I was diagnosed 3 months ago and am currently on immunotherapy. I've tried not to get buried in the statistics regarding hepatocellular carcinoma. As I realize there are many who are beating the statistics
RolloMay
Patient
in
Blue Faery Liver Cancer
2 years ago
Decompensated Cirrhosis and follow up consultant appointment for husband
Hi, I’ve been lurking for a while but this is my first post. My husband was in hospital in May 2021 after a variceal bleed, he was having tests done before this as they suspected Cirrhosis, and after admission he admitted he had alcohol problems, and they treated him with banding, and he had previously
Hi, I’ve been lurking for a while but this is my first post. My husband was in hospital in May 2021 after a variceal bleed, he was having tests done before this as they suspected Cirrhosis, and after admission he admitted he had alcohol problems, and they treated him with banding, and he had previously
Squirrel77
in
British Liver Trust
2 years ago
Psych evaluation
Hi! This is for those of you who are either on the liver transplant list or who have had a transplant. What I'd like to know is whether you were given a psychological evaluation or a one-to-one conversion with a trained therapist as to how to deal with serious organ rejection should it occur.
Hi! This is for those of you who are either on the liver transplant list or who have had a transplant. What I'd like to know is whether you were given a psychological evaluation or a one-to-one conversion with a trained therapist as to how to deal with serious organ rejection should it occur.
Bikafella
in
British Liver Trust
2 years ago
Fibroscan - Fibrosis F3
Hello one and all, I have just been diagnosed with F3 liver fibrosis today. I have had major issues in my life and hit the beer had resulting in damage to my liver. I have abstained now for just over 6 months and whilst I am not craving alcohol I do miss the occasional glass of wine when out with the
Hello one and all, I have just been diagnosed with F3 liver fibrosis today. I have had major issues in my life and hit the beer had resulting in damage to my liver. I have abstained now for just over 6 months and whilst I am not craving alcohol I do miss the occasional glass of wine when out with the
MadJackMcMad
in
British Liver Trust
2 years ago
Hi everyone
Hello everyoneMy other half was diagnosed with advanced decompensated liver cirrhosis earlier this month. He's in denial at the moment so I'm trying to learn about what will happen to him, what support there is available. He's not interested in visiting the doctor- he won't leave the house. I'm trying
Hello everyoneMy other half was diagnosed with advanced decompensated liver cirrhosis earlier this month. He's in denial at the moment so I'm trying to learn about what will happen to him, what support there is available. He's not interested in visiting the doctor- he won't leave the house. I'm trying
Stephsmumlou
in
British Liver Trust
2 years ago
Fluid
I have cirrhosis of the Liver I have just had another US Sulliance scan and it has shown fluid around my Liver Should I be worried because I don't see my Dr untill January 23
I have cirrhosis of the Liver I have just had another US Sulliance scan and it has shown fluid around my Liver Should I be worried because I don't see my Dr untill January 23
Williamsbluefamily
in
British Liver Trust
2 years ago
back in hospital
Hospital again this time with low sodium count i was drinking too much squash on diuretics ( water pills) off them now so more blood tests every week they are doing a great job the NHS keeping a eye on me see specialist every 3 weeks now off to queen Elisabeth for transplant assessment soon fingers crossed
Hospital again this time with low sodium count i was drinking too much squash on diuretics ( water pills) off them now so more blood tests every week they are doing a great job the NHS keeping a eye on me see specialist every 3 weeks now off to queen Elisabeth for transplant assessment soon fingers crossed
lonmallin50
in
British Liver Trust
2 years ago
Rheumatology visit. News to me! Biologics pathway - I'm on the last option!!! 😲😭
https://gmmmg.nhs.uk/wp-content/uploads/2021/08/GMMMG-RA-pathway-FINAL-v4-1.pdf This is a link to a PDF which talks about pathways for rheumatoid arthritis. I had my 6-monthly rheumatology appointment today. Everything is going OK ish at the moment. I have a few bits and pieces, but mainly Methotrexate
https://gmmmg.nhs.uk/wp-content/uploads/2021/08/GMMMG-RA-pathway-FINAL-v4-1.pdf This is a link to a PDF which talks about pathways for rheumatoid arthritis. I had my 6-monthly rheumatology appointment today. Everything is going OK ish at the moment. I have a few bits and pieces, but mainly Methotrexate
Moomin8
in
NRAS
2 years ago
After Fibroscan
I have been diagnosed with cirrhosis 12 months ago and have been abstinent with alcohol and cigarettes from then on. I have being referred to a dietitian and lost over 1 and a half stone through diet and exercise. I am worried about getting complications even if I continue with abstinence and eating
I have been diagnosed with cirrhosis 12 months ago and have been abstinent with alcohol and cigarettes from then on. I have being referred to a dietitian and lost over 1 and a half stone through diet and exercise. I am worried about getting complications even if I continue with abstinence and eating
Nip1
in
British Liver Trust
2 years ago
Any positive experiences with TIPSS
I am 42 years old in the US and have had my NASH cirrhosis diagnosis for 5 years. I was compensated until early this year when I developed Ascites.After some hard work with diet and exercise I have managed to improve my labs and MELD score greatly. Began the summer at a MELD 26 and am currently at an
I am 42 years old in the US and have had my NASH cirrhosis diagnosis for 5 years. I was compensated until early this year when I developed Ascites.After some hard work with diet and exercise I have managed to improve my labs and MELD score greatly. Began the summer at a MELD 26 and am currently at an
Crooktele79
in
British Liver Trust
2 years ago
Is gluten free food doing us more harm than good?
About twp years ago i went privately for a food intolerance test re my IBS. It was suggested I go gluten & dairy free which I did & continued for over a year. Doing this didn't make much difference to my IBS symptoms so I gave up the gluten free but carried on with being dairy free. But I still bought
About twp years ago i went privately for a food intolerance test re my IBS. It was suggested I go gluten & dairy free which I did & continued for over a year. Doing this didn't make much difference to my IBS symptoms so I gave up the gluten free but carried on with being dairy free. But I still bought
Moggiedee
in
IBS Network
2 years ago
Blood clot in portal vein
Hi everyone not been on the site for a while as my health is good right now!Just a quick question i have cirrhosis that is well compensated apart from slightly lower platelet count and was at my routine 6mth ultrasound when my consultant called saying I have a small blood clot on the left portal
Hi everyone not been on the site for a while as my health is good right now!Just a quick question i have cirrhosis that is well compensated apart from slightly lower platelet count and was at my routine 6mth ultrasound when my consultant called saying I have a small blood clot on the left portal
ballie52
in
British Liver Trust
2 years ago
being left behind
Hi all I just need to get this off my chest. My dad died 3 days ago, 14 weeks after being diagnosed with alcohol related liver cirrhosis. I am totally crushed. I feel guilty for thinking he had ‘let himself go’ when in fact he was full of fluid as he had ascites. I’m left not being able to tolerate
Hi all I just need to get this off my chest. My dad died 3 days ago, 14 weeks after being diagnosed with alcohol related liver cirrhosis. I am totally crushed. I feel guilty for thinking he had ‘let himself go’ when in fact he was full of fluid as he had ascites. I’m left not being able to tolerate
Hwalt90
in
British Liver Trust
2 years ago
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