REFERRED

[lonmallin50]

does any one know how quick it is to get to see liver transplant team at QE hospital after being referred be liver DR at hospital

[Ubwa]

Depends on severity and cause of needing a transplant. If an inpatient it’s much faster. E.g. if alcohol related you need to be sober for 6 months before they look to evaluate, although the ball can get rolling in that direct if it’s deemed a path forwards before then

[lonmallin50 in reply to Ubwa]

Thanks been off drink for 9 month's now

[Rshc]

have you been referred? Do you have a transplant coordinator assigned to you that you could contact? My partner (condition currently stable) was seen quickly by the Royal Free once it was decided he should go through assessment - a matter of a few weeks

[lonmallin50 in reply to Rshc]

Been referred about 2 weeks ago so not heard nothing yet

[oap74]

I don’t know but once you do get under the care of QE there service is second to none. I had a MRI and get telephone consultations every 6 months had one recently and have my next one for March next year already. All the best

[lonmallin50 in reply to oap74]

Thanks for reply

[Charlie-legs]

I'm under the QE team . I was activated on the waiting list recently.Last year I was turned down and l think that was for the best because of the emotions you have to work through are tough.

They are fantastic, it's actually a good day out for my appointments!!

They've a way of making it seem normal. Good luck.x may bump into each other 😷

[lonmallin50 in reply to Charlie-legs]

Are you back on the list now and is it a common thing to be put on then took off

[Hidden in reply to Charlie-legs]

Agree with you, lot of emotions and things you want to get sorted before transplant!

[Charlie-legs]

I didn't get onto the list the first assessment because I told them I had drunk half s can of g&t ( waiting in line for the check out I was tempted by the Rhubarb and ginger flavour) I had to confess because I am such a bad liar and frankly I knew I hadn't taken it all in.

I'm on it now ☺️ eeekkk

[lonmallin50 in reply to Charlie-legs]

Not drank now for 9 month's now used to drink about 18 pints a day had my own pub for 21 years don't miss it at all now nice to feel fresh again

[Yellowsydney]

If you use Facebook please feel free to join out friendly and knowledgeable Facebook group called liver transplant support uk, lots of people in your position or have been thereHilary