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Experiences with
Livedo reticularis
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cirrhosis and rheumatoid arthritis
My partner originally decompensated now compensated has suffered from bad aches and pains since diagnosis with ALD - always told it was a side effect of cirrhosis but as he started to become decompensated they started to entertain the idea it might be something else. Cut to almost 2 years later and
My partner originally decompensated now compensated has suffered from bad aches and pains since diagnosis with ALD - always told it was a side effect of cirrhosis but as he started to become decompensated they started to entertain the idea it might be something else. Cut to almost 2 years later and
Rshc
in
British Liver Trust
11 months ago
Help, have terrible Oedema
In Febryary I had a bad fall which led to a degree of immobility. My Spironolactone was increased to 100 daily. N o duffrrence to swelling in legs and .feet. 40 g of Furosomide was added. I then got an AKI and UTI and spent 5 days in hospital having every test and IV known to man. I had to stop all
In Febryary I had a bad fall which led to a degree of immobility. My Spironolactone was increased to 100 daily. N o duffrrence to swelling in legs and .feet. 40 g of Furosomide was added. I then got an AKI and UTI and spent 5 days in hospital having every test and IV known to man. I had to stop all
Cat1218
in
British Liver Trust
5 months ago
Hypereosinofilia with Pbc,ursofalk side effects.
Hello !!I have just been diagnosed with PBC,as you can imagine it was a huge surprise considering I have never had health issues before. Everything started with some gastro problems,mostly bloating and some discomfort in the bowel area. Blood tests shower increased GGT 160 , hypereosinophilia 2400 ,incresed
Hello !!I have just been diagnosed with PBC,as you can imagine it was a huge surprise considering I have never had health issues before. Everything started with some gastro problems,mostly bloating and some discomfort in the bowel area. Blood tests shower increased GGT 160 , hypereosinophilia 2400 ,incresed
Alina8004
in
PBC Foundation
11 months ago
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major operation
hi my husband has cirrhosis, as 2 years his liver reading has been good, he had a back operation 5 years ago but he got the news yesterday that he needs another one! our concern ls r that his blood doesn’t clot that good and this is a major risk mayb we r over thinking this but has anyone else went
hi my husband has cirrhosis, as 2 years his liver reading has been good, he had a back operation 5 years ago but he got the news yesterday that he needs another one! our concern ls r that his blood doesn’t clot that good and this is a major risk mayb we r over thinking this but has anyone else went
Cfmol
in
British Liver Trust
11 months ago
Is carvedilol making you cold?
I recently had my Carvedilol increased to 6.25mg twice a day. Lately, I am freezing to the bone. I turn my heating up and up and am still cold when everyone else says its like a sauna. I just wondered if anyone else has this? It could also be my recent addition of diabetes medication, Sitagliptin. Never
I recently had my Carvedilol increased to 6.25mg twice a day. Lately, I am freezing to the bone. I turn my heating up and up and am still cold when everyone else says its like a sauna. I just wondered if anyone else has this? It could also be my recent addition of diabetes medication, Sitagliptin. Never
Erish
in
British Liver Trust
5 months ago
blood thinners and cod liver oil?
hi everyone hope you all had a good Christmas, I was diagnosed with AF in November so still learning lots from this forum. I am on edoxaban 60mg and Bisoprolol 2.5 as PIP which I have been taking approx every 7 days. I wanted to ask about taking cod liver oil and other vitamins, as I read that fish oil
hi everyone hope you all had a good Christmas, I was diagnosed with AF in November so still learning lots from this forum. I am on edoxaban 60mg and Bisoprolol 2.5 as PIP which I have been taking approx every 7 days. I wanted to ask about taking cod liver oil and other vitamins, as I read that fish oil
Jamontoast
in
Atrial Fibrillation Support
9 months ago
Cause of extremely low ALP on Liver Function Tests
27 years old male, heavy drinker for the past 11 years.I have been having this terrible pain on the right side, just below the ribs, gets worse when laughing or when I sleep on the same side. Also, my palms are red with visible dilated veins all over. Went to the doctor, last year and an abdominal
27 years old male, heavy drinker for the past 11 years.I have been having this terrible pain on the right side, just below the ribs, gets worse when laughing or when I sleep on the same side. Also, my palms are red with visible dilated veins all over. Went to the doctor, last year and an abdominal
African1
in
British Liver Trust
11 months ago
Feeling fed up
I’ve had deranged LFTS on and off for at least 6 years now with Alt going up over 1000. Second time seeing specialist and apart from signs in liver biopsy pointing to AIH the scans don’t seem to show much. Don’t seem to get told much by Specialist and don’t seem to keep me updated. Had a MRCP on October
I’ve had deranged LFTS on and off for at least 6 years now with Alt going up over 1000. Second time seeing specialist and apart from signs in liver biopsy pointing to AIH the scans don’t seem to show much. Don’t seem to get told much by Specialist and don’t seem to keep me updated. Had a MRCP on October
MrMidnight2021
in
British Liver Trust
11 months ago
no transplant needed!
hi all just wanted to share what is happening to me to date. It’s been a long journey but I think (I hope) I’ve got there. After recovering from a Decompensated liver from just 2 weeks to live, then it was 3 months, then 1-2 years then 5 years to live, I have now been given the news that ive done so
hi all just wanted to share what is happening to me to date. It’s been a long journey but I think (I hope) I’ve got there. After recovering from a Decompensated liver from just 2 weeks to live, then it was 3 months, then 1-2 years then 5 years to live, I have now been given the news that ive done so
Harriet-sarah
in
British Liver Trust
11 months ago
Transplant waiting list
My father has stage 4 liver cirrhosis caused by alcohol and has been in and out of hospital a few times because of blood in stool or vomiting blood. He has stopped drinking completely as of 6 weeks ago, I would describe his drinking as more of a habit over a long period of time as opposed to needing
My father has stage 4 liver cirrhosis caused by alcohol and has been in and out of hospital a few times because of blood in stool or vomiting blood. He has stopped drinking completely as of 6 weeks ago, I would describe his drinking as more of a habit over a long period of time as opposed to needing
CricketBadger
in
British Liver Trust
11 months ago
Gallbladder
Hi I was wondering if anyone have problems with there gallbladder when you have cirrhosis of the liver.
Hi I was wondering if anyone have problems with there gallbladder when you have cirrhosis of the liver.
Petrina_gmfc
in
British Liver Trust
11 months ago
INR/FIBRINOGEN
Can someone please tell me if anything else can affect INR or FIBRINOGEN levels, last year my INR was 1 on the ratio and is now 1.1 does this mean the liver is getting worse or can that figure change, it is literally just on the last part of normal now, also my FIBRINOGEN is almost double what it should
Can someone please tell me if anything else can affect INR or FIBRINOGEN levels, last year my INR was 1 on the ratio and is now 1.1 does this mean the liver is getting worse or can that figure change, it is literally just on the last part of normal now, also my FIBRINOGEN is almost double what it should
Sophia1968
in
British Liver Trust
11 months ago
Fibroscan score is 9.2
hello everyone . I am 48 years. Height is 187 cm and weight is 100kg . Had a Fibroscan on 13th April and score is 9.2 ( Alcoholic fatty liver ). Dr suggest to reduce the weight since then my daily steps count is 20k + along with proper diet anand no alcohol consumption. Any suggestion how to reduce
hello everyone . I am 48 years. Height is 187 cm and weight is 100kg . Had a Fibroscan on 13th April and score is 9.2 ( Alcoholic fatty liver ). Dr suggest to reduce the weight since then my daily steps count is 20k + along with proper diet anand no alcohol consumption. Any suggestion how to reduce
Bhosdaikay
in
British Liver Trust
5 months ago
liver gal
I have had a liver transplant June 29, 2023 and the hair loss won’t stop? And info on will it stop?!
I have had a liver transplant June 29, 2023 and the hair loss won’t stop? And info on will it stop?!
Livergal
in
British Liver Trust
11 months ago
Not Cirrhosis
So many of you have watched my journey of the misdiagnosis of my wonderful wife. In the end, we now know a combination of Antibiotics destroyed her kidneys. Due to thinking she had cirrhosis, they had dosage values wrong...etc..etc. She had high billis, which was due to a medication reaction, and
So many of you have watched my journey of the misdiagnosis of my wonderful wife. In the end, we now know a combination of Antibiotics destroyed her kidneys. Due to thinking she had cirrhosis, they had dosage values wrong...etc..etc. She had high billis, which was due to a medication reaction, and
Wolivere
in
British Liver Trust
11 months ago
Coma or Vegetative state
Hi - My brother has been in an induced coma following a stroke for 3 weeks. Every time they try to wake him they say he gets “agitated”. Also, today his case manager told me he is able to open his eyes, but when they did the light in the eyes test, there was no reflex. What does that mean? Is he officially
Hi - My brother has been in an induced coma following a stroke for 3 weeks. Every time they try to wake him they say he gets “agitated”. Also, today his case manager told me he is able to open his eyes, but when they did the light in the eyes test, there was no reflex. What does that mean? Is he officially
mamo23
in
ICUsteps
11 months ago
Private Health care for second opinion
Has anyone used private health care for a second opinion? I’m 7 weeks post Fibroscan and still nothing in writing. I had a call from a hepatologist last week. He hadn’t seen the scan either but said based on my memory of it I have Cirrhosis. I want someone to give me a proper diagnosis. Bupa have agreed
Has anyone used private health care for a second opinion? I’m 7 weeks post Fibroscan and still nothing in writing. I had a call from a hepatologist last week. He hadn’t seen the scan either but said based on my memory of it I have Cirrhosis. I want someone to give me a proper diagnosis. Bupa have agreed
Pinkglitter93
in
British Liver Trust
11 months ago
New 'cirrhosee' with reading of 75 on Richter scale! H E L P
See my bio - recently diagnosed cirrhosis with fibroscan reading of 75. Gutted!Interested to hear from those who have, over time, reduced this reading/'score'. Also keen to hear from those with associated eating disorders - e.g. gastroparesis (sluggish stomach) and best ways of managing. Experience
See my bio - recently diagnosed cirrhosis with fibroscan reading of 75. Gutted!Interested to hear from those who have, over time, reduced this reading/'score'. Also keen to hear from those with associated eating disorders - e.g. gastroparesis (sluggish stomach) and best ways of managing. Experience
Iau1
in
British Liver Trust
11 months ago
Diagnosis at last! Haemochromotosis?
I've posted a few times on this forum but a bit of backstory - hubby, 43 had sudden onset of upper right quadrant pain last December, has some tests for gallstones, found nothing, immediately stopped drinking (had drunk heavily for around 15 years), and after a lot of back and forward was found to have
I've posted a few times on this forum but a bit of backstory - hubby, 43 had sudden onset of upper right quadrant pain last December, has some tests for gallstones, found nothing, immediately stopped drinking (had drunk heavily for around 15 years), and after a lot of back and forward was found to have
RugbyMama
in
British Liver Trust
11 months ago
Severe Lung Scarring from Pneumonia
Hello, I have posted about my dad who is in his late 70s in ICU for severe pneumonia here before, but here is the current situation. At the moment, he is stable and he is close to weaning off sedation completely and starting ventilator weaning (trachy) soon. His ventilator setting is O2 35%, Saturation
Hello, I have posted about my dad who is in his late 70s in ICU for severe pneumonia here before, but here is the current situation. At the moment, he is stable and he is close to weaning off sedation completely and starting ventilator weaning (trachy) soon. His ventilator setting is O2 35%, Saturation
ForMyPapa
in
ICUsteps
11 months ago
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