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Leg pain
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Surgery follow-up appointment
Hi all I had my surgery on the 30th of March, where they found four bits of endo. I did have stomach pains in my first month, but then I had an infection. From the second month after my surgery, I had stomach pains again, although it was at a lower intensity and frequency. Over the last couple of
Hi all I had my surgery on the 30th of March, where they found four bits of endo. I did have stomach pains in my first month, but then I had an infection. From the second month after my surgery, I had stomach pains again, although it was at a lower intensity and frequency. Over the last couple of
Bookobssessed
in
Endometriosis UK
9 months ago
Magnesium and Lavender
I take Magnesium capsules at night to sleep and since starting, I rarely feel RLS. If I'm particularly exhausted, I do feel it, in which case, I use Feather and Down Sleep butter. It stops it in seconds. It is lavender-based. There is a version that also has a dose of Magnesium in it. I'd surmise that
I take Magnesium capsules at night to sleep and since starting, I rarely feel RLS. If I'm particularly exhausted, I do feel it, in which case, I use Feather and Down Sleep butter. It stops it in seconds. It is lavender-based. There is a version that also has a dose of Magnesium in it. I'd surmise that
27yrsncounting
in
Restless Legs Syndrome
6 months ago
Endo Diagnosis
Hi, I am unsure where to start off trying to get a diagnosis of endometriosis. I've been struggling for about 4 years now and have found out my gran and my mum both have endometriosis with them experiencing the same symptoms. All my symptoms line up with others that have endometriosis as well. My first
Hi, I am unsure where to start off trying to get a diagnosis of endometriosis. I've been struggling for about 4 years now and have found out my gran and my mum both have endometriosis with them experiencing the same symptoms. All my symptoms line up with others that have endometriosis as well. My first
LivePink
in
Endometriosis UK
9 months ago
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Advise on taking Mirtazapine
been to visit Gp today with very low mood , I did ask for Bupropion, they would not prescribe and have given me Mirtazapine, over the last few days I have managed to reduce my pramipexole by half and have been taking , codeine phosphorus along with paracetamol, the RLS has not gotten any worse , but
been to visit Gp today with very low mood , I did ask for Bupropion, they would not prescribe and have given me Mirtazapine, over the last few days I have managed to reduce my pramipexole by half and have been taking , codeine phosphorus along with paracetamol, the RLS has not gotten any worse , but
Hidden
in
Restless Legs Syndrome
6 months ago
RLS sufferer
My 83 year old husband has had RLS for many years. He reads these comments but doesn’t respond to them so I am responding for him. He was prescribed Gabapentin early on which worked for awhile. He has been on Ropinirole for a very long time. The RLS spread to other parts of his body and occurred during
My 83 year old husband has had RLS for many years. He reads these comments but doesn’t respond to them so I am responding for him. He was prescribed Gabapentin early on which worked for awhile. He has been on Ropinirole for a very long time. The RLS spread to other parts of his body and occurred during
Farmboy1
in
Restless Legs Syndrome
6 months ago
sciatica and PD?
2 months ago after 2 10 hour train journeys I developed severe sciatic nerve pains down my right let and hip. these are making it very difficult/impossible to do my PD excercises. The GP only prescribes pain killers which don't really help. Web research seems to only suggest excercise stretching baby
2 months ago after 2 10 hour train journeys I developed severe sciatic nerve pains down my right let and hip. these are making it very difficult/impossible to do my PD excercises. The GP only prescribes pain killers which don't really help. Web research seems to only suggest excercise stretching baby
Nickcc
in
Cure Parkinson's
9 months ago
concerned
ok friends if you have read any of my post you know that I have been taking Ropinirole for over 20 years and after reading some of the information from the RLS foundation and here I realized I was augmenting. After much searching I found a great doctor that is going to take me through augmentation which
ok friends if you have read any of my post you know that I have been taking Ropinirole for over 20 years and after reading some of the information from the RLS foundation and here I realized I was augmenting. After much searching I found a great doctor that is going to take me through augmentation which
6236
in
Restless Legs Syndrome
6 months ago
U.S. Gov't to Negotiate Prices for Ibrutinib
https://www.cnn.com/2023/08/29/politics/medicare-drug-price-negotiations/index.html#:~:text=Medicare%20will%20soon%20start%20negotiating%20the%20prices%20of%2010%20drugs%20with%20manufacturers.&text=The%20Biden%20administration%20unveiled%20Tuesday,blood%20thinners%20and%20diabetes%20medications.
https://www.cnn.com/2023/08/29/politics/medicare-drug-price-negotiations/index.html#:~:text=Medicare%20will%20soon%20start%20negotiating%20the%20prices%20of%2010%20drugs%20with%20manufacturers.&text=The%20Biden%20administration%20unveiled%20Tuesday,blood%20thinners%20and%20diabetes%20medications.
michaeledward
in
CLL Support
1 year ago
Ropinerole
I've been on Gabapentin and Ropinerole for 25 years, and finally got off due to the terrible effects of augmentation. I've been on Lyrica now for about 6 months, and other than not having daytime symptoms, my nights have been worse than ever. I was at a motel recently, and took one Ropinerole because
I've been on Gabapentin and Ropinerole for 25 years, and finally got off due to the terrible effects of augmentation. I've been on Lyrica now for about 6 months, and other than not having daytime symptoms, my nights have been worse than ever. I was at a motel recently, and took one Ropinerole because
Marzipana
in
Restless Legs Syndrome
6 months ago
Painful legs (burning sensation behind both knees)
Hi all Well, I’m hoping someone can provide a view on what is happening to me now! For the last couple of months I have had severe pain in the legs which has now started to become a burn behind my knees. It doesn’t improve or worsen on exercise and is particularly painful laying in bed. I used to
Hi all Well, I’m hoping someone can provide a view on what is happening to me now! For the last couple of months I have had severe pain in the legs which has now started to become a burn behind my knees. It doesn’t improve or worsen on exercise and is particularly painful laying in bed. I used to
Oldmasons
in
British Heart Foundation
10 months ago
Stress and E T
I had a few stressful moments this week and I’ve been feeling extremely tired, more than normal, nauseous,
pain
in my
leg
and foot.. Just wondered why I would feel so much worse than normal Thank you
I had a few stressful moments this week and I’ve been feeling extremely tired, more than normal, nauseous,
pain
in my
leg
and foot.. Just wondered why I would feel so much worse than normal Thank you
Cokopops
in
MPN Voice
5 months ago
Update after stopping sertraline
hi everyone, Just an update. I posted here a few weeks ago. RLS had got worse and I have needed escalating doses of ropinorole . I’m 51 yo and have had RLS in pregnancy and it resurfaced in the past 5-7 years, in perimenopause. My mood symptoms were incorrectly diagnosed as anxiety, rather than being
hi everyone, Just an update. I posted here a few weeks ago. RLS had got worse and I have needed escalating doses of ropinorole . I’m 51 yo and have had RLS in pregnancy and it resurfaced in the past 5-7 years, in perimenopause. My mood symptoms were incorrectly diagnosed as anxiety, rather than being
Petru
in
Restless Legs Syndrome
6 months ago
Don't believe all my pain is due to pain syndrome
I am not convinced at all that its the cause of the
pain
in my left
leg
. The
pain
there has been getting worse for a decade, and pre-dates all of the pain I started to get last year.
I am not convinced at all that its the cause of the
pain
in my left
leg
. The
pain
there has been getting worse for a decade, and pre-dates all of the pain I started to get last year.
natherly
in
Pain Concern
1 year ago
advice post lap
hi I’d be grateful for any advice on things you found useful post lap for endo excision. What kind of things did you wear after. I tend to wear tunics and leggings or tops and jeans but don’t know if they’ll feel too tight and uncomfortable. Did you find it easy to put on a top or was a button through
hi I’d be grateful for any advice on things you found useful post lap for endo excision. What kind of things did you wear after. I tend to wear tunics and leggings or tops and jeans but don’t know if they’ll feel too tight and uncomfortable. Did you find it easy to put on a top or was a button through
Endofitall
in
Endometriosis UK
10 months ago
Buprenorphine triggers RLS (briefly)?
I have noticed this three times in the last few weeks, after being on suboxone (sub-lingual strips) for last 2 months. Within 5 minutes of taking the suboxone, my RLS will kick in (generally at a medium-ish intensity). I've not rode it out to see how long it lasts - I've taken some cannabis to lessen
I have noticed this three times in the last few weeks, after being on suboxone (sub-lingual strips) for last 2 months. Within 5 minutes of taking the suboxone, my RLS will kick in (generally at a medium-ish intensity). I've not rode it out to see how long it lasts - I've taken some cannabis to lessen
707twitcher
in
Restless Legs Syndrome
6 months ago
Tablets, Tablets Everywhere
However still to go are one more Lisinopril (Ace), two more Gabapentin (useless painkiller for phantom
pain
) and three more Flucloxacillin (for my
leg
)! That's 17 a day. I am surprised I don't rattle when my wheelchair goes over a bump... 😁
However still to go are one more Lisinopril (Ace), two more Gabapentin (useless painkiller for phantom
pain
) and three more Flucloxacillin (for my
leg
)! That's 17 a day. I am surprised I don't rattle when my wheelchair goes over a bump... 😁
MichaelJH
Heart Star
in
British Heart Foundation
1 year ago
Buprenorphine/Naloxone (Suboxone)
Hello. I am in Canada and I, and my four siblings, have suffered with RLS, most of our lives. I am 68 now and have struggled with RLS since I was in my late 20’s. I have been through it all and done it all including 6 years on pramipexole, augmentation and horrible detox. Gabapentin did not work,
Hello. I am in Canada and I, and my four siblings, have suffered with RLS, most of our lives. I am 68 now and have struggled with RLS since I was in my late 20’s. I have been through it all and done it all including 6 years on pramipexole, augmentation and horrible detox. Gabapentin did not work,
Cashews
in
Restless Legs Syndrome
6 months ago
Hi all
Morning everyone well I finally got a doctor to actually listen to my symptoms and after a full examination off knees and elbows he said I've got restless leg syndrome only took 23 years not bad lol my doctor prescribed ropinirole i asked about any other medication he said thsts the best.
Morning everyone well I finally got a doctor to actually listen to my symptoms and after a full examination off knees and elbows he said I've got restless leg syndrome only took 23 years not bad lol my doctor prescribed ropinirole i asked about any other medication he said thsts the best.
Glenr78
in
Restless Legs Syndrome
6 months ago
Pramipexole - update
PROGRESS - have done 15 days on one Pramipexole tablet per night. About to change to half a tablet. SLEEP - managing OK PAIN - I was hoping for Buprenorphine; Dr gave me CoCodamol. Have to say it is not touching the augmentation/ withdrawal pain. CONCERN- I need better pain relief to get through
PROGRESS - have done 15 days on one Pramipexole tablet per night. About to change to half a tablet. SLEEP - managing OK PAIN - I was hoping for Buprenorphine; Dr gave me CoCodamol. Have to say it is not touching the augmentation/ withdrawal pain. CONCERN- I need better pain relief to get through
Lineker
in
Restless Legs Syndrome
6 months ago
Help with "sick day rules"
Hello, It's been a while. I am struggling and need some dose guidance please. My normal dose is 10mg per day. I delivered Mark to hospital on Sunday for a planned Total Knee Replacement which took place on Monday morning. He's doing very well, no pain (typical of him lol) and he was discharged yesterday
Hello, It's been a while. I am struggling and need some dose guidance please. My normal dose is 10mg per day. I delivered Mark to hospital on Sunday for a planned Total Knee Replacement which took place on Monday morning. He's doing very well, no pain (typical of him lol) and he was discharged yesterday
IdasMum
in
PMRGCAuk
10 months ago
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