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pramipexole
I have been on Pramipexole for more years than I can remember. I was put on it at Walton Neurological Hospital by a Consultant. Last year another Neurologist tried me on Ropinirole which caused hallucinations. I am back on Pramipexole and during my years on it have suffered from overeating and excessive
I have been on Pramipexole for more years than I can remember. I was put on it at Walton Neurological Hospital by a Consultant. Last year another Neurologist tried me on Ropinirole which caused hallucinations. I am back on Pramipexole and during my years on it have suffered from overeating and excessive
Onion01
in
Restless Legs Syndrome
2 months ago
PLMD and RLS Update
25 + years ago, I began experiencing symptoms with leg jerkiness during sleep, causing me to rise and stretch and sit up until the movement stopped. The GP prescribed gabapentin, which led me down the road until 2016 with a move to Phoenix, and to visit a neurologist. After testing, and his patient for
25 + years ago, I began experiencing symptoms with leg jerkiness during sleep, causing me to rise and stretch and sit up until the movement stopped. The GP prescribed gabapentin, which led me down the road until 2016 with a move to Phoenix, and to visit a neurologist. After testing, and his patient for
vikkitennis
in
Restless Legs Syndrome
2 months ago
extremely intense pain due to stage 4 Endrometriosis
Hi, An ambulance has just left our house. Today is the first day of my period and I had to call 999 due to extreme pain that I never experienced before. They gave me strong pain killers and I feel better but I’m still in shock of the intensity of the pain I experienced today! My whole body was in agony
Hi, An ambulance has just left our house. Today is the first day of my period and I had to call 999 due to extreme pain that I never experienced before. They gave me strong pain killers and I feel better but I’m still in shock of the intensity of the pain I experienced today! My whole body was in agony
Bubble-z
in
Endometriosis UK
8 months ago
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Doctor dismissal
Hello, i'm after some advice as I know so many other women have been in the same situation I've been to the doctors regarding my periods as I am concerned I have endometriosis or something along those lines and the doctor showed no interest and was really patronising. She ended up prescribing me with
Hello, i'm after some advice as I know so many other women have been in the same situation I've been to the doctors regarding my periods as I am concerned I have endometriosis or something along those lines and the doctor showed no interest and was really patronising. She ended up prescribing me with
GilleyTea97
in
Endometriosis UK
8 months ago
Update - Not Polymyalgia?
Update - First had Polymyalgia 2018 tapered off successfully 2020 CRP10 ESR 26. Diagnosed again July 2023 CRP4 ESR 26. Symptoms completely different (all neck, shoulders, arms) Put back on 20mg steroids. I wasn’t convinced on 2nd diagnosis so GP agreed I should taper off. Began taper, had blood tests
Update - First had Polymyalgia 2018 tapered off successfully 2020 CRP10 ESR 26. Diagnosed again July 2023 CRP4 ESR 26. Symptoms completely different (all neck, shoulders, arms) Put back on 20mg steroids. I wasn’t convinced on 2nd diagnosis so GP agreed I should taper off. Began taper, had blood tests
Purplelamp
in
PMRGCAuk
8 months ago
7 days off Pramipexole
Two months ago I finally found a doctor (addiction specialist) who read all the literature I gave him (from this site) and he was very understanding and prescribed me the suboxone film. I’m taking 1/7 of the film each day and it has enabled me to get to this point of no Pramipexole! I kinda thought
Two months ago I finally found a doctor (addiction specialist) who read all the literature I gave him (from this site) and he was very understanding and prescribed me the suboxone film. I’m taking 1/7 of the film each day and it has enabled me to get to this point of no Pramipexole! I kinda thought
Itsatom
in
Restless Legs Syndrome
2 months ago
For those considering methadone
hi again everyone, I just want to give a quick update for anyone who may be considering methadone. After trying many other drugs, and after augmentation and withdrawal from dopamine agonists, I started mid Feb on 2.5 mg methadone and have titrated slowly over 4 months to allow my body to get used to
hi again everyone, I just want to give a quick update for anyone who may be considering methadone. After trying many other drugs, and after augmentation and withdrawal from dopamine agonists, I started mid Feb on 2.5 mg methadone and have titrated slowly over 4 months to allow my body to get used to
Mongolia2020
in
Restless Legs Syndrome
2 months ago
Another update on hubby
They took him off sedation, he was shaking after 20 minutes, not all the time. Dr says not fitting so not epilepsy, so no eeg at this stage. After another 30 mins he stopped shaking. Then the so and so went to sleep, lol. They've sedated him again now, but only on half amount so will be easier tomorrow
They took him off sedation, he was shaking after 20 minutes, not all the time. Dr says not fitting so not epilepsy, so no eeg at this stage. After another 30 mins he stopped shaking. Then the so and so went to sleep, lol. They've sedated him again now, but only on half amount so will be easier tomorrow
Hidden
in
British Heart Foundation
6 months ago
HELP Please
How do I find a GP who knows about RLS. I have been back again to my GP as I'm now in server pain all the time which has sent my RLS into overdrive, I'm not sure if I'm in augmentation, she said she would give me an antidepressant to lift my mood!!. I explained that they will make my RLS worse and
How do I find a GP who knows about RLS. I have been back again to my GP as I'm now in server pain all the time which has sent my RLS into overdrive, I'm not sure if I'm in augmentation, she said she would give me an antidepressant to lift my mood!!. I explained that they will make my RLS worse and
Marymill
in
Restless Legs Syndrome
2 months ago
Painful knee
Hi, I've recently joined this forum. I started doing the couch to 5k in November. Finding it quite hard as rather out of condition but I persevered. I'm on week 5 now, though I have missed a few runs due to Christmas and New year. I've also for that reason stuck to run 1 for the last few times. However
Hi, I've recently joined this forum. I started doing the couch to 5k in November. Finding it quite hard as rather out of condition but I persevered. I'm on week 5 now, though I have missed a few runs due to Christmas and New year. I've also for that reason stuck to run 1 for the last few times. However
marigold60
in
Couch to 5K
8 months ago
Exercise that often helps
Although I have experienced intensification of RLS symptoms after heavy, prolonged daytime exercise, paradoxically I have sometimes found significant relief with short bursts of fairly intense calisthenics when symptoms hit at night. As mentioned elsewhere, I have had RLS since my teens. By about age
Although I have experienced intensification of RLS symptoms after heavy, prolonged daytime exercise, paradoxically I have sometimes found significant relief with short bursts of fairly intense calisthenics when symptoms hit at night. As mentioned elsewhere, I have had RLS since my teens. By about age
Cedarish
in
Restless Legs Syndrome
2 months ago
At a loss
I was prescribed Ropinirole .25 mg I took that for 4 days and could not handle the side effects. Day 4 was terrible. After reading the posts, it seems as if I am screwed if I don't take any medication for it so I guess I will just have to live with this condition drug free. I was never a pill popper
I was prescribed Ropinirole .25 mg I took that for 4 days and could not handle the side effects. Day 4 was terrible. After reading the posts, it seems as if I am screwed if I don't take any medication for it so I guess I will just have to live with this condition drug free. I was never a pill popper
Tree1228
in
Restless Legs Syndrome
2 months ago
levodopa and augmentation
I have had RLS for over 10 years and controlling symptoms with oxycodone. I have also been diagnosed with Parkinson’s disease and prescribed Levodopa. Can someone please confirm whether or not this is a dopamine agonist like Pramipexole. If so does it also lead to augmentation?
I have had RLS for over 10 years and controlling symptoms with oxycodone. I have also been diagnosed with Parkinson’s disease and prescribed Levodopa. Can someone please confirm whether or not this is a dopamine agonist like Pramipexole. If so does it also lead to augmentation?
Covenant1962
in
Restless Legs Syndrome
2 months ago
Solving Restless Legs
Medscape have a report issued on June 14th on some new interesting research It is entitled; Solving Restless Legs: Largest Genetic Study to Date May Help and is written by Lisa Marshall and published in Medscape June 14, 2024 I think it is worth our while to know something about it so for
Medscape have a report issued on June 14th on some new interesting research It is entitled; Solving Restless Legs: Largest Genetic Study to Date May Help and is written by Lisa Marshall and published in Medscape June 14, 2024 I think it is worth our while to know something about it so for
thorp
in
Restless Legs Syndrome
2 months ago
struggling 6 weeks after diagnosis
hi I recently posted with a bit of background after PMR diagnosis in November 15mg pred almost removed all symptoms of stiffness and body pains Have had recurrent dull headaches throughout , I put down to side effects of pred and tried to eat better and drink more fluids blood tests after 3 weeks
hi I recently posted with a bit of background after PMR diagnosis in November 15mg pred almost removed all symptoms of stiffness and body pains Have had recurrent dull headaches throughout , I put down to side effects of pred and tried to eat better and drink more fluids blood tests after 3 weeks
Emilydarby
in
PMRGCAuk
8 months ago
RLS treatment Australia
Here is the latest I can find on treatment recommendations in Australia. It is consistent with the latest US advice and includes the option of opiods as last line treatment in refractory (including augmented) RLS. https://www1.racgp.org.au/ajgp/2023/september/restless-legs-syndrome To my mind it does
Here is the latest I can find on treatment recommendations in Australia. It is consistent with the latest US advice and includes the option of opiods as last line treatment in refractory (including augmented) RLS. https://www1.racgp.org.au/ajgp/2023/september/restless-legs-syndrome To my mind it does
ChickenTwisty
in
Restless Legs Syndrome
2 months ago
Statins
Hello again, I have just been told my cholesterol has increased since stopping Atorvastatin and went onto Ezetimibe. The want me to start on 5mg of Rosuvastatin will this affect my RLS?
Hello again, I have just been told my cholesterol has increased since stopping Atorvastatin and went onto Ezetimibe. The want me to start on 5mg of Rosuvastatin will this affect my RLS?
Keith1231
in
Restless Legs Syndrome
2 months ago
Methadone induced brain fog
Hello friends! I have been successfully using 10 mg of methadone for 18 months with no side effects. The past few months I have been experiencing brain fog. It is increasing in severity and frequency. My search to see if methadone or bupremorphine can cause this is enlightening. It definitely can
Hello friends! I have been successfully using 10 mg of methadone for 18 months with no side effects. The past few months I have been experiencing brain fog. It is increasing in severity and frequency. My search to see if methadone or bupremorphine can cause this is enlightening. It definitely can
Qalba
in
Restless Legs Syndrome
2 months ago
methadone no longer helping
I am 87 and live in Australia I have had RLS for at least 4 decades. Only slept when on morale’s. Finally got methadone and had a heavenly 5 hours sleep for 4 years now. I had multiple pulmonary embolisms last year. No source found I needed increase of Methadone to 10 mg twice daily due to anticoagulants
I am 87 and live in Australia I have had RLS for at least 4 decades. Only slept when on morale’s. Finally got methadone and had a heavenly 5 hours sleep for 4 years now. I had multiple pulmonary embolisms last year. No source found I needed increase of Methadone to 10 mg twice daily due to anticoagulants
wairoa36
in
Restless Legs Syndrome
2 months ago
Switching to pregabalin or gabapentin from methadone
I have very much appreciated the information here over several years but never posted before. I have been able to control my RLS (which I’ve had since teen years along with several family members - I’m now 80) with a divided 10 mg daily dose of methadone, prescribed by my sympathetic GP here in Canada
I have very much appreciated the information here over several years but never posted before. I have been able to control my RLS (which I’ve had since teen years along with several family members - I’m now 80) with a divided 10 mg daily dose of methadone, prescribed by my sympathetic GP here in Canada
Cedarish
in
Restless Legs Syndrome
2 months ago
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