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Second go round
Has anyone come off of Ropinirole or the patches due to augmentation, then gone back to taking it after a break of a year or two Just wondered as both of these worked really well for me for a couple of years each I have been taking Tramadol for 9 months and that is beginning to be less effective now
Has anyone come off of Ropinirole or the patches due to augmentation, then gone back to taking it after a break of a year or two Just wondered as both of these worked really well for me for a couple of years each I have been taking Tramadol for 9 months and that is beginning to be less effective now
99selkies
in
Restless Legs Syndrome
5 years ago
My medication for rls
I am 72 and looking back I guess I have experienced rls for at least 30 years but early on not serious enough to warrant medication. It was always in the evening when I lay down to go to sleep. Early on it was sufficient to merely get up and do some exercises and leg stretching exercises would resolve
I am 72 and looking back I guess I have experienced rls for at least 30 years but early on not serious enough to warrant medication. It was always in the evening when I lay down to go to sleep. Early on it was sufficient to merely get up and do some exercises and leg stretching exercises would resolve
m1946
in
Restless Legs Syndrome
5 years ago
New to all this.... Help and understanding needed.
Hi all My 17 year old son has recently been diagnosed with Absence Epilepsy. He's had an EEG and an MRI scan, we have an appointment with hi consultant in 5weeks time. Following his first appointment he was put on Levetiracetam, building the dose up to 500mg twice a day. In the past week or so I've seen
Hi all My 17 year old son has recently been diagnosed with Absence Epilepsy. He's had an EEG and an MRI scan, we have an appointment with hi consultant in 5weeks time. Following his first appointment he was put on Levetiracetam, building the dose up to 500mg twice a day. In the past week or so I've seen
1968ade
in
Epilepsy Action
5 years ago
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Sub cut - size needles
Hi I ran out of needles and syringe I was using fine... Couldn’t get same ones advised on size of needle as threw out the box but I think maybe to short as can’t notice it as much and I feel very drained It’s hydroxy 1 ml I got 2ml syringes Needles: 30g x 1/2 “ O,3mm x 13mm Are they too small
Hi I ran out of needles and syringe I was using fine... Couldn’t get same ones advised on size of needle as threw out the box but I think maybe to short as can’t notice it as much and I feel very drained It’s hydroxy 1 ml I got 2ml syringes Needles: 30g x 1/2 “ O,3mm x 13mm Are they too small
Mandlou
in
Pernicious Anaemia Society
5 years ago
PVT or PAD, Over the past 5 yrs. I've notice pain and heaviness in my legs and the last few weeks I can barely walk.
I went to my Dr. and she told me I was out of shape. I said he'll no. I know I am out of shape, but you know when something is not right. So, I told her I was going to see the vein Dr. That afternoon. Well sure enough I have dilated veins in my legs and they are going to do mapping on them in about a
I went to my Dr. and she told me I was out of shape. I said he'll no. I know I am out of shape, but you know when something is not right. So, I told her I was going to see the vein Dr. That afternoon. Well sure enough I have dilated veins in my legs and they are going to do mapping on them in about a
Seehowyour
in
Restless Legs Syndrome
5 years ago
Splinter
i recently pulled a splinter from my index finger, now it's swollen and has been for several days. I applied ice to the finger and the swelling has not gone down. What should I do?
i recently pulled a splinter from my index finger, now it's swollen and has been for several days. I applied ice to the finger and the swelling has not gone down. What should I do?
williamsw
in
CLL Support
5 years ago
Chicken pox and auto immune disease?
Hi all. My son has woken up with a few spots and I'm obviously concerned it is chicken pox. Though I don't think this IS on this occasion (though I'll be monitoring) it did raise the possibility of him getting it in future (he is 6). I never had chicken pox growing up and I realise that it is serious
Hi all. My son has woken up with a few spots and I'm obviously concerned it is chicken pox. Though I don't think this IS on this occasion (though I'll be monitoring) it did raise the possibility of him getting it in future (he is 6). I never had chicken pox growing up and I realise that it is serious
Mariontp
in
PBC Foundation
5 years ago
Warrior new avril lavigne song
Avril Lavigne spend time fighting lyme disease and had just started recording songs about it as she wrote them while she was in bed fighting the disease and is talking about it more openly trying to promote awareness and campaigning about it (like how Cristabella Braden writes about brain injury and
Avril Lavigne spend time fighting lyme disease and had just started recording songs about it as she wrote them while she was in bed fighting the disease and is talking about it more openly trying to promote awareness and campaigning about it (like how Cristabella Braden writes about brain injury and
bexx87
in
Headway
5 years ago
Lyme Disease summit coming soon online.
https://overcomechroniclyme.com/ Hope this link will work for anyone who is interested. [ Edited by admin to remove unnecessary part of link. Currently the site is not fully active. ]
https://overcomechroniclyme.com/ Hope this link will work for anyone who is interested. [ Edited by admin to remove unnecessary part of link. Currently the site is not fully active. ]
samaja
in
Thyroid UK
5 years ago
Opiate study
This is a link to the first year of a study of rls patients taking opiates for relief. I have obtained permission from the administrators to share this here. Interesting to see the place of Fentanyl and methadone in usage figures. Cheers. https://partners.us20.list-manage.com/track/click?u
This is a link to the first year of a study of rls patients taking opiates for relief. I have obtained permission from the administrators to share this here. Interesting to see the place of Fentanyl and methadone in usage figures. Cheers. https://partners.us20.list-manage.com/track/click?u
Madlegs1
in
Restless Legs Syndrome
5 years ago
Itchy
Hey guys Got a question is it normal to be itchy after having cellulitis😮
Hey guys Got a question is it normal to be itchy after having cellulitis😮
Dojo2927
in
LSN
5 years ago
Another round of Cellulitis after a year
Hello I have a question? I don’t remember if I do or don’t wrap my leg or wear my stocking until all of my cellulitis. goes away..... If anyone can give me feed back I will truly appreciate it Thank u in advance
Hello I have a question? I don’t remember if I do or don’t wrap my leg or wear my stocking until all of my cellulitis. goes away..... If anyone can give me feed back I will truly appreciate it Thank u in advance
Dojo2927
in
LSN
5 years ago
Calling All USA Suffers This is Your Chance to Help Us All!
Hi, I know there are a number of people on here from the US and there is some very important legislation about to be made that could affect us all or at the very least those of us with Refractory RLS where nothing BUT opioids will help. Or even if this isn’t you and you know a fellow sufferer like this
Hi, I know there are a number of people on here from the US and there is some very important legislation about to be made that could affect us all or at the very least those of us with Refractory RLS where nothing BUT opioids will help. Or even if this isn’t you and you know a fellow sufferer like this
Not-methadone-addict
in
Restless Legs Syndrome
5 years ago
Do I have Behcet's?
I have been trying for over 2 years (It will be 3 years in May) to figure out what my diagnosis should be. I don't fit any specific category but many of my symptoms do seem to fit Behcets. I don't however fit the profile. I'm 62 years old and mostly European descent. My first symptoms 3 years ago started
I have been trying for over 2 years (It will be 3 years in May) to figure out what my diagnosis should be. I don't fit any specific category but many of my symptoms do seem to fit Behcets. I don't however fit the profile. I'm 62 years old and mostly European descent. My first symptoms 3 years ago started
Dustydander
in
Behçet's UK
6 years ago
Still no treatment (UK)
Hi Everyone In my last post I thought my partner was about to start treatment, but after a 10 minute consultation at Kings he was told he seems to be managing without ( despite meeting the criteria for treatment) and the next appointment was put out 5 months. Since then his blood results have arrived
Hi Everyone In my last post I thought my partner was about to start treatment, but after a 10 minute consultation at Kings he was told he seems to be managing without ( despite meeting the criteria for treatment) and the next appointment was put out 5 months. Since then his blood results have arrived
Hm15
in
CLL Support
5 years ago
The journey to recovery (viral meningitis)
Hello and this is my story....I’m about 2 months post viral meningitis and this has been a slow journey to recovery. I had the same experience as most of you, several trips the the ER and my primary care provider and no relief or diagnosis. The only symptom I had that really stood out was the headache
Hello and this is my story....I’m about 2 months post viral meningitis and this has been a slow journey to recovery. I had the same experience as most of you, several trips the the ER and my primary care provider and no relief or diagnosis. The only symptom I had that really stood out was the headache
TCTC19
in
Meningitis Now
5 years ago
Madopar - does anyone take it?
I was on Pergolide for 18 years. Wonderful. Cured my restless legs until they took it off the market. Now my neurosurgeon has given me Madopar which doesn’t touch the problem. Help!
I was on Pergolide for 18 years. Wonderful. Cured my restless legs until they took it off the market. Now my neurosurgeon has given me Madopar which doesn’t touch the problem. Help!
Jeverleybane
in
Restless Legs Syndrome
5 years ago
Seizures
Hi all Was in town shopping last Tuesday when I came around on the floor surrounded by paramedics. I had gone in a shop to buy some cards when my eyes started acting odd but thought this will clear in a min and then must have collapsed, although I don’t remember collapsing. Shop staff told paramedics
Hi all Was in town shopping last Tuesday when I came around on the floor surrounded by paramedics. I had gone in a shop to buy some cards when my eyes started acting odd but thought this will clear in a min and then must have collapsed, although I don’t remember collapsing. Shop staff told paramedics
Hollydebs
in
LUPUS UK
5 years ago
Does anyone know what these marks are??? First one appeared I thought it was a burn even though it was on elbow. Leaves a scar behind
Any idea? First one appeared about 2 weeks ago. Convinced myself it was just a burn. Took ages to heal. No itching like a bite would and no pin mark in the centre. Almost boil like without the boil! The second photo I tried to take was of the scar it left behind. Not great I know 😏
Any idea? First one appeared about 2 weeks ago. Convinced myself it was just a burn. Took ages to heal. No itching like a bite would and no pin mark in the centre. Almost boil like without the boil! The second photo I tried to take was of the scar it left behind. Not great I know 😏
Lisalou19
in
LUPUS UK
5 years ago
2 years post viral meningitis
Hello, It’s been just over two years since I was first diagnosed with viral meningoencephalitis and I finally feel like sharing what I can remember from my story. Please bear with me as I am still confused about a lot and don’t remember much of my experience from the hospital. Doctors were never able
Hello, It’s been just over two years since I was first diagnosed with viral meningoencephalitis and I finally feel like sharing what I can remember from my story. Please bear with me as I am still confused about a lot and don’t remember much of my experience from the hospital. Doctors were never able
_Zodiac95
in
Meningitis Now
5 years ago
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