elevated TSH since PD diagnoses

[Missy0202]

Since being diagnosed 2 years ago, my thyroid meds have been decreased 3 times. My most recent blood test had a jump in TSH from 2 to 14 which states I am once again under-medicated, but clinically I feel fine. Has anyone else had these fluctuations in blood results from an underactive thyroid? If so, do you know if sinemet could be messing up the results??

[park_bear]

TSH can be falsely read as elevated, or can be actually elevated with normal T3 and T4. It is how you are feeling and the T3 and T4 that count. If these are good the TSH reading should not be cause for trying to fix what is not broken.

References:

pubmed.ncbi.nlm.nih.gov/193...

Falsely elevated thyroid-stimulating hormone (TSH) level due to macro-TSH

ncbi.nlm.nih.gov/pmc/articl...

Pitfalls in the measurement and interpretation of thyroid function tests

[Missy0202 in reply to park_bear]

This is enlightening and comforting PB. Thank you so much for the time you put into this for me. I appreciate it very much 😀

[Juliegrace]

Did you mean that your thyroid meds have had to be increased? As park_bear wrote, TSH alone is not reliable. I have been taking thyroid meds since 2001, my PD symptoms started around 2008 and I have had no real fluctuations of my thyroid levels in the past 12 years.

[Missy0202 in reply to Juliegrace]

They have been decreased 3 times since my diagnosis, and now my GP wants to increase them! Thank you for responding Juliegrace

[jocelyng]

That’s puzzling. I’ve been on Levothyroxine since 1987. Nothing has changed since my PD diagnosis in 2018. I would suggest a full thryoid panel.

[Missy0202 in reply to jocelyng]

I just sent an email requesting that. Thanks a lot jocelyng