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Same diseases or not?
Several years ago I was dx'd with MS. I took tysabri, a monoclonal antibody treatment for two years. Then I was dx'd with PD and am still taking Rytary, a form of sinemet. My only symptom was olfactory hallucinations. This was smelling things that aren't real. I found that the false odors
Several years ago I was dx'd with MS. I took tysabri, a monoclonal antibody treatment for two years. Then I was dx'd with PD and am still taking Rytary, a form of sinemet. My only symptom was olfactory hallucinations. This was smelling things that aren't real. I found that the false odors
kaypeeoh
in
Cure Parkinson's
2 years ago
Zandopa fast-taper safer than Sinemet?
Zandopa taper-easier than sinemet? A recent post discussed tapering sinemet and it’s risks. Anyone have any insight on tapering Zandopa as the primary treatment? Is it lower risk of withdrawal/NMS with quick taper? Thanks
Zandopa taper-easier than sinemet? A recent post discussed tapering sinemet and it’s risks. Anyone have any insight on tapering Zandopa as the primary treatment? Is it lower risk of withdrawal/NMS with quick taper? Thanks
Fumaniron
in
Cure Parkinson's
2 years ago
PTT FUS in Switzerland - 1 year update
First of all, i would like to write this update after i have been rechecked by the doctors in Switzerland , which was supposed to be in the beginning of January, but due to COVID restrictions, i wasn’t unable to fly. I’m hoping to fly during March, but it’s always unexpected. After a year, i can say
First of all, i would like to write this update after i have been rechecked by the doctors in Switzerland , which was supposed to be in the beginning of January, but due to COVID restrictions, i wasn’t unable to fly. I’m hoping to fly during March, but it’s always unexpected. After a year, i can say
Markbit
in
Cure Parkinson's
2 years ago
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Reduction of Sinemet
Anyone have success in reducing their Parkinson medication, or at least reducing the amount of medication taken each dose? Thanks
Anyone have success in reducing their Parkinson medication, or at least reducing the amount of medication taken each dose? Thanks
Kt088
in
Cure Parkinson's
2 years ago
Practical Suggestions for PWP
If you need to spend a night in the hospital have a go bag ready with several doses of your meds like sinemet, that are taken more often than am noon pm. most hospitals have a nursing rotation that does not coincide with med times as often as pwp need them. hospitals also typicallly have you surrender
If you need to spend a night in the hospital have a go bag ready with several doses of your meds like sinemet, that are taken more often than am noon pm. most hospitals have a nursing rotation that does not coincide with med times as often as pwp need them. hospitals also typicallly have you surrender
beehive23
in
Cure Parkinson's
2 years ago
“ Zaps” and feeling ill at times during each day
Can anyone shed any light on this problem My husband was diagnosed with non motor PD 8 years ago He is usually ok during the mornings but at about 1500 a change takes place from being calm and feeling Ok to being nervous and feeling ill. At 1530 he takes the Sinomet and feels bad after that.
Can anyone shed any light on this problem My husband was diagnosed with non motor PD 8 years ago He is usually ok during the mornings but at about 1500 a change takes place from being calm and feeling Ok to being nervous and feeling ill. At 1530 he takes the Sinomet and feels bad after that.
KenbrookLondon
in
Cure Parkinson's
2 years ago
Daily “zaps” and feeling I’ll
Can anyone shed any light on this problem? My husband was diagnosed with non motor PD 8 years ago He is usually ok during the mornings but at about 1500 a change takes place from being calm and feeling Ok to being nervous and feeling ill. At 1530 he takes the Sinomet and feels bad after that.
Can anyone shed any light on this problem? My husband was diagnosed with non motor PD 8 years ago He is usually ok during the mornings but at about 1500 a change takes place from being calm and feeling Ok to being nervous and feeling ill. At 1530 he takes the Sinomet and feels bad after that.
KenbrookLondon
in
PSP Association
2 years ago
Increased sinemet 25/100 from 3 x daily to 4 x to deal with tremors and have no appetite and significant weight loss? How to cut back?
Won’t see neurologist for 3 weeks to ask him.
Won’t see neurologist for 3 weeks to ask him.
Hidden
in
Cure Parkinson's
2 years ago
IS EXTREME BODY HEAT PART OF HAVING CBD?
Thank you to all who responded to my question about muscle constriction! Now I have another question. Since the cbd diagnosis, my husband suffers from an intolerance to heat. It seems that he's always hot and I'm wondering if it's another side effect of cbd, or maybe it's from the sinemet?
Thank you to all who responded to my question about muscle constriction! Now I have another question. Since the cbd diagnosis, my husband suffers from an intolerance to heat. It seems that he's always hot and I'm wondering if it's another side effect of cbd, or maybe it's from the sinemet?
Perrywrinkle
in
PSP Association
2 years ago
How can you tell if you are taking too much sinemet vs too little. Did experience any of these new symptoms til I switched antidepressant.
Weaning off one antidepressant and onto another I experienced symptoms that felt like I needed a fix. Initially I had some relief when I took a dose of Sinemet. Neurologist suggested increasing dose (low) to 4x daily. After 3 weeks symptoms seem worse. Haven’t actually seen neurologist he made these
Weaning off one antidepressant and onto another I experienced symptoms that felt like I needed a fix. Initially I had some relief when I took a dose of Sinemet. Neurologist suggested increasing dose (low) to 4x daily. After 3 weeks symptoms seem worse. Haven’t actually seen neurologist he made these
Hidden
in
Cure Parkinson's
2 years ago
Body pain increases for few minutes every 3.5 hours
Any small pain in the body increases (sensation or feeling) with each downward crossover between ON time and OFF time. This increased pain sensation lasts for 30 minutes. or we may say at every wear off of generic sinemet that is every 3.5 to 4 hours. Mostly it is in the back. Relief after another person
Any small pain in the body increases (sensation or feeling) with each downward crossover between ON time and OFF time. This increased pain sensation lasts for 30 minutes. or we may say at every wear off of generic sinemet that is every 3.5 to 4 hours. Mostly it is in the back. Relief after another person
surdug1
in
Cure Parkinson's
2 years ago
What might I notice taking sinemet 4x daily up from 3x
Still get tremors two hours in, feel light headed when I stand up and limbs feel very heavy
Still get tremors two hours in, feel light headed when I stand up and limbs feel very heavy
Hidden
in
Cure Parkinson's
2 years ago
Parkinson's could be otherwise.
Did you know that...? SELF-HEALING ...numerous people claim to have controlled, healed or reversed the symptoms of their disease (Annetta Freeman, Howard Shifke, John Coleman, Colin Potter, John Pepper...). Robert Rodgers' project since 2004, with his blogs, books and almost 300 radio programmes on
Did you know that...? SELF-HEALING ...numerous people claim to have controlled, healed or reversed the symptoms of their disease (Annetta Freeman, Howard Shifke, John Coleman, Colin Potter, John Pepper...). Robert Rodgers' project since 2004, with his blogs, books and almost 300 radio programmes on
parkinsonshereandnow
in
Cure Parkinson's
2 years ago
What do I do now?
I got diagnosed at the end of October 2021. Once diagnosed I was offered a choice of sinemet or pramipexole. At the time I was stunned and confused at what to do. I hadn’t processed anything yet. I chose pramipexole cause I got the impression it was lesser of the two evils so to speak. Now that I have
I got diagnosed at the end of October 2021. Once diagnosed I was offered a choice of sinemet or pramipexole. At the time I was stunned and confused at what to do. I hadn’t processed anything yet. I chose pramipexole cause I got the impression it was lesser of the two evils so to speak. Now that I have
Highlander63
in
Cure Parkinson's
2 years ago
Kineret anyone?
Anyone ever been on
Kineret
? If so can you tell me please how it worked for you. How long it took to tell a difference. Thanks so much Peggy
Anyone ever been on
Kineret
? If so can you tell me please how it worked for you. How long it took to tell a difference. Thanks so much Peggy
precious123
in
NRAS
3 years ago
Low-Dose Niacin Supplementation Improves Motor Function in US Veterans with Parkinson’s Disease: A Single-Center, Randomized, Placebo-Contro
A single-center, randomized, placebo-controlled study finds that low-dose niacin supplementation improves motor function in US Veterans with #Parkinsons; N=47, 6 months double blind followed by 6 months open label; Treatment well tolerated. "Niacin is, therefore, a promising choice as an adjunct therapy
A single-center, randomized, placebo-controlled study finds that low-dose niacin supplementation improves motor function in US Veterans with #Parkinsons; N=47, 6 months double blind followed by 6 months open label; Treatment well tolerated. "Niacin is, therefore, a promising choice as an adjunct therapy
Hidden
in
Cure Parkinson's
3 years ago
Dopamine agonist withdrawal syndrome
I recently changed antidepressant medications from cipralex to trintellix . during the process I have experienced nausea vomiting, fatigue, anxiety, increased tremors and generally feeling unwell. I take sinemet three times a day and after my noon dose I get relief from these symptoms for up to four
I recently changed antidepressant medications from cipralex to trintellix . during the process I have experienced nausea vomiting, fatigue, anxiety, increased tremors and generally feeling unwell. I take sinemet three times a day and after my noon dose I get relief from these symptoms for up to four
Hidden
in
Cure Parkinson's
3 years ago
What is going on ?
If I miss taking my sinemet it seems there is no noticeable difference in my physical or mental state. Yesterday I forgot to take two sememet and I seemed to perform better this morning. Can anyone suggest what is going on ? My normal medication is 4 x100+25 sinemet.3x ropinerole,1x azilect,3x pregablin
If I miss taking my sinemet it seems there is no noticeable difference in my physical or mental state. Yesterday I forgot to take two sememet and I seemed to perform better this morning. Can anyone suggest what is going on ? My normal medication is 4 x100+25 sinemet.3x ropinerole,1x azilect,3x pregablin
Gedge01
in
Cure Parkinson's
3 years ago
Trying to get off Sinemet
Still stuck on Sinemet (100mg levidopa/25mg carbidopa) which augmented causing severe muscle rigidity along with the worsening RLS convulsions. It was originally prescribed over 2 years ago to reduce potential damages to 4th spinal surgery. No one realized it would be so difficult to stop. I tapered
Still stuck on Sinemet (100mg levidopa/25mg carbidopa) which augmented causing severe muscle rigidity along with the worsening RLS convulsions. It was originally prescribed over 2 years ago to reduce potential damages to 4th spinal surgery. No one realized it would be so difficult to stop. I tapered
betternowman
in
Restless Legs Syndrome
3 years ago
Did the Georgetown University Plan Stand a Chance?
I started this response over three weeks ago. I had some intense dyskinesia that caused me to lose content so I had to start over several times. Thank you to all those people that offered advice. I know I'm not the brightest bulb on the tree and I cannot repeat sub 5 minute miles in a marathon. At the
I started this response over three weeks ago. I had some intense dyskinesia that caused me to lose content so I had to start over several times. Thank you to all those people that offered advice. I know I'm not the brightest bulb on the tree and I cannot repeat sub 5 minute miles in a marathon. At the
Isthistheone
in
Cure Parkinson's
3 years ago
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