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An Update and a Question
Hi Everyone , Just another update , I am off Ropinerole completely now and have been for 3 weeks but now the big battle …coming off Sinemet which I have just started !! My new GP has told me that my Serum Ferritin levels are at 22 or at l least were at the beginning of June , he says I don’t need to
Hi Everyone , Just another update , I am off Ropinerole completely now and have been for 3 weeks but now the big battle …coming off Sinemet which I have just started !! My new GP has told me that my Serum Ferritin levels are at 22 or at l least were at the beginning of June , he says I don’t need to
Catlady4921
in
Restless Legs Syndrome
3 years ago
PLEASE HELP! ARE YOU ON RYTARY AND YOUR MEDICATION SOMETIMES DOES NOT " KICK IN" IN THE MORNINGS?
Hi Kindly respond to this post if you use sinemet tablet as a bridge to make the Rytary work. If you do this, how much sinemet do you use? Will this method disrupt the functioning of Rytary as a slow release medication designed to work up to 3hours or more, on the long run leading to motor fluctuations
Hi Kindly respond to this post if you use sinemet tablet as a bridge to make the Rytary work. If you do this, how much sinemet do you use? Will this method disrupt the functioning of Rytary as a slow release medication designed to work up to 3hours or more, on the long run leading to motor fluctuations
OREOLU
in
Cure Parkinson's
3 years ago
macuna puriens capsules dosing advice please
hi im looking into buying some macuna capsules what are the dose strengths i should be looking for? im on 125 mg sinemet
hi im looking into buying some macuna capsules what are the dose strengths i should be looking for? im on 125 mg sinemet
Todd-pw
in
Cure Parkinson's
3 years ago
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Nausea and vomiting
Does anyone else experience nausea and vomiting after taking their Sinemet?. I can’t figure out what triggers it and cannot predict when it happens. Had to leave a dinner party Saturday night after hanging over the toilet. It is so embarrassing.
Does anyone else experience nausea and vomiting after taking their Sinemet?. I can’t figure out what triggers it and cannot predict when it happens. Had to leave a dinner party Saturday night after hanging over the toilet. It is so embarrassing.
MyGolf
in
Cure Parkinson's
3 years ago
Dyskinesia Question
I was officially diagnosed with PD at 44yrs old and have been taking 1 x tablets of Sinemet Plus 25mg/100mg three times daily at 12pm, 3pm and 6pm for the past year since diagnosis. I have gait issues including dropfoot which disappeared with the meds however over the past couple of months I've started
I was officially diagnosed with PD at 44yrs old and have been taking 1 x tablets of Sinemet Plus 25mg/100mg three times daily at 12pm, 3pm and 6pm for the past year since diagnosis. I have gait issues including dropfoot which disappeared with the meds however over the past couple of months I've started
Wilso77
in
Cure Parkinson's
3 years ago
Is there an alternative treatment to Sinemet ?
My husband has been on Sinemet since July and there hasn’t been any improvement whatsoever. He’s constantly dizzy and his consultant told him in a phone appointment that dizziness is always caused by low blood pressure, but last week he went to his gp because it was so bad. He had his BP checked sitting
My husband has been on Sinemet since July and there hasn’t been any improvement whatsoever. He’s constantly dizzy and his consultant told him in a phone appointment that dizziness is always caused by low blood pressure, but last week he went to his gp because it was so bad. He had his BP checked sitting
Redjune1
in
Multiple System Atrophy Trust
3 years ago
Mucuna puriens 1000mg
My new neurologist suggested I try mucuna puriens 1000 mg. because of side effects of sinemet ER 25/100 which I take at night. I also take Asian herbs prescribed by my acupuncturist which contains some levodopa three times a day. I took one 1000 MP capsule and my blood pressure and pulse shot up and
My new neurologist suggested I try mucuna puriens 1000 mg. because of side effects of sinemet ER 25/100 which I take at night. I also take Asian herbs prescribed by my acupuncturist which contains some levodopa three times a day. I took one 1000 MP capsule and my blood pressure and pulse shot up and
Lin1950
in
Cure Parkinson's
3 years ago
gut problems and medication effectiveness
hi all http://www.sci-news.com/medicine/gut-bacteria-levodopa-07328.html just read this and found it interesting, I definitely have major problems with medication effectiveness and digestive issues. When first diagnosed i had no stomach issues 5 and half years in i have problems with my digestion not
hi all http://www.sci-news.com/medicine/gut-bacteria-levodopa-07328.html just read this and found it interesting, I definitely have major problems with medication effectiveness and digestive issues. When first diagnosed i had no stomach issues 5 and half years in i have problems with my digestion not
Todd-pw
in
Cure Parkinson's
3 years ago
MRigFUS in Switzerland - 9 months update
If i wrote this post 3 days ago, i probably wouldn’t be so positive about it, it was an hard day, with difficult controlling tremor most of the day. But it was a bad day among very good days. Today was a virtually no tremor day. I got used to this roller coaster now, but i had a quite pleasant but also
If i wrote this post 3 days ago, i probably wouldn’t be so positive about it, it was an hard day, with difficult controlling tremor most of the day. But it was a bad day among very good days. Today was a virtually no tremor day. I got used to this roller coaster now, but i had a quite pleasant but also
Markbit
in
Cure Parkinson's
3 years ago
Typical med progression?
My friend started taking l-dopa within the past year. She works fulltime and her workplace isn't aware of her diagnosis. Currently she's taking 8 Sinemet 100mg daily, plus 3 or 4 Rytary 145mg. She also takes sleeping medication, and botox for curled toes. She's reading articles on DBS. Any advice
My friend started taking l-dopa within the past year. She works fulltime and her workplace isn't aware of her diagnosis. Currently she's taking 8 Sinemet 100mg daily, plus 3 or 4 Rytary 145mg. She also takes sleeping medication, and botox for curled toes. She's reading articles on DBS. Any advice
genesurf
in
Cure Parkinson's
3 years ago
Testosterone and PD
I have learned many helpful things on this forum, so in the hope that it will prove helpful to others I thought I would share my positive experience with testosterone replacement therapy (TRT). Obviously, TRT is relevant primarily to male PWPs and their caregivers, but there may be equivalent hormone
I have learned many helpful things on this forum, so in the hope that it will prove helpful to others I thought I would share my positive experience with testosterone replacement therapy (TRT). Obviously, TRT is relevant primarily to male PWPs and their caregivers, but there may be equivalent hormone
hmm777
in
Cure Parkinson's
3 years ago
Selegiline and Zandopa
My neurologist prescribed me selegiline a month ago and It helped me with tremor and movement. I also take Zandopa and sinemet. Yesterday 1.5 hours after taking zandopa, I started having severe headache, and my blood pressure raised to 225. I also vomited 4 times. It calmed down after an hour and blood
My neurologist prescribed me selegiline a month ago and It helped me with tremor and movement. I also take Zandopa and sinemet. Yesterday 1.5 hours after taking zandopa, I started having severe headache, and my blood pressure raised to 225. I also vomited 4 times. It calmed down after an hour and blood
LauraYu
in
Cure Parkinson's
3 years ago
Dizziness
My husband is newly diagnosed with MSA and is on Sinemet x3 daily. So far the medication doesn’t seem to be helping, he’s been on it just over four weeks. Also, the symptom that seems to cause the most problems is dizziness which he has all the time. Is the Sinemet likely to help that or should he see
My husband is newly diagnosed with MSA and is on Sinemet x3 daily. So far the medication doesn’t seem to be helping, he’s been on it just over four weeks. Also, the symptom that seems to cause the most problems is dizziness which he has all the time. Is the Sinemet likely to help that or should he see
Redjune1
in
Multiple System Atrophy Trust
3 years ago
Failing many meds over the years.
Well today he said he was gonna put me on
Kineret
. It’s a once a day shot. He are you ok giving yourself an injection a day. I said heck no if it will help Me I will do just about anything. Has anyone on here taken this medication? If so how did it work for you? I’m very interested to know.
Well today he said he was gonna put me on
Kineret
. It’s a once a day shot. He are you ok giving yourself an injection a day. I said heck no if it will help Me I will do just about anything. Has anyone on here taken this medication? If so how did it work for you? I’m very interested to know.
precious123
in
NRAS
3 years ago
Help Needed! Selegiline?
I am on Sinemet/ Zandopa 4 times a day, including 3 times during the day and 1 before bedtime. It works well for me so far, during Sinemet on- time, I am pretty much symptom free ( although it only lasts for about 2 hours). I also take it right before bedtime, so I can have few hours of comfortable sleep
I am on Sinemet/ Zandopa 4 times a day, including 3 times during the day and 1 before bedtime. It works well for me so far, during Sinemet on- time, I am pretty much symptom free ( although it only lasts for about 2 hours). I also take it right before bedtime, so I can have few hours of comfortable sleep
LauraYu
in
Cure Parkinson's
3 years ago
Supplement recommendations
My father was diagnosed 4 years ago with PD.... 2 years before me. His symptoms are very different from mine. Both of us are LRRK2 positive. He is taking Sinemet 25/100 4 x a day. His apathy is by far the most bothersome non motor symptom... well at least to the family it is..... He will not exercise
My father was diagnosed 4 years ago with PD.... 2 years before me. His symptoms are very different from mine. Both of us are LRRK2 positive. He is taking Sinemet 25/100 4 x a day. His apathy is by far the most bothersome non motor symptom... well at least to the family it is..... He will not exercise
Missy0202
in
Cure Parkinson's
3 years ago
Stutter Step
If this has been addressed before, I missed the post. Does anyone else experience stutter step, (uncontrollable, unpredictable quick steps) which makes it hard to keep balance. My husband is almost 3 years post diagnosis and started stutter step recently a couple of months ago. When it happens,
If this has been addressed before, I missed the post. Does anyone else experience stutter step, (uncontrollable, unpredictable quick steps) which makes it hard to keep balance. My husband is almost 3 years post diagnosis and started stutter step recently a couple of months ago. When it happens,
Lookingforhealing
in
Cure Parkinson's
3 years ago
Surprise, surprise. "When should you start medication therapy for Parkinson's disease?" as per THE PARKINSON'S FOUNDATION.
"The most important factor in initiating medications for an individual patient is whether Parkinson’s symptoms are affecting quality of life, (read; interfering with...) or alternatively whether symptoms are affecting work performance." Read; not automatically at the time of diagnosis. https://www.parkinson.org
"The most important factor in initiating medications for an individual patient is whether Parkinson’s symptoms are affecting quality of life, (read; interfering with...) or alternatively whether symptoms are affecting work performance." Read; not automatically at the time of diagnosis. https://www.parkinson.org
MBAnderson
in
Cure Parkinson's
3 years ago
Rytary
The neurologist switched me from senimet IR..to Rytary about 10 months ago. I feel I have given it a.good try, but am getting very despondent. It either gives me debilitating dyskinesia or doesn’t kick in by every other dose. I have 145’s and 195’s and was told to work with them to figure out what
The neurologist switched me from senimet IR..to Rytary about 10 months ago. I feel I have given it a.good try, but am getting very despondent. It either gives me debilitating dyskinesia or doesn’t kick in by every other dose. I have 145’s and 195’s and was told to work with them to figure out what
Ep0522
in
Cure Parkinson's
3 years ago
Sharing DBS Journey
Hi, Just wanted to share my dad's process in case it will help anyone... He was diagnosed at 54 years old and will be 70 next month. He is rigidity dominant, experiences freezing of gait (mainly in initiating) and has dyskinesias from his meds (among many other PD symptoms!). Up until almost two years
Hi, Just wanted to share my dad's process in case it will help anyone... He was diagnosed at 54 years old and will be 70 next month. He is rigidity dominant, experiences freezing of gait (mainly in initiating) and has dyskinesias from his meds (among many other PD symptoms!). Up until almost two years
pdkid
in
Cure Parkinson's
3 years ago
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