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Hemodialysis Side Effects
90days into Hemodialysis 3 times a week, 3h 15 mins duration. 1. Head ace starts 15 mins after treatments, which last hours, sometimes days. 2. Within 30 mins into headache it changes to an Ocular Migraine. 3. Dizziness starts within the hour. 4. Extreme fatigue starts around 3 hours after, which
90days into Hemodialysis 3 times a week, 3h 15 mins duration. 1. Head ace starts 15 mins after treatments, which last hours, sometimes days. 2. Within 30 mins into headache it changes to an Ocular Migraine. 3. Dizziness starts within the hour. 4. Extreme fatigue starts around 3 hours after, which
AlanKx5
in
Kidney Dialysis
3 years ago
A curiosity with questions
Good evening everyone, I know how difficult it can be to conduct research for fibromailgia, I have read so many abstracts on the Pub Med website but I wanted to ask you if you are aware of studies such as: 1) measuring an enzyme or antibody responsible for a specific biological process that leads to
Good evening everyone, I know how difficult it can be to conduct research for fibromailgia, I have read so many abstracts on the Pub Med website but I wanted to ask you if you are aware of studies such as: 1) measuring an enzyme or antibody responsible for a specific biological process that leads to
TabataRossa
in
Fibromyalgia Action UK
3 years ago
PMR Relapses
I was diagnosed with PMR in October of 2019 and keep having relapses when I try to descend on my methylprednisolone. I started out at 20 mg. and am now at 8 mg., but every time I try to go down to less than 8mg., I have painful, debilitating relapses after about 3 weeks. I’m so depressed about staying
I was diagnosed with PMR in October of 2019 and keep having relapses when I try to descend on my methylprednisolone. I started out at 20 mg. and am now at 8 mg., but every time I try to go down to less than 8mg., I have painful, debilitating relapses after about 3 weeks. I’m so depressed about staying
SandraLinks
in
PMRGCAuk
3 years ago
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So....now an infection.
Had blood test tue, phone call from surgeon wed-go back for investigations as ALT elevated on blood results. He mentioned stents, liver rejection and told me not to worry. Pain is still absolutely hellish. So of course couldn’t sleep for worrying, even told my husband I need to go home to Scotland urgently
Had blood test tue, phone call from surgeon wed-go back for investigations as ALT elevated on blood results. He mentioned stents, liver rejection and told me not to worry. Pain is still absolutely hellish. So of course couldn’t sleep for worrying, even told my husband I need to go home to Scotland urgently
Braveheart65
in
British Liver Trust
3 years ago
Lightheadedness, dizzy spells,
Doctors have ruled out brain abnormalities, inner ear problems. Besides cancer treatment, taking 20 mg of Telmisartan daily, 4/10 mg Flomax evenings. Two tabs Caltrate 600 daily, two tablets Cosamine DS daily, 5000 mg vitamin B lingual every third day, and 2 bitter almonds per day. Only started bitter
Doctors have ruled out brain abnormalities, inner ear problems. Besides cancer treatment, taking 20 mg of Telmisartan daily, 4/10 mg Flomax evenings. Two tabs Caltrate 600 daily, two tablets Cosamine DS daily, 5000 mg vitamin B lingual every third day, and 2 bitter almonds per day. Only started bitter
Flyfisherbug
in
Advanced Prostate Cancer
3 years ago
PTT trials for 50 participants at 8 locations* in the US. Out of nowhere. Bilateral will be offered if you qualify. (*Thank you Rebtar.)
Criteria Inclusion Criteria: Men and women, age 30 years and older, desiring bilateral treatment option with second side staged at 6 months. Subject is able and willing to give informed consent and able to attend all study visits Subject with a diagnosis of idiopathic PD by UK Brain Bank Criteria
Criteria Inclusion Criteria: Men and women, age 30 years and older, desiring bilateral treatment option with second side staged at 6 months. Subject is able and willing to give informed consent and able to attend all study visits Subject with a diagnosis of idiopathic PD by UK Brain Bank Criteria
MBAnderson
in
Cure Parkinson's
3 years ago
What is a normal decrease in GFR?
Finally had a chat with my GP about my blood test results. Had a test done in March 2020 - GFR was 80. 2nd test December 2020 GFR was 65. 2 weeks later test was done again without eating any meat and drinking at least 4 litres of water 24hrs before and rose to 68. He said GFR shouldn't have dropped
Finally had a chat with my GP about my blood test results. Had a test done in March 2020 - GFR was 80. 2nd test December 2020 GFR was 65. 2 weeks later test was done again without eating any meat and drinking at least 4 litres of water 24hrs before and rose to 68. He said GFR shouldn't have dropped
meggiemog
in
Early CKD Support
3 years ago
Doctor thinks I have PV
I wrote a post a few months ago about my gp having cause for concern with my RBC. I have nephrotic syndrome (kidney disease) have had it since I was 8 I’m now 24 I was meant to have a jak2 test back in November but clearly they never did it. I was referred to haematologist and he called me for a phone
I wrote a post a few months ago about my gp having cause for concern with my RBC. I have nephrotic syndrome (kidney disease) have had it since I was 8 I’m now 24 I was meant to have a jak2 test back in November but clearly they never did it. I was referred to haematologist and he called me for a phone
Phoebe776
in
MPN Voice
3 years ago
October 15th - 21 Years & Counting!!
Yes, it's the day I got the CALL for a
kidney
transplant
. It seems like a long time ago, and yet seems like just yesterday. I have a life, thanks to a family who was grieving for their 16 year old son, but thought of others and he became my donor.
Yes, it's the day I got the CALL for a
kidney
transplant
. It seems like a long time ago, and yet seems like just yesterday. I have a life, thanks to a family who was grieving for their 16 year old son, but thought of others and he became my donor.
WYOAnne
NKF Ambassador
in
Kidney Transplant
4 years ago
Paraffin oil? Desperate worried mummy :(
Hi I’m new, I’m glad I found this site I have been feeling stressed and pretty sad watching how much my 4 year old struggles with his bowels. Has anyone’s child tried paraffin oil ? Gp suggested I try this mixed with chocolate sauce. I’m in Nz seems to be very limited support. Waiting for paediatrician
Hi I’m new, I’m glad I found this site I have been feeling stressed and pretty sad watching how much my 4 year old struggles with his bowels. Has anyone’s child tried paraffin oil ? Gp suggested I try this mixed with chocolate sauce. I’m in Nz seems to be very limited support. Waiting for paediatrician
LuckyStar40
in
ERIC
3 years ago
Now to try topotecan
Hello everyone, I’m new here and wonder if anyone has had a similar experience. I was diagnosed with probable ovarian cancer in September 2019, although the histology was, apparently, not easy to classify. I had a few rounds of carboplatin/paclitaxel, which help things at bay for a while, then 3 doses
Hello everyone, I’m new here and wonder if anyone has had a similar experience. I was diagnosed with probable ovarian cancer in September 2019, although the histology was, apparently, not easy to classify. I had a few rounds of carboplatin/paclitaxel, which help things at bay for a while, then 3 doses
Fishfinger4
in
My Ovacome
3 years ago
Lovely, just wonderful.
Not only have I ANCA Vasculitis, but also have had a
Kidney
Transplant
, so I have to use a Factor Fifty Plus 'Sun Cream'- which is thankfully Prescribed. I DON'T mean to 'Rain on anyone's parade', and YES I Do like the 'Look' of the Sun, it Does brighten 'things' up..... BUT!
Not only have I ANCA Vasculitis, but also have had a
Kidney
Transplant
, so I have to use a Factor Fifty Plus 'Sun Cream'- which is thankfully Prescribed. I DON'T mean to 'Rain on anyone's parade', and YES I Do like the 'Look' of the Sun, it Does brighten 'things' up..... BUT!
AndrewT
in
Positive Wellbeing During Self-Isolation
4 years ago
Re: WARWICK's ASCT Journey Begins Today...
Afternoon all... Warwick has managed to POST a reply on MATES, and if any of you can, I am sure that he would love to say hi... He's not feeling terribly himself Eight (8) days into his Stem Cell Transplant, but he did manage to
[i]POST[/i]
the message below on MATES, and so I Posted here again
Afternoon all... Warwick has managed to POST a reply on MATES, and if any of you can, I am sure that he would love to say hi... He's not feeling terribly himself Eight (8) days into his Stem Cell Transplant, but he did manage to
[i]POST[/i]
the message below on MATES, and so I Posted here again
socrates_8
in
MPN Voice
3 years ago
My Father is in ICU on a ventilator for 8days, with dialysis - All help welcome!🙏🏼
Hi Eveyone, So glad I found this forum and reading peoples journeys with this horrendous diesease. My dad was admitted on NYE with high temp and Symptoms and went from cpap to being put on a ventilator. This now being the eighth day in ICU. He has diabetes so had kidney failure and is on dialysis.
Hi Eveyone, So glad I found this forum and reading peoples journeys with this horrendous diesease. My dad was admitted on NYE with high temp and Symptoms and went from cpap to being put on a ventilator. This now being the eighth day in ICU. He has diabetes so had kidney failure and is on dialysis.
Sensationalsoldier
in
ICUsteps
3 years ago
Can i take Creatine with compensated Cirrhosis?
Hi everybody, Happy New year. I was just wondering if anybody could advise me on the use of Creatine for someone with compensated Cirrhosis. I've been teetotal for almost 4 years since diagnosis and in the last year and a half have been exercising and building muscle. My recent liver scan showed everything
Hi everybody, Happy New year. I was just wondering if anybody could advise me on the use of Creatine for someone with compensated Cirrhosis. I've been teetotal for almost 4 years since diagnosis and in the last year and a half have been exercising and building muscle. My recent liver scan showed everything
richoanajess
in
British Liver Trust
3 years ago
Alternative biologics
Due to bad side effects of acitretin it has been suggested that I use either adalimumab or risankizubab of which it is reported that the latter has higher efficacy Side effects of adalimumab appear to be predominantly headache and various bowel issues. Has anyone any experience of risankizumab?
Due to bad side effects of acitretin it has been suggested that I use either adalimumab or risankizubab of which it is reported that the latter has higher efficacy Side effects of adalimumab appear to be predominantly headache and various bowel issues. Has anyone any experience of risankizumab?
Fishing1949
in
Beyond Psoriasis
3 years ago
Taken off Baricitinib and feeling much worse!
I was taken off Olumiant/Baricitinib (at least for a while) due to high creatinine numbers. I was taking it with Arava and an occasional NSAID. Honestly, I also ate way too much chicken around the time of the blood test. I wonder if anyone here experienced high creatinine numbers due to Baricitinib.
I was taken off Olumiant/Baricitinib (at least for a while) due to high creatinine numbers. I was taking it with Arava and an occasional NSAID. Honestly, I also ate way too much chicken around the time of the blood test. I wonder if anyone here experienced high creatinine numbers due to Baricitinib.
ubound
in
NRAS
3 years ago
Vaccine
Hi I work in the NHS and have had SLE lupus nephritis since 2015. I'm on steroids and hydroxy I'm very confused about which vaccine to have as I have read so many different opinions. My GP has no idea so I'm turning to the lupus community Thank you
Hi I work in the NHS and have had SLE lupus nephritis since 2015. I'm on steroids and hydroxy I'm very confused about which vaccine to have as I have read so many different opinions. My GP has no idea so I'm turning to the lupus community Thank you
ajanjua
in
LUPUS UK
3 years ago
NKF Virtual Patient Event: Everything You Need to Know About Insurance
This is a must-see webinar for anyone on dialysis or with a
kidney
transplant
as they prepare for Medicare open enrollment! October 1, 2020 / 3pm - 4pm ET (12-1pm PT) Register here: https://kidney.secure.force.com/rc_connect__campaign_designform?id=7013a000002DqbVAAS&form=00P3a00001XBpoAEAT&
This is a must-see webinar for anyone on dialysis or with a
kidney
transplant
as they prepare for Medicare open enrollment! October 1, 2020 / 3pm - 4pm ET (12-1pm PT) Register here: https://kidney.secure.force.com/rc_connect__campaign_designform?id=7013a000002DqbVAAS&form=00P3a00001XBpoAEAT&
KristiS_NKF
Administrator
in
Parents of Children with Kidney Disease
4 years ago
NKF Virtual Patient Event: Everything You Need to Know About Insurance
This is a must-see webinar for anyone on dialysis or with a
kidney
transplant
as they prepare for Medicare open enrollment! October 1, 2020 / 3pm - 4pm ET (12-1pm PT) Register here: https://kidney.secure.force.com/rc_connect__campaign_designform?
This is a must-see webinar for anyone on dialysis or with a
kidney
transplant
as they prepare for Medicare open enrollment! October 1, 2020 / 3pm - 4pm ET (12-1pm PT) Register here: https://kidney.secure.force.com/rc_connect__campaign_designform?
KristiS_NKF
Administrator
in
Kidney Transplant
4 years ago
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