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Sct question
Hello friends! I'm using Google translate now. I hope you will understand. I have a question that I can not find an answer to online. It's about stem cell transplantation. If this were to happen at some point in the future, how precise/exact does a match need to be? My parents have different ethnic
Hello friends! I'm using Google translate now. I hope you will understand. I have a question that I can not find an answer to online. It's about stem cell transplantation. If this were to happen at some point in the future, how precise/exact does a match need to be? My parents have different ethnic
Johan2021
in
MPN Voice
2 years ago
Has anyone with TP53 changes been diagnosed with Li-Fraumeni Syndrome?
I know TP53 plays a role in diagnosing and treating CLL, but I also found that Li-Fraumeni and TP53 are related. I was wondering if anyone here has been tested and diagnosed with Li-Fraumeni as well as CLL. Here is additional information on Li-Fraumeni: https://my.clevelandclinic.org/health/diseases
I know TP53 plays a role in diagnosing and treating CLL, but I also found that Li-Fraumeni and TP53 are related. I was wondering if anyone here has been tested and diagnosed with Li-Fraumeni as well as CLL. Here is additional information on Li-Fraumeni: https://my.clevelandclinic.org/health/diseases
Wishing1202
in
CLL Support
3 years ago
Third Jevtana/Carboplatin treatment completed. Total of 10 chemo treatments are now completed overall. Hoping for better results.
PSA increase as seen above. My oncologist's response was "This may be the roller coaster that your PSA is following We will continue to monitor the levels and symptoms" Seems to me the best part of the old wooden coaster was cresting the top of the climb and plunging to the bottom. Hopefully, my next
PSA increase as seen above. My oncologist's response was "This may be the roller coaster that your PSA is following We will continue to monitor the levels and symptoms" Seems to me the best part of the old wooden coaster was cresting the top of the climb and plunging to the bottom. Hopefully, my next
Mount_Rainier
in
Advanced Prostate Cancer
3 years ago
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HCC Any New Up to Date Recommendations?
Hi, I had as liver resection last May 2021 . My cancer came back 8 months later which is this past January. It has been recommended that I have a Y-90. And Immunotherapy. After a consult with all my DR's it is now recommended that I have a consult with the Transplant team at a nearby hospital. So much
Hi, I had as liver resection last May 2021 . My cancer came back 8 months later which is this past January. It has been recommended that I have a Y-90. And Immunotherapy. After a consult with all my DR's it is now recommended that I have a consult with the Transplant team at a nearby hospital. So much
Iggy08713287
Patient
in
Blue Faery Liver Cancer
3 years ago
Is the answer age-related valid?
My potassium level showed up on my blood test as 6 and they gave me a binder for two days and a diet I must follow. What I can not get is an answer to my question is this a kidney problem or the effect of the blood pressure perindopril I have taken for ten years? I am 78.
My potassium level showed up on my blood test as 6 and they gave me a binder for two days and a diet I must follow. What I can not get is an answer to my question is this a kidney problem or the effect of the blood pressure perindopril I have taken for ten years? I am 78.
hc75
in
NRAS
3 years ago
Mom with 11 yr old son that had Kidney Transplant at 18 months old.
Hello, I’m new to this community so grateful to have found this. Wish it was around 10 yrs ago when we were dealing with my sons transplant… Just looking for parents with children that may have gone through a transplant. My son is 11 now and just going through a huge change physically, emotionally,
Hello, I’m new to this community so grateful to have found this. Wish it was around 10 yrs ago when we were dealing with my sons transplant… Just looking for parents with children that may have gone through a transplant. My son is 11 now and just going through a huge change physically, emotionally,
Tulip00
in
Parents of Children with Kidney Disease
3 years ago
Potassium’s use and Trigeminal Neuralgia Events
Hello this is my first time posting so be kind. I have MS and have been prescribed Klor-Con M20 potassium as a result of diarrhea. Now I am having Trigeminal Neuralgia (TN) events sometimes 3-times per day and as you know if you have had them they hurt. I read somewhere that a person said to avoid bananas
Hello this is my first time posting so be kind. I have MS and have been prescribed Klor-Con M20 potassium as a result of diarrhea. Now I am having Trigeminal Neuralgia (TN) events sometimes 3-times per day and as you know if you have had them they hurt. I read somewhere that a person said to avoid bananas
WasaGolfer
in
My MSAA Community
3 years ago
Hopefully can get another scan
I'm ringing gp today to get more scans while waiting for my op in 4 months. It feels like something heavy in inside my left side and I can feel a lump bad and when touch or push on it it's really pain full hopefully they can check my kidney and liver also as something seems worst and dont seem right.
I'm ringing gp today to get more scans while waiting for my op in 4 months. It feels like something heavy in inside my left side and I can feel a lump bad and when touch or push on it it's really pain full hopefully they can check my kidney and liver also as something seems worst and dont seem right.
nikkimatt2019
in
Endometriosis UK
3 years ago
Terrible headache after dialysis
I get a terrible headache in forehead immediately after hemodialysis. Lasts for about 5 hours. Dr says take tylenol...does not help...blood pressure checked...not there..Does anyone know what I can take to make this headache go away? Thank you in advance!
I get a terrible headache in forehead immediately after hemodialysis. Lasts for about 5 hours. Dr says take tylenol...does not help...blood pressure checked...not there..Does anyone know what I can take to make this headache go away? Thank you in advance!
Eddie2149
in
Dialysis Support
3 years ago
Kidney Jokes
. ~~~ Did you hear about the man who got a brain
transplant
? He thought he needed a
kidney
transplant
but he changed his mind. ~~~~ Why did the man's kidneys fail? They didn't study. ~~~ Father Dave took a seat on the A train in NYC...
. ~~~ Did you hear about the man who got a brain
transplant
? He thought he needed a
kidney
transplant
but he changed his mind. ~~~~ Why did the man's kidneys fail? They didn't study. ~~~ Father Dave took a seat on the A train in NYC...
Sophiebun11
in
Kidney Disease
3 years ago
Anal bleeding
Hi there, I’ve been having horrible stomach pain on and off for months now. A year ago I had poop samples took by my Gp but never had any results. Today I was in pain trying to poo, I looked into the bowl and it’s full of blood, I’ve had blood on a tissue before but nothing like this! I’m slightly scared
Hi there, I’ve been having horrible stomach pain on and off for months now. A year ago I had poop samples took by my Gp but never had any results. Today I was in pain trying to poo, I looked into the bowl and it’s full of blood, I’ve had blood on a tissue before but nothing like this! I’m slightly scared
Femboy01
in
Colon Cancer Connected
3 years ago
Testing for antibodies after 3rd covid vaccine
Hi everyone, hope everyone had a good Christmas and new year! We recently done a trial in the uk to test our antibodies after our 3rd covid vaccine for people who have had Kidney Transplants The results came back today. Me and my friend who’ve both had kidney transplants the same week both have 0 antibodies
Hi everyone, hope everyone had a good Christmas and new year! We recently done a trial in the uk to test our antibodies after our 3rd covid vaccine for people who have had Kidney Transplants The results came back today. Me and my friend who’ve both had kidney transplants the same week both have 0 antibodies
Rmatthew
in
Kidney Transplant
3 years ago
Antibodies from covid vaccine
Hi everyone, hope everyone had a good Christmas and new year! We recently done a trial in the uk to test our antibodies after our 3rd covid vaccine for people who have had Kidney Transplants The results came back today. Me and my friend who’ve both had kidney transplants the same week both have 0 antibodies
Hi everyone, hope everyone had a good Christmas and new year! We recently done a trial in the uk to test our antibodies after our 3rd covid vaccine for people who have had Kidney Transplants The results came back today. Me and my friend who’ve both had kidney transplants the same week both have 0 antibodies
Rmatthew
in
Kidney Disease
3 years ago
We love pig. U.S. surgeons successfully test pig kidney transplant in human patient.
https://www.reuters.com/business/healthcare-pharmaceuticals/us-surgeons-successfully-test-pig-
kidney
-
transplant
-human-patient-2021-10-19/
https://www.reuters.com/business/healthcare-pharmaceuticals/us-surgeons-successfully-test-pig-
kidney
-
transplant
-human-patient-2021-10-19/
Jumbo1
in
Kidney Disease
3 years ago
Kidney disease
Hello all! I have a GCA for 20 months now and I’m now down to 5 mg prednisone. I just got my blood work back yesterday and I see that my creatinine level indicates that I have chronic kidney disease stage three. I had a UTI several weeks back and now I have to pee all the time. I did a little research
Hello all! I have a GCA for 20 months now and I’m now down to 5 mg prednisone. I just got my blood work back yesterday and I see that my creatinine level indicates that I have chronic kidney disease stage three. I had a UTI several weeks back and now I have to pee all the time. I did a little research
Snerd
in
PMRGCAuk
3 years ago
Open up to conversations: Hear from a transplant surgeon
You may find this conversation with
kidney
transplant
and vascular access surgeon, Mike Stephens, useful. A lovely and grounded man. It is part of the Integrating a holistic approach to kidneys series. https://www.buzzsprout.com/246643/9456420
You may find this conversation with
kidney
transplant
and vascular access surgeon, Mike Stephens, useful. A lovely and grounded man. It is part of the Integrating a holistic approach to kidneys series. https://www.buzzsprout.com/246643/9456420
WhollyAligned
in
Kidney Transplant Patient Support
3 years ago
Gfr of 76 and 80, how worried should I be?
I'm 22 years old. I've been experiencing issues with my bladder where I often get the urge to urinate. It usually gets worse when anxiety kicks in i.e in a lecture with alot of people, and i noticed it since then. I've been visiting the GP for blood tests and recently my GP told me about the GFR rates
I'm 22 years old. I've been experiencing issues with my bladder where I often get the urge to urinate. It usually gets worse when anxiety kicks in i.e in a lecture with alot of people, and i noticed it since then. I've been visiting the GP for blood tests and recently my GP told me about the GFR rates
tougemaths
in
Early CKD Support
3 years ago
VOLUNTEER EXPERT PATIENTS NEEDED - Moderate/Severe Lupus Nephritis for NICE Appraisal of Voclosporin
Hi everyone, NICE recently announced that they will be conducting a Health Technology Appraisal (HTA) for the use of voclosporin with immunosuppressives for treating lupus nephritis - https://www.nice.org.uk/guidance/indevelopment/gid-ta10878 Voclosporin is a new drug for the treatment of lupus nephritis
Hi everyone, NICE recently announced that they will be conducting a Health Technology Appraisal (HTA) for the use of voclosporin with immunosuppressives for treating lupus nephritis - https://www.nice.org.uk/guidance/indevelopment/gid-ta10878 Voclosporin is a new drug for the treatment of lupus nephritis
Paul_Howard
LUPUS UK
in
LUPUS UK
3 years ago
Kid ni Not
The life saving choices of peritoneal dialysis, hemodialysis, and
kidney
transplant
are described. Included are lists of ethnic foods - confirming to dietary restrictions - : Chinese, Filipino, Indian, Indonesian, Japanese, Korean, Mexican, Soul, Thai, and Vietnamese.
The life saving choices of peritoneal dialysis, hemodialysis, and
kidney
transplant
are described. Included are lists of ethnic foods - confirming to dietary restrictions - : Chinese, Filipino, Indian, Indonesian, Japanese, Korean, Mexican, Soul, Thai, and Vietnamese.
TuLiChang
in
Kidney Dialysis
3 years ago
Doctor gave 1-2 months, please help
We had a meeting with Dad's oncologist this morning, he said that they are finding it difficult to control Dad's pain and his blood work is still poor his hemoglobin keeps dipping to 7ish 3 days after having a unit transfusion (highest its got to is 8.9) Oncologist said the disease is in pretty much
We had a meeting with Dad's oncologist this morning, he said that they are finding it difficult to control Dad's pain and his blood work is still poor his hemoglobin keeps dipping to 7ish 3 days after having a unit transfusion (highest its got to is 8.9) Oncologist said the disease is in pretty much
Nickhmcg
in
Advanced Prostate Cancer
3 years ago
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