Search
Search
About
Log in
Join
Experiences with
Kidney donation
Posts
Communities
5,669 public posts
Filter results
Considering a change of dialysis centers
So, my nephrologist just up and left. I'm sure there was more going on behind the scenes than I'm aware of, but it was so sudden for me. He was also the consulting MD at the dialysis clinic. I'm not worried about finding another nephro, though. The nephrology department I deal with is a crack team
So, my nephrologist just up and left. I'm sure there was more going on behind the scenes than I'm aware of, but it was so sudden for me. He was also the consulting MD at the dialysis clinic. I'm not worried about finding another nephro, though. The nephrology department I deal with is a crack team
PeaB4YouGo
in
Kidney Dialysis
2 months ago
results of nail biopsy
At the end of last week I got my results of my nail biopsies. It is no fungus, no infection and best of all no cancer. They do not know what it actually is despite using numerous tests. A very happy outcome, as all medics seen in the process suspected subungual melanoma. I can live with not knowing
At the end of last week I got my results of my nail biopsies. It is no fungus, no infection and best of all no cancer. They do not know what it actually is despite using numerous tests. A very happy outcome, as all medics seen in the process suspected subungual melanoma. I can live with not knowing
artydutch
in
MPN Voice
2 months ago
Pluvicto and Renal Issues
I have had normal physical impact from my 4 previous Pluvicto injections: fatigue, reduced appitite, and additional sleep requirements. My fifth injection, 10 days ago, however, resulted in me being bedridden most of the time, no appetite, excessive sleep, stomach pain, and, and what I believe, severe
I have had normal physical impact from my 4 previous Pluvicto injections: fatigue, reduced appitite, and additional sleep requirements. My fifth injection, 10 days ago, however, resulted in me being bedridden most of the time, no appetite, excessive sleep, stomach pain, and, and what I believe, severe
GDG1
in
Advanced Prostate Cancer
2 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Medication Change mid-Induction
Hello, I have renal limited vasculitis and am wondering if anyone has experience with a switch from Rituximab to Cyclophosphamide after 3 months of initial induction therapy? My first treatment that started almost 3 months ago was Rituximab with Prednisone. At first things were going well with eGFR
Hello, I have renal limited vasculitis and am wondering if anyone has experience with a switch from Rituximab to Cyclophosphamide after 3 months of initial induction therapy? My first treatment that started almost 3 months ago was Rituximab with Prednisone. At first things were going well with eGFR
Support_helps
in
Vasculitis UK
2 months ago
Hi Everyone, I am a 42 year old man and I had a kidney transplant 1 year ago.
Hi, as stated above I had a kidney transplant last year. It has been very successful. Having said that I do have some anxiety because I have been drinking quite a lot of black tea this past couple of months. Stopped drinking it early part of the week. I am having irregular heart beats and some dizzy
Hi, as stated above I had a kidney transplant last year. It has been very successful. Having said that I do have some anxiety because I have been drinking quite a lot of black tea this past couple of months. Stopped drinking it early part of the week. I am having irregular heart beats and some dizzy
Paddie8254
in
Kidney Disease
2 months ago
LVV Relapse Update
Good news … after 2 weeks at 25mgs pred, my markers are back to “normal”, ie CRP at 2 and ESR is 8. I have had two TCZ jabs a week apart, so could this have already created the masking effect, which had waned with the 4 weekly jabs? Now to begin the taper: 20mgs for 2 weeks and then 17.5 x 2 etc.
Good news … after 2 weeks at 25mgs pred, my markers are back to “normal”, ie CRP at 2 and ESR is 8. I have had two TCZ jabs a week apart, so could this have already created the masking effect, which had waned with the 4 weekly jabs? Now to begin the taper: 20mgs for 2 weeks and then 17.5 x 2 etc.
LemonZest11
in
PMRGCAuk
2 months ago
Finally found some relief for IC
Hi everyone, I’m 48 & was diagnosed with IC & Hunners ulcers after having a bladder lift in 2005 & having the mesh fall apart & get stuck in my pelvic floor wall. The mesh was of course toxic and did a number on my bladder as well. I tried EVERYTHING you could imagine & kept track of when pain would
Hi everyone, I’m 48 & was diagnosed with IC & Hunners ulcers after having a bladder lift in 2005 & having the mesh fall apart & get stuck in my pelvic floor wall. The mesh was of course toxic and did a number on my bladder as well. I tried EVERYTHING you could imagine & kept track of when pain would
Ali_rivers
in
Pelvic Pain Support Network
2 months ago
working out / personal trainer
I'm 14 and half months post kidney transplant and my new kidney is in the right lower quadrant. I am going to start working out with a personal trainer. I wondered if anyone else has had work with a trainer and are there exercises to stay away from during this time? I was thinking like "crunches"
I'm 14 and half months post kidney transplant and my new kidney is in the right lower quadrant. I am going to start working out with a personal trainer. I wondered if anyone else has had work with a trainer and are there exercises to stay away from during this time? I was thinking like "crunches"
Tankjsl
in
Kidney Transplant
2 months ago
UTI experience with Imbruvica
hello, when I was on Imbruvica I had many UTI. This is side effects of Imbruvica. I asked my doctor to switch me for another medication and now they m on Venclecta. This is even worse. I do not have UTI anymore , but I’m already sick for Ramsay Hunt this is like Bels Pasley. All these pills for CLL have
hello, when I was on Imbruvica I had many UTI. This is side effects of Imbruvica. I asked my doctor to switch me for another medication and now they m on Venclecta. This is even worse. I do not have UTI anymore , but I’m already sick for Ramsay Hunt this is like Bels Pasley. All these pills for CLL have
farber
in
CLL Support
2 months ago
electric toothbrush, and Trigeminal Neuralgia
hello everyone, does anyone use an electric toothbrush and they also have trigeminal neuralgia?, I stopped using my electric toothbrush in fear of the pressure causing/triggering the pain. Now I feel as though my teeth are not as clean.
hello everyone, does anyone use an electric toothbrush and they also have trigeminal neuralgia?, I stopped using my electric toothbrush in fear of the pressure causing/triggering the pain. Now I feel as though my teeth are not as clean.
MSbeGone
in
My MSAA Community
2 months ago
Soy Lecithin protien powder ?
I am on a low calorie high protien diet, and have been using protien powder to supplement my diet. However I have become aware of articles saying that one of the ingredients ( Soy Lecithen ) is believed to interfere with thyroid hormone production ! What are people's thoughts on this, as I am very
I am on a low calorie high protien diet, and have been using protien powder to supplement my diet. However I have become aware of articles saying that one of the ingredients ( Soy Lecithen ) is believed to interfere with thyroid hormone production ! What are people's thoughts on this, as I am very
Bigsi
in
Thyroid UK
2 months ago
worrying results but not yet diagnosed
hi all I had some blood tests for something unrelated which showed high creatinine and a low egfr. Then I had a urine test which showed high albumin levels. Last week I had an ultrasound which showed normal size kidneys but inflammation. Does all this mean I have kidney disease? My appt to see a
hi all I had some blood tests for something unrelated which showed high creatinine and a low egfr. Then I had a urine test which showed high albumin levels. Last week I had an ultrasound which showed normal size kidneys but inflammation. Does all this mean I have kidney disease? My appt to see a
Meagain24
in
Early CKD Support
2 months ago
Treatment update-is SBRT missing the lesions ?
PET scan 8/21 following PSA 54.5 showed numerous bone lesions. Zytiga, prednisone, Eligard knocked PSA to <.064 until 1/23 PET showed new small lesion in left hip. Radiation 35 Gray 5/5 completed 3/15/23 with PSA drop then bounce from 0.24 to 5.9 triggered another PET on 9/6/23 which showed a new metastasis
PET scan 8/21 following PSA 54.5 showed numerous bone lesions. Zytiga, prednisone, Eligard knocked PSA to <.064 until 1/23 PET showed new small lesion in left hip. Radiation 35 Gray 5/5 completed 3/15/23 with PSA drop then bounce from 0.24 to 5.9 triggered another PET on 9/6/23 which showed a new metastasis
alperk
in
Advanced Prostate Cancer
2 months ago
Ear piercing
Has anybody had their ears pierced after their kidney transplant did you need antibiotics prior or after anything like that or any special precautions
Has anybody had their ears pierced after their kidney transplant did you need antibiotics prior or after anything like that or any special precautions
Parkerbarker
in
Kidney Transplant
3 months ago
A Tale of Two Kidney Transplants: Family Saves the Day
Every year, millions of people get a health diagnosis that changes the course of their lives forever. For Nichole, this moment came in 2007. A few months after graduating high school, a routine physical for college revealed a devastating truth–Nichole’s kidneys were not functioning correctly. Learn more
Every year, millions of people get a health diagnosis that changes the course of their lives forever. For Nichole, this moment came in 2007. A few months after graduating high school, a routine physical for college revealed a devastating truth–Nichole’s kidneys were not functioning correctly. Learn more
JackieJ_NKF
Partner
in
Kidney Transplant
3 months ago
KIDNEY TRANSPLANT AFTER CARE
Anyone have a kidney transplant complete,, please how to take care patient?
Anyone have a kidney transplant complete,, please how to take care patient?
niyajul1111
in
Kidney Transplant
3 months ago
What would cause spontaneous prostate stimulation?
What would cause spontaneous prostate stimulation while lying on my back? When I lie down, in a few seconds it feels like someone is manually stimulating my prostate. This lasts for hours at a time and I cannot sleep. This started immediately after a nocturnal emission, and I haven't had one since, even
What would cause spontaneous prostate stimulation while lying on my back? When I lie down, in a few seconds it feels like someone is manually stimulating my prostate. This lasts for hours at a time and I cannot sleep. This started immediately after a nocturnal emission, and I haven't had one since, even
Hidden
in
Men's Health Forum
3 months ago
Protein in urine
I have protein in my urine so where on my blood results would this show up would it be under Albumin level
I have protein in my urine so where on my blood results would this show up would it be under Albumin level
bevgt
in
Early CKD Support
3 months ago
Continued Journey
I’ve had the Bone Marrow Transplant!!! That was actually the easiest part. 5 hours of fluids leading up to the BMT and the previous 5 days of chemo infusions (day5 was the worst) were much harder. Chemo: Fladarabine -6 thru-2 with addition of Melphalan on day-2. When you start treatment (chemo) for
I’ve had the Bone Marrow Transplant!!! That was actually the easiest part. 5 hours of fluids leading up to the BMT and the previous 5 days of chemo infusions (day5 was the worst) were much harder. Chemo: Fladarabine -6 thru-2 with addition of Melphalan on day-2. When you start treatment (chemo) for
FiArt12X
in
CLL Support
3 months ago
LasVegasLover
I have been in stage 4 with CKD for about 3 years. So far, my numbers are remaining stable...which I am grateful for. Not sure if I need to be on this site yet, but I have a few questions. Can anyone tell me the average time from CKD diagnosis to starting dialysis or signing up for a transplant? Thank
I have been in stage 4 with CKD for about 3 years. So far, my numbers are remaining stable...which I am grateful for. Not sure if I need to be on this site yet, but I have a few questions. Can anyone tell me the average time from CKD diagnosis to starting dialysis or signing up for a transplant? Thank
LasVegasLover
in
Kidney Dialysis
3 months ago
1
...
4
5
6
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Early CKD Support
790 results
Kidney Transplant
440 results
Advanced Prostate Cancer
345 results
View top 10 communities
Sort by
Most Relevant
Newest