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2 Failed Colonoscopies and Worried about Anemia and CT Colonoscopy Radiation Doses
Hi, I’m in a bit of a pickle. I’ve been urgently referred due to anemia and age (62). But I’ve previously had a terrible experience with colonoscopies. I had 2 agonising failed ones in 2018 and a CT colonoscopy. I also had a abdominal CT 4 months ago. I’m worried about my radiation dose from so many
Hi, I’m in a bit of a pickle. I’ve been urgently referred due to anemia and age (62). But I’ve previously had a terrible experience with colonoscopies. I had 2 agonising failed ones in 2018 and a CT colonoscopy. I also had a abdominal CT 4 months ago. I’m worried about my radiation dose from so many
Shropsrunner
in
Colon Cancer Connected
2 years ago
TERRIBLE UTI FEELING FOR A MONTH POST SURGERY.
Hello ladies. I am having the worst time with intense bladder pain post diagnostic lap. UTI come back negative for infection so it appears its not bacterial. Anyone else had this experience and able to offer advice? It's crippling and much worse than the pain I had pre surgery. I can't bear more weeks
Hello ladies. I am having the worst time with intense bladder pain post diagnostic lap. UTI come back negative for infection so it appears its not bacterial. Anyone else had this experience and able to offer advice? It's crippling and much worse than the pain I had pre surgery. I can't bear more weeks
Enilorac1984
in
Endometriosis UK
2 years ago
PTH high after third infusion, can't find a competent endocrinologist to consult
My PTH (parathyroid hormone) turned out to be quite high: 167 after my second chemo. Has never before been tested. Not sure what to make of it. My MO doesn't know what to do, partly because calcium and potassium levels are still ok. My endo is out of the country and I was told he doesn't treat high
My PTH (parathyroid hormone) turned out to be quite high: 167 after my second chemo. Has never before been tested. Not sure what to make of it. My MO doesn't know what to do, partly because calcium and potassium levels are still ok. My endo is out of the country and I was told he doesn't treat high
Oldie68
in
Advanced Prostate Cancer
2 years ago
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Any young adults with kidney transplant?
Would like to exchange experience and how did you cope/adjust with life
Would like to exchange experience and how did you cope/adjust with life
vision22
in
Kidney Transplant
2 years ago
So so confused.
Ok met with Doc. She agreed the /triamterene Could have caused a false reading. My blood pressure has been 135/77 sometimes 144/78 I am not taking anything and keeping a long. So I have no diuretic but my ankles are really swelled this afternoon. Did I eat salt this afternoon , probably. I’m trying
Ok met with Doc. She agreed the /triamterene Could have caused a false reading. My blood pressure has been 135/77 sometimes 144/78 I am not taking anything and keeping a long. So I have no diuretic but my ankles are really swelled this afternoon. Did I eat salt this afternoon , probably. I’m trying
Butchga62
in
Early CKD Support
2 years ago
Questions about post transplant surgery JP drain
Did anyone have a JP drain after kidney transplant surgery? I have had a drain for 6 weeks and it’s still collecting 100cc of fluid. My doctors want it to get to 25cc which seems like it’ll be awhile longer. If you had a drain how long did you have it? Just trying to get an idea of the longest time.
Did anyone have a JP drain after kidney transplant surgery? I have had a drain for 6 weeks and it’s still collecting 100cc of fluid. My doctors want it to get to 25cc which seems like it’ll be awhile longer. If you had a drain how long did you have it? Just trying to get an idea of the longest time.
Grammy820
in
Kidney Transplant
2 years ago
ALBUMIN and EDEMA and COMPRESSION SOCKS - oh my!
partner diagnosed decompensated cirrhosis 22.12.21 - stopped drinking the same day. Albumin 18 at diagnosis, 24 at best since now dipped again to 22. How long did people's albumin take to recover - is it normally so slow to improve - in contrast bilirubin gone from 256 to 58 since Dec. He is having
partner diagnosed decompensated cirrhosis 22.12.21 - stopped drinking the same day. Albumin 18 at diagnosis, 24 at best since now dipped again to 22. How long did people's albumin take to recover - is it normally so slow to improve - in contrast bilirubin gone from 256 to 58 since Dec. He is having
Rshc
in
British Liver Trust
2 years ago
Insomnia induced by opiods
I have been struggling forever with insomnia caused by taking opiods for RLS. Like many of you here it's worth it because the relief from RLS is so wonderful. I recently added Olanzapine 5mg at night for sleep. I know it's on the naughty list as it tends to increase RLS symptoms. I decided to go ahead
I have been struggling forever with insomnia caused by taking opiods for RLS. Like many of you here it's worth it because the relief from RLS is so wonderful. I recently added Olanzapine 5mg at night for sleep. I know it's on the naughty list as it tends to increase RLS symptoms. I decided to go ahead
ziggypiggy
in
Restless Legs Syndrome
2 years ago
New member.
Hi, new member here. I had surgery on my liver last year, de-roofed a large cyst of which I have many! Polycystic kidney disease on kidneys and liver. (Cheers mum!). Blood test results all going the wrong way now, but not getting much info back from doctors or hospital. Gamma gt? Up from 200 in September
Hi, new member here. I had surgery on my liver last year, de-roofed a large cyst of which I have many! Polycystic kidney disease on kidneys and liver. (Cheers mum!). Blood test results all going the wrong way now, but not getting much info back from doctors or hospital. Gamma gt? Up from 200 in September
troutman15
in
British Liver Trust
2 years ago
Questions and fear and pain
Lower back pain, one sided, is it kidney trouble? Undiagnosed and this is new symptom along with swollen ankle. Rheumy ordered ct scan for wednesday this week. Thanks in advance you lovely people you! :)
Lower back pain, one sided, is it kidney trouble? Undiagnosed and this is new symptom along with swollen ankle. Rheumy ordered ct scan for wednesday this week. Thanks in advance you lovely people you! :)
Binty1
in
PMRGCAuk
2 years ago
Kidney Teansplant and CMV
My husband is 14 months post kidney transplant. He just tested positive for the CMV virus and has a lot of fatigue. Has anyone else had CMV and what were your symptoms. He’s on Valcyte.
My husband is 14 months post kidney transplant. He just tested positive for the CMV virus and has a lot of fatigue. Has anyone else had CMV and what were your symptoms. He’s on Valcyte.
Sister9555
in
Kidney Transplant
2 years ago
Blood pressure meds
I was previously put on triamterene with a diuretic when I started having kidney Grf issues. So I asked my doctor to put me on Lisinopril. It seems to protect the kidneys. My blood pressure this morning was 141/80. It has been fluctuating from 134/70 etc. while I am afraid to switch I wonder if this
I was previously put on triamterene with a diuretic when I started having kidney Grf issues. So I asked my doctor to put me on Lisinopril. It seems to protect the kidneys. My blood pressure this morning was 141/80. It has been fluctuating from 134/70 etc. while I am afraid to switch I wonder if this
Butchga62
in
Early CKD Support
2 years ago
Ca125
My ca125 has risen quite a bit in the last two months. Went from 21 to 42 and now it is at 58 the last check. Getting ct scan Monday. Last one in January was clear. Dr said he relies more on the scan cause the ca125 can fluctuate for different reasons, such as an infection. My scan was clear, but showed
My ca125 has risen quite a bit in the last two months. Went from 21 to 42 and now it is at 58 the last check. Getting ct scan Monday. Last one in January was clear. Dr said he relies more on the scan cause the ca125 can fluctuate for different reasons, such as an infection. My scan was clear, but showed
Newquilter66
in
My Ovacome
2 years ago
Kidney transplant podcast: Benji's Story
Hi everyone, I've been working with the National Kidney Foundation on some episodes of Kidney Transplant Conversations, it's a podcast that is available on all the leading platforms. The most recent episode features Benji, he had his promising basketball career cut short by kidney failure, and he would
Hi everyone, I've been working with the National Kidney Foundation on some episodes of Kidney Transplant Conversations, it's a podcast that is available on all the leading platforms. The most recent episode features Benji, he had his promising basketball career cut short by kidney failure, and he would
bethedifference
in
Kidney Transplant
2 years ago
Bladder Mass
Hey everyone- this is my first post to this site. After some brief hematuria, a bladder mass was discovered by cystoscope inside the bladder, not the bladder neck. Already been thru bladder neck BCR. I have a Turbt scheduled later this month for biopsy and possible removal. My last psa was .01
Hey everyone- this is my first post to this site. After some brief hematuria, a bladder mass was discovered by cystoscope inside the bladder, not the bladder neck. Already been thru bladder neck BCR. I have a Turbt scheduled later this month for biopsy and possible removal. My last psa was .01
SimplyT
in
Advanced Prostate Cancer
2 years ago
Low kidney function
Hi my husbands kidneys are at 18% and the dr has told him he needs a urgent scan, and that he have to look at his options be it transplant or dialysis, I'm worried about it all , he gets so tired he's 71 this year Any advice please
Hi my husbands kidneys are at 18% and the dr has told him he needs a urgent scan, and that he have to look at his options be it transplant or dialysis, I'm worried about it all , he gets so tired he's 71 this year Any advice please
joannieandmike
in
Kidney Dialysis
2 years ago
Low kidney function
My husband ckd his kidneys are at 18% and his kidney dr has told him she wants a face to face appointment next week and he's waiting for a urgent scan on them, dr has told him he may need to weigh up the options ,does that mean a transplant or dialysis
My husband ckd his kidneys are at 18% and his kidney dr has told him she wants a face to face appointment next week and he's waiting for a urgent scan on them, dr has told him he may need to weigh up the options ,does that mean a transplant or dialysis
joannieandmike
in
NRAS
2 years ago
Kidney pain
Does anyone get kidney pain with endo? Just finished a light period I’ve had two one was 20-26th March and then I came on again 4th April so cycle day 15 and now I’m having left sided pain and I did a dip stick in urine and showed blood. I showed my friend whose a nurse and said could be from period
Does anyone get kidney pain with endo? Just finished a light period I’ve had two one was 20-26th March and then I came on again 4th April so cycle day 15 and now I’m having left sided pain and I did a dip stick in urine and showed blood. I showed my friend whose a nurse and said could be from period
Lucky87
in
Endometriosis UK
2 years ago
Here we go
First appointment with kidney doc since finding out I might have a problem. This is third grf test was 43. I don’t think I like this doc. But I’m going to stay with him until all the blood work comes back and my ultrasound. He told me no more salt. No canned food. But yet drinking to much water isn’t
First appointment with kidney doc since finding out I might have a problem. This is third grf test was 43. I don’t think I like this doc. But I’m going to stay with him until all the blood work comes back and my ultrasound. He told me no more salt. No canned food. But yet drinking to much water isn’t
Butchga62
in
Early CKD Support
2 years ago
Food plan for transplant woman weight 80
Hi, One year kidney transplant. My weight is 80 +. Any one having food plan for my situation please?
Hi, One year kidney transplant. My weight is 80 +. Any one having food plan for my situation please?
noor99
in
Kidney Transplant Patient Support
2 years ago
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