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Kidney diseases in childhood
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Rising PCA - on ADT Holiday
Diagnosed Stage 4 oligometastatic (low volume) PCA in 2021. Gleason 7, 4+3 . Completed RT and 18 months on ADT (Nubeqa) paused the ADT in September after PSA non detectable and a fresh set of scans showed no “evidence of disease”. Continued to do bloodwork quarterly and PSA remained at 0. Until
Diagnosed Stage 4 oligometastatic (low volume) PCA in 2021. Gleason 7, 4+3 . Completed RT and 18 months on ADT (Nubeqa) paused the ADT in September after PSA non detectable and a fresh set of scans showed no “evidence of disease”. Continued to do bloodwork quarterly and PSA remained at 0. Until
Kkash
in
Advanced Prostate Cancer
5 months ago
Surgery - Stage 4 - Increase in fertility?
Just wondering if anyone has had any experience of egg quality increasing after surgery? I have stage 4 endo with kissing ovaries. I went through a round of private ivf, they could only access a small part of one of my ovaries because they were kissing and unfortunately the 2 eggs they managed to
Just wondering if anyone has had any experience of egg quality increasing after surgery? I have stage 4 endo with kissing ovaries. I went through a round of private ivf, they could only access a small part of one of my ovaries because they were kissing and unfortunately the 2 eggs they managed to
Behind_Hazel_Eyes
in
Endometriosis UK
4 months ago
delayed period after progynova with cancelled donor embryo transfer
I am hoping to have a donor egg embryo IVF soon at a clinic in Spain. The clinic do mock cycles to check how your body responds to the drugs so that they can get the timing right for the real transfer as they do a fresh transfer. I was on 8mg a day from the first day of my period and had a scan to check
I am hoping to have a donor egg embryo IVF soon at a clinic in Spain. The clinic do mock cycles to check how your body responds to the drugs so that they can get the timing right for the real transfer as they do a fresh transfer. I was on 8mg a day from the first day of my period and had a scan to check
Salimali44
in
Fertility Network UK
4 months ago
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Low AMH Advice
Hi everyone, It’s taken me a while to pluck up the courage to post this but here we go… We had a round of IVF in January, but unfortunately the embryo didn’t implant so it didn’t work. As I only had two eggs retrieved (one transferred and the other couldn’t be frozen!) under NHS Scotland we don’t
Hi everyone, It’s taken me a while to pluck up the courage to post this but here we go… We had a round of IVF in January, but unfortunately the embryo didn’t implant so it didn’t work. As I only had two eggs retrieved (one transferred and the other couldn’t be frozen!) under NHS Scotland we don’t
Babydust2023
in
Fertility Network UK
4 months ago
Trouble making blasts, new protocol: Estrogen priming w/ microdose leupron + GH + duostim
Hoping to get people's thoughts about my new IVF protocol as there are a lot of changes... Background: Have done 5 rounds of IVF (3 for banking embryos, 2 with fresh transfers) all with poor results. -->Embryo banking cycles (one clinic): -January 2023 (menopur 150, gonal F 150); 13 eggs, 6 mature
Hoping to get people's thoughts about my new IVF protocol as there are a lot of changes... Background: Have done 5 rounds of IVF (3 for banking embryos, 2 with fresh transfers) all with poor results. -->Embryo banking cycles (one clinic): -January 2023 (menopur 150, gonal F 150); 13 eggs, 6 mature
nf2952
in
Fertility Network UK
4 months ago
Confused
UPDATE: April 5, 2024 Yesterday was very disappointing as my husbands PSA increased again by 183 points, last month his PSA was 1546 and now it is 1730. All his other CBC results were good. His Alkaline Phosphatase increased 6 points, last month 127 and now 133 but still in range of 40-150. Questioned
UPDATE: April 5, 2024 Yesterday was very disappointing as my husbands PSA increased again by 183 points, last month his PSA was 1546 and now it is 1730. All his other CBC results were good. His Alkaline Phosphatase increased 6 points, last month 127 and now 133 but still in range of 40-150. Questioned
MsHope
in
Advanced Prostate Cancer
5 months ago
Psa level
Just came off degarlix as psa level was rising, now on xtadi apalutamide how long does it take for psa level to fall and by how much?
Just came off degarlix as psa level was rising, now on xtadi apalutamide how long does it take for psa level to fall and by how much?
littlemount
in
Advanced Prostate Cancer
5 months ago
To get signed off, or not to get signed-off, that is today's question!
Hi all - I posted something similar to this before, and I had lots of varied answers, but as my first round of IVF just failed I am wondering what I could do differently next time. I work in an unsupportive, busy Investment Banking environment, and I'm the only HR person so I cannot talk to myself ;
Hi all - I posted something similar to this before, and I had lots of varied answers, but as my first round of IVF just failed I am wondering what I could do differently next time. I work in an unsupportive, busy Investment Banking environment, and I'm the only HR person so I cannot talk to myself ;
Darcy1996
in
Fertility Network UK
4 months ago
fibroscan score 7.9 f1 finrosis
I don’t understand this report as 7.9 Kos should indicate f2 fibrosis not f1 also the did not give me a cap score Not overweight very fit active no alcohol or any kind of hepatitis not hereditary conditions either So quite confused
I don’t understand this report as 7.9 Kos should indicate f2 fibrosis not f1 also the did not give me a cap score Not overweight very fit active no alcohol or any kind of hepatitis not hereditary conditions either So quite confused
TacosPizzaIcecream
in
British Liver Trust
5 months ago
CT scan instead of gastroscopy / colonoscopy with all PA tests normal
My Active B12 was just about into the sufficient range. My H Pylorii was negative, as was anti IFAB and coeliac. Homocysteine was fine too. My neurologist’s physical exam was normal ( though the sharp stimulus was a little less sharp on the feet. ) I have been taking sublingual B12 and the tingling
My Active B12 was just about into the sufficient range. My H Pylorii was negative, as was anti IFAB and coeliac. Homocysteine was fine too. My neurologist’s physical exam was normal ( though the sharp stimulus was a little less sharp on the feet. ) I have been taking sublingual B12 and the tingling
Applethorpe
in
Pernicious Anaemia Society
7 months ago
NCT04662580 - All about ARX517 as Monotherapy
Hello, Tomorrow I am going to participate in ARX517 as Monotherapy. Here is the clinical trial: https://www.clinicaltrials.gov/study/NCT04662580. Share your questions / positive comments. I will update here Special request to
Tall_Allen
- Please tell : what should I ask ? [
Hello, Tomorrow I am going to participate in ARX517 as Monotherapy. Here is the clinical trial: https://www.clinicaltrials.gov/study/NCT04662580. Share your questions / positive comments. I will update here Special request to
Tall_Allen
- Please tell : what should I ask ? [
God_Loves_Me
in
Advanced Prostate Cancer
5 months ago
Rheumatology consultant with specialist interest in Lupus
Hello, is anyone in the Humberside/ Lincolnshire area under a n NHS Rheumatologist that has a special interest in SLE. ( Lupus) I have moved house and need to find a new rheumatologist. Many thanks
Hello, is anyone in the Humberside/ Lincolnshire area under a n NHS Rheumatologist that has a special interest in SLE. ( Lupus) I have moved house and need to find a new rheumatologist. Many thanks
Jenfy34
in
LUPUS UK
7 months ago
Natural FET coming up embryo 4BC..advice & support
Hi all, this is my first time posting. I've had quite the fertility journey (as i'm sure most on here have also), and wanted to draw on your experience and thoughts on how to manage to TWW. A bit about my journey. I'm 41 and have been on the IVF rollercoaster for 5 years. Ive had 6 cycles of IVF/ISCI
Hi all, this is my first time posting. I've had quite the fertility journey (as i'm sure most on here have also), and wanted to draw on your experience and thoughts on how to manage to TWW. A bit about my journey. I'm 41 and have been on the IVF rollercoaster for 5 years. Ive had 6 cycles of IVF/ISCI
MintNewt
in
Fertility Network UK
4 months ago
IBS and Coeliac
I have managed my Coeliac disease since 2009 but last year had a colonoscopy which confirmed my new symptoms were IBS D!! I struggle to know what to eat and feel my quality of life has taken a dive. I have never been someone who gets down but this is seriously effecting my mental health. Two weeks ago
I have managed my Coeliac disease since 2009 but last year had a colonoscopy which confirmed my new symptoms were IBS D!! I struggle to know what to eat and feel my quality of life has taken a dive. I have never been someone who gets down but this is seriously effecting my mental health. Two weeks ago
Mollydav
in
IBS Network
7 months ago
Friendship struggles
Feeling lost and looking to vent in hope that I’m not alone. 10 months into IVF and one of the hardest things I’ve found is the effect on my friendships. At 41 I thought I had found my true “soul” friendships - but most of my friendships have suffered through this. Of my closest friends, they really
Feeling lost and looking to vent in hope that I’m not alone. 10 months into IVF and one of the hardest things I’ve found is the effect on my friendships. At 41 I thought I had found my true “soul” friendships - but most of my friendships have suffered through this. Of my closest friends, they really
Learningdaybyday
in
Fertility Network UK
4 months ago
:Sensitive Post: number 5 worked
After 4 ivf losses, number 5 worked. Iv seen alot of posts recently about embryo grading. Our little embryo was our lowest graded a 4bc and it stuck. So please any1 out there worried about your grading, these little ones can work too. This sites been my rock and i want to thank you all. Your posts have
After 4 ivf losses, number 5 worked. Iv seen alot of posts recently about embryo grading. Our little embryo was our lowest graded a 4bc and it stuck. So please any1 out there worried about your grading, these little ones can work too. This sites been my rock and i want to thank you all. Your posts have
Ford23
in
Fertility Network UK
4 months ago
Prostrate Removed, PSA increasing
Hello to all, Is there anyone who had their prostrate removed but PSA is increasing? Oncologist wants to try a new hormonal drug. Radiation was administered after surgery. PSA is increasing. We appreciate your feedback. P.S. Edited profile: “Last CAT Scan was November 2023 - Showed no metastases
Hello to all, Is there anyone who had their prostrate removed but PSA is increasing? Oncologist wants to try a new hormonal drug. Radiation was administered after surgery. PSA is increasing. We appreciate your feedback. P.S. Edited profile: “Last CAT Scan was November 2023 - Showed no metastases
BlessedParchy
in
Advanced Prostate Cancer
5 months ago
Is Jevtana easier to tolerate than docetaxel?
I have noticed that some men on this site have had over 30 infusions of Jevtana. My husband has had completed 10 sessions of docetaxel. The last three were given with a second dose of Carboplatin. Jevtana is new to us. How is it tolerated? Why can it be given at such a high number of doses?
I have noticed that some men on this site have had over 30 infusions of Jevtana. My husband has had completed 10 sessions of docetaxel. The last three were given with a second dose of Carboplatin. Jevtana is new to us. How is it tolerated? Why can it be given at such a high number of doses?
roboocme
in
Advanced Prostate Cancer
5 months ago
How do you get a doctor ? Cramps - 4 weeks pregnant
Hi everyone hope you’re ok. I’m 4 weeks pregnant (shocking natural pregnancy after two bad rounds of IVF. 40 years old. First ever pregnancy. For the past week I’ve had cramps and sore boobs but today a lot less of these symptoms… if feel worried when I’m cramping and worried when I’m not 😂 My boobs
Hi everyone hope you’re ok. I’m 4 weeks pregnant (shocking natural pregnancy after two bad rounds of IVF. 40 years old. First ever pregnancy. For the past week I’ve had cramps and sore boobs but today a lot less of these symptoms… if feel worried when I’m cramping and worried when I’m not 😂 My boobs
Cuppppatea
in
Fertility Network UK - Pregnancy Support
4 months ago
IMRT WITHOUT THE JELL
I'm scheduled for IMRT Radistion without the jell. Doc says the jell may push cancer microscopic cells away from the prostate. He said the cancer is about to protrude through the capsule and microsopic cancer cells could be out of the capsule and did not want to take a chance of putting the jell in and
I'm scheduled for IMRT Radistion without the jell. Doc says the jell may push cancer microscopic cells away from the prostate. He said the cancer is about to protrude through the capsule and microsopic cancer cells could be out of the capsule and did not want to take a chance of putting the jell in and
woppaginny
in
Advanced Prostate Cancer
5 months ago
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