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Kidney diseases in childhood
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Dialysis, what are the cons?
I'm a way off from having to have dialysis but am wondering about the cons of it. I know the pros but would like to hear from dialysis patients what it's like, the cons, the diet, labs, etc. Not really sure but I have a feeling that it's not as cozy or as simple as it looks to be. Also, maybe from
I'm a way off from having to have dialysis but am wondering about the cons of it. I know the pros but would like to hear from dialysis patients what it's like, the cons, the diet, labs, etc. Not really sure but I have a feeling that it's not as cozy or as simple as it looks to be. Also, maybe from
jodaer
in
Kidney Dialysis
1 year ago
PSADT question...plus Xofigo and comorbidities
Hello, I am new to the site. This is my first post. I am mCRPC since 4/2022, and on abi/pred since then. My PSADT is now 2 months (44.55 on 6/1 to 96.28 on 8/4). I am waiting to be placed on Xofigo. Should I be panicking about this PSADT? Also most folks seem to be otherwise healthy.....do any
Hello, I am new to the site. This is my first post. I am mCRPC since 4/2022, and on abi/pred since then. My PSADT is now 2 months (44.55 on 6/1 to 96.28 on 8/4). I am waiting to be placed on Xofigo. Should I be panicking about this PSADT? Also most folks seem to be otherwise healthy.....do any
WeatherLook
in
Advanced Prostate Cancer
1 year ago
serum inorganic phosphate
Hello, I hope you are all keeping as well as possible. Last week I had some blood results back and have an appointment this Friday to talk to my GP about raised serum inorganic phosphate. This was measured one year ago and was in the normal range at 1.26mmoI/L. It is now 1.84mmI/L and in the abnormal
Hello, I hope you are all keeping as well as possible. Last week I had some blood results back and have an appointment this Friday to talk to my GP about raised serum inorganic phosphate. This was measured one year ago and was in the normal range at 1.26mmoI/L. It is now 1.84mmI/L and in the abnormal
Pangolin43
in
PMRGCAuk
1 year ago
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And so it begins......home dialysis
This is a hard post to write. I am headed for dialysis within the next month or two. NO getting around it now. No chance for reversal or improvement at this point. It was a good fight. I have some questions to start learning about this process. I will be doing home hemodialysis. I am already did the
This is a hard post to write. I am headed for dialysis within the next month or two. NO getting around it now. No chance for reversal or improvement at this point. It was a good fight. I have some questions to start learning about this process. I will be doing home hemodialysis. I am already did the
Bassetmommer
in
Kidney Dialysis
1 year ago
I am confused CKD
Some time ago, just over 2 years now I had to go into hospital for just a day with a breathing problem and whilst there I had several blood tests. I was told one of them, the kidney function test was abnormal and I might be referred to see a renal consultant. That actually didn't happen. I have
Some time ago, just over 2 years now I had to go into hospital for just a day with a breathing problem and whilst there I had several blood tests. I was told one of them, the kidney function test was abnormal and I might be referred to see a renal consultant. That actually didn't happen. I have
eaggirl1856
in
Kidney Disease
5 months ago
cirrhosis and high kidney levels!
hi my husband has cirrhosis and he got his routine bloods last week and repeated I. Monday both sets of bloods had kidney function readings of 199! The hospital phone late yesterday evening looking him to come first thing this morning to repeat blood and get fluids Has anyone else had these problem
hi my husband has cirrhosis and he got his routine bloods last week and repeated I. Monday both sets of bloods had kidney function readings of 199! The hospital phone late yesterday evening looking him to come first thing this morning to repeat blood and get fluids Has anyone else had these problem
Cfmol
in
British Liver Trust
1 year ago
If you get sick...cold, flu, Covid...what did you do?
I'm just over 9 months kidney transplant from a living donor. I've felt great but I do worry, since it is cold and flu season, about getting sick. Probably my biggest worry at this point. I try to wear masks when I am out and take all precautions. I just wondered though if I should get sick what are
I'm just over 9 months kidney transplant from a living donor. I've felt great but I do worry, since it is cold and flu season, about getting sick. Probably my biggest worry at this point. I try to wear masks when I am out and take all precautions. I just wondered though if I should get sick what are
Tankjsl
in
Kidney Transplant
8 months ago
IBS and kidney Stones
Hi,Firstly , I posted similar about 1 year or so ago. I was prescribed potassium citrate mixture in order to prevent further kidney stones , however, the side effects are stomach pains and even more diarrhoea issues . In fact , if I took this med in the quantity prescribed I would for ever need to
Hi,Firstly , I posted similar about 1 year or so ago. I was prescribed potassium citrate mixture in order to prevent further kidney stones , however, the side effects are stomach pains and even more diarrhoea issues . In fact , if I took this med in the quantity prescribed I would for ever need to
Will1234
in
IBS Network
8 months ago
Kidney Stones
I’m 19 months into ADT (Lupron) following open RP and 38 rounds of radiation last summer. All treatments or for Gleason 9 (5/4) PC that had spread outside the prostate. A few weeks ago I started getting loose bowels, incontinence and blood in my urine. My urologist thought I had radiation cause cancer
I’m 19 months into ADT (Lupron) following open RP and 38 rounds of radiation last summer. All treatments or for Gleason 9 (5/4) PC that had spread outside the prostate. A few weeks ago I started getting loose bowels, incontinence and blood in my urine. My urologist thought I had radiation cause cancer
Parlorman
in
Advanced Prostate Cancer
1 year ago
Choosing your own in-center doctor?
Hello, everyone! My mom has been at her new dialysis center for about three months, and the doctor and NP assigned to her are pretty terrible. We noticed that a former patient had their own nephrologist who came to the center to go over lab results and handle any dialysis-related issues. That patient
Hello, everyone! My mom has been at her new dialysis center for about three months, and the doctor and NP assigned to her are pretty terrible. We noticed that a former patient had their own nephrologist who came to the center to go over lab results and handle any dialysis-related issues. That patient
Learning_as_we_go
in
Kidney Dialysis
8 months ago
D Mannose
Hello everyone Just wondered if anyone here has used D Mannose tablets to manage recurrent urinary tract infections and if so with what success? I’ve had this problem for a few years now and the Urologist suggested daily low dose antibiotics which I want to avoid. Despite trying all of the self
Hello everyone Just wondered if anyone here has used D Mannose tablets to manage recurrent urinary tract infections and if so with what success? I’ve had this problem for a few years now and the Urologist suggested daily low dose antibiotics which I want to avoid. Despite trying all of the self
RosaD
in
LUPUS UK
8 months ago
nephrectomy
I have to have a nephrectomy because I have a tumor on my kidney and cyst I have polycythameia Vera anyone had this surgery with polycythameia
I have to have a nephrectomy because I have a tumor on my kidney and cyst I have polycythameia Vera anyone had this surgery with polycythameia
Sickey
in
MPN Voice
1 year ago
PMR Heavy Legs / Lead Legs / Low Energy
Hello, I haven't posted in a long time. I've read many articles. I didn't know what DSNS was until I went to the FAQ's and then tapering plans page. Both PMRpro and DorsetLady, and others have tapering plans (thank you PMRpro & DorsetLady). I have bounced around 15 to 5 MG for the past year. I'm currently
Hello, I haven't posted in a long time. I've read many articles. I didn't know what DSNS was until I went to the FAQ's and then tapering plans page. Both PMRpro and DorsetLady, and others have tapering plans (thank you PMRpro & DorsetLady). I have bounced around 15 to 5 MG for the past year. I'm currently
Me_2
in
PMRGCAuk
1 year ago
Update on Dipyridamole
Talked to my Doctor and he felt that taking Dipyridamole as needed was OK. In two months I have had three bad nights. To me a bad night is going to bed and getting back up in 10 minutes, when ya know ya know. So that is the good news. I am also going for a blood test next week, that should be
Talked to my Doctor and he felt that taking Dipyridamole as needed was OK. In two months I have had three bad nights. To me a bad night is going to bed and getting back up in 10 minutes, when ya know ya know. So that is the good news. I am also going for a blood test next week, that should be
WideBody
in
Restless Legs Syndrome
1 year ago
cystitisy like feelings
Hello , I wondered whether anyone has experienced feelings in the bladder and on urination as if they had cystitis , but received a normal urine test ? I have been having this feeling for about a week now , urine sample given at GP’s was normal . I am currently having Avastin 3 weekly and have been
Hello , I wondered whether anyone has experienced feelings in the bladder and on urination as if they had cystitis , but received a normal urine test ? I have been having this feeling for about a week now , urine sample given at GP’s was normal . I am currently having Avastin 3 weekly and have been
Norelo8
in
My Ovacome
1 year ago
Adrenal Fatigue 😩
Hi everyone,Was diagnosed with Adrenal Fatigue by the late Dr Peatfield - Dr P. I've had problems ( as I'm sure many of you have) with balancing Adrenal and Thyroid Glands. #I have been taking Nutricolgy Adrenal Natural Glandular - 100 mg per day. It states ingredients = Adrenal Tissue (Bovine Lyophilized
Hi everyone,Was diagnosed with Adrenal Fatigue by the late Dr Peatfield - Dr P. I've had problems ( as I'm sure many of you have) with balancing Adrenal and Thyroid Glands. #I have been taking Nutricolgy Adrenal Natural Glandular - 100 mg per day. It states ingredients = Adrenal Tissue (Bovine Lyophilized
Booblet
in
Thyroid UK
2 hours ago
14 yr old girl with severely underactive thyroid
Just started taking thyroxine (50) for 3 weeks. Legs and back are aching. Continues to be really tired. Advice please.
Just started taking thyroxine (50) for 3 weeks. Legs and back are aching. Continues to be really tired. Advice please.
Danger-Mouse
in
Thyroid UK
1 hour ago
Lupus
In 2021,I was diagnosed with Lupus by my GP at the time based on symptoms principally the "butterfly facial rash".I had a new GP from 2021 due to the other GP leaving.Despite having symptoms of Lupus and two other conditions that I have long term symptoms of.my GP refuses to make any diagnoses because
In 2021,I was diagnosed with Lupus by my GP at the time based on symptoms principally the "butterfly facial rash".I had a new GP from 2021 due to the other GP leaving.Despite having symptoms of Lupus and two other conditions that I have long term symptoms of.my GP refuses to make any diagnoses because
PURPLECROCUS3
in
LUPUS UK
3 hours ago
infliximab
Hi I’ve recently started on infliximab infushion for my rheumatoid arthritis I also have osteoarthritis and fibromyalgia. Since my first infusion three weeks ago I’ve had an upset stomach for a week which meant a gap of three weeks between infusions instead of two. A week ago from my left knee down to
Hi I’ve recently started on infliximab infushion for my rheumatoid arthritis I also have osteoarthritis and fibromyalgia. Since my first infusion three weeks ago I’ve had an upset stomach for a week which meant a gap of three weeks between infusions instead of two. A week ago from my left knee down to
Fortune7
in
Fibromyalgia Action UK
6 hours ago
infliximab
Hi I’ve recently started on infliximab infushion for my rheumatoid arthritis I also have osteoarthritis and fibromyalgia. Since my first infusion three weeks ago I’ve had an upset stomach for a week which meant a gap of three weeks between infusions instead of two. A week ago from my left knee down to
Hi I’ve recently started on infliximab infushion for my rheumatoid arthritis I also have osteoarthritis and fibromyalgia. Since my first infusion three weeks ago I’ve had an upset stomach for a week which meant a gap of three weeks between infusions instead of two. A week ago from my left knee down to
Fortune7
in
NRAS
6 hours ago
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