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Juvenile idiopathic arthritis
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Which DMARD?!
Hi everyone! I was given my RA diagnosis on Friday morning, and advised by the rheumatologist to look at the versus arthritis Website to decide whether I want methotrexate, sulphasalazine or leflunamide. I’ve googled beyond that, and spoken to a friend who has RA, and I just can’t decide!!! They
Hi everyone! I was given my RA diagnosis on Friday morning, and advised by the rheumatologist to look at the versus arthritis Website to decide whether I want methotrexate, sulphasalazine or leflunamide. I’ve googled beyond that, and spoken to a friend who has RA, and I just can’t decide!!! They
Tatgibbon
in
NRAS
3 years ago
Anyone offered Remicade
Hi all, my rhumy wants me to get Remicade infusion to try to deal with my pain levels. He is frustrated (as am I) that nothing he's tried has dealt with it effectively, the last being lignocaine infusions which actually increased my pain levels. He has left my pred dose to me, as long as I stay under
Hi all, my rhumy wants me to get Remicade infusion to try to deal with my pain levels. He is frustrated (as am I) that nothing he's tried has dealt with it effectively, the last being lignocaine infusions which actually increased my pain levels. He has left my pred dose to me, as long as I stay under
watercolours
in
PMRGCAuk
3 years ago
Tocilizumab cessation.
I posted recently concerning the fear and dread the withdrawal of this excellent treatment causes myself and fellow sufferers of GCA/PMR. To further update I am a constituent of Sajid David and have therefore e-mailed him to express our shared distress at having this treatment given and then taken away
I posted recently concerning the fear and dread the withdrawal of this excellent treatment causes myself and fellow sufferers of GCA/PMR. To further update I am a constituent of Sajid David and have therefore e-mailed him to express our shared distress at having this treatment given and then taken away
AncientMariner
in
PMRGCAuk
3 years ago
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Stopping Tocilizumab
My Ophthalmologist has now mentioned ending my "allocation" of Tocilizumab whereby I will be maintained on 15 mg of Hydrocortisone and 20 mg of Methotrexate. I am unnerved by this and feel it will leave me at an increased vulnerability to relapse and have only one functioning eye. Has anyone gone through
My Ophthalmologist has now mentioned ending my "allocation" of Tocilizumab whereby I will be maintained on 15 mg of Hydrocortisone and 20 mg of Methotrexate. I am unnerved by this and feel it will leave me at an increased vulnerability to relapse and have only one functioning eye. Has anyone gone through
AncientMariner
in
PMRGCAuk
3 years ago
Bronchiestasis sufferer now diagnosed psoriatic rheumatoid arthritis
Hi , I am just wondering if there is anyone else out there with the same conditions as above , and how they cope, as I am struggling at the moment 🤗
Hi , I am just wondering if there is anyone else out there with the same conditions as above , and how they cope, as I am struggling at the moment 🤗
Samye
in
Lung Conditions Community Forum
3 years ago
Steroid sparers
I posted a few weeks ago to ask if anyone had been given Mycophenolate so Tocilizumab could be withdrawn. I only got a couple of replies so I guess not many have. I gave them a try and felt as though I was back to pre diagnosis. Rheumatologist said to try again more slowly. Same again. Not for me. I
I posted a few weeks ago to ask if anyone had been given Mycophenolate so Tocilizumab could be withdrawn. I only got a couple of replies so I guess not many have. I gave them a try and felt as though I was back to pre diagnosis. Rheumatologist said to try again more slowly. Same again. Not for me. I
marantha
in
PMRGCAuk
3 years ago
RA medications linked to heart health benefits - Just come to know this. A very good read to me!
https://www.healthline.com/health/rheumatoid-arthritis/new-treatments-and-studies?fbclid=IwAR0QeWmzySDAkgB1w1zErokBiByJu55QHxCTNnk-bHJNFJ1j2ejtH9-GTeA
https://www.healthline.com/health/rheumatoid-arthritis/new-treatments-and-studies?fbclid=IwAR0QeWmzySDAkgB1w1zErokBiByJu55QHxCTNnk-bHJNFJ1j2ejtH9-GTeA
Amy_Lee
in
NRAS
3 years ago
First run ever 😍
I have COPD OSTEOARTHRITIS and Low thyroid.. I started my first run today and wow it was hard. I didn’t take my inhaler not water for a drink🙄 but I complete the first run 🥳🎉. Ince I got home I felt so sick and had to stop myself from vomiting -! Is this normal ? Ps next run I will be more prepared
I have COPD OSTEOARTHRITIS and Low thyroid.. I started my first run today and wow it was hard. I didn’t take my inhaler not water for a drink🙄 but I complete the first run 🥳🎉. Ince I got home I felt so sick and had to stop myself from vomiting -! Is this normal ? Ps next run I will be more prepared
Nannysam52
in
Couch to 5K
3 years ago
Effect of coming off humira for rheumatoid arthritis
Can anyone says what effects they had from coming off humira for rheumatoid arthritis ( after melanoma diagnosis) did you get a flare in joints? Did it get better? What dud you do?
Can anyone says what effects they had from coming off humira for rheumatoid arthritis ( after melanoma diagnosis) did you get a flare in joints? Did it get better? What dud you do?
Salfee
in
PMRGCAuk
3 years ago
Knee replacement and taking Prolia
Hello, I am a 68 year old women who had right knee replacement in 2018. I have obstreperous in my spine and left hip. I am on Prolia shots twice a year for this. I am do to have my left knee replaced and don't know if I can while being on Prolia. I started Prolia in 2020.
Hello, I am a 68 year old women who had right knee replacement in 2018. I have obstreperous in my spine and left hip. I am on Prolia shots twice a year for this. I am do to have my left knee replaced and don't know if I can while being on Prolia. I started Prolia in 2020.
Miggy2014
in
NRAS
3 years ago
World Arthritis Day
This week, we are celebrating World Arthritis Day, which took place yesterday, 12th October. Our lovely Members and Volunteers Leigh Walmsley and Lucy Morley-Williams share their inspiring stories in our new video, highlighting the importance of our work during a difficult year, as orthopaedic treatment
This week, we are celebrating World Arthritis Day, which took place yesterday, 12th October. Our lovely Members and Volunteers Leigh Walmsley and Lucy Morley-Williams share their inspiring stories in our new video, highlighting the importance of our work during a difficult year, as orthopaedic treatment
arthritis_action
Partner
in
Arthritis Action
3 years ago
Covid jab
I received a letter the other day about getting my “3rd jab”. It said it’s different to the booster one. The letter was from my rheumatology clinic. I didn’t even know there was a 3rd jab. It’s only got people with problems like arthritis it said. Anybody got the same?
I received a letter the other day about getting my “3rd jab”. It said it’s different to the booster one. The letter was from my rheumatology clinic. I didn’t even know there was a 3rd jab. It’s only got people with problems like arthritis it said. Anybody got the same?
Junny1
in
Arthritis Action
3 years ago
Bloods?
Has anyone found that their platelets and red blood cell distribution width are high? On methotrexate for psoriatic arthritis? Thanks in advance.
Has anyone found that their platelets and red blood cell distribution width are high? On methotrexate for psoriatic arthritis? Thanks in advance.
cba84
in
NRAS
3 years ago
Tablets v's injections
Having a chat with a friend of mine who has rheumatoid arthritis and receives injections of 120 mg steroids every 3 months with none of the side effects I'm getting with being years on steroids. She asked the question, why can't we get injections like her? I've never thought about that before. Any pearls
Having a chat with a friend of mine who has rheumatoid arthritis and receives injections of 120 mg steroids every 3 months with none of the side effects I'm getting with being years on steroids. She asked the question, why can't we get injections like her? I've never thought about that before. Any pearls
Singr
in
PMRGCAuk
3 years ago
Prednisolone not just for PMR?
I am newly diagnosed with PMR after many years of thinking old age was treating me badly. I have felt like a stone statue when trying to get going after sitting. Reading the posts here I haven't experienced the same areas of pain as others but 15 mg prednisolone has worked unbelievably on my joints
I am newly diagnosed with PMR after many years of thinking old age was treating me badly. I have felt like a stone statue when trying to get going after sitting. Reading the posts here I haven't experienced the same areas of pain as others but 15 mg prednisolone has worked unbelievably on my joints
Doorstep
in
PMRGCAuk
3 years ago
Mosaicplasty or knock knees?
I have osteoarthritis in both knees, I was seen by a consultant two years ago who specialises in knee replacements. He thought I would benefit from high tibial osteotomy, then said he would refer me to a different consultant. I now have a clinic appointment in November, so just over two years or three
I have osteoarthritis in both knees, I was seen by a consultant two years ago who specialises in knee replacements. He thought I would benefit from high tibial osteotomy, then said he would refer me to a different consultant. I now have a clinic appointment in November, so just over two years or three
jointpain
in
Arthritis Action
3 years ago
NHS app health record says my GCA is minor!
I've just downloaded the NHS app and looked at my health record. I am somewhat disturbed to see this: 29 October 2021 Giant cell arteritis without polymyalgia rheumatica Significance: Minor Status: Active I was diagnosed around 4th October after a diagnosis of PMR a week earlier. This entry is after
I've just downloaded the NHS app and looked at my health record. I am somewhat disturbed to see this: 29 October 2021 Giant cell arteritis without polymyalgia rheumatica Significance: Minor Status: Active I was diagnosed around 4th October after a diagnosis of PMR a week earlier. This entry is after
Broseley
in
PMRGCAuk
3 years ago
RA and Osteo
Hi folks. I have seropositive RA and osteoartitis in my spine and knee. I think there is almost a bit of illness snobbery about arthritis and we get annoyed when people with osteo think they understand what it’s like to have RA. I understand why and when I have a bad flare up, it is really really horrible
Hi folks. I have seropositive RA and osteoartitis in my spine and knee. I think there is almost a bit of illness snobbery about arthritis and we get annoyed when people with osteo think they understand what it’s like to have RA. I understand why and when I have a bad flare up, it is really really horrible
Elmo333
in
NRAS
3 years ago
Walking not running
Does anyone use Cto5K as a walking programme? I have been advised not to run due to arthritis in knees and hip. Thanks - advice appreciated.
Does anyone use Cto5K as a walking programme? I have been advised not to run due to arthritis in knees and hip. Thanks - advice appreciated.
L4LJCB
in
Couch to 5K
3 years ago
Pfizer Pill
I received this news via the New York Times which, if true, will be helpful as we learn to live with this wretched disease. A Covid pill developed by Pfizer cuts the risk of hospitalisation or death in vulnerable adults by 89 per cent, according to a clinical trial carried out by the US company. Incidentally
I received this news via the New York Times which, if true, will be helpful as we learn to live with this wretched disease. A Covid pill developed by Pfizer cuts the risk of hospitalisation or death in vulnerable adults by 89 per cent, according to a clinical trial carried out by the US company. Incidentally
Thelmarina
in
PMRGCAuk
3 years ago
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