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Hi, I m new here. I m looking for natural ways to deal with my PD
Have been diagnosed in 2014 with PD, at the age of 48. Left side impacted, tremors, walking, stiff, pain in my left footh. Taking ropinirol and sinnemet, however starting with impulse movements, probably due to medication. Very bad sleeper since a long time. I tried supplements gaba, vit C, curcuma,
Have been diagnosed in 2014 with PD, at the age of 48. Left side impacted, tremors, walking, stiff, pain in my left footh. Taking ropinirol and sinnemet, however starting with impulse movements, probably due to medication. Very bad sleeper since a long time. I tried supplements gaba, vit C, curcuma,
NFMEM
in
Cure Parkinson's
4 years ago
Surgery
Another question. Any one have surgery while on the high dose prednisone I was supposed to have spinal fusion and catarac surgery
Another question. Any one have surgery while on the high dose prednisone I was supposed to have spinal fusion and catarac surgery
Libertylane
in
PMRGCAuk
5 years ago
Rate of Progression.
I know we are all unique and no two of us will have the same experience with Parkinson's disease. Still, I would appreciate any wisdom which more experienced people (5-10+ years post diagnosis) can provide. Did your disease progress in a fairly consistent manner or did it progress slowly at first and
I know we are all unique and no two of us will have the same experience with Parkinson's disease. Still, I would appreciate any wisdom which more experienced people (5-10+ years post diagnosis) can provide. Did your disease progress in a fairly consistent manner or did it progress slowly at first and
jimcaster
in
Cure Parkinson's
5 years ago
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What is Cellulitis?
I just got the second series of my pneumonia shot and second series of the new shingles shot, both in the same arm. By that same evening, my arm was swollen, I got the chills so bad I couldn’t get warm. I frantically searched for our heating pad to get warm. I couldn’t stand up straight because my lower
I just got the second series of my pneumonia shot and second series of the new shingles shot, both in the same arm. By that same evening, my arm was swollen, I got the chills so bad I couldn’t get warm. I frantically searched for our heating pad to get warm. I couldn’t stand up straight because my lower
awoodiette
in
CLL Support
5 years ago
Rheumatoid Arthritis & Actemra
Hello everyone I am new here and hope to benefit from people's experience with Actemra and specifically how it affects blood values. My son was diagnosed with Adult-Onset Still's Disease (adult form of JRA) 25 years ago. He had JRA when he was 8 years old and within a year with treatment it went into
Hello everyone I am new here and hope to benefit from people's experience with Actemra and specifically how it affects blood values. My son was diagnosed with Adult-Onset Still's Disease (adult form of JRA) 25 years ago. He had JRA when he was 8 years old and within a year with treatment it went into
paulbasel
in
NRAS
5 years ago
Rosa Buffon Center Discharge
Hi Just had my follow up appointment with Dr Mallam at the Rosa burden centre Bristol. First of all she puts you at ease straight away and is very easy to communicate medical problems. We went through everything thing from tremors in hands and legs and that I use the distraction procedure to combat
Hi Just had my follow up appointment with Dr Mallam at the Rosa burden centre Bristol. First of all she puts you at ease straight away and is very easy to communicate medical problems. We went through everything thing from tremors in hands and legs and that I use the distraction procedure to combat
Mygeordiebud
in
Functional Neurological Disorder - FND Hope
5 years ago
Inulin - may help sleep and constipation
My daughter recently bought me some inulin to try as she had heard it can help you sleep. I can't honestly say it helped me sleep at the time, but a side effect is that it is helpful with bowel movements!! More recently I took some on holiday with me - for my bowels, and this time I do think it helped
My daughter recently bought me some inulin to try as she had heard it can help you sleep. I can't honestly say it helped me sleep at the time, but a side effect is that it is helpful with bowel movements!! More recently I took some on holiday with me - for my bowels, and this time I do think it helped
Ruby1
in
Thyroid UK
5 years ago
Thank you for all the responses
I didn't mean to upset anyone. Yes I am from the US. This term, end stage, is new to me also. I have one of the best and well known RA docs. He as everyone else can or will not give precise enough explanation (for me) of what is coming. (I want to know worst case - best case) All ra patients are
I didn't mean to upset anyone. Yes I am from the US. This term, end stage, is new to me also. I have one of the best and well known RA docs. He as everyone else can or will not give precise enough explanation (for me) of what is coming. (I want to know worst case - best case) All ra patients are
alwayshome
in
NRAS
5 years ago
Has this article on Steroid injections been shared?
https://www.theatlantic.com/health/archive/2019/10/steroid-injections-joint-pain/600193/?utm_campaign=the-atlantic&utm_content=5db8bd8b4c15b80001492820_ta&utm_medium=social&utm_source=facebook&fbclid=IwAR3FVR3NtsaG48FH05jnmkOPNX9Ka8WmzKqH9cq_qxZqzIUcBZaxk5zkxPE A Warning From a Doctor Who Has Done
https://www.theatlantic.com/health/archive/2019/10/steroid-injections-joint-pain/600193/?utm_campaign=the-atlantic&utm_content=5db8bd8b4c15b80001492820_ta&utm_medium=social&utm_source=facebook&fbclid=IwAR3FVR3NtsaG48FH05jnmkOPNX9Ka8WmzKqH9cq_qxZqzIUcBZaxk5zkxPE A Warning From a Doctor Who Has Done
OutdoorsyGal
in
PMRGCAuk
5 years ago
Artane anyone?
Hi Everyone, My husband's worst symptom is dystonia in his toes - we are really trying to alleviate this so he can run once again. Botox (well actually it was Dysport that was given to use due to insurance) has not helped. Movement Specialist recommened Artane. I was wondering if I could have some
Hi Everyone, My husband's worst symptom is dystonia in his toes - we are really trying to alleviate this so he can run once again. Botox (well actually it was Dysport that was given to use due to insurance) has not helped. Movement Specialist recommened Artane. I was wondering if I could have some
LearningAllICan
in
Cure Parkinson's
5 years ago
Double Vision
Has anyone experienced or has information about double vision or partial blurred vision in Parkinson’s patients?
Has anyone experienced or has information about double vision or partial blurred vision in Parkinson’s patients?
ramsey1717
in
Cure Parkinson's
5 years ago
CDC Find Possable Cause For Vaping Deaths Lung Injury
Recent CDC laboratory testing of bronchoalveolar lavage (BAL) fluid samples (or samples of fluid collected from the lungs) from 29 patients with EVALI submitted to CDC from 10 states found vitamin E acetate in all of the BAL fluid samples. Vitamin E acetate is used as an additive in the production of
Recent CDC laboratory testing of bronchoalveolar lavage (BAL) fluid samples (or samples of fluid collected from the lungs) from 29 patients with EVALI submitted to CDC from 10 states found vitamin E acetate in all of the BAL fluid samples. Vitamin E acetate is used as an additive in the production of
Hidden
in
Lung Conditions Community Forum
5 years ago
Eye Tests before and after GCA
Hello all. I developed PMR nearly two years ago and then GCA in February 2018, treated with Pred by infusion. Now down to 7mg / day. I've been reviewed by the eye hospital every 3-4 months and they've never been concerned about what they saw. My last eye test prior to GCA was about 5 years ago, since
Hello all. I developed PMR nearly two years ago and then GCA in February 2018, treated with Pred by infusion. Now down to 7mg / day. I've been reviewed by the eye hospital every 3-4 months and they've never been concerned about what they saw. My last eye test prior to GCA was about 5 years ago, since
Brizzleben
in
PMRGCAuk
5 years ago
METALLOSIS AND HEART PROBLEMS
METALLOSIS: I had a metal-on-metal hip resurfacting (Smith and Nephew in Birmingham) 13 years ago and now have a high level of cobalt in my blood from friction over the years. Recent research (mainly in the USA) has shown high levels can precipitate heart problems as well as other symptoms .... neurological
METALLOSIS: I had a metal-on-metal hip resurfacting (Smith and Nephew in Birmingham) 13 years ago and now have a high level of cobalt in my blood from friction over the years. Recent research (mainly in the USA) has shown high levels can precipitate heart problems as well as other symptoms .... neurological
Maroma
in
British Heart Foundation
5 years ago
Well
Well I have a vestibular disorder as since my last vertigo attack I have had high anxiety like I won't get up a won't do nothing. I'm convinced I'm dying slowly I have nothing left in me
Well I have a vestibular disorder as since my last vertigo attack I have had high anxiety like I won't get up a won't do nothing. I'm convinced I'm dying slowly I have nothing left in me
Sodown
in
Anxiety Support
5 years ago
B12 deficiency not treated
I am new to this website and do not know if I have PA? Went to see Gp in June 2019 as feeling worn out,dizzy spells and generally feeling unwell. (taking into account I have a failed spinal fusion back syndrome and Fibromyalgia). First time I had B12 checked and it showed 79 - told I would need 6 injections
I am new to this website and do not know if I have PA? Went to see Gp in June 2019 as feeling worn out,dizzy spells and generally feeling unwell. (taking into account I have a failed spinal fusion back syndrome and Fibromyalgia). First time I had B12 checked and it showed 79 - told I would need 6 injections
djtw
in
Pernicious Anaemia Society
5 years ago
Raising UK EDS-awareness: cause quite a of us 🦓s count a form of hypermobility among our comorbidities
Inquiry into treatment of Ehlers Danlos patients and its comorbidities
Ehlers-Danlos Syndromes (EDS) are part of a group of connective tissue disorders, of which there are 13 types. The most common type is hEDS, otherwise known as hypermobile Ehlers-Danlos Syndrome. This syndrome is at the top
Inquiry into treatment of Ehlers Danlos patients and its comorbidities
Ehlers-Danlos Syndromes (EDS) are part of a group of connective tissue disorders, of which there are 13 types. The most common type is hEDS, otherwise known as hypermobile Ehlers-Danlos Syndrome. This syndrome is at the top
Barnclown
in
LUPUS UK
5 years ago
Raising EDS awareness in the UK
Inquiry into treatment of Ehlers Danlos patients and its comorbidities
Ehlers-Danlos Syndromes (EDS) are part of a group of connective tissue disorders, of which there are 13 types. The most common type is hEDS, otherwise known as hypermobile Ehlers-Danlos Syndrome. This syndrome is at the top
Inquiry into treatment of Ehlers Danlos patients and its comorbidities
Ehlers-Danlos Syndromes (EDS) are part of a group of connective tissue disorders, of which there are 13 types. The most common type is hEDS, otherwise known as hypermobile Ehlers-Danlos Syndrome. This syndrome is at the top
Barnclown
in
Ehlers-Danlos Support UK
5 years ago
Suspected PMR
I’ve had 4 spinal fusions but over the last 18 months I’ve been suffering with severe cramp and pain in my neck shoulders and hips I was tested for rheumatoid arthritis 18 months ago but only inflammation came up and liver abnormalities..I was recently referred to see a vascular specialist who has
I’ve had 4 spinal fusions but over the last 18 months I’ve been suffering with severe cramp and pain in my neck shoulders and hips I was tested for rheumatoid arthritis 18 months ago but only inflammation came up and liver abnormalities..I was recently referred to see a vascular specialist who has
pold68
in
PMRGCAuk
5 years ago
Rituxamab bio similar infusion.
Hi not been on for a fair time .I would like to ask if anyone has had problems with bio similar Rituxamab infusions. If so what. I am also having revised Knee replacement surgery next week.I am nervous but the pain and lack of mobility is the main reason for surgery.The Hospital and Surgeon are specialists
Hi not been on for a fair time .I would like to ask if anyone has had problems with bio similar Rituxamab infusions. If so what. I am also having revised Knee replacement surgery next week.I am nervous but the pain and lack of mobility is the main reason for surgery.The Hospital and Surgeon are specialists
Backy
in
NRAS
5 years ago
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