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So surgery...
It seems that after about 4 years I'll need to fuse my ankle. Unfortunately the subtler joint fusion I received in August didn't fuse all the way and the infection I got in November and second surgery in December to remove the screws didn't help. I recently just got a steroid shot (again) and of course
It seems that after about 4 years I'll need to fuse my ankle. Unfortunately the subtler joint fusion I received in August didn't fuse all the way and the infection I got in November and second surgery in December to remove the screws didn't help. I recently just got a steroid shot (again) and of course
allard4life
in
NRAS
7 years ago
RA Ankle Fusion
Hey all, So I've been dealing with RA for four years now, I'm currently 20, and I recently had a subtalor joint fusion in my right ankle. Unfortunately my hardware in my ankle got infected and they took it out. We're unsure if there was a nonfusion. The fusion doesn't seem to be working though, the past
Hey all, So I've been dealing with RA for four years now, I'm currently 20, and I recently had a subtalor joint fusion in my right ankle. Unfortunately my hardware in my ankle got infected and they took it out. We're unsure if there was a nonfusion. The fusion doesn't seem to be working though, the past
allard4life
in
NRAS
7 years ago
Where To Go In London?
Hi all - I have Sjogren's and connective tissue disease, but over the past year I have been in excruciating pain and been to the GP and physio, and from what I've read here and what my physio indicates, I think I may have EDS (I know I am hypermobile). I have my annual appointment with my rheumatologist
Hi all - I have Sjogren's and connective tissue disease, but over the past year I have been in excruciating pain and been to the GP and physio, and from what I've read here and what my physio indicates, I think I may have EDS (I know I am hypermobile). I have my annual appointment with my rheumatologist
WpgGirl
in
Ehlers-Danlos Support UK
8 years ago
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I'm scared
I havnt been diagnosed yet with AN, but my symptoms are what is given as AN. In 2004 I had an unexplained neurological event, following this I had Vertigo for 3 weeks straight and had to be hand led everywhere. This eventually passed and then in 2010 I developed tinnitus along with the begining of loosing
I havnt been diagnosed yet with AN, but my symptoms are what is given as AN. In 2004 I had an unexplained neurological event, following this I had Vertigo for 3 weeks straight and had to be hand led everywhere. This eventually passed and then in 2010 I developed tinnitus along with the begining of loosing
mutt1
in
Acoustic Neuroma Support
8 years ago
Not Yet Diagnosed
Hello everyone, I have had three knee surgeries in 20 months, the last with a second surgeon for a second opinion. He tells me I don't have typical osteoarthritis and is referring me to a rheumatologist. As a lot of us do, I have been on the internet trying to get information about how RA affects the
Hello everyone, I have had three knee surgeries in 20 months, the last with a second surgeon for a second opinion. He tells me I don't have typical osteoarthritis and is referring me to a rheumatologist. As a lot of us do, I have been on the internet trying to get information about how RA affects the
Vickicj1
in
NRAS
8 years ago
Is it Trigeminal Neuralgia
Hi I'm sorry to bother you guys but I'd like some insight to the symptoms of TN, since the 29th November 2016 I have had this horrendous pain on the left side of my forehead, just above my eyebrow. The pain is constant and in the last few days it has also started to add a stinging sensation. I also get
Hi I'm sorry to bother you guys but I'd like some insight to the symptoms of TN, since the 29th November 2016 I have had this horrendous pain on the left side of my forehead, just above my eyebrow. The pain is constant and in the last few days it has also started to add a stinging sensation. I also get
mutt1
in
Pain Concern
8 years ago
Soft tissue formation...or not in this case
Hi all. I have a question for you and would appreciate your thoughts... The thing is I have had three joint replacements in my CMC joint of my thumb (where thumb meets wrist). Two metal ball and socket joints - both failed when they dislocated. hen the surgeon tried a bio-absorbable spacer thing which
Hi all. I have a question for you and would appreciate your thoughts... The thing is I have had three joint replacements in my CMC joint of my thumb (where thumb meets wrist). Two metal ball and socket joints - both failed when they dislocated. hen the surgeon tried a bio-absorbable spacer thing which
Kaleidobrain
in
Ehlers-Danlos Support UK
8 years ago
MCP Joint replacement
Hi all, has anyone had an mcp joint replacement? Left hand index finger. How is movement etc afterwards? Particularly in relation to guitar playing.
Hi all, has anyone had an mcp joint replacement? Left hand index finger. How is movement etc afterwards? Particularly in relation to guitar playing.
cbrjet
in
NRAS
8 years ago
Hypermobility
Hi all, I have just discovered I also have Hypermobility on top of Fibromyalgia, Raynaud's phenomenon, Photosensitivity, Trigeminal neuralgia, Carpal tunnel syndrome and autonomic dysfunction.....seems like the list will just get bigger and bigger. Does anyone else on here have hypermobility? how does
Hi all, I have just discovered I also have Hypermobility on top of Fibromyalgia, Raynaud's phenomenon, Photosensitivity, Trigeminal neuralgia, Carpal tunnel syndrome and autonomic dysfunction.....seems like the list will just get bigger and bigger. Does anyone else on here have hypermobility? how does
Queencara78
in
Fibromyalgia Action UK
8 years ago
Elbow joint replacement....would you say yes?
I suffer from osteo arthritis in most joints ...had two partial knee replacements 6 years ago and they're great. I've had a thumb joint replacement - also great. However, following two arthroscopies in three years and injections, I'm suffering a great deal of pain and restricted movement in my right
I suffer from osteo arthritis in most joints ...had two partial knee replacements 6 years ago and they're great. I've had a thumb joint replacement - also great. However, following two arthroscopies in three years and injections, I'm suffering a great deal of pain and restricted movement in my right
Jillypops2
in
Arthritis Action
8 years ago
S joint fusion surgery Jan 24 2017
I had a s joint fusion Tuesday I can't put any weigh in my left foot pain is unbearable is that normal and how long till you don't use crutches.
I had a s joint fusion Tuesday I can't put any weigh in my left foot pain is unbearable is that normal and how long till you don't use crutches.
Jmdc99
in
Pain Concern
8 years ago
Joint replacement
I need my knee joint replaced. My surgeon says there are no differences to doing my knee from anyone else but I have had p.a for 25 years and I am sure there are differences. He says the two occasions whe ligaments snapped were common for people of my age. Where do I go for a surgeon who accepts it
I need my knee joint replaced. My surgeon says there are no differences to doing my knee from anyone else but I have had p.a for 25 years and I am sure there are differences. He says the two occasions whe ligaments snapped were common for people of my age. Where do I go for a surgeon who accepts it
Freebeer
in
Arthritis Action
8 years ago
Great Ormond Street
We have differing issues to an extent: mine was a 'late' diagnosis in my 40's after numerous
joint
dislocations
, subluxations, injuries, reconstructions, pain, fatigue, early onset degenerative discs, osteopenia etc until finally someone put two and two together and gave the correct diagnosis rather
We have differing issues to an extent: mine was a 'late' diagnosis in my 40's after numerous
joint
dislocations
, subluxations, injuries, reconstructions, pain, fatigue, early onset degenerative discs, osteopenia etc until finally someone put two and two together and gave the correct diagnosis rather
Rachel-M
in
Ehlers-Danlos Support UK
8 years ago
Joint hypermobility?
My physiotherapist and also a doctor at the Pain Clinic told me in passing that I have JHS. I have often thought I had but my joints aren't mobile, but I have a problems,with dislocation (I have dislocated 14 times), AF, had Ptosis, prolapsed bowel, severe joint pain, scoliosis, fatigue and practically
My physiotherapist and also a doctor at the Pain Clinic told me in passing that I have JHS. I have often thought I had but my joints aren't mobile, but I have a problems,with dislocation (I have dislocated 14 times), AF, had Ptosis, prolapsed bowel, severe joint pain, scoliosis, fatigue and practically
Curkyperkins
in
Ehlers-Danlos Support UK
8 years ago
15mg Prednisolone - scared of side effects
Hello I have been prescribed a 3 week course of Prednisolone (3 pills for 5 days, 2 pills for 5 days, 1 pill for 5 days) Has anyone had to do this and were there any side effects? To be honest I am petrified on taking these pills as I don't want to gain weight (I am active, sometimes not as much if I
Hello I have been prescribed a 3 week course of Prednisolone (3 pills for 5 days, 2 pills for 5 days, 1 pill for 5 days) Has anyone had to do this and were there any side effects? To be honest I am petrified on taking these pills as I don't want to gain weight (I am active, sometimes not as much if I
Pickle33
in
Arthritis Action
8 years ago
Palendromic Rheumatism - RA - surgical procedures
I'm new to this site. My name is Marion - Irish background living in Canada for 40 years!! I would like to speak with others who have palindromic rheumatism or take hydroxychloroquine or other DMARDs - looking at hip replacement and would like to hear other's experiences with multiple joint replacements
I'm new to this site. My name is Marion - Irish background living in Canada for 40 years!! I would like to speak with others who have palindromic rheumatism or take hydroxychloroquine or other DMARDs - looking at hip replacement and would like to hear other's experiences with multiple joint replacements
mjoyner
in
NRAS
8 years ago
Up coming surgery
Hi everyone, it's been a while since I posted. I saw my new pain Dr. She put me back on oxymorphone 10mg she wants to gradually work me up to a stronger dose same with my oxicodone. It's helping mildly, she gave my surgeon permission to write me additional pain script. My surgery is on August 10th,
Hi everyone, it's been a while since I posted. I saw my new pain Dr. She put me back on oxymorphone 10mg she wants to gradually work me up to a stronger dose same with my oxicodone. It's helping mildly, she gave my surgeon permission to write me additional pain script. My surgery is on August 10th,
SassyZee
in
Pain Concern
8 years ago
Vascular EDS...not even sure where to start
Hello people! I'm doing so-so of late. The Simponi may not be working so well anymore - I have an appointment with my biologics clinic in a month but I have no idea what I'm going in for, so I will have to call in and find out. Recently, my ex-husband called me and asked me to get a referral for EDS
Hello people! I'm doing so-so of late. The Simponi may not be working so well anymore - I have an appointment with my biologics clinic in a month but I have no idea what I'm going in for, so I will have to call in and find out. Recently, my ex-husband called me and asked me to get a referral for EDS
Silvergilt
in
LUPUS UK
8 years ago
May have been misdiagnosed
My sister has just been diagnosed with EDS type 3, she told my mum and my mum looked it up on google, she immediately thought of me. About ten years ago I was diagnosed with fibromyalgia, chronic fatigue syndrome and hypermobility, IBS, vertigo and many other problems. I went to the doctor and she is
My sister has just been diagnosed with EDS type 3, she told my mum and my mum looked it up on google, she immediately thought of me. About ten years ago I was diagnosed with fibromyalgia, chronic fatigue syndrome and hypermobility, IBS, vertigo and many other problems. I went to the doctor and she is
Annemac
in
Ehlers-Danlos Support UK
8 years ago
Long battle with RA
Hello RA Warriors! New to this site- 49 yr old female w/ JRA diagnosis at age 3. Numerous surgeries through the years - neck fusion, ankle arthrodesis and last year a total hip replacement (after a fall in snow breaking it due to osteop) . Tried most of the traditional biologics (Humira, Enbrel, Remicade
Hello RA Warriors! New to this site- 49 yr old female w/ JRA diagnosis at age 3. Numerous surgeries through the years - neck fusion, ankle arthrodesis and last year a total hip replacement (after a fall in snow breaking it due to osteop) . Tried most of the traditional biologics (Humira, Enbrel, Remicade
ChrisHarding
in
Cure Arthritis Community
8 years ago
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