Long battle with RA: Hello RA Warriors... - Cure Arthritis Co...

Cure Arthritis Community

2,784 members โ€ข 596 posts

Long battle with RA

ChrisHarding profile image
ChrisHarding
โ€ข8 Replies

Hello RA Warriors! New to this site- 49 yr old female w/ JRA diagnosis at age 3. Numerous surgeries through the years - neck fusion, ankle arthrodesis and last year a total hip replacement (after a fall in snow breaking it due to osteop) . Tried most of the traditional biologics (Humira, Enbrel, Remicade, some twice). Currently on Cimzia but it's no longer working. My rheumy & I are looking at next steps- possibly trying the new one Xeljanz, a different type of biol that targets RA via a different mechanism.

Has Anyone tried this? Results? They are also looking at Rituxan but side effects can be severe and scary. Xeljanz is a once daily pill w/ no injection. Hoping this one hits nail on the head! Pain as you all know is brutal, exhausting, frustrating . I'm still working FT and a mom to 3 boys. Any responses would be great! Carry on fellow warriors! ๐Ÿ‘๐Ÿป

Written by
ChrisHarding profile image
ChrisHarding
To view profiles and participate in discussions please or .
Read more about...
8 Replies
โ€ข
Tizzyliz67 profile image
Tizzyliz67

I am 49 Monday๐Ÿ˜Š I have tried xeljanz with no luck I hope it works better for you!๐Ÿ™ I am on orencia which seems to help with pain. I was on actimera and then had a reaction. Never had rituxin good luck, praying xeljanz works for you๐Ÿ˜Š

cherilee60 profile image
cherilee60

So sorry for your complicated RA I have not tried the drug but hopefully it works for you. This sickness is so many treatment methods. Take care. God Bless

Dad2kmc profile image
Dad2kmc

I'm on Xeljanz. Started in April. Don't know if it's really working. I have JIA with my first attack at age 4, now 56. I've gone through most of the biologic as well. I go to rheumy' in 2 weeks for first check up since starting Xeljanz. Can't wait to see results of bloodwork!

Good luck if you go on Xeljanz! Let us know how it works for you!

ChrisHarding profile image
ChrisHarding in reply to Dad2kmc

Thanks so much! Good luck to you as well! ๐Ÿ˜„

VedaLogan profile image
VedaLogan

I was on xeljanz for a while but developed issues with my gums and had to have a tissue transplant. Was a rare side effect. I was on rituxan for two years. It worked better than anything I have ever taken but during an infusion my heart started racing and i turned red all over. I had an allergic reaction. Yes there were side effects too because i had to have benadryl and solumedrol. The combination made it impossible for me to work for a week after each infusion. Since I have been on everything I am now back on orencia which I had taken a number of years ago. Seems to be ok so far. Good luck

I hopethey ginf something that works for you.

ChrisHarding profile image
ChrisHarding in reply to VedaLogan

Thanks for your reply! I'm hoping one of them does the trick!

ChrisHarding profile image
ChrisHarding

Thanks Kai! Hoping the next treatment is " the one"! I don't have time for not feeling well! Lol... Thankfully my "men" are wonderful and supportive!

ChrisHarding profile image
ChrisHarding

Hello Warriors! So, saw my new rheumy & she recommended Acterma (another injectible) Instead because of its different mechanism ( IL-6 Inhibitor) so I started my first shot yesterday! So hopeful.. Been reading up on it so looks promising! Of course I did yard work on Sat b/c I felt good ( you know how it goes.. Saying to self ("Fuck it, I feel great today! As I bend, pull out weeds, shovel, rake for 2 hours). Paid for that dearly on Sunday! But... Whaddyagonnado? Carry on fellow warriors ! Hope you all have a fantabulous 4th!! ๐Ÿ’ฅ๐Ÿ’ฅ๐Ÿ‡บ๐Ÿ‡ธ

You may also like...

lost on this ra

Seronegative RA - RF and CCP markers negative

Great information that I have been looking for.... Hopefully I will soon be free from drugs one day...

RA related fatigue

RA and crohn's disease

doc have different opinions on what to try next. Has anyone had side effects on a biologic and...

Breast implants and RA/Lupus

Hi ๐Ÿ™‚. I am new to this site. Does anyone have experience or info regarding a link between breast...