Search
Search
About
Log in
Join
Experiences with
Joint dislocations
Posts
Communities
234 public posts
Filter results
Rituxamab bio similar infusion.
Hi not been on for a fair time .I would like to ask if anyone has had problems with bio similar Rituxamab infusions. If so what. I am also having revised Knee replacement surgery next week.I am nervous but the pain and lack of mobility is the main reason for surgery.The Hospital and Surgeon are specialists
Hi not been on for a fair time .I would like to ask if anyone has had problems with bio similar Rituxamab infusions. If so what. I am also having revised Knee replacement surgery next week.I am nervous but the pain and lack of mobility is the main reason for surgery.The Hospital and Surgeon are specialists
Backy
in
NRAS
5 years ago
Misdiagnosis?
A couple of months ago I was given a diagnosis of hypermobility syndrome and fibromyalgia after several years of trying to find out what was causing my various symptoms. Fibromyalgia had been brought up but then rejected in the past because of not reacting to pressure on certain points (and I still don't
A couple of months ago I was given a diagnosis of hypermobility syndrome and fibromyalgia after several years of trying to find out what was causing my various symptoms. Fibromyalgia had been brought up but then rejected in the past because of not reacting to pressure on certain points (and I still don't
Taurea
in
Fibromyalgia Action UK
5 years ago
Cracking joints
Hey I'm just wondering if anyone else suffers with hypermobility with there fibro and cracking joints. I've had a couple of dislocations with my hypermobility my shoulder and hip wich I popped back in myself but all of my joints crack constantly and some can be really painful and embarrassing as it's
Hey I'm just wondering if anyone else suffers with hypermobility with there fibro and cracking joints. I've had a couple of dislocations with my hypermobility my shoulder and hip wich I popped back in myself but all of my joints crack constantly and some can be really painful and embarrassing as it's
Davesgal0509
in
Fibromyalgia Action UK
5 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Knee or joint replacement or osteoarthritis
Before I can consider Ocrevus or similar drugs, I have osteoarthritis in my right knee. My knee can’t be straightened fully even with PT. I can no longer do yoga or Pilates. All my activities including walking are extremely exhausting and painful with my bad knee. It’s like I have two legs of different
Before I can consider Ocrevus or similar drugs, I have osteoarthritis in my right knee. My knee can’t be straightened fully even with PT. I can no longer do yoga or Pilates. All my activities including walking are extremely exhausting and painful with my bad knee. It’s like I have two legs of different
TonyiaR7
in
My MSAA Community
5 years ago
MCP JOINT REPLACEMENT ANYONE?
Hello has anyone known anyone or have had surgery themselves to replace MCP joints ? and how how successful and what kind of movement was achieved back ..? I’ve been to see a top surgeon who is willing to perform this and both he and hand therapist believe I will have over all better function.
Hello has anyone known anyone or have had surgery themselves to replace MCP joints ? and how how successful and what kind of movement was achieved back ..? I’ve been to see a top surgeon who is willing to perform this and both he and hand therapist believe I will have over all better function.
Tessthomy
in
NRAS
5 years ago
Joint Hypermobility Confusion
Hello! So I'll start off saying that I don't have EDS (at least not that I know of), so my apologies if this seems completely irrelevant. However, I have joint hypermobility, and with that comes pain in specific joints, muscle pain/tightness, and parts of my body frequently being "out of place" (i.e
Hello! So I'll start off saying that I don't have EDS (at least not that I know of), so my apologies if this seems completely irrelevant. However, I have joint hypermobility, and with that comes pain in specific joints, muscle pain/tightness, and parts of my body frequently being "out of place" (i.e
natsylvie
in
Ehlers-Danlos Support UK
5 years ago
Lethargy
I have depression and Ehlers-Danlos syndrome, classical. I read something early this morning online about people are sometimes diagnosed wrongly with having hypochondriac or chronic fatigue syndrome or depression but really their problem is the Ehlers-Danlos syndrome so now I’m really wondering is what
I have depression and Ehlers-Danlos syndrome, classical. I read something early this morning online about people are sometimes diagnosed wrongly with having hypochondriac or chronic fatigue syndrome or depression but really their problem is the Ehlers-Danlos syndrome so now I’m really wondering is what
ribby
in
Ehlers-Danlos Support UK
5 years ago
Cartiva implant
Hi I have osteoarthritis of the large toe joint & I had debridement surgery a few years. I’ve had steroid injections the lot & last year in May, I had the Cartiva joint replacement. I’m in so much pain still & told the surgery didn’t create a gap between the two bones. I suffer with nerve damage pain
Hi I have osteoarthritis of the large toe joint & I had debridement surgery a few years. I’ve had steroid injections the lot & last year in May, I had the Cartiva joint replacement. I’m in so much pain still & told the surgery didn’t create a gap between the two bones. I suffer with nerve damage pain
Annieinneedofhelp
in
Osteoarthritis Action
5 years ago
GOING ROUND AND ROUND IN PAIN AND SUFFERING NHS SCOTLAND
Mrs Joanne Peacher Thurso Scotland. 50 years old. CHRONIC KNEE PAIN. Doctor is this still the case in the nhs/Private practise. https://www.bbc.co.uk/news/uk-42353227 https://www.sciencedaily.com/releases/2017/07/170719084707.htm Doctor this is my wifes story https://www.careopinion.org.uk
Mrs Joanne Peacher Thurso Scotland. 50 years old. CHRONIC KNEE PAIN. Doctor is this still the case in the nhs/Private practise. https://www.bbc.co.uk/news/uk-42353227 https://www.sciencedaily.com/releases/2017/07/170719084707.htm Doctor this is my wifes story https://www.careopinion.org.uk
cantbreathehighlands
in
Pain Concern
5 years ago
Why are docs so eager to get us off prednisone?
Is it possible they “want you off it” to avoid deterioration of hips and knees? My mom had PMR and got avascular necrosis and had a hip replaced. I cannot believe the number of joint replacements that the good people on this forum have collected. WAY above the norm, IMO. That’s why I’m TRYING to stay
Is it possible they “want you off it” to avoid deterioration of hips and knees? My mom had PMR and got avascular necrosis and had a hip replaced. I cannot believe the number of joint replacements that the good people on this forum have collected. WAY above the norm, IMO. That’s why I’m TRYING to stay
OutdoorsyGal
in
PMRGCAuk
5 years ago
High heart rate momentary dips to 30s or 40s
In past few weeks, my Apple Watch shows rapid rise in heart rate when I go from reclining to sitting to standing position. Sometimes I feel a fluttering or pounding. The dip is just for a few seconds and then heat rate returns to normal (80s). This is happening more frequently. I have a joint replacement
In past few weeks, my Apple Watch shows rapid rise in heart rate when I go from reclining to sitting to standing position. Sometimes I feel a fluttering or pounding. The dip is just for a few seconds and then heat rate returns to normal (80s). This is happening more frequently. I have a joint replacement
Scaredofsurgery
in
Arrhythmia Alliance
5 years ago
Diagnosed.. Fibomyalgia and joint hypermobility!
Well after seeing specialist I have NOT got Lupus but he's confirmed I have Fibromyalgia and joint hypermobility.. Anyone who has ither and want to give me advice it would be much appreciated, got to make some changes I know. Especially at work 😑.. I'm glad I finally know and I can try to manage it.
Well after seeing specialist I have NOT got Lupus but he's confirmed I have Fibromyalgia and joint hypermobility.. Anyone who has ither and want to give me advice it would be much appreciated, got to make some changes I know. Especially at work 😑.. I'm glad I finally know and I can try to manage it.
Jetblack1
in
LUPUS UK
5 years ago
Post surgery blues.. are my conditions linked?
I was diagnosed as hypo just over a year ago after many years of symptoms, but with 'in range" results. For some reason I thought that once I was diagnosed and on a proper medication regime all would be fine... I have felt no relief from symptoms after being on initially 125 mg levothyroxine, now 50mg
I was diagnosed as hypo just over a year ago after many years of symptoms, but with 'in range" results. For some reason I thought that once I was diagnosed and on a proper medication regime all would be fine... I have felt no relief from symptoms after being on initially 125 mg levothyroxine, now 50mg
Lozza812
in
Thyroid UK
5 years ago
Paralysis of colon, anal prolapse, way forward?
And this is on top of chronique musle/
joint
pain,
dislocations
, problems with bleeding gums, fatigue, insomnia etc. Shortly seeing Prof Aziz but not sure there is much that can be done - anyone got some advice, what to ask Prof please? Thank you :)
And this is on top of chronique musle/
joint
pain,
dislocations
, problems with bleeding gums, fatigue, insomnia etc. Shortly seeing Prof Aziz but not sure there is much that can be done - anyone got some advice, what to ask Prof please? Thank you :)
Cha29
in
Ehlers-Danlos Support UK
6 years ago
Hypermobility
Hello, I am looking for some advice, my 3 year old son has got joint hypermobility, he’s in pain every night to the point he is in tears with it, he’s on calpol regularly but it’s not having a huge affect on his pain,. The doctor said to get him to sit still for half an hour every few hours but he is
Hello, I am looking for some advice, my 3 year old son has got joint hypermobility, he’s in pain every night to the point he is in tears with it, he’s on calpol regularly but it’s not having a huge affect on his pain,. The doctor said to get him to sit still for half an hour every few hours but he is
LavernAngela
in
Pain Concern
6 years ago
Diagnosed with Joint Hypermobility Syndrome but I’m not sure.
Hi everyone. I’m looking for your thoughts. I have been suffering from considerable pain for a year now. I have alternating pain in my buttocks, pain in my left shoulder and at various other points in my back. I have nerve pain in one leg that travels to my foot. After a lot of physio both paid for and
Hi everyone. I’m looking for your thoughts. I have been suffering from considerable pain for a year now. I have alternating pain in my buttocks, pain in my left shoulder and at various other points in my back. I have nerve pain in one leg that travels to my foot. After a lot of physio both paid for and
browny52
in
Ehlers-Danlos Support UK
6 years ago
can any one advise me?
hello everyone ! can anyone advise me and my wife.we recently applied for and got carers allowance,it was even backdated 3 months.my wife has cared and looked after me for the last 25 years this was after a really bad case of guillane barre syndrome followed by the discovery of 3 large dvts in my left
hello everyone ! can anyone advise me and my wife.we recently applied for and got carers allowance,it was even backdated 3 months.my wife has cared and looked after me for the last 25 years this was after a really bad case of guillane barre syndrome followed by the discovery of 3 large dvts in my left
tobby1428
in
Care Community
6 years ago
Feel like being ignored by Rheumatologist and GP not sure what to do next?
Hi guys, I posted here a while back because I had suspected EDS (probably Type 3), as I slipped a disc at 15 from stopping suddenly at the bottom of the stairs, my ligaments in my ankle are very loose and I have a lot of the other symptoms and commodities. I also have Vocal Cord Dysfunction Disorder
Hi guys, I posted here a while back because I had suspected EDS (probably Type 3), as I slipped a disc at 15 from stopping suddenly at the bottom of the stairs, my ligaments in my ankle are very loose and I have a lot of the other symptoms and commodities. I also have Vocal Cord Dysfunction Disorder
emilyhedgehog
in
Ehlers-Danlos Support UK
6 years ago
Family with vascular EDS but I have hypermobility...
Hello So on my mother's side there is Vascular type EDS unfortunately. My brother, who sadly passed away from a rupture inherited it from my mum who is thankfully still with us at a pretty good age of 62 and 2 pregnancies which seems like a miracle with this terrible defect. Anyway I wanted to ask
Hello So on my mother's side there is Vascular type EDS unfortunately. My brother, who sadly passed away from a rupture inherited it from my mum who is thankfully still with us at a pretty good age of 62 and 2 pregnancies which seems like a miracle with this terrible defect. Anyway I wanted to ask
Dumplinglife19
in
Ehlers-Danlos Support UK
6 years ago
How to get a diagnosis?
Hi I explain a little, im 45 , have had body issues all my life,
dislocations
,
joint
pains, injuries, gastro pain.
Hi I explain a little, im 45 , have had body issues all my life,
dislocations
,
joint
pains, injuries, gastro pain.
Lulububs
in
Ehlers-Danlos Support UK
6 years ago
1
...
3
4
5
...
12
Next page
10
Filter results
Clear filters
Posted in
All communities
NRAS
55 results
Ehlers-Danlos Support UK
37 results
Arthritis Action
15 results
View top 10 communities
Sort by
Most Relevant
Newest