Family with vascular EDS but I have h... - Ehlers-Danlos Sup...

Ehlers-Danlos Support UK

2,999 members940 posts

Family with vascular EDS but I have hypermobility...

Dumplinglife19 profile image
1 Reply

Hello

So on my mother's side there is Vascular type EDS unfortunately. My brother, who sadly passed away from a rupture inherited it from my mum who is thankfully still with us at a pretty good age of 62 and 2 pregnancies which seems like a miracle with this terrible defect. Anyway I wanted to ask if it is likely I have a different type of EDS or not. I have hypermobility in all joints, nothing too bad so far, not troubling too much except recently where I have been less active and I know seem to have real weakness in my right knee and hip leading to recently what felt like a knee dislocation. Anyone know if I am likely to have a different sub type of EDS or if it is more likely I have another connective tissue disorder? Just interested really that I know I don't have vascular but could all my wobbly clicky joints be connected to my family EDS and what that means for the future of my potential children...

Written by
Dumplinglife19 profile image
Dumplinglife19
To view profiles and participate in discussions please or .
Read more about...
1 Reply
Saassii profile image
Saassii

Do you look phenotypicical? If not, then it won't be a problem. Phenotypic type is large eyes, small thin nose, very thin lips etc. It's so rare that it's very unlikely. I wish goodness upon you with God's grace xx

Not what you're looking for?

You may also like...

Vascular EDS gene testing in UK

Hello, I have a diagnosis of hypermobile EDS made clinically with no genetic testing, however two...
bombsh3ll profile image

Vascular EDS and Angina Bullosa Haemorrhagica

I have recently read that there is a connection between Angina bullosa haemorrhagica and vascular...
Saassii profile image

Hypermobility Syndrome or EDS

I am new here and after seeing my rheumatologist for my RA, he diagnosed me with hypermobility...

Has anyone with EDS had fertility treatment/issues with pregnancy?

Hi there I am new to the forum. Have EDS type 3, POTS, syncope and for the last 3 years been...

Extreme Muscle Fatigue with EDS

Hi everyone. I’ve gotten to the point that any type of activity or walking or cooking etc produces...
KAGarcia profile image

Moderation team

ClassicalGirl profile image
ClassicalGirlAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.