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Joint dislocations
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When it rains it pours.
Ok so I had bad luck and tripped over a pot hole before Christmas, necessitating ball joint replacement in left shoulder. Op postponed due to projectile vomit of copious coffee grounds blood. Emergency endoscopy drained 800 mls coffee ground blood from stomach. Op on shoulder Christmas day, discharged
Ok so I had bad luck and tripped over a pot hole before Christmas, necessitating ball joint replacement in left shoulder. Op postponed due to projectile vomit of copious coffee grounds blood. Emergency endoscopy drained 800 mls coffee ground blood from stomach. Op on shoulder Christmas day, discharged
Marilyn1959
in
PMRGCAuk
5 years ago
EDS Patient Involvement Opportunity
***HeadsUp EDS Patients #InvolvementOpportunity*** ***Have your say in designing future research on childbearing with hypermobile Ehlers-Danlos syndrome*** Some researchers, including Dr Sally Pezaro, have recently been granted funding to do some research and professional & public engagement on the
***HeadsUp EDS Patients #InvolvementOpportunity*** ***Have your say in designing future research on childbearing with hypermobile Ehlers-Danlos syndrome*** Some researchers, including Dr Sally Pezaro, have recently been granted funding to do some research and professional & public engagement on the
Wendy39
in
LUPUS UK
5 years ago
GERD or not GERD that is the question?
Well five weeks on from shoulder joint replacement op on Christmas Day (!), following fall on 19th December I am starting to slowly see some small improvement. Bowels problems eliminated since stopping copious continued pain meds. What is still troubling me is my stomach. On my second day in hospital
Well five weeks on from shoulder joint replacement op on Christmas Day (!), following fall on 19th December I am starting to slowly see some small improvement. Bowels problems eliminated since stopping copious continued pain meds. What is still troubling me is my stomach. On my second day in hospital
Marilyn1959
in
PMRGCAuk
5 years ago
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Advice needed please - Retrognathia and jaw surgery
I'm looking for advice please. I'm 37 with Juvenile Arthritis and I need both of my jaw joints replaced. Has anyone else here had this surgery please and can you give me any advice? How long do they last? I've also been diagnosed recently with retrognathia even though its a problem I've had for years
I'm looking for advice please. I'm 37 with Juvenile Arthritis and I need both of my jaw joints replaced. Has anyone else here had this surgery please and can you give me any advice? How long do they last? I've also been diagnosed recently with retrognathia even though its a problem I've had for years
Arkyfox
in
Changing Faces
5 years ago
gleason 9?
im not for certain but let me give it a whirl. 5+4 grade 4,5o5 cores pos. tumor 80% of. perineural inv. Left side Adenocarcinomagleason 9, combined large duct and acinar types grade 5, 6of 6 cores up to 10mm tumor length, tumor volume 85% with perineral invasion present. cat scan showed incidental anyuerism
im not for certain but let me give it a whirl. 5+4 grade 4,5o5 cores pos. tumor 80% of. perineural inv. Left side Adenocarcinomagleason 9, combined large duct and acinar types grade 5, 6of 6 cores up to 10mm tumor length, tumor volume 85% with perineral invasion present. cat scan showed incidental anyuerism
duckman52
in
Advanced Prostate Cancer
5 years ago
Confused over diagnosis!
Hello all, I wonder if someone can help me, please? I went for an assessment at the local fatigue clinic yesterday, and was seen by an endocrinologist. He did a quick check of my symptoms (fatigue, generalised pain esp in lower quadrant, IBS, brain fog etc) and said, “I know what I think you have, but
Hello all, I wonder if someone can help me, please? I went for an assessment at the local fatigue clinic yesterday, and was seen by an endocrinologist. He did a quick check of my symptoms (fatigue, generalised pain esp in lower quadrant, IBS, brain fog etc) and said, “I know what I think you have, but
Stitchwitch94
in
Ehlers-Danlos Support UK
5 years ago
Vascular EDS gene testing in UK
Hello, I have a diagnosis of hypermobile EDS made clinically with no genetic testing, however two of my family members have features suggestive of vascular EDS (early prominent varicose veins, gingival recession, translucent skin, aortic aneurism (asymptomatic), easy large bruising and sparse thinning
Hello, I have a diagnosis of hypermobile EDS made clinically with no genetic testing, however two of my family members have features suggestive of vascular EDS (early prominent varicose veins, gingival recession, translucent skin, aortic aneurism (asymptomatic), easy large bruising and sparse thinning
bombsh3ll
in
Ehlers-Danlos Support UK
6 years ago
Osteoarthritis in both hips -age 41
Hi all, I’m new here and I think I need a bit of help. I have been diagnosed with severe osteoarthritis in both my hips and from the MRI scan it seems that I am bone on bone. I am in so much pain all the time and cry every time I get up to stand. I am only 41 and my GP is certain that I will need both
Hi all, I’m new here and I think I need a bit of help. I have been diagnosed with severe osteoarthritis in both my hips and from the MRI scan it seems that I am bone on bone. I am in so much pain all the time and cry every time I get up to stand. I am only 41 and my GP is certain that I will need both
Yellow77
in
Arthritis Action
6 years ago
Introduction
Hi, I was diagnosed with RA age 24, after a deep personal trauma and acute stress. However, I feel like I have always had symptoms since I was a child - I loved gymnastics and despite being a robust, healthy child, doing anything too extravagant always caused me pain (handstands). As a teenager, I
Hi, I was diagnosed with RA age 24, after a deep personal trauma and acute stress. However, I feel like I have always had symptoms since I was a child - I loved gymnastics and despite being a robust, healthy child, doing anything too extravagant always caused me pain (handstands). As a teenager, I
roisin84
in
NRAS
6 years ago
Enlarged Lymph nodes
I want to thank DebraM for sharing your story & remedies, as some of my symptoms/conditions are very similar ~ fybromyalgia, hashimoto's & enlarged lymph glands, h.pylori, among other 'things.' In 2016 I was diagnosed with carcinoma. After the excruciating biopsy they claimed it was only a possible "
I want to thank DebraM for sharing your story & remedies, as some of my symptoms/conditions are very similar ~ fybromyalgia, hashimoto's & enlarged lymph glands, h.pylori, among other 'things.' In 2016 I was diagnosed with carcinoma. After the excruciating biopsy they claimed it was only a possible "
Hidden
in
Thyroid UK
6 years ago
Fibromyalgia and joint hypermobility
This may have been discussed but has anyone any advice. -i was diagnosed with fibromyalgia some 10 yrs ago but given family history and various symptoms I think I may have joint hypermobility. Have got another referral to see a rheumatologist soon and wondered how I should broach/discuss this. I seem
This may have been discussed but has anyone any advice. -i was diagnosed with fibromyalgia some 10 yrs ago but given family history and various symptoms I think I may have joint hypermobility. Have got another referral to see a rheumatologist soon and wondered how I should broach/discuss this. I seem
Lambsceugh07
in
Fibromyalgia Action UK
6 years ago
Motivation?
I exercise because I know I have to, because I know it will help strengthen the muscles and support my diseased joints but on a cold, wintry day when I have a 40 minute drive to get to the nearest hydrotherapy pool I have to dig deep to find motivation! Once I'm there I enjoy it but exercising when
I exercise because I know I have to, because I know it will help strengthen the muscles and support my diseased joints but on a cold, wintry day when I have a 40 minute drive to get to the nearest hydrotherapy pool I have to dig deep to find motivation! Once I'm there I enjoy it but exercising when
NanaFifi
in
Stand Up 2 OA
6 years ago
Dexa Scan
I am wondering if anybody can help me translate the results of my Dexa scan carried out two weeks ago. I have been on Prednisolone now for three years and am down to 5mg. I am 73. I referred myself for a Dexa scan in 2016 and again this month to see if there had been any significant change in two years
I am wondering if anybody can help me translate the results of my Dexa scan carried out two weeks ago. I have been on Prednisolone now for three years and am down to 5mg. I am 73. I referred myself for a Dexa scan in 2016 and again this month to see if there had been any significant change in two years
Wenben
in
PMRGCAuk
6 years ago
Easy Adjustable Dressing Assistant Applying pants and shirts with the patented Miracle Dressing Aid https://www.miracledressingaid.com/
A new and revolutionary invention is now available to help give independence to people with limited mobility, in getting dressed. It has been proven by many dozen's of happy users around the world. It was originally designed for a lady with MS of 78 years and is used by many people of all ages with CP
A new and revolutionary invention is now available to help give independence to people with limited mobility, in getting dressed. It has been proven by many dozen's of happy users around the world. It was originally designed for a lady with MS of 78 years and is used by many people of all ages with CP
labeanery
in
Cure Parkinson's
6 years ago
Hypermobility or more?
Hey, just to give a round up I'm 21 and I've suffered from joint and muscle pain, stiffness and locking etc pretty much since I can remember but I was only recently formally diagnosed with having Hypermobility Syndrome. The rheumatologist I saw spoke to me about genetic testing and I'm wondering if it's
Hey, just to give a round up I'm 21 and I've suffered from joint and muscle pain, stiffness and locking etc pretty much since I can remember but I was only recently formally diagnosed with having Hypermobility Syndrome. The rheumatologist I saw spoke to me about genetic testing and I'm wondering if it's
PixiePie97
in
Ehlers-Danlos Support UK
6 years ago
Child with HEDS
My 13 year old daughter has EDS, very hypermobile, suffers from headaches, aches and pains, partial
joint
dislocations
, food allergies, low blood pressure/dizzy spells (probably undiagnosed POTS).
My 13 year old daughter has EDS, very hypermobile, suffers from headaches, aches and pains, partial
joint
dislocations
, food allergies, low blood pressure/dizzy spells (probably undiagnosed POTS).
bex68
in
Ehlers-Danlos Support UK
6 years ago
Advice please? I'm new and in the process of being diagnosed...
Hi, I'm 49 and I'm in the process of diagnosis. Been having symptoms for about 2 years (fatigue, pain in my feet, low mood, then pain in my hips, arms...and now everywhere.) My FR is 1450 so v high but my other tests for autoimmune came back negative. MRI shows onset of osetoarthritis in both hips and
Hi, I'm 49 and I'm in the process of diagnosis. Been having symptoms for about 2 years (fatigue, pain in my feet, low mood, then pain in my hips, arms...and now everywhere.) My FR is 1450 so v high but my other tests for autoimmune came back negative. MRI shows onset of osetoarthritis in both hips and
Lizardwriter
in
NRAS
6 years ago
Lupus, factor 5 lieden, raynauds, multifocal long bone avascular necrosis
Hi, new here and dont normally introduce myself with illness list but am desperate for advice. Have had avascular necrosis in hip joints (now replaced) and distal tibia (bone grafted) and now have it in long bones (joint space preserved so joint replacement futile) its extensive and drs i see at leeds
Hi, new here and dont normally introduce myself with illness list but am desperate for advice. Have had avascular necrosis in hip joints (now replaced) and distal tibia (bone grafted) and now have it in long bones (joint space preserved so joint replacement futile) its extensive and drs i see at leeds
popclarky
in
LUPUS UK
6 years ago
New to the forum
Hi, guys. Thought I would introduce myself after reading all your wonderful comments following researching answers to my ever-growing list of concerns...ha ha. My name is Cat and I'm presently 9 weeks out from a complex, total hip replacement. I have lived most of my life with arthritis of the hip
Hi, guys. Thought I would introduce myself after reading all your wonderful comments following researching answers to my ever-growing list of concerns...ha ha. My name is Cat and I'm presently 9 weeks out from a complex, total hip replacement. I have lived most of my life with arthritis of the hip
Cat197
in
Pain Concern
6 years ago
Joint Replacement Surgery in Fingers!
I’ve been told that I have chronic erosive osteoarthritis in 6 of my fingers and that I should consider surgery. I had hoped that I could have a joint replacement but the orthopaedic surgeon told me that patients have unrealistic expectations about what a joint replacement can do in fingers. Has anybody
I’ve been told that I have chronic erosive osteoarthritis in 6 of my fingers and that I should consider surgery. I had hoped that I could have a joint replacement but the orthopaedic surgeon told me that patients have unrealistic expectations about what a joint replacement can do in fingers. Has anybody
Cydonia136
in
Arthritis Action
6 years ago
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