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Upset after consultation
Hi everyone. Sorry for long post but I think it helped me writing this out. I just had a consultation with rheumatologist which didn't go well. I had antibiotics back in Feb and came off the Baricitinib for a week and then was referred for colonoscopy/biopsies. I spoke to helpline and nurse said
Hi everyone. Sorry for long post but I think it helped me writing this out. I just had a consultation with rheumatologist which didn't go well. I had antibiotics back in Feb and came off the Baricitinib for a week and then was referred for colonoscopy/biopsies. I spoke to helpline and nurse said
Mozart150
in
NRAS
2 years ago
Diagnosis of Sigmoid volvulus 3 weeks ago and an emergency operation via colon righted it temporarily.
I am recovering slowly from the shock of the above diagnosis. The surgeon said he will have to do a major abdominal operation (which he is reluctant to do whilst I am on Prednisolone, I was on 6 mg 3 weeks ago but now on 5mg) as healing and infection could be post operative problems. So I saw my Rheumatologist
I am recovering slowly from the shock of the above diagnosis. The surgeon said he will have to do a major abdominal operation (which he is reluctant to do whilst I am on Prednisolone, I was on 6 mg 3 weeks ago but now on 5mg) as healing and infection could be post operative problems. So I saw my Rheumatologist
Helag
in
PMRGCAuk
2 years ago
SI joint fusion
Please share about your recovery period if you have undergone a SI fusion. Thank you😊
Please share about your recovery period if you have undergone a SI fusion. Thank you😊
Jeaniem130
in
Pain Concern
2 years ago
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Very newly diagnosed PBC still undergoing testing
Hello all! I'm a 59 year old female living in the Florida Panhandle Haven't had any serious issues of note, arthritis and joint replacements aside. I began with an overall itch in Sept of 2021 and didn't worry too much until about a week later, when I was sleep deprived and torn up from scratching,
Hello all! I'm a 59 year old female living in the Florida Panhandle Haven't had any serious issues of note, arthritis and joint replacements aside. I began with an overall itch in Sept of 2021 and didn't worry too much until about a week later, when I was sleep deprived and torn up from scratching,
Hidden
in
PBCers Organization
2 years ago
Hypermobility/HEDS recommendation?
Hi there. Thanks for taking the time to read my post. I posted on the EDS forum but it’s not very active and no response yet. I have recently been diagnosed with PoTs and have fibromyalgia and erythromelalgia. I’m in the watch and wait category I believe for auto immune inc lupus but at my recent autonomics
Hi there. Thanks for taking the time to read my post. I posted on the EDS forum but it’s not very active and no response yet. I have recently been diagnosed with PoTs and have fibromyalgia and erythromelalgia. I’m in the watch and wait category I believe for auto immune inc lupus but at my recent autonomics
Winter_night
in
LUPUS UK
2 years ago
Recommendations for an EDS specialist in London?
Hi there. Thanks for taking the time to read my post. I have recently been diagnosed with PoTs and I also have fibromyalgia and erythromelalgia. At my recent autonomics appointment my hyperflexible joints were mentioned and I was asked if I'd been assessed for hypermobile EDS. I would like to find someone
Hi there. Thanks for taking the time to read my post. I have recently been diagnosed with PoTs and I also have fibromyalgia and erythromelalgia. At my recent autonomics appointment my hyperflexible joints were mentioned and I was asked if I'd been assessed for hypermobile EDS. I would like to find someone
Winter_night
in
Ehlers-Danlos Support UK
2 years ago
joint replacement and ibrance
I had a knee replaced on Sept 14. My oncologist took me off Ibrance two weeks before and I am supposed to startup again two weeks after the replacement. Has anyone else had this surgery and how long was your Ibrance delayed after the surgery? I am curious what other oncologists recommend as far as
I had a knee replaced on Sept 14. My oncologist took me off Ibrance two weeks before and I am supposed to startup again two weeks after the replacement. Has anyone else had this surgery and how long was your Ibrance delayed after the surgery? I am curious what other oncologists recommend as far as
Lilykristymichael
in
SHARE Metastatic Breast Cancer
2 years ago
Glad to have found this group
Hello, and thank you for the add. What follows is my bio, which I am using to explain why I wish to be included in this group. I have questions and no answers. My first awareness of osteoarthritis was in 2014 when I was told my should pain was due to bone spurs, no cartilage, and osteoarthritis. That
Hello, and thank you for the add. What follows is my bio, which I am using to explain why I wish to be included in this group. I have questions and no answers. My first awareness of osteoarthritis was in 2014 when I was told my should pain was due to bone spurs, no cartilage, and osteoarthritis. That
Pengoch
in
Osteoarthritis Action
2 years ago
eGFR is falling
I had my 90 visit with my PCP and the bloodwork dropped from 32 to 31. I have been on Farixga and we had hoped to see an increase not a decrease. I am working on weight loss (down 8 pounds) for a future hip replacement where the doctor wants me at or below 250 pounds. My PCP seems to think this
I had my 90 visit with my PCP and the bloodwork dropped from 32 to 31. I have been on Farixga and we had hoped to see an increase not a decrease. I am working on weight loss (down 8 pounds) for a future hip replacement where the doctor wants me at or below 250 pounds. My PCP seems to think this
TopazForests
in
Kidney Disease
2 years ago
shoulder replacement surgery while on prednisone
has anyone had a joint replacement surgery while on around 14 mg prednisone? I am 75 have been on prednisone since Dec 2020 for PMR. How were complications after surgery? My rheumatologist wants me to take Leflunomide to help taper. I took methotrexate for 4 months got down to 10 1/2 mg and had to go
has anyone had a joint replacement surgery while on around 14 mg prednisone? I am 75 have been on prednisone since Dec 2020 for PMR. How were complications after surgery? My rheumatologist wants me to take Leflunomide to help taper. I took methotrexate for 4 months got down to 10 1/2 mg and had to go
Darkchocolate1
in
PMRGCAuk
2 years ago
All in the Mind - hypermobility, ADHD, Tourette's
This morning, I listened to the latest
All in the mind
- and it was interesting. I was particularly struck by the associations made between mind and body - the seemingly very physical hypermobility syndrome and other issues which might be consider more on the mental health side. We have
This morning, I listened to the latest
All in the mind
- and it was interesting. I was particularly struck by the associations made between mind and body - the seemingly very physical hypermobility syndrome and other issues which might be consider more on the mental health side. We have
helvella
Thyroid UK
in
Thyroid UK
2 years ago
Possibility of hip replacement anytime soon ?
I have had RA and OA for 30 years which has resulted in one left Total Knee Replacement , one right Total Elbow Replacement , a plate and 9 screws in my left ankle and badly deformed hands , with ulnar drift ( both ) .I am on MTX and Sulfasalazine as well as meloxicam etc . etc . I am seeing my rheumatologist
I have had RA and OA for 30 years which has resulted in one left Total Knee Replacement , one right Total Elbow Replacement , a plate and 9 screws in my left ankle and badly deformed hands , with ulnar drift ( both ) .I am on MTX and Sulfasalazine as well as meloxicam etc . etc . I am seeing my rheumatologist
Briefencounter
in
NRAS
2 years ago
Joint replacement surgery on hands
Hi everyone. I'm new here and had Ra for twenty years. My consultant has suggested I have silastic joint replacement on both my hands as they are so damaged. Has anyone else had this surgery? I'm just a bit worried as am a typist and wondering about my work. Thank you
Hi everyone. I'm new here and had Ra for twenty years. My consultant has suggested I have silastic joint replacement on both my hands as they are so damaged. Has anyone else had this surgery? I'm just a bit worried as am a typist and wondering about my work. Thank you
Officegirl
in
NRAS
3 years ago
How do you cope with FMS
How much pain do you enjure before you call the doctor? I weaned myself off all pain pills 6 months ago bit havi g rhe worst flare up ever most nights I'm awake in pain if I fall to sleep I wake in worst pain so sit up all day trying to be active stretching and moving as they tell me if helps to away
How much pain do you enjure before you call the doctor? I weaned myself off all pain pills 6 months ago bit havi g rhe worst flare up ever most nights I'm awake in pain if I fall to sleep I wake in worst pain so sit up all day trying to be active stretching and moving as they tell me if helps to away
Mishka1975
in
Fibromyalgia Action UK
3 years ago
Looking for help please
I'm looking for some help please. I have been referred to a rheumatologist but the waiting list is at least 6 months long. In the meantime my Othopedic surgeon says he cannot continue to treat me until I have a firm diagnosis as I need joint replacements. I have been poorly for about 2.5 years now
I'm looking for some help please. I have been referred to a rheumatologist but the waiting list is at least 6 months long. In the meantime my Othopedic surgeon says he cannot continue to treat me until I have a firm diagnosis as I need joint replacements. I have been poorly for about 2.5 years now
shellydreamer
in
LUPUS UK
3 years ago
Hypermobility association ?
I have hypermobility of my joints with bruising and
joint
damage and some
dislocations
and no other illnesss of injuries . Are there any other RLS sufferers out there who feel their RLS is aggravated or associated with their hypermobility ?
I have hypermobility of my joints with bruising and
joint
damage and some
dislocations
and no other illnesss of injuries . Are there any other RLS sufferers out there who feel their RLS is aggravated or associated with their hypermobility ?
Kakally
in
Restless Legs Syndrome
3 years ago
Are joint hypermobility syndrome and ehlers-danlos syndrome the same?
Question for those of you who might have both fibro and joint hypermobility! I was asked by someone to clarify if I had ehlers-danlos syndrome and wasn't quite sure and Google isn't helping me! A rheumatologist diagnosed me with joint hypermobility ages ago at the same time as fibro and didn't really
Question for those of you who might have both fibro and joint hypermobility! I was asked by someone to clarify if I had ehlers-danlos syndrome and wasn't quite sure and Google isn't helping me! A rheumatologist diagnosed me with joint hypermobility ages ago at the same time as fibro and didn't really
Lizardelle
in
Fibromyalgia Action UK
3 years ago
Delayed joint surgery - Interview
Thursday 05/08/21- NRAS have been approached by the media, wanting to interview people who have had their joint replacement surgery delayed. If you would like to be included please email enquiries@nras.org.uk by 11am on Friday 06/08/21
Thursday 05/08/21- NRAS have been approached by the media, wanting to interview people who have had their joint replacement surgery delayed. If you would like to be included please email enquiries@nras.org.uk by 11am on Friday 06/08/21
Hidden
in
NRAS
3 years ago
joint replacements
Never had R.L.S till first hip joint replacement 30 yrs ago ,then knee and elbow done and it started in both legs ,not at the same time switch over when one settled down ,last 5 yrs in arms and shoulders when not in legs ,prescribed Requip then Mirapex finally on Pramipexole which was great for years
Never had R.L.S till first hip joint replacement 30 yrs ago ,then knee and elbow done and it started in both legs ,not at the same time switch over when one settled down ,last 5 yrs in arms and shoulders when not in legs ,prescribed Requip then Mirapex finally on Pramipexole which was great for years
auldreekie18
in
Restless Legs Syndrome
3 years ago
Hi!Has anyone on this forum has had thumb joint replacement CMC with MAIA prosthesis?please let me know how you got on and result! Thank you
Hi!Has anyone on this forum has had thumb joint replacement CMC with MAIA prosthesis?please let me know how you got on and result! Thank you
Hi!Has anyone on this forum has had thumb joint replacement CMC with MAIA prosthesis?please let me know how you got on and result! Thank you
NBeh
in
Arthritis Action
3 years ago
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