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NRAS Group Meetings Next Week...
Dear All Please find details below of a busy week of NRAS group meetings! NRAS Group Meetings—Week Commencing 10th November 2014 Cambridge NRAS Group The Cambridge group have a new meeting venue! The remaining 2014 meetings will be held at Addenbrooke's Hospital, Hills Road, Cambridge CB2 0QQ. Please
Dear All Please find details below of a busy week of NRAS group meetings! NRAS Group Meetings—Week Commencing 10th November 2014 Cambridge NRAS Group The Cambridge group have a new meeting venue! The remaining 2014 meetings will be held at Addenbrooke's Hospital, Hills Road, Cambridge CB2 0QQ. Please
Kim-NRAS
NRAS
in
NRAS
10 years ago
Do I have fibro?
A rhuematologist diagnosed me with fibro a couple of years ago, but since then I've been diagnosed by a different rhuematologist with hypermobility syndrome (EDS type 3). Was my fibro diagnosis wrong? Or do I have both? I clearly have all the symptoms of hypermobility syndrome- it was a lightbulb moment
A rhuematologist diagnosed me with fibro a couple of years ago, but since then I've been diagnosed by a different rhuematologist with hypermobility syndrome (EDS type 3). Was my fibro diagnosis wrong? Or do I have both? I clearly have all the symptoms of hypermobility syndrome- it was a lightbulb moment
rowantree
in
Fibromyalgia Action UK
10 years ago
Shoulder pain
This is my first post...I am 66 years old, have had OA for many years but was diagnosed 18 months ago with Sero negative RA and am now on a good cocktail of mtx, folic acid, naproxen. Paracetamol, Enbrel, Bu Trans patches and Hydroxychloroquine. The RA is now quite well controlled although I do need
This is my first post...I am 66 years old, have had OA for many years but was diagnosed 18 months ago with Sero negative RA and am now on a good cocktail of mtx, folic acid, naproxen. Paracetamol, Enbrel, Bu Trans patches and Hydroxychloroquine. The RA is now quite well controlled although I do need
Feta
in
NRAS
10 years ago
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Does anybody else have Hypermobility Syndrome/Ehlers Danlos Syndrome?
I've had this syndrome since 2001, and I feel as though this is heavily related to my Parkinson's symptoms. My right side is where my joints are much looser, especially my shoulder, hip and ankle joints. And this is the side, and the joints where I feel my tremors. I would like to know if there's
I've had this syndrome since 2001, and I feel as though this is heavily related to my Parkinson's symptoms. My right side is where my joints are much looser, especially my shoulder, hip and ankle joints. And this is the side, and the joints where I feel my tremors. I would like to know if there's
earthdweller
in
Cure Parkinson's
10 years ago
Warning about Progesterone Only Pills / Injections / Mirena & Hypermobility / EDS / Laxity
I think it may be helpful to share my experience on here, as I'm not sure how common knowledge this is? If I can help one person save them going through what I have. I have had Endo at least 10 years, last year my gyno's latest suggestion was to try a Progesterone only Mini Pill. My history is that
I think it may be helpful to share my experience on here, as I'm not sure how common knowledge this is? If I can help one person save them going through what I have. I have had Endo at least 10 years, last year my gyno's latest suggestion was to try a Progesterone only Mini Pill. My history is that
moomoo8
in
Endometriosis UK
10 years ago
DMARDS and joint replacement
Is it right that if one is having joint replacement surgery, you have to come off drugs for 1 month before and 2 months after the operation? If so, what happens to your RA? Do you then suffer flares etc? Anne
Is it right that if one is having joint replacement surgery, you have to come off drugs for 1 month before and 2 months after the operation? If so, what happens to your RA? Do you then suffer flares etc? Anne
DrWhoFan
in
NRAS
10 years ago
Advice and guidance needed for ill health retirement from teaching
I have been teaching for 15 years and have suffered with osteo arthritis since the age of 12. Throughout my career I have had to have joint replacements and other surgeries linking to the arthritis. It has now come to the point that I can't cope anymore and have finally realised that I can no longer
I have been teaching for 15 years and have suffered with osteo arthritis since the age of 12. Throughout my career I have had to have joint replacements and other surgeries linking to the arthritis. It has now come to the point that I can't cope anymore and have finally realised that I can no longer
Kath14
in
Fibromyalgia Action UK
10 years ago
3 days on bisoprolol and no symptoms of PAF!
Am feeling very upbeat as this is as long as I have gone without an episode since the symptoms started 3 months ago. Just a minor blip this afternoon when I felt a bit light-headed and tired for a couple of hours. Otherwise have been my usual self. Have been monitoring my B/P and pulse twice daily as
Am feeling very upbeat as this is as long as I have gone without an episode since the symptoms started 3 months ago. Just a minor blip this afternoon when I felt a bit light-headed and tired for a couple of hours. Otherwise have been my usual self. Have been monitoring my B/P and pulse twice daily as
Scorer
in
AF Association
10 years ago
Hi, I suffer from RLS each night and I am due to go into hospital for a knee joint replacement. Any advice would be welcome
Having suffered with RLS for many years on a nightly basis I take Pramipexole and Co Codamol and have my own routine for trying to get some quality sleep. I am very concerned that immediately post operation with my leg immobilised, how will I be able to cope when my RLS kicks in?
Having suffered with RLS for many years on a nightly basis I take Pramipexole and Co Codamol and have my own routine for trying to get some quality sleep. I am very concerned that immediately post operation with my leg immobilised, how will I be able to cope when my RLS kicks in?
Greenacre
in
Restless Legs Syndrome
10 years ago
Hi out there! Has anyone got joint hypermobility syndrome (Ehlers-Danlos Syndrome III) and having problems with Pulmonary Rehab exercises?
I haven't yet been on my course but I am worried about the type of repetitive exercises they set you to do as us bendy people with EDS have big problems when it comes to repetitive exercises, especially on knees and back - any one please?
I haven't yet been on my course but I am worried about the type of repetitive exercises they set you to do as us bendy people with EDS have big problems when it comes to repetitive exercises, especially on knees and back - any one please?
stillmovin
in
Lung Conditions Community Forum
11 years ago
NRAS Group meetings taking place next week...
Good morning all, Please find details of NRAS group meetings taking place next week: NRAS Group Meetings—Week Commencing 25th November 2013 St. Helens NRAS Group The group meets every other month at The Assembly Room, St Helens Town Hall, Victoria Square, St Helens WA10 1HP from 6.30pm to 8pm. There
Good morning all, Please find details of NRAS group meetings taking place next week: NRAS Group Meetings—Week Commencing 25th November 2013 St. Helens NRAS Group The group meets every other month at The Assembly Room, St Helens Town Hall, Victoria Square, St Helens WA10 1HP from 6.30pm to 8pm. There
Kim-NRAS
NRAS
in
NRAS
11 years ago
JHS and childbirth
I apologize if I'm writing this in the wrong forum. But I'm looking for advice about childbirth with hyper mobility syndrome. Some back story. When I was 15 my GP diagnosed me with joint hyper mobility syndrome. When I was 16 my left shoulder began subluxing which it does now only on occasion (I've
I apologize if I'm writing this in the wrong forum. But I'm looking for advice about childbirth with hyper mobility syndrome. Some back story. When I was 15 my GP diagnosed me with joint hyper mobility syndrome. When I was 16 my left shoulder began subluxing which it does now only on occasion (I've
Rachaellindseywalker
in
Ehlers-Danlos Support UK
11 years ago
still on the eds and benign hypermobility question
I have congenital hernia,congenital dislocated hips,twisted spine and osteo arthritis hyper mobility in practically all of my joints.my teeth were very crooked but i have had them removed and now have some false teeth,hammer toes. at sheffoeld i got diagnosis of hyper mobile EDS/benign joint hypermobility.prior
I have congenital hernia,congenital dislocated hips,twisted spine and osteo arthritis hyper mobility in practically all of my joints.my teeth were very crooked but i have had them removed and now have some false teeth,hammer toes. at sheffoeld i got diagnosis of hyper mobile EDS/benign joint hypermobility.prior
Hidden
in
Ehlers-Danlos Support UK
11 years ago
I have to decide between a Total Wrist Joint Replacement or a Fusion for severe Ra erosion
.Can someone who has had the joint replaced, offer any advice , experience or recommendations please ?.
.Can someone who has had the joint replaced, offer any advice , experience or recommendations please ?.
Hermia
in
NRAS
11 years ago
Waiting Diagnosis
I've had the 'shakes' since a head injury nearly 40 years ago. Over the years I've had several 'episodes' where I walked into walls, fell up and down steps and stairs, knocked pans off the hob, dropped things...... I now have RA and need joint replacements which adds to everything else. My latest
I've had the 'shakes' since a head injury nearly 40 years ago. Over the years I've had several 'episodes' where I walked into walls, fell up and down steps and stairs, knocked pans off the hob, dropped things...... I now have RA and need joint replacements which adds to everything else. My latest
Zhez
in
Ataxia UK
11 years ago
Hello, Everyone
Hello, I'm Springsong I'm a 34yr old mum with both Aspergers Syndrome & Hypermobility Syndrome/EDS Hypermobility type (depending on which DR I see depends on what they call it). I'm also on the Autism forum as my eldest daughter has Autism but thought I'd join here as both my girls are currently
Hello, I'm Springsong I'm a 34yr old mum with both Aspergers Syndrome & Hypermobility Syndrome/EDS Hypermobility type (depending on which DR I see depends on what they call it). I'm also on the Autism forum as my eldest daughter has Autism but thought I'd join here as both my girls are currently
Springsong
in
Ehlers-Danlos Support UK
11 years ago
What is Hypermobility?
I was at my first Physio appointment last week to get Acupuncture for my neck, shoulder and back pain. When I was going over my symptoms and history etc. I told her that when I lift/move my shoulders they do a 'popping' and 'clicking', like it is popping from the joint. After telling her this, she
I was at my first Physio appointment last week to get Acupuncture for my neck, shoulder and back pain. When I was going over my symptoms and history etc. I told her that when I lift/move my shoulders they do a 'popping' and 'clicking', like it is popping from the joint. After telling her this, she
charlie_red
in
Fibromyalgia Action UK
11 years ago
Is there a difference between hypermobility syndrome and ehler danlos syndrome?
I have had a formal diagnosis of hypermobility syndrome but have recently been told by some people that this is the same as EDS hypermobility type and by some that it's different. I do know that I have lots of gastric problems due to my HMS and I bruise very easily. Is there a difference between the
I have had a formal diagnosis of hypermobility syndrome but have recently been told by some people that this is the same as EDS hypermobility type and by some that it's different. I do know that I have lots of gastric problems due to my HMS and I bruise very easily. Is there a difference between the
missteal
in
Ehlers-Danlos Support UK
11 years ago
diabetese....knee joint pain..
Before I give the tips,I would like to share my experience.In the year 2000 my wife had severe knee joint pain such as she was unable to go to our bedroom upstairs.She used to crawl like a lizard on the stairs to reach bedroom or to be lifted and taken.After exhausting all medications,Allopathic,Ayurvedic
Before I give the tips,I would like to share my experience.In the year 2000 my wife had severe knee joint pain such as she was unable to go to our bedroom upstairs.She used to crawl like a lizard on the stairs to reach bedroom or to be lifted and taken.After exhausting all medications,Allopathic,Ayurvedic
kamtadale
in
Diabetes India
11 years ago
Joint replacement or fusion
Has anyone had joint replacement or fusion? I'm wondering whether its worth it in the end? Specifically big toe fusion, and wrist and thumb joint fusion or replacement? I'd like to hear your experiences. Thanks
Has anyone had joint replacement or fusion? I'm wondering whether its worth it in the end? Specifically big toe fusion, and wrist and thumb joint fusion or replacement? I'd like to hear your experiences. Thanks
rowantree
in
Pain Concern
12 years ago
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