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Experiences with
Intravenous immunoglobulin (IVIg)
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Something extra to think about
She had a course if Intravenous immuno gamma globulin (
Ivig
) and drives now and has done so for years. Tell your family that your condition is not hopeless. Be honest, this is only Relapsing Remitting ms(RRMS) :YOU” can learn how to cope and adjust.
She had a course if Intravenous immuno gamma globulin (
Ivig
) and drives now and has done so for years. Tell your family that your condition is not hopeless. Be honest, this is only Relapsing Remitting ms(RRMS) :YOU” can learn how to cope and adjust.
RoyceNewton
in
My MSAA Community
5 years ago
Ibrutnib
I do, though, get
IVIG
and I take Bactrim and Valtrex.
I do, though, get
IVIG
and I take Bactrim and Valtrex.
Pepper122
in
CLL Support
5 years ago
With a CLL diagnosis, knowing more about your immune system could save your life!
Ontario study showing benefits https://healthunlocked.com/cllsupport/posts/150224196/canadian-scig-and-
ivig
-study https://www.uptodate.com/contents/intravenous-immune-globulin-
ivig
-beyond-the-basics https://healthunlocked.com/cllsupport/posts/private/133873829/my-first-
ivig
-infusion-antibodies-transplant-experience
Ontario study showing benefits https://healthunlocked.com/cllsupport/posts/150224196/canadian-scig-and-
ivig
-study https://www.uptodate.com/contents/intravenous-immune-globulin-
ivig
-beyond-the-basics https://healthunlocked.com/cllsupport/posts/private/133873829/my-first-
ivig
-infusion-antibodies-transplant-experience
AussieNeil
Partner
in
CLL Support
5 years ago
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Lead Legs
I suffer from Cerebella Atrophy and I’m due for some treatment shortly, hopefully it will slow things down (
IVIg
). Stay safe and take care. Jacqui
I suffer from Cerebella Atrophy and I’m due for some treatment shortly, hopefully it will slow things down (
IVIg
). Stay safe and take care. Jacqui
Jacqui-A
in
Ataxia UK
5 years ago
Newbie here.
I also receive monthly
IVIG
fir CVID. Was started on Plaquinil yesterday. How long does it take for Plaquinil to start working?
I also receive monthly
IVIG
fir CVID. Was started on Plaquinil yesterday. How long does it take for Plaquinil to start working?
Aleish
in
LUPUS UK
5 years ago
Not “sick” enough for an IVIG treatment...
I had an
IVIG
treatment a few years ago (different oncologist) and although I had a significant reaction, once I got past it, those were the best 6 weeks of my life (post CLL diagnosis). Should I seek out another oncologist for a second opinion?
I had an
IVIG
treatment a few years ago (different oncologist) and although I had a significant reaction, once I got past it, those were the best 6 weeks of my life (post CLL diagnosis). Should I seek out another oncologist for a second opinion?
teb0513
in
CLL Support
5 years ago
Intralipids prior to & during ivf?
I never responded to the steroids but did respond well to
IVIG
and almost as well with intralipids. I'm terrified of
IVIG
so I'm thinking to be on the safe side I should do intralipids.
I never responded to the steroids but did respond well to
IVIG
and almost as well with intralipids. I'm terrified of
IVIG
so I'm thinking to be on the safe side I should do intralipids.
Fingerscrossed38
in
Fertility Network UK
5 years ago
CLL and Mood Swings
I am on watch and wait and doing
ivig
every 8 weeks along with Testosterone pellets to increase my testosterone levels I never had such highs and lows in my lifetime Thanks
I am on watch and wait and doing
ivig
every 8 weeks along with Testosterone pellets to increase my testosterone levels I never had such highs and lows in my lifetime Thanks
Hidden
in
CLL Support
5 years ago
catching up!
I have
IVIG
infusions twice every five weeks. Is there a treatment anyone has which helps please. Lovely sunshine today in Sussex.Looking forward to a reply take care Selseyx
I have
IVIG
infusions twice every five weeks. Is there a treatment anyone has which helps please. Lovely sunshine today in Sussex.Looking forward to a reply take care Selseyx
Selsey
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
IVIG
My doctors haven’t mentioned
IVIG
for a few years and I don’t have a consultation for another month, but Ive been doing some research on its successes and was looking for your opinions!
My doctors haven’t mentioned
IVIG
for a few years and I don’t have a consultation for another month, but Ive been doing some research on its successes and was looking for your opinions!
VasculitisQueen
in
Vasculitis UK
5 years ago
cost of Plasmapheresis in India?
Also the cost of
IVIG
and Rituximab? Thanks
Also the cost of
IVIG
and Rituximab? Thanks
Balap
in
Kidney Transplant
5 years ago
Pulse Tinnitus
June 2012 Bendamustine and Ofatumumab, but changed to Rituxan. 2014 to date
IVIG
. Jan 2017 Ibrutinib. Trisomy 12 (NOTCH 1 and SF3B1 unmutated), IgVH mutated, ZAP70 -ve, CD38 -ve.
June 2012 Bendamustine and Ofatumumab, but changed to Rituxan. 2014 to date
IVIG
. Jan 2017 Ibrutinib. Trisomy 12 (NOTCH 1 and SF3B1 unmutated), IgVH mutated, ZAP70 -ve, CD38 -ve.
RobertCLL
in
British Tinnitus Association
5 years ago
CLL Tracker - Patient Data
June 2012 Bendamustine and Ofatumumab, but changed to Rituxan. 2014 to date
IVIG
. Jan 2017 Ibrutinib. Trisomy 12 (NOTCH 1 and SF3B1 unmutated), IgVH mutated, ZAP70 -ve, CD38 -ve.
June 2012 Bendamustine and Ofatumumab, but changed to Rituxan. 2014 to date
IVIG
. Jan 2017 Ibrutinib. Trisomy 12 (NOTCH 1 and SF3B1 unmutated), IgVH mutated, ZAP70 -ve, CD38 -ve.
RobertCLL
in
CLL Support
6 years ago
Sleep disorder and CLL
I was told during my
IVIG
treatment. It was the same feeling I had when I was diagnosed. Although I wondered every time I felt worse than usual that it was time. I as all with this “good cancer” hope to feel better. Wish all of you the best!
I was told during my
IVIG
treatment. It was the same feeling I had when I was diagnosed. Although I wondered every time I felt worse than usual that it was time. I as all with this “good cancer” hope to feel better. Wish all of you the best!
Porter01
in
CLL Support
6 years ago
Kimsome
Finally the CDC stepped in and helped me find an oncologist who would put me on
IVIG
to boost a broken immune system. Is this
IVIG
a cure fo some people? Yesterday my blood work still looked great.
Finally the CDC stepped in and helped me find an oncologist who would put me on
IVIG
to boost a broken immune system. Is this
IVIG
a cure fo some people? Yesterday my blood work still looked great.
Kimsome
in
CLL Support
6 years ago
Ivig therapy
My white blood cell count has remained consistently within normal ranges:) Once you start
ivig
therapy is it for life? Any thoughts would be helpful in understanding mcl vs. cll Thanks
My white blood cell count has remained consistently within normal ranges:) Once you start
ivig
therapy is it for life? Any thoughts would be helpful in understanding mcl vs. cll Thanks
Downriver555
in
CLL Support
6 years ago
Decision Time
Hi all, I was diagnosed with thrombocytopenia in 2007 and over the years , my low platelets were managed with
IVIG
, prednisolone and Rituximab.
Hi all, I was diagnosed with thrombocytopenia in 2007 and over the years , my low platelets were managed with
IVIG
, prednisolone and Rituximab.
Rafiq
in
ITP Support Association
6 years ago
CLL, Medicare & support meds
What's the preferred medication, monthly dosage and cost for Hgb, Neutrophil and
IVIG
medsfor for CLL patients? I'd like to plan for "worst case" when I select a Part D plan. So far, it looks like BCBS has the best plans as they cover everything?
What's the preferred medication, monthly dosage and cost for Hgb, Neutrophil and
IVIG
medsfor for CLL patients? I'd like to plan for "worst case" when I select a Part D plan. So far, it looks like BCBS has the best plans as they cover everything?
misterbee
in
CLL Support
6 years ago
Fatigue?
Two days of
IVIG
for the scleroderma but do not feel so well ache all over and keep going to. Sleep.!Does anyone else feel fatigued all the time? I also have osteoporosis so not very active due to fractures. It is so helpful to belong to this group and my thoughts and best wishes go to all Love.
Two days of
IVIG
for the scleroderma but do not feel so well ache all over and keep going to. Sleep.!Does anyone else feel fatigued all the time? I also have osteoporosis so not very active due to fractures. It is so helpful to belong to this group and my thoughts and best wishes go to all Love.
Selsey
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Platelet count decreased within month of IVIG
I am worried a lot, she doing good in terms of food and active..., I got to know,
ivig
lasts 3-6 weeks, now I understand, this count was increased with
IVIG
but dropped again, do we have any specific food (pomegranate, papaya leaves...which supports in increase in the count? please suggest.
I am worried a lot, she doing good in terms of food and active..., I got to know,
ivig
lasts 3-6 weeks, now I understand, this count was increased with
IVIG
but dropped again, do we have any specific food (pomegranate, papaya leaves...which supports in increase in the count? please suggest.
Yeldha
in
ITP Support Association
6 years ago
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