Sorry, more for everybody to consider. ms in all its forms is a chronic incurable disabling condition. That means it does not get better and go away. Never ever, no matter what “YOU” do this is your lot in this lifetime. Perhaps not in the next but that is not for me to say. For this one “YOU” like me, are stuck with this illness.
Do “YOU” understand that? Has it sunk in yet? It has, great. Have “YOU” let your loved ones know? Are they clear about what this means to them to “YOU” your relationship? I have it easy today. She who must be obeyed has ms and my Mother is a former nurse. They both understand. That is not to say my two very supportive female figures get everything and are entirely compassionate. I am not always compassionate to she who must be obeyed and we share the same disease. The minute my ex found out she threw me out, banished me back to Australia from Alabama and took everything I had. That is the fate for a lot of us. It may not happen immediately, some lose everything later in life, but we still lose all. The divorce rate for ms people is pretty high. It is hard on us, but have “YOU” ever considered what it is like for your spouse?
Friends desert us some spouses stay a little while until they choose not to cope anymore, or can’t and they go to. If “YOU” have a spouse that is staying with “YOU”, talk to them. It is difficult in our current society but “YOU” must talk to them. Ask them their fears, tell them there is no cure but “YOU” are on disease Modifying Therapy (DMT) and it may not cure “YOU” but it is designed to slow down the disease progression. That “YOU” will do everything that “YOU” can to slow your disease progression for as long as “YOU” can. I have had mine twenty plus years and I still walk around bathe myself and make the bed. She who must be obeyed used to walk but was pushed in a wheelchair sometimes. She had a course if Intravenous immuno gamma globulin (Ivig) and drives now and has done so for years. Tell your family that your condition is not hopeless. Be honest, this is only Relapsing Remitting ms(RRMS) :YOU” can learn how to cope and adjust. “YOU” can make your life good strong and worthwhile and “YOU” appreciate them being there with “YOU” Remember, for better or worse, this is the worse bit but together “YOU” both can make it to the better bit.
Royce
be kind to yourself and maybe your spouse as well. Do what has to be done and really do it
