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Experiences with
Intravenous immunoglobulin (IVIg)
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Ibrutinib and Medicare
I am starting
IVIG
in June. I don't want to start treatment with Ibrutinib. I've so much about the cost of Ibrutinib as well as the side effects. I checked in my area of NJ with Medicare,the out of pocket cost for Ibrutinib is over $700 a month.
I am starting
IVIG
in June. I don't want to start treatment with Ibrutinib. I've so much about the cost of Ibrutinib as well as the side effects. I checked in my area of NJ with Medicare,the out of pocket cost for Ibrutinib is over $700 a month.
ReneeSusan
in
CLL America Support
7 years ago
Ivig ..... Bone marrow biopsy
Well I had my
ivig
as luck would have it I had a reaction ( HCA mentioned it was rare ) and not a good one on Thursday 2 weeks after my
ivig
came down with a rash over my face which is visible and all under my skin no doubt the rash will appear visable soon over my body I have been to local my health
Well I had my
ivig
as luck would have it I had a reaction ( HCA mentioned it was rare ) and not a good one on Thursday 2 weeks after my
ivig
came down with a rash over my face which is visible and all under my skin no doubt the rash will appear visable soon over my body I have been to local my health
Topography52_-
in
ITP Support Association
7 years ago
Does Flu and Colds makes the platelet count drops to low level?
My child was confined 2 weeks ago and he received
IvIg
for 1 day and Solumedrol 870mg for 3 days and no medication at home.....after a week his platelet went up to 359k and after a week again his platelet went low to 29.6k without any petechiae, hematoma and bleeding. ( my son is a bleeder his bleeding
My child was confined 2 weeks ago and he received
IvIg
for 1 day and Solumedrol 870mg for 3 days and no medication at home.....after a week his platelet went up to 359k and after a week again his platelet went low to 29.6k without any petechiae, hematoma and bleeding. ( my son is a bleeder his bleeding
DavieSimon
in
ITP Support Association
7 years ago
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Why does the argc clinic have such a high success rate for ivf
Is it because they offer
ivig
? Is there anything else that's additional that they offer?
Is it because they offer
ivig
? Is there anything else that's additional that they offer?
Bumbo
in
Fertility Network UK
7 years ago
But You Don't Look Sick
Got my
IVIG
treatment last week so immune system is topped off . Have my Clorox wipes and masks and gloves and antibiotics ready to go. Now just have to remember to be careful of what I eat and drink, as my tummy is very prone to upset over the least little thing.
Got my
IVIG
treatment last week so immune system is topped off . Have my Clorox wipes and masks and gloves and antibiotics ready to go. Now just have to remember to be careful of what I eat and drink, as my tummy is very prone to upset over the least little thing.
BeckyLUSA
in
CLL Support
7 years ago
Skin rash
After my 5th
IVIG
infusion (Feb 1, 2017), I developed a skin rash that started on my torso and has gone all over my body. It's been 2 months and hardly abated! Dermatologists put me on Prednisone for 3 weeks, and I've been using two different kinds of steroid creams.
After my 5th
IVIG
infusion (Feb 1, 2017), I developed a skin rash that started on my torso and has gone all over my body. It's been 2 months and hardly abated! Dermatologists put me on Prednisone for 3 weeks, and I've been using two different kinds of steroid creams.
CLLBill
in
CLL Support
7 years ago
ITP and joint pain
Ive had ITP since 2004, initially treated with steroids which has left me with insomnia, apart from some
iVig
before Christmas, as my levels normally stay above 30000 (30000 - 80000) we now just monitor rather than have any treatments.
Ive had ITP since 2004, initially treated with steroids which has left me with insomnia, apart from some
iVig
before Christmas, as my levels normally stay above 30000 (30000 - 80000) we now just monitor rather than have any treatments.
catowen
in
ITP Support Association
7 years ago
Chronic ITP
They've started treatment with
IVIG
, Prednisone , Dexamethasone, when rho, Cell Cept, Promacta, Rituximab, Prostate . She had good response to dex and rituximab the first time then stopped responding. Her platelets are always under 10,000 the most is 4 or 6.
They've started treatment with
IVIG
, Prednisone , Dexamethasone, when rho, Cell Cept, Promacta, Rituximab, Prostate . She had good response to dex and rituximab the first time then stopped responding. Her platelets are always under 10,000 the most is 4 or 6.
Kifah90
in
ITP Support Association
7 years ago
IVIG
My questions are how well does
IVIG
work for others and does changing brands ever improve effectiveness? John
My questions are how well does
IVIG
work for others and does changing brands ever improve effectiveness? John
johnl
in
CLL Support
8 years ago
Fighting the unknown
I will start a regiment of
ivig
and chemo alternating. Any advice?
I will start a regiment of
ivig
and chemo alternating. Any advice?
jeepnkaren
in
CLL Support
8 years ago
CLL Treatment - Give your body a rest?
Which then may lead to
IVIG
Infusions. Chest infections - nebuliser treatment. Nasal problems. Antibiotic & Antiviral Courses. AND Now I have an appointment with an Endocrinologist - for extreme backache due to Cushing Disease caused by the drug I take for my diarrhoea.
Which then may lead to
IVIG
Infusions. Chest infections - nebuliser treatment. Nasal problems. Antibiotic & Antiviral Courses. AND Now I have an appointment with an Endocrinologist - for extreme backache due to Cushing Disease caused by the drug I take for my diarrhoea.
MartyR
in
CLL Support
8 years ago
Vasculitis
My neurologist had me on other medications including CellCept & Methetrexate and then a year into my treatment my Immunologist introduced ' Cyclophosphamide ' and monthly infusions
IVIG
which replaced the above. Prednisone remains.
My neurologist had me on other medications including CellCept & Methetrexate and then a year into my treatment my Immunologist introduced ' Cyclophosphamide ' and monthly infusions
IVIG
which replaced the above. Prednisone remains.
Vrainbird
in
Vasculitis UK
8 years ago
Newly Diagnosed
Hi there Ive just been diagnosed with ITP rushed to hospital last week with a count of 4 wow what a week its bee had an infusion last weekend if
IVIG
my levels are now up to 300 & Ive had every test known to man Im still (a bit nervously) waiting for my bone marrow biopsy test results - although one
Hi there Ive just been diagnosed with ITP rushed to hospital last week with a count of 4 wow what a week its bee had an infusion last weekend if
IVIG
my levels are now up to 300 & Ive had every test known to man Im still (a bit nervously) waiting for my bone marrow biopsy test results - although one
eveplate
in
ITP Support Association
8 years ago
Systemic Scleroderma aka Systemic Sclerosis
I've had emotional ups and downs and I'm learning to cope with changes... very mental disease... has anyone has
IVIG
TReatment? What was the outcome? How long in treatment?
I've had emotional ups and downs and I'm learning to cope with changes... very mental disease... has anyone has
IVIG
TReatment? What was the outcome? How long in treatment?
Marinav
in
Scleroderma & Raynaud's UK (SRUK)
8 years ago
IVIG Infusions
My hematologist has decided that I would benefit from
IVIG
infusions during the winter months, as he is worried I could damage my lungs. Any advice on these infusions would be great please. Thanks Colnegirl
My hematologist has decided that I would benefit from
IVIG
infusions during the winter months, as he is worried I could damage my lungs. Any advice on these infusions would be great please. Thanks Colnegirl
Colnegirl
in
CLL Support
8 years ago
Considering splenectomy to treat ITP
Hi - I have ITP and have been treated with Prednisone, Dapsone and
IVIG
intermittently for the past 3 years with no real success at getting my platelets above 50 000. My count is normally between 30 000 - 40 000 whilst on Prednisone - its lower when on no drugs.
Hi - I have ITP and have been treated with Prednisone, Dapsone and
IVIG
intermittently for the past 3 years with no real success at getting my platelets above 50 000. My count is normally between 30 000 - 40 000 whilst on Prednisone - its lower when on no drugs.
U_ever
in
ITP Support Association
8 years ago
Vit B12 issue please respond
I am permanently tired and haveb
IVIG
PREMARIN INFUSION EVERY 28 days.. Ou consider more oral vit b 12 appropriate and safe when I am still so lethargic? What are the side affects I'd with the three monthly injections could this be too much medication?
I am permanently tired and haveb
IVIG
PREMARIN INFUSION EVERY 28 days.. Ou consider more oral vit b 12 appropriate and safe when I am still so lethargic? What are the side affects I'd with the three monthly injections could this be too much medication?
vlfreer
in
Pernicious Anaemia Society
8 years ago
21 months old baby having ITP need advise urgently
they gave him three doses of
IVIG
and his platelet count goes down to 4000 and they gave him steroids and his platelet count increase to 12000 and we took discharged from the hospital. after a week we again did the blood test and again his platelet count down to 4000, we again went to hospital and they
they gave him three doses of
IVIG
and his platelet count goes down to 4000 and they gave him steroids and his platelet count increase to 12000 and we took discharged from the hospital. after a week we again did the blood test and again his platelet count down to 4000, we again went to hospital and they
nabila_aman
in
ITP Support Association
8 years ago
IVIG and Immunoglobulins
http://cllsociety.org/2016/12/immunogobulins-and-
ivig
/ On Saturday, December 17th, I’ll be at the 2nd Annual Post-ASH CLL Patient Forum at City of Hope Medical Center in Duarte, CA. If you can make it, I’d love to see you there. You can access the flyer below and pre-registration is requested.
http://cllsociety.org/2016/12/immunogobulins-and-
ivig
/ On Saturday, December 17th, I’ll be at the 2nd Annual Post-ASH CLL Patient Forum at City of Hope Medical Center in Duarte, CA. If you can make it, I’d love to see you there. You can access the flyer below and pre-registration is requested.
bkoffman
in
Non Hodgkin's Lymphoma Friends
8 years ago
Holiday Parties and low IGs
My IGs are low enough that I've started
IVIG
infusions. Do others like me avoid kissy huggy holiday parties. (Finally an excuse to be antisocial) john
My IGs are low enough that I've started
IVIG
infusions. Do others like me avoid kissy huggy holiday parties. (Finally an excuse to be antisocial) john
johnl
in
CLL Support
8 years ago
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