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Islet cell transplant
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How to talk about transplants...
Hi, I'm 24 and suffering from stage 5 kidney failure as a side effect of the autoimmune disease scleroderma. Transplantation has been brought up with me a few times over the past year and it's becoming a serious option for me. Because of my main health problem a kidney transplant is even more risky than
Hi, I'm 24 and suffering from stage 5 kidney failure as a side effect of the autoimmune disease scleroderma. Transplantation has been brought up with me a few times over the past year and it's becoming a serious option for me. Because of my main health problem a kidney transplant is even more risky than
Redoralive
in
Kidney Transplant
6 years ago
How to talk about transplants...
Hi, I'm 24 and suffering from stage 5 kidney failure as a side effect of the autoimmune disease scleroderma. Transplantation has been brought up with me a few times over the past year and it's becoming a serious option for me. Because of my main health problem a kidney transplant is even more risky than
Hi, I'm 24 and suffering from stage 5 kidney failure as a side effect of the autoimmune disease scleroderma. Transplantation has been brought up with me a few times over the past year and it's becoming a serious option for me. Because of my main health problem a kidney transplant is even more risky than
Redoralive
in
Kidney Transplant
6 years ago
NIVI Mask and Facial Sores
Hi there, for the last 2 weeks I have now at night got to go on a NIVI machine for around 7 hours. I have been put on this as my C02 is very high while i awaite a lung transplant. I am getting use to it now although in the morning when i take it off i am sometimes left with red chaffing around the
Hi there, for the last 2 weeks I have now at night got to go on a NIVI machine for around 7 hours. I have been put on this as my C02 is very high while i awaite a lung transplant. I am getting use to it now although in the morning when i take it off i am sometimes left with red chaffing around the
Joseph260268
in
Lung Conditions Community Forum
6 years ago
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ESLD?
Hi all. I'm looking for some advice.. I'm quite unwell at the moment with pain right side, nausea, no appetite, memory loss etc. Feel very depressed.no energy. Horrible taste in mouth.I had fatty liver about 5 years ago but no other symptoms then. I'm really scared now as I feel I'm so poorly ( not
Hi all. I'm looking for some advice.. I'm quite unwell at the moment with pain right side, nausea, no appetite, memory loss etc. Feel very depressed.no energy. Horrible taste in mouth.I had fatty liver about 5 years ago but no other symptoms then. I'm really scared now as I feel I'm so poorly ( not
ktan49
in
Endometriosis UK
6 years ago
Transplant patient
Hello guys . I am a liver transplant patient for 20 year. I would like do find someone that is a transplant patient and be pregnant . I am almost 24 year old and with my boyfriend will like to have one kid in 2-3 years . So if someone know any information or have experience like that
Hello guys . I am a liver transplant patient for 20 year. I would like do find someone that is a transplant patient and be pregnant . I am almost 24 year old and with my boyfriend will like to have one kid in 2-3 years . So if someone know any information or have experience like that
rc_rafaela
in
British Liver Trust
6 years ago
Kidney Transplant 35 yrs Dec 2018
I’ve been taking Aza my whole transplant life. I currently have a 15cm cyst on my liver. Does anyone know what I may be facing at this stage of my journey? Any stories or advice anyone could share, words of encouragement if any would be delightful.
I’ve been taking Aza my whole transplant life. I currently have a 15cm cyst on my liver. Does anyone know what I may be facing at this stage of my journey? Any stories or advice anyone could share, words of encouragement if any would be delightful.
Andysue
in
British Liver Trust
6 years ago
Trouble adjusting.
After having a renal transplant 23 years ago my precious kidney has stopped working. I now find my self back on dialysis. I thought medical science would have made progress in 23 years. It still breaks down to you and that ungodly machine. Don't get me wrong I am happy to have this lifesaving option
After having a renal transplant 23 years ago my precious kidney has stopped working. I now find my self back on dialysis. I thought medical science would have made progress in 23 years. It still breaks down to you and that ungodly machine. Don't get me wrong I am happy to have this lifesaving option
Pinktulips24
in
Kidney Disease
6 years ago
My 41-y-o son with Primary Liver Cancer in Ontario, Canada
My son Stephen is about to have TACE treatment shortly. He is currently on the Liver Transplant List. He had a resection about 18 months ago but the cancer returned. Can you please share your story since we do not know what to expect. Thank you.
My son Stephen is about to have TACE treatment shortly. He is currently on the Liver Transplant List. He had a resection about 18 months ago but the cancer returned. Can you please share your story since we do not know what to expect. Thank you.
Evemarie
in
British Liver Trust
6 years ago
I miss my old life
I know I should be grateful that I got a liver transplant. Was born with a liver disease so it was a definite that I had to have a transplant someday. I had it 3 years ago, before I turned 18. My mom donated her liver. However I always had a complication with my bile duct. It doesn’t work properly and
I know I should be grateful that I got a liver transplant. Was born with a liver disease so it was a definite that I had to have a transplant someday. I had it 3 years ago, before I turned 18. My mom donated her liver. However I always had a complication with my bile duct. It doesn’t work properly and
Susanlim
in
British Liver Trust
6 years ago
Stories From SickleCellNews Online
My life as a hooligan with sickle cell anaemia http://bit.ly/2BEPwCv I live with sickle cell anaemia – I have no wish to pass on this disease to the next generation (Lakeia Baily PHD, Director, Sickle Cell Consortium) http://bit.ly/2N2CRdP Red Alert: 60 million Nigerians have sickle cell trait http
My life as a hooligan with sickle cell anaemia http://bit.ly/2BEPwCv I live with sickle cell anaemia – I have no wish to pass on this disease to the next generation (Lakeia Baily PHD, Director, Sickle Cell Consortium) http://bit.ly/2N2CRdP Red Alert: 60 million Nigerians have sickle cell trait http
sicklecellnews
in
Sickle Cell Society
6 years ago
Any Advice would be grateful
My mom has had two liver transplants since Aug last year , first one failed due to bile ducts dying, she was re transplanted in MAR this year, she then had a bile duct leak which led to a collapsed lung and pheumonia and spent nine weeks in ICU, she then started vomiting end of April which is still happenening
My mom has had two liver transplants since Aug last year , first one failed due to bile ducts dying, she was re transplanted in MAR this year, she then had a bile duct leak which led to a collapsed lung and pheumonia and spent nine weeks in ICU, she then started vomiting end of April which is still happenening
Tracey2973
in
British Liver Trust
6 years ago
DEATH BY REJECTION
I had a kidney transplant in 2014. I'm suffering with anxiety, depression, and reclusiveness. My life is a mess, and I'm unable to hold down either a job or a relationship. It's pointless being here, and I've had enough. If I was to stop taking my anti rejection medication, how long would it take to
I had a kidney transplant in 2014. I'm suffering with anxiety, depression, and reclusiveness. My life is a mess, and I'm unable to hold down either a job or a relationship. It's pointless being here, and I've had enough. If I was to stop taking my anti rejection medication, how long would it take to
Tony50
in
Kidney Transplant Patient Support
6 years ago
Has anyone actually tried this?
As, some of you, may well know, I am a Middle-aged Fat man who has 'Non-specific ANCA Vasculitis'. Actually about five different, not specifically named, Overlapping 'strains'. I had a Kidney transplant, in July 2013, and now live in Supported Living. My question is this- Does anyone have any experience
As, some of you, may well know, I am a Middle-aged Fat man who has 'Non-specific ANCA Vasculitis'. Actually about five different, not specifically named, Overlapping 'strains'. I had a Kidney transplant, in July 2013, and now live in Supported Living. My question is this- Does anyone have any experience
AndrewT
in
Vasculitis UK
6 years ago
Advice on Diet and supplements to keep in remission
Hello, peace and health to all. This is my first day on this wonderful site. I was diagnosed with Mantle Cell Lymphoma in July 2015 and underwent RCOP and stem cell transplant with my own cells in Dec 2015. I am currently 63 and in remission and feeling pretty well. My doctor says the odds are the
Hello, peace and health to all. This is my first day on this wonderful site. I was diagnosed with Mantle Cell Lymphoma in July 2015 and underwent RCOP and stem cell transplant with my own cells in Dec 2015. I am currently 63 and in remission and feeling pretty well. My doctor says the odds are the
Maltipoo
in
Non Hodgkin's Lymphoma Friends
6 years ago
My mom has had two Liver transplants
My mom has had two liver transplants since Aug last year , first one failed due to bile ducts dying, she was re transplanted in MAR this year, she then had a bile duct leak which led to a collapsed lung and pheumonia and spent nine weeks in ICU, she then started vomiting end of April which is still happenening
My mom has had two liver transplants since Aug last year , first one failed due to bile ducts dying, she was re transplanted in MAR this year, she then had a bile duct leak which led to a collapsed lung and pheumonia and spent nine weeks in ICU, she then started vomiting end of April which is still happenening
Tracey2973
in
British Liver Trust
6 years ago
Partial liver transplant
Has anyone had a discussion with their consultant about partial liver transplant from a living donor? My husband has end stage liver disease and although we have read lots of information on liver transplants I can't see anything specifically about living donors. Any advice would be appreciated.
Has anyone had a discussion with their consultant about partial liver transplant from a living donor? My husband has end stage liver disease and although we have read lots of information on liver transplants I can't see anything specifically about living donors. Any advice would be appreciated.
JDA69
in
British Liver Trust
6 years ago
Facing Dialysis and/or Kidney Transplant
I have a GFR between 28 to 34. My nephrologist advised I should meet with the transplant team at my hospital to be evaluated. Up until now, I haven’t seriously thought I would need a kidney transplant. Now, I am feeling very anxious about the road ahead of me. I am possibly facing dialysis and/or a transplant
I have a GFR between 28 to 34. My nephrologist advised I should meet with the transplant team at my hospital to be evaluated. Up until now, I haven’t seriously thought I would need a kidney transplant. Now, I am feeling very anxious about the road ahead of me. I am possibly facing dialysis and/or a transplant
jesselizzard
in
Kidney Transplant
6 years ago
Advice if possible please
Hi all Sorry for the long post! I’ve posted a couple of times in the PA forum as have been having blood tests relating to low B12 as had a borderline serum result 192 (181-800) and range of symptoms pointing towards this - tingling and numbness in hands and feet, occasional tingling in head and back
Hi all Sorry for the long post! I’ve posted a couple of times in the PA forum as have been having blood tests relating to low B12 as had a borderline serum result 192 (181-800) and range of symptoms pointing towards this - tingling and numbness in hands and feet, occasional tingling in head and back
Scully12
in
Thyroid UK
6 years ago
New Research
This was sent to me by a friend may be of some interest. I saw this on the BBC and thought you should see it: Liver transplants 'may be unnecessary thanks to new drug treatment' - http://www.bbc.co.uk/news/health-45188056
This was sent to me by a friend may be of some interest. I saw this on the BBC and thought you should see it: Liver transplants 'may be unnecessary thanks to new drug treatment' - http://www.bbc.co.uk/news/health-45188056
Barnetaccounts
in
British Liver Trust
6 years ago
Molecular Improvement – Exercise, & Dietary Regime or Medication(?)
Morning/Gooday/Good Evening (?)... :-) To all my MPN cousins, wherever you might be located… Recently, I underwent my second BMB, in preparation for the consideration of undergoing an Allogenic Stem Cell Transplant (ASCT), as in February 2018 I learned that I also have the ASXL1 mutation as well as
Morning/Gooday/Good Evening (?)... :-) To all my MPN cousins, wherever you might be located… Recently, I underwent my second BMB, in preparation for the consideration of undergoing an Allogenic Stem Cell Transplant (ASCT), as in February 2018 I learned that I also have the ASXL1 mutation as well as
socrates_8
in
MPN Voice
6 years ago
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