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Advice from family members of dialysis He
Hello, I have a question for anyone with a family or is a family member of a dialysis patient. My girlfriend and I are thinking about getting married, and she is a kidney transplant recipient. At the moment, there is good functionality and our lives are fantastic. Before we tie the knot she has advised
Hello, I have a question for anyone with a family or is a family member of a dialysis patient. My girlfriend and I are thinking about getting married, and she is a kidney transplant recipient. At the moment, there is good functionality and our lives are fantastic. Before we tie the knot she has advised
Husbandtobe
in
Dialysis Support
3 years ago
Abdominal rls after a kidney transplant
Has anyone had what feels like abdominal rls and major stress then given yourself a major enema and the rls in the abdomin seems to ease. I am also months from receiving a kidney transplant and take major meds to keep my kidney functioning.
Has anyone had what feels like abdominal rls and major stress then given yourself a major enema and the rls in the abdomin seems to ease. I am also months from receiving a kidney transplant and take major meds to keep my kidney functioning.
ESRDRLS
in
Restless Legs Syndrome
3 years ago
Heart Transplant
Has anyone else with Cardiomyopathy been told that their only option left is a Heart Transplant? Just received this info from Hospital 4 days ago and it's left me feeling so numb. Is anyone else going through this.
Has anyone else with Cardiomyopathy been told that their only option left is a Heart Transplant? Just received this info from Hospital 4 days ago and it's left me feeling so numb. Is anyone else going through this.
2beats-or-not-2beats
in
British Heart Foundation
3 years ago
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Effectiveness of two jabs for immune suppressed patients
From information I have about kidney transplant patients in France, and from the USA, it looks like there is evidence that the suppressed immune systems of organ transplants, IBD conditions, some cancer treatments, and any other conditions that require immune suppressants, might not responding to the
From information I have about kidney transplant patients in France, and from the USA, it looks like there is evidence that the suppressed immune systems of organ transplants, IBD conditions, some cancer treatments, and any other conditions that require immune suppressants, might not responding to the
Westbourne
in
Kidney Transplant
3 years ago
A fascinating podcast on the history and current state of stem cell regeneration.
Did you know humans make around 2 1/2 million red blood cells a second? Did you know the only the stem cell transplant that can currently be done is a bone marrow one? Did you know, at a guess, there have been something like 2 million bone marrow transplants to date. I came across this episode in the
Did you know humans make around 2 1/2 million red blood cells a second? Did you know the only the stem cell transplant that can currently be done is a bone marrow one? Did you know, at a guess, there have been something like 2 million bone marrow transplants to date. I came across this episode in the
Magentas
in
MPN Voice
3 years ago
First Post about AIHA
Hi, Introducing myself, ( Charlie, 58 years young Male) I had an autoimmune disease ( PBC) hitch caused me to have a liver transplant in Nov 2014 .... a few bumps in that road, but apart from fatigue and cognition issues, I am very happy and well..... well until 01 July 2020 ... I woke up Bright Yellow
Hi, Introducing myself, ( Charlie, 58 years young Male) I had an autoimmune disease ( PBC) hitch caused me to have a liver transplant in Nov 2014 .... a few bumps in that road, but apart from fatigue and cognition issues, I am very happy and well..... well until 01 July 2020 ... I woke up Bright Yellow
PCBnPBC
in
CLL Support
3 years ago
Tocilizumab
If, as I understand it, NHS England only funds this drug for one year per individual then I will reach the end of my allocation in late July. It has taken months on this drug to cover the reduction in Prednisolone and I am now down to my lowest level ever. My Ophthalmologist is also discussing reducing
If, as I understand it, NHS England only funds this drug for one year per individual then I will reach the end of my allocation in late July. It has taken months on this drug to cover the reduction in Prednisolone and I am now down to my lowest level ever. My Ophthalmologist is also discussing reducing
AncientMariner
in
PMRGCAuk
3 years ago
Exercise post lung transplant
Hi all ! I'm 5 years post single lung transplant. I only have one lung as other was completely removed. My question is how I exercise without getting extremely breathless. Over the past 2 years I have gained 3 stone in weight and with me being on steroids and handfuls of other medication I'm finding
Hi all ! I'm 5 years post single lung transplant. I only have one lung as other was completely removed. My question is how I exercise without getting extremely breathless. Over the past 2 years I have gained 3 stone in weight and with me being on steroids and handfuls of other medication I'm finding
Hidden
in
Lung Conditions Community Forum
3 years ago
Liver transplant assessment query.
Hi, I'm new here and looking to tap into others experience/ knowledge... My partner has portal hypertension and decompensated cirrhosis and has scored Childs C. Our consultant has requested he be considered for transplant at Kings. Does anyone know/ have experience of what kind of waiting time frame
Hi, I'm new here and looking to tap into others experience/ knowledge... My partner has portal hypertension and decompensated cirrhosis and has scored Childs C. Our consultant has requested he be considered for transplant at Kings. Does anyone know/ have experience of what kind of waiting time frame
Luna84
in
British Liver Trust
3 years ago
Liver transplant assessment query
Hi, I'm new here and looking to tap into others experience/ knowledge... My partner has portal hypertension and decompensated cirrhosis and has scored Childs C. Our consultant has requested he be considered for transplant at Kings. Does anyone know/ have experience of what kind of waiting time frame
Hi, I'm new here and looking to tap into others experience/ knowledge... My partner has portal hypertension and decompensated cirrhosis and has scored Childs C. Our consultant has requested he be considered for transplant at Kings. Does anyone know/ have experience of what kind of waiting time frame
Luna84
in
Power2Save Transplant Community
3 years ago
A further update on the old taper journey ...
Hello again friends on this long and treacherous journey, I am reporting back with some good news, yay! While I have remained on the three weekly (rather than weekly or fortnightly) tocilizumab routine, my inflammation has remained under control, so far. I have just moved to 1.75mgs pred on my cautious
Hello again friends on this long and treacherous journey, I am reporting back with some good news, yay! While I have remained on the three weekly (rather than weekly or fortnightly) tocilizumab routine, my inflammation has remained under control, so far. I have just moved to 1.75mgs pred on my cautious
LemonZest11
in
PMRGCAuk
3 years ago
Stem cell transplant saved me
I had stage 4 started with rituxin and bendamustine chemo relapsed had RChop it didn’t work had stem cell transplant have been in remission for 7 years do it!
I had stage 4 started with rituxin and bendamustine chemo relapsed had RChop it didn’t work had stem cell transplant have been in remission for 7 years do it!
patricih
in
Non Hodgkin's Lymphoma Friends
3 years ago
Can we regenerate damaged organs in the lab?
I responded to someone’s question earlier about the need for liver transplants in the future. While looking at some videos online, I came across this one entitled “Can we regenerate damaged organs in the lab?”. I felt this video story which was put up recently (Feb 21) was just too good a story to warrant
I responded to someone’s question earlier about the need for liver transplants in the future. While looking at some videos online, I came across this one entitled “Can we regenerate damaged organs in the lab?”. I felt this video story which was put up recently (Feb 21) was just too good a story to warrant
Richard-Allen
in
British Liver Trust
3 years ago
liver transplant
Hello, I am new here. I'm wondering at what point do the specialist decide to put you forward for a liver transplant? I am now in a position where we are being told it is too late as my mum would not survive the surgery and she is too weak. she went in for a regular drain of the ascites fluid and
Hello, I am new here. I'm wondering at what point do the specialist decide to put you forward for a liver transplant? I am now in a position where we are being told it is too late as my mum would not survive the surgery and she is too weak. she went in for a regular drain of the ascites fluid and
tink01
in
British Liver Trust
3 years ago
Abnormal CBC reports after 1st dose of covid vaccine. Immature Granulocytes is 0.40bil/L and 7.1%.
It’s been 14 months I had my kidney transplant surgery. I took my 1st dose of Pfizer 19 days back. Today got my blood work done and the results are abnormal. Doctor said it might be due to reaction with steroids. Please let me know if anyone else experienced similarly. Also now I am scared to take the
It’s been 14 months I had my kidney transplant surgery. I took my 1st dose of Pfizer 19 days back. Today got my blood work done and the results are abnormal. Doctor said it might be due to reaction with steroids. Please let me know if anyone else experienced similarly. Also now I am scared to take the
Vk12
in
Kidney Transplant
3 years ago
Hair Loss & Anniversary.
I was taken off Calcitriol months ago and found the old meds when I was cleaning out my trial and error meds box. I started squeezing a capsule in with my regular generic shampoo. I noticed my hair started growing faster and little sprouts where new hair is growing in. It took about a month. I am very
I was taken off Calcitriol months ago and found the old meds when I was cleaning out my trial and error meds box. I started squeezing a capsule in with my regular generic shampoo. I noticed my hair started growing faster and little sprouts where new hair is growing in. It took about a month. I am very
Hidden
in
Kidney Transplant
3 years ago
Help make a drug to treat GvHD available to patients
You can help make a drug to treat GvHD available to patients in Canada, regardless of where you live. CLL Canada, along with an alliance of 8 other blood cancer organizations, is preparing patient input submissions for the Canadian Agency for Drugs and Technologies (CADTH) and Institut national d'excellence
You can help make a drug to treat GvHD available to patients in Canada, regardless of where you live. CLL Canada, along with an alliance of 8 other blood cancer organizations, is preparing patient input submissions for the Canadian Agency for Drugs and Technologies (CADTH) and Institut national d'excellence
CLL_Canada_Group
in
CLL Support
3 years ago
Auto Stem Cell transplant?
Hi, Curious to know if anyone out there has had R-chop, then relapsed and the next line of treatment recommended was SCT? I've been battling Marginal Zone lymphoma (2016), transformed to DLBCL (2018) and now it's back again. The auto process sounds very scary (dangerous), and with a 30-50% success rate
Hi, Curious to know if anyone out there has had R-chop, then relapsed and the next line of treatment recommended was SCT? I've been battling Marginal Zone lymphoma (2016), transformed to DLBCL (2018) and now it's back again. The auto process sounds very scary (dangerous), and with a 30-50% success rate
skinkade
in
Non Hodgkin's Lymphoma Friends
3 years ago
Renal Osteodystrophy and weight loss with loss of muscle mass
Please, is there anyone who have had a kidney transplant but after a long time on dialysis been diagnosed with Osteodystrophy (rugger jersey spine) and now having issues with loosing weight and muscle mass? Only this is happening to me and would like to know what would possibly cause this? I.e the medication
Please, is there anyone who have had a kidney transplant but after a long time on dialysis been diagnosed with Osteodystrophy (rugger jersey spine) and now having issues with loosing weight and muscle mass? Only this is happening to me and would like to know what would possibly cause this? I.e the medication
PcTrucker
in
Kidney Transplant
3 years ago
Multi-drug resistant infection spreading globally among cystic fibrosis patients.
A multi-drug resistant infection that can cause life-threatening illness in people with cystic fibrosis (CF) and can spread from patient to patient has spread globally and is becoming increasingly virulent, according to new research published today in the journal Science. The study, led by the University
A multi-drug resistant infection that can cause life-threatening illness in people with cystic fibrosis (CF) and can spread from patient to patient has spread globally and is becoming increasingly virulent, according to new research published today in the journal Science. The study, led by the University
2greys
in
Lung Conditions Community Forum
3 years ago
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