Hi, I'm new here and looking to tap into others experience/ knowledge...
My partner has portal hypertension and decompensated cirrhosis and has scored Childs C. Our consultant has requested he be considered for transplant at Kings. Does anyone know/ have experience of what kind of waiting time frame we are looking at for a transplant assessment? Every day feels like a year right now, so we are just wondering if its likely to be a long wait so we can manage our expectations a little? Any help much appreciated.
Written by
Luna84
To view profiles and participate in discussions please or .
So sorry to hear your partner's liver status has decompensated. There are so many variables to wait time. Firstly, the higher the meld score the higher the priority gets. It also depends on how populated the area you live is..even blood type. My wait was about 3 months, Thanksgiving day 2016. And yes every day waiting seems like forever. Also want you to be prepared for false alarms. They let you know of a possible donor as early as possible so you can stop eating, but sometimes it turns out the liver isn't healthy. I had 2 false alarms but the 3rd time was a success. Hang in there❤
I think I pretty much concur with Alison. I had PSC and went on the list in the February and had my transplant in April. This was back in 2006 and I don't recall any talk of "scores" just information that relative priority would be discussed by consultants and to wait by the phone. I was very fortunate, that at the time I didn't feel particularly ill, but certainly noticed a difference after the TX. I had a few hiccups immediately post TX that delayed my discharge and I've had one since but I have to say that my TX has been a fantastic success - essentially, I can do whatever I want (except get drunk). Good luck to you and your partner, just follow the advice from the doctors and I'm sure everything will be just fine.
Peter, different transplant centers have different criteria for meld scores (model for end stage based on specific labs) some centers do transplants with lower scores some higher. People sometimes chose their center based on that fact alone. I also had post transplant complications, but life post transplant is wonderful now. Luna, you can calculate your score by inputting your lab numbers on the unos site, they calculate. Then you can ask your center's baseline criteria. But they can add extra points for encephalopathy or cancer, so there are variables. Once you qualify for your transplant you will have a coordinator assigned who will be able to better guide you through your specifics. Best wishes!
The ability to reply to this post has been turned off.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
In your perfect world, where would you like to see the advancement of transplant go?