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WARWICK'S ASCT ~ LATEST UPDATE...
Evening all... :-) Below I have Posted Warwick's latest Update on his Stem Cell Transplant journey... Best wishes all, stay safe & well... Steve
[i]Re: WARWICK's ASCT Journey Begins Today...[/i]
Post by Warwick » Fri May 21, 2021 10:09 am Hello everybody I am now at day 86 post transplant
Evening all... :-) Below I have Posted Warwick's latest Update on his Stem Cell Transplant journey... Best wishes all, stay safe & well... Steve
[i]Re: WARWICK's ASCT Journey Begins Today...[/i]
Post by Warwick » Fri May 21, 2021 10:09 am Hello everybody I am now at day 86 post transplant
socrates_8
in
MPN Voice
3 years ago
Fatigue and very hot flushes
On 5th June I reduced to 7mg but since then I have found the basics of life a massive struggle and I’m normally a few miles a day person. Various limbs have become painful even an old break in my wrist is giving me jip. When these hot flushes come on I feel absolutely drained so I’m going to add an
On 5th June I reduced to 7mg but since then I have found the basics of life a massive struggle and I’m normally a few miles a day person. Various limbs have become painful even an old break in my wrist is giving me jip. When these hot flushes come on I feel absolutely drained so I’m going to add an
AnniesRyder5
in
PMRGCAuk
3 years ago
NHS Organ Donation - Erin’s story
I saw this story over on the “Children’s Liver Disease Foundation” site this morning and thought it might be nice to share. If anything this should be a message of hope for all those suffering from anxiety and worrying about their liver condition. Ten-year-old Erin has just celebrated her tenth transplant
I saw this story over on the “Children’s Liver Disease Foundation” site this morning and thought it might be nice to share. If anything this should be a message of hope for all those suffering from anxiety and worrying about their liver condition. Ten-year-old Erin has just celebrated her tenth transplant
Richard-Allen
in
British Liver Trust
3 years ago
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Let’s compare notes re: Covid vaccine
Hi all, just wanted to compare notes regarding the Covid vaccine. I’ve seen a lot of discussions but in addition to the need for advocating, I’m curious what you are being told from your transplant teams. I asked a million questions in my appointment today and feel hopeless leaving with no answers.
Hi all, just wanted to compare notes regarding the Covid vaccine. I’ve seen a lot of discussions but in addition to the need for advocating, I’m curious what you are being told from your transplant teams. I asked a million questions in my appointment today and feel hopeless leaving with no answers.
SOct91
in
Kidney Transplant
3 years ago
waiting list for Liver Transplant
Hello I am in waiting list for Liver Transplant anyone have idea how long take my turn for transplant. Thanks any please pray for my health.
Hello I am in waiting list for Liver Transplant anyone have idea how long take my turn for transplant. Thanks any please pray for my health.
Muz-ahmed
in
British Liver Trust
3 years ago
Medicare is being terminated after having kidney transplant 3 years ago
I received a letter from SSA terminating my Medicare benefits. I am not able to work. What do I need to do to get help to pay for my medications?
I received a letter from SSA terminating my Medicare benefits. I am not able to work. What do I need to do to get help to pay for my medications?
Deneace68
in
Kidney Transplant
3 years ago
A day of surprises
Hi all Yesterday I had the first face to face consultation since the pandemic. I must say I was wary of the reasons for this but went along anyway. The consultant reported that my blood tests results were unchanged and stable and the pegasys had reduced my spleen size by 0.7cm. He said that I am quite
Hi all Yesterday I had the first face to face consultation since the pandemic. I must say I was wary of the reasons for this but went along anyway. The consultant reported that my blood tests results were unchanged and stable and the pegasys had reduced my spleen size by 0.7cm. He said that I am quite
ConniesDad
in
MPN Voice
3 years ago
Altruistic donor starting my journey
I’m a 58 year old man. I’ve worked as a surgeon most of my adult life. I’m interested in donating one of my kidneys and the small lobe of my liver. I’d like to find someone deserving (any child) who may benefit from this. I’m not a transplant surgeon so I’m a bit new to this. My understanding is
I’m a 58 year old man. I’ve worked as a surgeon most of my adult life. I’m interested in donating one of my kidneys and the small lobe of my liver. I’d like to find someone deserving (any child) who may benefit from this. I’m not a transplant surgeon so I’m a bit new to this. My understanding is
drcuisine
in
Parents of Children with Kidney Disease
3 years ago
Calling all liver transplant recipients
Hello Liver People, I’m new here. Can you help me? I am looking for a supportive liver transplant community, as I approach another life giving anniversary. Giving thanks to my donor daily and all who contributed to saving my life, I am hugely grateful. As my anniversary (liversary) approaches, I yet
Hello Liver People, I’m new here. Can you help me? I am looking for a supportive liver transplant community, as I approach another life giving anniversary. Giving thanks to my donor daily and all who contributed to saving my life, I am hugely grateful. As my anniversary (liversary) approaches, I yet
MayMaj
in
British Liver Trust
3 years ago
Liver transplant anniversary
Hello Liver People, I’m new here. Can you help me? I am looking for a supportive liver transplant community, as I approach another life giving anniversary. Giving thanks to my donor daily and all who contributed to saving my life, I am hugely grateful. As my anniversary (liversary) approaches, I yet
Hello Liver People, I’m new here. Can you help me? I am looking for a supportive liver transplant community, as I approach another life giving anniversary. Giving thanks to my donor daily and all who contributed to saving my life, I am hugely grateful. As my anniversary (liversary) approaches, I yet
MayMaj
in
British Liver Trust
3 years ago
Hbi1c
Hello I've never posted on here before I wonder ifor anyone can give me advice just had hbi1c test it was 5.1 am told ito too high I'm 5 foot eleven and 13 stone 6lbs 67 years old in reasonable health still working in manual job tree surgeon I should add I had a liver transplant 4 years ago and had diabetes
Hello I've never posted on here before I wonder ifor anyone can give me advice just had hbi1c test it was 5.1 am told ito too high I'm 5 foot eleven and 13 stone 6lbs 67 years old in reasonable health still working in manual job tree surgeon I should add I had a liver transplant 4 years ago and had diabetes
Treeclimber62
in
Diabetes & Hypertension Help Society
3 years ago
Hi, is it possible to still have PA even though my parietal cell and intrinsic factor antibody are negative and my b12 is low?
Low b12 and negative parietal cell antibody and intrinsic factor. Can it still be pernicious anaemia
Low b12 and negative parietal cell antibody and intrinsic factor. Can it still be pernicious anaemia
Rocky213
in
Pernicious Anaemia Society
3 years ago
Liver Transplant Support and Representation in day to day life. Can you help?
Hello Liver People, I’m new here. Can you help me? I am looking for a supportive liver transplant community, as I approach another life giving anniversary. Giving thanks to my donor daily and all who contributed to saving my life, I am hugely grateful. As my anniversary (liversary) approaches, I yet
Hello Liver People, I’m new here. Can you help me? I am looking for a supportive liver transplant community, as I approach another life giving anniversary. Giving thanks to my donor daily and all who contributed to saving my life, I am hugely grateful. As my anniversary (liversary) approaches, I yet
MayMaj
in
British Liver Trust
3 years ago
What a. To. Do. The past. Year. I. Not a clue.
Hi. Not been on here for a good while. I now. 21 months. Post double lung. Transplant. Things have gone very well. Physically. Mentally. Been tough. But I not go into that. I was on herion for. 33 yrs. I. Had to stop to get on. TX list. It nearly killed me. But it had to be done. And that's.
Hi. Not been on here for a good while. I now. 21 months. Post double lung. Transplant. Things have gone very well. Physically. Mentally. Been tough. But I not go into that. I was on herion for. 33 yrs. I. Had to stop to get on. TX list. It nearly killed me. But it had to be done. And that's.
Tricity125
in
Lung Conditions Community Forum
3 years ago
Reflux cholangitis
My daughter was diagnosed with Biliary atresia and had the Kasai producer. At the age 2 she had a liver transplant at Birmingham Children’s hospital. She is now 19 years old and My daughter was well however, the last few years her health has slowly started to deteriorate and she has had abnormal blood
My daughter was diagnosed with Biliary atresia and had the Kasai producer. At the age 2 she had a liver transplant at Birmingham Children’s hospital. She is now 19 years old and My daughter was well however, the last few years her health has slowly started to deteriorate and she has had abnormal blood
Passion123456
in
Children's Liver Disease Foundation
3 years ago
Continuation of Tocilizumab treatment in UK needed- Help or advice needed please.
I know not many people with LVV/ GCA in the UK are being treated with Tocilizumab ( only 250 according to NICE literature) but in the absence of any advice or help from my Rheumatology consultant, I am hoping someone on this forum could advise me. NICE still hasn’t rethought it’s advice
I know not many people with LVV/ GCA in the UK are being treated with Tocilizumab ( only 250 according to NICE literature) but in the absence of any advice or help from my Rheumatology consultant, I am hoping someone on this forum could advise me. NICE still hasn’t rethought it’s advice
Suzita76
in
PMRGCAuk
3 years ago
PRE-Habilitation Questions for Transplanted and Transplant Listed People
Hello! Just had a second liver biopsy last week and pathology staged it as F3 PBC/AIH while the liver transplant committee reviewed and agreed I am Stage 4 with cirrhosis. (I've already developed stomach bleeds, AVMs, GR1 Varices and have a portal hypertension measurement of 11. I am starting treatment
Hello! Just had a second liver biopsy last week and pathology staged it as F3 PBC/AIH while the liver transplant committee reviewed and agreed I am Stage 4 with cirrhosis. (I've already developed stomach bleeds, AVMs, GR1 Varices and have a portal hypertension measurement of 11. I am starting treatment
JennerLayne
in
British Liver Trust
3 years ago
Prednisone dosage
Hi everyone! Can anyone tell me the lowest dose of prednisone that they are on? My doctor said we could reduce it but she left to run a major kidney transplant program. My new nephrologist said nope without hearing me out or giving any info. (he is not an experienced nephrologist imo). Just curious
Hi everyone! Can anyone tell me the lowest dose of prednisone that they are on? My doctor said we could reduce it but she left to run a major kidney transplant program. My new nephrologist said nope without hearing me out or giving any info. (he is not an experienced nephrologist imo). Just curious
Damigi28
in
Kidney Transplant Patient Support
3 years ago
Long time no post lol
Hiya all who remember moi 😊 hope your all well as can be Just an update for myself as well as I forget dates but hopefully helpful 🙂 Have had major problems with platelets dropped down to 20 about a year ago so was bruising like a pear and I don't think i had so many phone calls from hematology they
Hiya all who remember moi 😊 hope your all well as can be Just an update for myself as well as I forget dates but hopefully helpful 🙂 Have had major problems with platelets dropped down to 20 about a year ago so was bruising like a pear and I don't think i had so many phone calls from hematology they
jojokarak
in
British Liver Trust
3 years ago
Transforming Lung Cells Critical for Pulmonary Fibrosis.
The failure of lung epithelial cells to complete transition from a stem cell-like state into a fully differentiated state causes lung fibrosis, according to a Northwestern Medicine study published in Proceedings of the National Academy of the Sciences (PNAS). Administering a small molecule to mice with
The failure of lung epithelial cells to complete transition from a stem cell-like state into a fully differentiated state causes lung fibrosis, according to a Northwestern Medicine study published in Proceedings of the National Academy of the Sciences (PNAS). Administering a small molecule to mice with
2greys
in
Lung Conditions Community Forum
3 years ago
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