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Hemochromatosis?
I haven’t yet been diagnosed but these are my latest labs Iron: 129 Ferritin 117 Uibc 106 Tibc 255 Iron saturation 58% thoughts?
I haven’t yet been diagnosed but these are my latest labs Iron: 129 Ferritin 117 Uibc 106 Tibc 255 Iron saturation 58% thoughts?
rupertj
in
Haemochromatosis Society UK
8 months ago
Regenerus cortisol has flatlined, low ferritin but other results seem normal.Gastritis, ‘fizzing’ legs
I will post now and try again later to attach the results PDFs, as it won’t let me at the mo. [u]GP Tests :[/u] Ferritin 21 ( 13 - 150 ) Folate 4 ( 3.8 - 26 ) B12 514. ( 180 - 999 ) GP told me to improve ferritin with diet. I then had acute [u]gastritis[/u]. I’ve stopped omeprazole and will do
I will post now and try again later to attach the results PDFs, as it won’t let me at the mo. [u]GP Tests :[/u] Ferritin 21 ( 13 - 150 ) Folate 4 ( 3.8 - 26 ) B12 514. ( 180 - 999 ) GP told me to improve ferritin with diet. I then had acute [u]gastritis[/u]. I’ve stopped omeprazole and will do
Applethorpe
in
Thyroid UK
8 months ago
Infusion at Sheffield
Hi all, I seem to recall someone here saying they managed to get an iron infusion at Sheffield and if that's you I'd really appreciate it if you could clarify which Hospital and department. My GP is trying to arrange an infusion and as Sheffield isn't too far for me to travel it might help him if there
Hi all, I seem to recall someone here saying they managed to get an iron infusion at Sheffield and if that's you I'd really appreciate it if you could clarify which Hospital and department. My GP is trying to arrange an infusion and as Sheffield isn't too far for me to travel it might help him if there
Munroist
in
Restless Legs Syndrome
1 year ago
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having massive panic attack after iron infusion
Is it normal to have increased anxiety after infusion? I am freaking out, I haven't had this amount of anxiety in a long time.
Is it normal to have increased anxiety after infusion? I am freaking out, I haven't had this amount of anxiety in a long time.
Hidden
in
Restless Legs Syndrome
1 year ago
B12 loading doses and stomach pain; also 10mg melatonin OK to take on loading doses?
Hello, My daughter's had her first of 6 EOD loading doses, next one tomorrow. First was last Friday. My current line of thinking is that she has inherited a degree of autism from her dad, but also has b12 d, possibly PA (neg IFAB). She's complained since the first dose of stomach pain (gluten free
Hello, My daughter's had her first of 6 EOD loading doses, next one tomorrow. First was last Friday. My current line of thinking is that she has inherited a degree of autism from her dad, but also has b12 d, possibly PA (neg IFAB). She's complained since the first dose of stomach pain (gluten free
Sneedle
in
Pernicious Anaemia Society
1 year ago
iron results
I’d appreciate some feedback on my iron panel results please? I know my ferritin is too low, even if it’s above the bottom of the range. I upped how much black pudding, pate, or liver I’m eating at 5 out of 7 days a week for over a couple of months. Is my iron too decent enough to be able to take
I’d appreciate some feedback on my iron panel results please? I know my ferritin is too low, even if it’s above the bottom of the range. I upped how much black pudding, pate, or liver I’m eating at 5 out of 7 days a week for over a couple of months. Is my iron too decent enough to be able to take
Dandelade
in
Thyroid UK
8 months ago
End of my patience really unsure what to do feel completely alone and like nobody is listening Consultant confusing me what is wrong with me
I posted once before about starting injections whilst I wait for my hysterectomy I am 42 and my periods have been an issue my whole life heavy/painful etc except for when I was pg/breastfeeding my 3 kids it was the best period free time of my life. Things got very bad after I did not go back on the pill
I posted once before about starting injections whilst I wait for my hysterectomy I am 42 and my periods have been an issue my whole life heavy/painful etc except for when I was pg/breastfeeding my 3 kids it was the best period free time of my life. Things got very bad after I did not go back on the pill
LovelyLou81
in
Endometriosis UK
1 year ago
Bit sick from iron infusion
Nausea and vomiting after iron infusion...had it on Friday...been sick all day, hope it stops soon .
Nausea and vomiting after iron infusion...had it on Friday...been sick all day, hope it stops soon .
Hidden
in
Restless Legs Syndrome
1 year ago
iron infusions - how often and how many?
Hello dear fellow RLS sufferers, would like to find out about your experience with iron infusions. My mom just had one couple days ago. Her ferritin is 96, and saturation is 19.6. Today she was able to nap during the day, and she wasn't able to do that for a while because of RLS. She is also on Pramipexole
Hello dear fellow RLS sufferers, would like to find out about your experience with iron infusions. My mom just had one couple days ago. Her ferritin is 96, and saturation is 19.6. Today she was able to nap during the day, and she wasn't able to do that for a while because of RLS. She is also on Pramipexole
daisydaisy26
in
Restless Legs Syndrome
1 year ago
Is this a "normal" reaction to NDT?
Hi All, I'm trying to take NDT instead of levo, on which I was for around 20 years before, mostly on 75 mcg. My TSH went out of balance back in October 2022 and between then and now it's been a massive struggle. I increase my T4 slightly (even by 12,5 mcg) and get heart palpitations (heart was checked
Hi All, I'm trying to take NDT instead of levo, on which I was for around 20 years before, mostly on 75 mcg. My TSH went out of balance back in October 2022 and between then and now it's been a massive struggle. I increase my T4 slightly (even by 12,5 mcg) and get heart palpitations (heart was checked
Juliet_22
in
Thyroid UK
1 year ago
Breathlessness and Hypothyroidism?
I’m hoping someone might be able to shine a light on my health situation. I am a 74 yr old female and have been ill for years. I have been following posts on this site with great interest and amazement at the knowledge shown here and the suggested guidance offered. I’m not even sure whether mine is a
I’m hoping someone might be able to shine a light on my health situation. I am a 74 yr old female and have been ill for years. I have been following posts on this site with great interest and amazement at the knowledge shown here and the suggested guidance offered. I’m not even sure whether mine is a
Jax49
in
Thyroid UK
1 year ago
Flare up for weeks
was given iron tablets 6 weeks ago for anaemia, dose was 1, 3 times a day. For 2 weeks managed 1 twice a day, then ibs flare up started. Lots of bloating, wind and pain. Dropped down to 1 a day. Then had a week of antibiotics for toothache. Since then everyday is awful. Barely been out the house. Watching
was given iron tablets 6 weeks ago for anaemia, dose was 1, 3 times a day. For 2 weeks managed 1 twice a day, then ibs flare up started. Lots of bloating, wind and pain. Dropped down to 1 a day. Then had a week of antibiotics for toothache. Since then everyday is awful. Barely been out the house. Watching
Booth29
in
IBS Network
1 year ago
Almost There, Pramipexole to Pregabalin
Hello Everyone, I would like to share with you the journey I have been on for the past two months. First, my condition is augmentation from years of taking a DA to treat RLS. I posted here back in early May when I was transitioning from Pramipexole to Pregabalin With the advice that I received here
Hello Everyone, I would like to share with you the journey I have been on for the past two months. First, my condition is augmentation from years of taking a DA to treat RLS. I posted here back in early May when I was transitioning from Pramipexole to Pregabalin With the advice that I received here
sidepocket
in
Restless Legs Syndrome
1 year ago
Iron Infusion
I have my first iron infusion next week and wondered what to expect in terms of time and after effects ? Do you feel full of life ?
I have my first iron infusion next week and wondered what to expect in terms of time and after effects ? Do you feel full of life ?
Ced60
in
Restless Legs Syndrome
1 year ago
Blood Test Results
Would someone please be able to tell me what these blood test results mean please? I did add them on to a previous thread but I don't think they were showing up. I was told by my GP back in July that my TSH levels were low . I admitted that I did sometimes forget to take Levo so she wanted me to go
Would someone please be able to tell me what these blood test results mean please? I did add them on to a previous thread but I don't think they were showing up. I was told by my GP back in July that my TSH levels were low . I admitted that I did sometimes forget to take Levo so she wanted me to go
Crazy_Diamond
in
Thyroid UK
8 months ago
Nothing Works.
At present i take the max dose of 3 pramipexole, ad 2 Pregablin, just been back on the pregablin for about 10 days, but it’s not working , haven’t slept in 48 Hrs. Have tried every thing from reducing the Pramipexole gradually although not such long intervals as some do, and going cold Turkey, which
At present i take the max dose of 3 pramipexole, ad 2 Pregablin, just been back on the pregablin for about 10 days, but it’s not working , haven’t slept in 48 Hrs. Have tried every thing from reducing the Pramipexole gradually although not such long intervals as some do, and going cold Turkey, which
Hidden
in
Restless Legs Syndrome
1 year ago
Preventing Peripheral Neuropathy
Hello My husband has recently started Chemotherapy (Taxotere, 1 of 10 -12 treatments) He has a very long history with PCa ( dx 2011) I am looking for information regarding,
preventing or limiting neuropathy development;
most all the medical information I read is for treatment "after it
Hello My husband has recently started Chemotherapy (Taxotere, 1 of 10 -12 treatments) He has a very long history with PCa ( dx 2011) I am looking for information regarding,
preventing or limiting neuropathy development;
most all the medical information I read is for treatment "after it
kathim
in
Advanced Prostate Cancer
1 year ago
Iron Level for RLS
It is proven that we sufferers r[i]equire over 100 when it comes to Iron . I have had RLS for 21'years and have a vast knowledge base. Now I am on 250 mg Pregabalin combined with 7.5 mg Targin.[/i][i]Symptoms are all over the place and waking me up during the night. [/i] [i]My recent Iron blood test
It is proven that we sufferers r[i]equire over 100 when it comes to Iron . I have had RLS for 21'years and have a vast knowledge base. Now I am on 250 mg Pregabalin combined with 7.5 mg Targin.[/i][i]Symptoms are all over the place and waking me up during the night. [/i] [i]My recent Iron blood test
Katyparis
in
Restless Legs Syndrome
10 months ago
Anaemia anyone?
So the latest is diagnosed with anaemia. Add iron supplements to the steroid list !! Whatever next…. 🤪 Doc seems happy with everything else
So the latest is diagnosed with anaemia. Add iron supplements to the steroid list !! Whatever next…. 🤪 Doc seems happy with everything else
gillsky8
in
PMRGCAuk
10 months ago
Floradix and Hemoglobin
Has anyone had experience using Salus forumula "Floradix" Fer + plantes to help support healthy hemoglogin levels in someone with CLL? My husband's iron levels have always run on the low side and now with the CLL pushing down on his hemoglobin and platelets combined with a reduction of heme-iron in
Has anyone had experience using Salus forumula "Floradix" Fer + plantes to help support healthy hemoglogin levels in someone with CLL? My husband's iron levels have always run on the low side and now with the CLL pushing down on his hemoglobin and platelets combined with a reduction of heme-iron in
Minou1
in
CLL Support
1 year ago
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