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Regenerus cortisol has flatlined, low ferritin but other results seem normal.Gastritis, ‘fizzing’ legs

Applethorpe profile image
5 Replies

I will post now and try again later to attach the results PDFs, as it won’t let me at the mo.

GP Tests :

Ferritin 21 ( 13 - 150 )

Folate 4 ( 3.8 - 26 )

B12 514. ( 180 - 999 )

GP told me to improve ferritin with diet.

I then had acute gastritis. I’ve stopped omeprazole and will do the H Pylori test soon.

Thriva Ferritin was similar and everything else was plumb in the middle of their graphs / ranges, including the full iron profile.

CRP (high 0.167 sensitivity) < 3.0

* Ferritin 28.1 30.0 - 150.0. *

Iron 18.5 10.0 - 30.0

Total iron- binding capacity (TIBC) 51.8 (45.0 - 81.0)

Transferrin saturation. 35.7 (25.0 - 45.0)

Unsaturated iron binding capacity (UIBC). 33.3 (13.0 - 56.0)

Active B12 73.5. (37.5 - 188.0)

Vitamin D 95.2

The Regenerus is in the blue area at the bottom ‘ consistent with established phase 3 adrenal gland disfunction .’ Conversely my blood cortisol was previously normal. Should I ask the GP for a ‘ stim test ‘ or other conventional adrenal testing, particularly as my symptoms- which started me on this testing journey - are that my body reacts badly/ abnormally to stress ?

Previous thyroid tests were within range ( earlier post )

I take Vit D 25 mcg daily and omega fish oil

I’ve now got a fizzing feeling which started in my feet and has now moved up my legs. Also dots of changed sensation on a couple of fingers which I thought at first were a trapped nerve.

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Applethorpe
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Regenallotment profile image
Regenallotment

I get the fizzy fingers when my B12 is low. Look up peripheral neuropathy and pernicious anaemia, as the GP to test for this. You can have adequate levels of B12 circulating but it doesn’t get into the cells. The Pernicious Anaemia forum on here are helpful too.

However… looking at these results you have a lot to fix and must be feeling awful poor thing.

Ferritin - I used a Heme iron supplement called Three Areows from the US, got my ferritin up in 2 months. Liver twice a week and all the green veg in the world wasn’t going to raise my ferritin.

Look up Iron Deficiency Without Anaemia IDWA (I self diagnosed myself with this as GP clueless)

A good B Complex like Thorne might work for you, however you should look into PA before starting supplements.

Gastritis linked to poor absorption, have you looked at elimination diets to find out your triggers?

Someone with more than personal experience will be along and explain the order to do things. I’m not experienced with the cortisol part of your post, sorry hopefully someone else can pick that up.

Keep asking questions 🌱

Applethorpe profile image
Applethorpe in reply to Regenallotment

Hiya,

Thanks for your reply. 😀

I forgot to include that I have previously been ‘prediabetic’. I’m slim and I was convinced it wasn’t diet related. In fact, I changed my diet and later retested with the exact same results ! I’ve not had a normal result since. If it’s diabetic neuropathy, it seems like that’s quite urgent !

It takes a couple of weeks to get a blood appt at my surgery so I wonder whether I might do a diabetes fingerprick at the beginning of next week. It looks like a pernicious anaemia check has to be a venous draw anyway so I would let my GP do that.

I still can’t get those files to attach. Photos are fine but all my actual files are greyed out if anyone who is IT savvy would be able to do a test please ?

Regenallotment profile image
Regenallotment in reply to Applethorpe

Interesting, I’ve read posts from others discussing low FT3 can have a link with high H1bac results, I’m slim too and it appears (according to the Zoe thing I just did) I’m highly reactive to blood glucose, rises and falls are steep.

Fingers crossed (tingly ones obvs) you can get bloods and more insight very soon 🌱

Applethorpe profile image
Applethorpe in reply to Regenallotment

Hi again.

I spoke to my GP. Luckily I got the one who knows me the best.

She said that you’d have to have had diabetes for a good while to end up with n’pathy. She will check Hba1c anyway.

I asked about pernicious anaemia and she said she’d test B12 again. I asked, wasn’t it a whole suite of tests for PA ? Hmm, she said, maybe privately (or from a consultant ? ). But I really doubt it’s PA - partly because the frizzy feeling comes and goes.

She’ll also redo the ferritin.

I asked about the saliva cortisol and she was prepared to redo a blood cortisol - formerly ‘normal’ but rather hard to interpret because my sleep pattern has been completely ‘up the spout’ and so it’s stretching it a bit to say that it really was a ‘morning’ cortisol value.

She said she would also go away and research if there were any other tests she could do around my cortisol. I think she is trying her best, given that she’s seen my problems pile up over a period of time with no obvious cause.

I might start a new thread with the results screenshots. Not now - tired !

Regenallotment profile image
Regenallotment in reply to Applethorpe

Well done following up. It’s great she is researching on your behalf too. Do you think she could run intrinsic factor antibodies? I saw that was available via Medichecks. Worth asking folks on the PA forum on here too in another post when you have the energy.

My neuropathy comes and goes as my B12 fluctuates. She may not have experience it to realise.

🌱

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