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World Blood Cancer Day May 28th
Please help promote knowledge about Blood Cancers and Stem Cell Transplant Matching. Help support the become a donor campaigns! Global event! Please see link for more information They have various downloads that can be used on social media like Facebook https://www.worldbloodcancerday.org/en/media
Please help promote knowledge about Blood Cancers and Stem Cell Transplant Matching. Help support the become a donor campaigns! Global event! Please see link for more information They have various downloads that can be used on social media like Facebook https://www.worldbloodcancerday.org/en/media
Dovme
in
MPN Voice
2 years ago
When to start oestrogen patch and mirena coil
Hi. I am having a coil fitted next week as the progesterone part of hrt. I have the oestrogen patches waiting. Can I start the patches a few days before having the coil?
Hi. I am having a coil fitted next week as the progesterone part of hrt. I have the oestrogen patches waiting. Can I start the patches a few days before having the coil?
fitwithgail
in
Menopause and Perimenopause Support
2 years ago
When is surgery necessary?
For the last few years I've had very heavy periods - annoying, but manageable. For the last 12 months I've had really bad bloating in my stomach on and off - annoying, but manageable. For most of last year I had an on/off dull ache near my left ovary - annoying but manageable. Since November the dull
For the last few years I've had very heavy periods - annoying, but manageable. For the last 12 months I've had really bad bloating in my stomach on and off - annoying, but manageable. For most of last year I had an on/off dull ache near my left ovary - annoying but manageable. Since November the dull
Jenn2022
in
Endometriosis UK
2 years ago
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Mirena or endo pain?
Hi all, I had my laparoscopy in December 2020 to remove endo. During the op I had the mirena coil inserted. Now 14 months later, I’m still having pain most days. I finally have a gyno appt coming up in a few weeks and I think they’re going to suggest having my coil taken out, which feels like a really
Hi all, I had my laparoscopy in December 2020 to remove endo. During the op I had the mirena coil inserted. Now 14 months later, I’m still having pain most days. I finally have a gyno appt coming up in a few weeks and I think they’re going to suggest having my coil taken out, which feels like a really
LondonEndo325
in
Endometriosis UK
2 years ago
Ovulation monitoring with IUI.
I’m due to start IUI in May.. the clinic have asked if I want to pay for ovulation monitoring in the meantime? It’s £420. I have been using ovulation strips and have regular periods. Is this enough or is it worth paying the money? This money would be taken out of what I need to use for IUI so can’t
I’m due to start IUI in May.. the clinic have asked if I want to pay for ovulation monitoring in the meantime? It’s £420. I have been using ovulation strips and have regular periods. Is this enough or is it worth paying the money? This money would be taken out of what I need to use for IUI so can’t
Kt8e21
in
Fertility Network UK
2 years ago
I'm new here
Hi everyone, I'm so glad I came across this page as I feel reassured and more educated already. I went on the pill at 15, to stop my extremely heavy and painful periods and since then everything was fine - periods were regular, a normal amount of pain etc. A year ago, at 22, I decided I no longer wanted
Hi everyone, I'm so glad I came across this page as I feel reassured and more educated already. I went on the pill at 15, to stop my extremely heavy and painful periods and since then everything was fine - periods were regular, a normal amount of pain etc. A year ago, at 22, I decided I no longer wanted
cbradbury
in
Endometriosis UK
2 years ago
Contraceptive Coil
Hi, I have stage 4 endometriosis and It has been suggested that I have the coil fitted. I have heard nothing but bad things about having a coil. I was wondering if anyone else has any opinions on if a coil is bad or ok?
Hi, I have stage 4 endometriosis and It has been suggested that I have the coil fitted. I have heard nothing but bad things about having a coil. I was wondering if anyone else has any opinions on if a coil is bad or ok?
Sazle
in
Endometriosis UK
2 years ago
Mirena coil and HRT, severe Endo
Hi all first post of new year. Was wandering your experiences . On 20th November 2021 I had my ovaries removed and Severe rectal vaginal Endo also treated. During this surgery I had a mirena coil inserted and also HRT patches. I have bleed from day 1 although settled it’s now a brown discharge quite
Hi all first post of new year. Was wandering your experiences . On 20th November 2021 I had my ovaries removed and Severe rectal vaginal Endo also treated. During this surgery I had a mirena coil inserted and also HRT patches. I have bleed from day 1 although settled it’s now a brown discharge quite
Chicken2012
in
Endometriosis UK
2 years ago
Hormones affecting vaginal dryness
Hi I’ve been on microgynon for a year and it’s made me really dry and loss of libido, my gp changed me to Yasmin and it’s not improved at all. I’m considering going on the copper IUD but all I hear are negative things. Clearly there’s downsides to any contraceptive. But just wanted peoples advice or
Hi I’ve been on microgynon for a year and it’s made me really dry and loss of libido, my gp changed me to Yasmin and it’s not improved at all. I’m considering going on the copper IUD but all I hear are negative things. Clearly there’s downsides to any contraceptive. But just wanted peoples advice or
S_hennessy
in
BASHH
2 years ago
2nd op/Prostap/Provera - which to choose ..?
Hello everyone, I am hoping for a bit of help/advice on behalf of my 19-year old daughter, who, after having a laperascopy a year ago to drain her ovarian cysts, has been told they are filling up again. She has been given the option of progesterone treatment (provera), Prostap for 1 year, or surgery
Hello everyone, I am hoping for a bit of help/advice on behalf of my 19-year old daughter, who, after having a laperascopy a year ago to drain her ovarian cysts, has been told they are filling up again. She has been given the option of progesterone treatment (provera), Prostap for 1 year, or surgery
Claire49
in
Endometriosis UK
2 years ago
Merina coil at 56
Hello I’m 56 in a couple of weeks just been diagnosed endo after biopsy and MRI I had horrific bleeding emergency trip to hospital as bleed was so bad. coil fitted 5 weeks ago I’m old lol no menopause yet as I’ve not stopped bleeding. Anyone else my age ? Just trying to get my head around all this.
Hello I’m 56 in a couple of weeks just been diagnosed endo after biopsy and MRI I had horrific bleeding emergency trip to hospital as bleed was so bad. coil fitted 5 weeks ago I’m old lol no menopause yet as I’ve not stopped bleeding. Anyone else my age ? Just trying to get my head around all this.
Catmum66
in
Endometriosis UK
2 years ago
Mirena coil malposition, low lying
Hi everyone I currently have the Mirena coil which was inserted/replaced during my lap in March 2021. I just had an internal ultrasound due to ongoing add increasing pain to check if any new cysts and luckily none found. However my Mirena is low lying at 7mm low. I have a history of expulsion and malpositioned
Hi everyone I currently have the Mirena coil which was inserted/replaced during my lap in March 2021. I just had an internal ultrasound due to ongoing add increasing pain to check if any new cysts and luckily none found. However my Mirena is low lying at 7mm low. I have a history of expulsion and malpositioned
Claire_Alexandra
in
Endometriosis UK
2 years ago
Could this be bowel endo?
Hi all I had a laparoscopy in October and I told them beforehand that I felt like I had bowel endo, as I often bled from my back passage during my period as well as diarrhoea. They informed me that they would check the surface but wouldn’t check inside. So I had the surgery and they found endo but she
Hi all I had a laparoscopy in October and I told them beforehand that I felt like I had bowel endo, as I often bled from my back passage during my period as well as diarrhoea. They informed me that they would check the surface but wouldn’t check inside. So I had the surgery and they found endo but she
DalmatianGirl
in
Endometriosis UK
2 years ago
Cannot find an answer to this!
I’m really struggling with perimenopausal hormone fluctuations. My thyroid levels are stable and have been for a while now, however at the beginning of my cycle when my protestors drops and oestrogen increases, I feel awful and it takes a couple of weeks to level out again. I had been using bioidential
I’m really struggling with perimenopausal hormone fluctuations. My thyroid levels are stable and have been for a while now, however at the beginning of my cycle when my protestors drops and oestrogen increases, I feel awful and it takes a couple of weeks to level out again. I had been using bioidential
Murphysmum
in
Thyroid UK
3 years ago
Contraceptive whilst on Decapeptyl - do I really need one?
Has anyone else been in this situation and what were you advised about contraception? I’ve been on Decapeptyl injections for 8 years and these have successfully managed by endometriosis. I have no pain or other symptoms whatsoever now. I get bone scans every 3 years to check my bone density and I’ve
Has anyone else been in this situation and what were you advised about contraception? I’ve been on Decapeptyl injections for 8 years and these have successfully managed by endometriosis. I have no pain or other symptoms whatsoever now. I get bone scans every 3 years to check my bone density and I’ve
Endo1973
in
Endometriosis UK
3 years ago
Private laparoscopy
Hey there. I’m a 32 year old female, I had horrendous hyperemesis gravidarium while pregnant and since then my health hasn’t been the same. I’ve developed suspected endometriosis, which became terrible last year and I have a c section niche. Since having my covid booster I’m having a period every 12
Hey there. I’m a 32 year old female, I had horrendous hyperemesis gravidarium while pregnant and since then my health hasn’t been the same. I’ve developed suspected endometriosis, which became terrible last year and I have a c section niche. Since having my covid booster I’m having a period every 12
LS07
in
Endometriosis UK
3 years ago
Stupid question but...
Why don't all endo sufferers who aren't TTC on the pill to stop the monthly bleeding? Surely bleeding each month just creates more endo, so the first thing to do would be stop the bleeding? My Dr is recommending the coil which "might" stop my periods, it also "might" make me bleed really heavily for
Why don't all endo sufferers who aren't TTC on the pill to stop the monthly bleeding? Surely bleeding each month just creates more endo, so the first thing to do would be stop the bleeding? My Dr is recommending the coil which "might" stop my periods, it also "might" make me bleed really heavily for
Jenn2022
in
Endometriosis UK
3 years ago
Bone marrow transplant
Hello, I am 60 years old. I have been struggling with AMN for over 35 years. I am wheelchair bound, but can still stand. My symptoms have been stable for many years. In a few weeks, I will be getting my first MRI in 30 years. I am afraid if the results are poor, I will have to get bone marrow transplant
Hello, I am 60 years old. I have been struggling with AMN for over 35 years. I am wheelchair bound, but can still stand. My symptoms have been stable for many years. In a few weeks, I will be getting my first MRI in 30 years. I am afraid if the results are poor, I will have to get bone marrow transplant
HenryW
in
AMN EASIER
2 years ago
Question about ultrasound and anyone else suffering the Irish healthcare system
Does ultrasound actually show anything other than if you are pregnant? I have quite advanced endometriosis and all I've had are ultrasound and the one lap that diagnosed me in 2018. I'm in pain and bloated and fed up with the constant BS from Irish medical professionals, after paying €200 euros for a
Does ultrasound actually show anything other than if you are pregnant? I have quite advanced endometriosis and all I've had are ultrasound and the one lap that diagnosed me in 2018. I'm in pain and bloated and fed up with the constant BS from Irish medical professionals, after paying €200 euros for a
Escapologygirl
in
Endometriosis UK
3 years ago
Cyst pain - do i need to worry it’s ruptured?
Hey all, Had a laparoscopy in October removing endo from my pelvis and a coil fitted. A few weeks later I was having agonising pain so referred for an ultrasound to check my coil was in the right place, and it was but they found a 5cm cyst on my right ovary which had either grown super fast or been
Hey all, Had a laparoscopy in October removing endo from my pelvis and a coil fitted. A few weeks later I was having agonising pain so referred for an ultrasound to check my coil was in the right place, and it was but they found a 5cm cyst on my right ovary which had either grown super fast or been
DalmatianGirl
in
Endometriosis UK
3 years ago
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