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Chronic Illness Guess Who
Long story short, things have taken a drastic turn. I don't know if it's my Endo causing my health spiral, or a combination what pots or what the fuck going on. Even though the PoTs symptoms I've been experiencing have been going on since I was around 13 (i'm 28 now), in November 2023 they took a nosedive
Long story short, things have taken a drastic turn. I don't know if it's my Endo causing my health spiral, or a combination what pots or what the fuck going on. Even though the PoTs symptoms I've been experiencing have been going on since I was around 13 (i'm 28 now), in November 2023 they took a nosedive
Nemofudge
in
Endometriosis UK
2 months ago
came off all hormones completely?
Hi I have woken up in unbareable pain this morning and I have been taken off zoladex at the start of the month, and my body has been having hormones in since April 2023 and now I have nothing at all. The gyni said she was going to put me in for a MRI as the pain is in is always the same and it never
Hi I have woken up in unbareable pain this morning and I have been taken off zoladex at the start of the month, and my body has been having hormones in since April 2023 and now I have nothing at all. The gyni said she was going to put me in for a MRI as the pain is in is always the same and it never
Ginge2001
in
Endometriosis UK
2 months ago
Help with first steps
Hi. Firstly wow, this forum is amazing. After nearly 20 years of pain (am now 49) I have finally had a ‘vague’ diagnosis of deep endo following an MRI. The gynae consultant says that the scan shows adhesions fusing my ovaries and uterus but anything other than that would need further investigation
Hi. Firstly wow, this forum is amazing. After nearly 20 years of pain (am now 49) I have finally had a ‘vague’ diagnosis of deep endo following an MRI. The gynae consultant says that the scan shows adhesions fusing my ovaries and uterus but anything other than that would need further investigation
TandE
in
Endometriosis UK
2 months ago
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What Now?
So I had my laparoscopy last May, confirmed endo, coil fitted. Pain returned after a few months. In November I was put on Zoladex injections with Tibilone HRT tablets, this helped the pain a lot and reduced it to a few times within the 3 month period of being on it. Now the last 2 weeks the pain has
So I had my laparoscopy last May, confirmed endo, coil fitted. Pain returned after a few months. In November I was put on Zoladex injections with Tibilone HRT tablets, this helped the pain a lot and reduced it to a few times within the 3 month period of being on it. Now the last 2 weeks the pain has
Mummaamber
in
Endometriosis UK
2 months ago
Conceiving
Morning everyone :) I am awaiting diagnostic laperoscopy and have just been informed that though I was expecting surgery between May and September, It will not be until April next year. My husband and I have made the decision to use this time to try and conceive. I currently have the coil, and the
Morning everyone :) I am awaiting diagnostic laperoscopy and have just been informed that though I was expecting surgery between May and September, It will not be until April next year. My husband and I have made the decision to use this time to try and conceive. I currently have the coil, and the
LUCY001
in
Endometriosis UK
2 months ago
Help!
Hi I'm 34 with endometriosis on the pelvis and also been told my ovaries are stuck to the back of my womb. I've had my tubes tied for 7 years(bad pregnancys) and gynaecologist has fitted a coil and started me on menapose injections and few other things to stop the bleeding (haven't worked) I'm on so
Hi I'm 34 with endometriosis on the pelvis and also been told my ovaries are stuck to the back of my womb. I've had my tubes tied for 7 years(bad pregnancys) and gynaecologist has fitted a coil and started me on menapose injections and few other things to stop the bleeding (haven't worked) I'm on so
Mammyof2gals
in
The Endometriosis Foundation
2 months ago
Help needed
Hi I'm 34 with endometriosis on the pelvis and also been told my ovaries are stuck to the back of my womb. I've had my tubes tied for 7 years(bad pregnancys) and gynaecologist has fitted a coil and started me on menapose injections and few other things to stop the bleeding (haven't worked) I'm on so
Hi I'm 34 with endometriosis on the pelvis and also been told my ovaries are stuck to the back of my womb. I've had my tubes tied for 7 years(bad pregnancys) and gynaecologist has fitted a coil and started me on menapose injections and few other things to stop the bleeding (haven't worked) I'm on so
Mammyof2gals
in
Endometriosis UK
2 months ago
Help please
I had endo surgery in 2016 after 10 years of pushing for a diagnosis. I was found to have extensive scaring at the front (across section scar) and endo going into my bowel. I've had urinary symptoms for years, although they've never looked into this. I was told I had DIE.After surgery I fell pregnant
I had endo surgery in 2016 after 10 years of pushing for a diagnosis. I was found to have extensive scaring at the front (across section scar) and endo going into my bowel. I've had urinary symptoms for years, although they've never looked into this. I was told I had DIE.After surgery I fell pregnant
thebird1
in
Endometriosis UK
2 months ago
Adenomyosis diagnosis journey
Hi Everyone, This is a long one but I hope it helps someone out there who may be on the same journey! From my first period when I was 11 I had long heavy painful periods, It would wipe me out, I was told that it was normal and that periods were painful and that as a young lady I needed to get on with
Hi Everyone, This is a long one but I hope it helps someone out there who may be on the same journey! From my first period when I was 11 I had long heavy painful periods, It would wipe me out, I was told that it was normal and that periods were painful and that as a young lady I needed to get on with
HolsBamboozledwomb
in
Endometriosis UK
2 months ago
Could I have endometriosis?
Hello, I am really struggling with symptoms at the moment and I still have no answers so would love some input from others who know what this is like. I have always had heavy painful periods since day 1, along with bowel and stomach issues. I remember being at school and being sent home because I was
Hello, I am really struggling with symptoms at the moment and I still have no answers so would love some input from others who know what this is like. I have always had heavy painful periods since day 1, along with bowel and stomach issues. I remember being at school and being sent home because I was
PennyCrowe
in
Endometriosis UK
2 months ago
1 year post op with continuing issues
Hi all,I'm coming up to having my year post lap appointment after having an extensive surgery last March. Bit of background: I have deep infiltrating endo which had formed on all my organs in my pelvis, my pelvis, ligaments, groin and down to my thighs. I had that removes, along with some ovarian cysts
Hi all,I'm coming up to having my year post lap appointment after having an extensive surgery last March. Bit of background: I have deep infiltrating endo which had formed on all my organs in my pelvis, my pelvis, ligaments, groin and down to my thighs. I had that removes, along with some ovarian cysts
Leanne102
in
Endometriosis UK
2 months ago
Advice request - going in circles with doctors
Hi all, I've been suffering with endometriosis for years but I'm really struggling to get proper help with it, and the doctors seem to be thinking now it might be something else. I've had surgery to remove endometriosis twice (and the second time I also had an ovarian cyst removed which was larger than
Hi all, I've been suffering with endometriosis for years but I'm really struggling to get proper help with it, and the doctors seem to be thinking now it might be something else. I've had surgery to remove endometriosis twice (and the second time I also had an ovarian cyst removed which was larger than
Bookworm321123
in
Endometriosis UK
2 months ago
IUI vs. IVF
Hi, Firstly let’s tell you a bit about mine and my OH’s situation. We’ve been TTC for 2 years, I’ve had an internal ultrasound, HyCoSy - all fine and clear. My AMH is normal and I have regular periods. My OH’s results are also all normal apart from low sperm count. so we’ve been told to go for IVF
Hi, Firstly let’s tell you a bit about mine and my OH’s situation. We’ve been TTC for 2 years, I’ve had an internal ultrasound, HyCoSy - all fine and clear. My AMH is normal and I have regular periods. My OH’s results are also all normal apart from low sperm count. so we’ve been told to go for IVF
SugarSnap88
in
Fertility Network UK
2 months ago
Adeno diagnosis...I think? Should I still have a lap???
Hi! If anyone has any experience of this or advice I'm all ears.....Following ultrasounds for pelvic pain that showed i had a bulky womb, small fibroids, plus a polyp at the top of my cervix, I had an MRI done. Just spoke to my gp who said MRI noted 'thickening of the junctional zone up to 11mm, with
Hi! If anyone has any experience of this or advice I'm all ears.....Following ultrasounds for pelvic pain that showed i had a bulky womb, small fibroids, plus a polyp at the top of my cervix, I had an MRI done. Just spoke to my gp who said MRI noted 'thickening of the junctional zone up to 11mm, with
PAPanda
in
Endometriosis UK
3 months ago
Advice on egg freezing and hysterectomy for severely heavy bleeding
Hi everyone, I'm doing a little bit of research so I can take a huge stack of notes to my next gynaecology appointment, and wondered if anyone was able to share their experiences. I'm looking at potentially freezing some of my eggs, as I have endometriomas. I'm still undecided as to whether I want children
Hi everyone, I'm doing a little bit of research so I can take a huge stack of notes to my next gynaecology appointment, and wondered if anyone was able to share their experiences. I'm looking at potentially freezing some of my eggs, as I have endometriomas. I'm still undecided as to whether I want children
GrouchoSparx
in
Endometriosis UK
3 months ago
Anyone had adhesions removed to then be told it isn’t endometriosis?
Hello, I am so confused and just need to know if anyone has been in the same situation/ advice on where to go next. Had my lap on the 28th dec and the nurse went through my lap notes. She said they had removed endo adhesions that had connected my left ovary to my bowel and that the surgeon would
Hello, I am so confused and just need to know if anyone has been in the same situation/ advice on where to go next. Had my lap on the 28th dec and the nurse went through my lap notes. She said they had removed endo adhesions that had connected my left ovary to my bowel and that the surgeon would
Tiff22
in
Endometriosis UK
3 months ago
Fluctuating T4?
Hi all, Would really appreciate some advice on fluctuating free T4 levels - having had a dose increase from 50 to 75mg end of September 23, T4 finally went up to 16.7 (range 11.50 -22.7) in December - I know this still needs improvement and I still have the full range of symptoms but doctors wouldn't
Hi all, Would really appreciate some advice on fluctuating free T4 levels - having had a dose increase from 50 to 75mg end of September 23, T4 finally went up to 16.7 (range 11.50 -22.7) in December - I know this still needs improvement and I still have the full range of symptoms but doctors wouldn't
Thyroid16
in
Thyroid UK
3 months ago
Hormone advice estrogen or progesterone?
Hi...after a little advice re hormones. Lately i tend to feel really really good just after my period has finished for around a week (almost elated, very productive etc)and then It is like a light switch goes off and I feel really really bad until my next period. Tearful, anxious, reclusive etc. Where
Hi...after a little advice re hormones. Lately i tend to feel really really good just after my period has finished for around a week (almost elated, very productive etc)and then It is like a light switch goes off and I feel really really bad until my next period. Tearful, anxious, reclusive etc. Where
Turquoisenona
in
Menopause and Perimenopause Support
3 months ago
health anxiety
i had anxiety when my daughter was born but now i’m ok with her however my anxiety has turned to my health.. so i was told by a nurse go on the progesterone coil and had loads of side effects and come off to be put on the pill which wasn’t explained was the same but in pill form and had side effects
i had anxiety when my daughter was born but now i’m ok with her however my anxiety has turned to my health.. so i was told by a nurse go on the progesterone coil and had loads of side effects and come off to be put on the pill which wasn’t explained was the same but in pill form and had side effects
Skyblue7
in
Anxiety Support
3 months ago
Replacement Mirena and weird symptoms
Hello everyone, I’ve been diagnosed this last year with endo on bowel, uterus and ovaries, fibroids and adenomyosis, had symptoms for 20 years however. I had my Levosert coil changed in November back to a Mirena. I always had relief from Mirenas in the past, especially for the first 18 months of having
Hello everyone, I’ve been diagnosed this last year with endo on bowel, uterus and ovaries, fibroids and adenomyosis, had symptoms for 20 years however. I had my Levosert coil changed in November back to a Mirena. I always had relief from Mirenas in the past, especially for the first 18 months of having
Whoosh451
in
Endometriosis UK
3 months ago
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