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Surviving endometriosis
Hello, I'm a long time sufferer of Endometriosis. Had 3 surgeries, use numerous methods to ease flare ups and awful pain during and after my period. I did have a coil, but had the removed 2 years ago due to constant bleeding. It's been very manageable the last few years but recently it's getting really
Hello, I'm a long time sufferer of Endometriosis. Had 3 surgeries, use numerous methods to ease flare ups and awful pain during and after my period. I did have a coil, but had the removed 2 years ago due to constant bleeding. It's been very manageable the last few years but recently it's getting really
Aimv
in
Endometriosis UK
2 years ago
Coil, bleeding an norethisterone
Had a merina coil fitted about a week ago, now started to bleed and have cramping. Basically I’m having a period but a tad lighter than normal. Have the above meds for my holiday, it normally works and worried that with all the extra hormones it won’t. Also on hrt, anyone got any helpful advice. Ps dont
Had a merina coil fitted about a week ago, now started to bleed and have cramping. Basically I’m having a period but a tad lighter than normal. Have the above meds for my holiday, it normally works and worried that with all the extra hormones it won’t. Also on hrt, anyone got any helpful advice. Ps dont
Jenny1974
in
Endometriosis UK
2 years ago
Help with endo diagnosis
Have had very painful periods with sciatica pain since my first child 20yrs ago.7 yrs ago it was quite bad, 3yrs ago pain in pelvis and a terrible bearing down making me go to the toilet constantly and getting no sleep.I was given anti biotics for urine infection rang back again and told them it was
Have had very painful periods with sciatica pain since my first child 20yrs ago.7 yrs ago it was quite bad, 3yrs ago pain in pelvis and a terrible bearing down making me go to the toilet constantly and getting no sleep.I was given anti biotics for urine infection rang back again and told them it was
Rachel20
in
Endometriosis UK
2 years ago
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Coming off combined birth control pill
Hi, I am coming off my combined birth control pill which I have been on since I was 16 (I am now 22) starting from today (only started my new pack last week) as I have been in and out of hospital for the last 4 months and they found a blood clot in my right lung (which they thought was cause from Covid
Hi, I am coming off my combined birth control pill which I have been on since I was 16 (I am now 22) starting from today (only started my new pack last week) as I have been in and out of hospital for the last 4 months and they found a blood clot in my right lung (which they thought was cause from Covid
Advice99
in
BASHH
2 years ago
Mirena IUD sudden heavy bleeding
I got the mirena could 2022 Jan had a few hiccups like intense pain but lately for the past couple of months whenever I push my pelvic are hard like peeing or pooing I spot no matter what. My period are very light and I’ve been using regular tampons for about 2-4 days but this period in June I’ve had
I got the mirena could 2022 Jan had a few hiccups like intense pain but lately for the past couple of months whenever I push my pelvic are hard like peeing or pooing I spot no matter what. My period are very light and I’ve been using regular tampons for about 2-4 days but this period in June I’ve had
Littlebug77
in
Endometriosis UK
2 years ago
Mirena
I’ve been experiencing headaches, funny vision, vertigo / sea sickness, and just generally feeling weird and spaced out. I’ve had every test going and everything seems to be normal. Is there any possibility this is all coming from my coil? Has anyone experienced similar?
I’ve been experiencing headaches, funny vision, vertigo / sea sickness, and just generally feeling weird and spaced out. I’ve had every test going and everything seems to be normal. Is there any possibility this is all coming from my coil? Has anyone experienced similar?
Tigertummy
in
Women's Health
2 years ago
Mirena side effects
I’ve been experiencing headaches, funny vision, vertigo / sea sickness, and just generally feeling weird and spaced out. I’ve had every test going and everything seems to be normal. Is there any possibility this is all coming from my coil? Has anyone experienced similar?
I’ve been experiencing headaches, funny vision, vertigo / sea sickness, and just generally feeling weird and spaced out. I’ve had every test going and everything seems to be normal. Is there any possibility this is all coming from my coil? Has anyone experienced similar?
Tigertummy
in
Endometriosis UK
2 years ago
Hep B vaccinated, asked to do virus tests again and again
Both my partner and myself were vaccinated against Hep B, so we are both testing positive of Hep B antibody in our fertility treatment screening tests. When I did an IVF around with the NHS, this wasn't an issue. The NHS hospital didn't ask us to take a Hep B viral test. However, when I was doing IVF
Both my partner and myself were vaccinated against Hep B, so we are both testing positive of Hep B antibody in our fertility treatment screening tests. When I did an IVF around with the NHS, this wasn't an issue. The NHS hospital didn't ask us to take a Hep B viral test. However, when I was doing IVF
LRed
in
Fertility Network UK
2 years ago
Do I have a hysterectomy?
I have suffered with pain since I was 11 years old and am now 38. I have had 2 coils, 2 laparoscopys, tried tri-cycling my combined pill for years, the mini pill, hormone injections and HRT. I have pain for 7-10days on a 2 weekly cycle and feel like my endo rules my life. I feel like I am not able to
I have suffered with pain since I was 11 years old and am now 38. I have had 2 coils, 2 laparoscopys, tried tri-cycling my combined pill for years, the mini pill, hormone injections and HRT. I have pain for 7-10days on a 2 weekly cycle and feel like my endo rules my life. I feel like I am not able to
Louisewhite84
in
Endometriosis UK
2 years ago
Merina coil removal
Hi, I'm due to have my Merina Coil removed as it's been in for 5 years but I'm afraid it's going to be very painful. It was put in when I had the laparoscopy so was under GA. Smears are generally super painful with several attempts on different occasions and I'm worried that removing the coil will be
Hi, I'm due to have my Merina Coil removed as it's been in for 5 years but I'm afraid it's going to be very painful. It was put in when I had the laparoscopy so was under GA. Smears are generally super painful with several attempts on different occasions and I'm worried that removing the coil will be
Mimsyflibbles
in
Endometriosis UK
2 years ago
ET accelerated progression
hi. I have had ET since 2004, treated with varying doses of HU and in later years also Peg. Apart from unstable platelets I have been relatively symptom free. Until this year! I have definitely struggled with HU, getting terrible mouth sores. I had a bone marrow biopsy recently which has confirmed
hi. I have had ET since 2004, treated with varying doses of HU and in later years also Peg. Apart from unstable platelets I have been relatively symptom free. Until this year! I have definitely struggled with HU, getting terrible mouth sores. I had a bone marrow biopsy recently which has confirmed
Smdg
in
MPN Voice
2 years ago
Are MRI with coil and biopsy needed for BCR recurrence in prostate for cryotherapy, HIFU, Tulsa Pro or Brachytherapy?
After posting questions on ADT options for BCR oligometastasis, we have new development/input from RO and MO which makes us delay starting hormone therapy now. We would really appreciate members' input and advice so that we can make informed decision. Brief background, my husband was diagnosed in Dec
After posting questions on ADT options for BCR oligometastasis, we have new development/input from RO and MO which makes us delay starting hormone therapy now. We would really appreciate members' input and advice so that we can make informed decision. Brief background, my husband was diagnosed in Dec
TCMG
in
Advanced Prostate Cancer
2 years ago
When to start IUI again after chemical pregnancy?
*senstive* I got a positive test on the 13th of this month after IUI and started to bleed on the 18th and I am now testing negative.. I believe it was a chemical pregnancy with it been week 4-5. I am doing IUI with donor sperm.. I’ve updated the clinic but still not had a call back. Do I class the
*senstive* I got a positive test on the 13th of this month after IUI and started to bleed on the 18th and I am now testing negative.. I believe it was a chemical pregnancy with it been week 4-5. I am doing IUI with donor sperm.. I’ve updated the clinic but still not had a call back. Do I class the
Kt8e21
in
Fertility Network UK
2 years ago
Burning pains
Hi everyone 👋 I had a laparoscopy last April and have recently had the Mirena coil removed. I’ve had burning pain in my left leg and under ribs. The same type of pain is also in my stomach and hips near my incision sites. These pains have increased a lot since I had the coil removed. I’m due to have
Hi everyone 👋 I had a laparoscopy last April and have recently had the Mirena coil removed. I’ve had burning pain in my left leg and under ribs. The same type of pain is also in my stomach and hips near my incision sites. These pains have increased a lot since I had the coil removed. I’m due to have
lem00003
in
Endometriosis UK
2 years ago
A few questions about endometriosis
So a bit of background I had a dull ache in my pelvic area for a couple of years but life got in the way and I didn’t go to the GP then I had a colposcopy and after that the pain worsened they initially thought it was an infection so they kept giving antibiotics but the pain didn’t stop it just became
So a bit of background I had a dull ache in my pelvic area for a couple of years but life got in the way and I didn’t go to the GP then I had a colposcopy and after that the pain worsened they initially thought it was an infection so they kept giving antibiotics but the pain didn’t stop it just became
Amyflood246
in
Endometriosis UK
2 years ago
Can anyone help?
Hi, I was just wondering I’m stage 4 endo and I’m 19 years old I was diagnosed 3 years ago. Can anyone give any advice as I am struggling to understand and deal with my endo as it’s effecting my life. I’ve had 2 laparoscopy surgeries, and I’m still in as much pain as I was before being diagnosed. I’ve
Hi, I was just wondering I’m stage 4 endo and I’m 19 years old I was diagnosed 3 years ago. Can anyone give any advice as I am struggling to understand and deal with my endo as it’s effecting my life. I’ve had 2 laparoscopy surgeries, and I’m still in as much pain as I was before being diagnosed. I’ve
Chloe_lj03
in
Endometriosis UK
2 years ago
Postpone period whilst 6 months into IUD
Hi all I understand you may not have an answer but having a discussion may help me feel better ! I have had the Mirina IUD for 6 months now as a treatment for Endo after surgery and still getting monthly bleeds. When I was taking the pill I would take a back to back packet if I wanted to postpone a bleed
Hi all I understand you may not have an answer but having a discussion may help me feel better ! I have had the Mirina IUD for 6 months now as a treatment for Endo after surgery and still getting monthly bleeds. When I was taking the pill I would take a back to back packet if I wanted to postpone a bleed
charlottecarter91
in
Endometriosis UK
2 years ago
Offered coil
Hello, 1st post. Im 47 yrs old at 25 yrs afters years of pain and being told it was my mental health, stage 4 endometriosis was found during a laparoscopy and burned of where they could but a course of injections were needed as it was also on my urethra/ ureta( cant remember which) . But for the last
Hello, 1st post. Im 47 yrs old at 25 yrs afters years of pain and being told it was my mental health, stage 4 endometriosis was found during a laparoscopy and burned of where they could but a course of injections were needed as it was also on my urethra/ ureta( cant remember which) . But for the last
endopolycystic
in
Endometriosis UK
2 years ago
Non driving gene mutation-ASXL1
I have MF with JAK2 V617F for 10 years, now is taking Ruxotinib and Interferon . Spleen contraction and blood control are good. Although I took a lot of hormones, at least my fibrosis degree has been reversed, and the mutation rate has also decreased a lot. But I was found I have a new bad prognosis
I have MF with JAK2 V617F for 10 years, now is taking Ruxotinib and Interferon . Spleen contraction and blood control are good. Although I took a lot of hormones, at least my fibrosis degree has been reversed, and the mutation rate has also decreased a lot. But I was found I have a new bad prognosis
merlisa
in
MPN Voice
2 years ago
Non driving gene mutation-ASXL1
I have MF with JAK2 V617F for 10 years, now is taking Ruxotinib and Interferon . Spleen contraction and blood control are good. Although I took a lot of hormones, at least my fibrosis degree has been reversed, and the mutation rate has also decreased a lot. But I was found I have a new bad prognosis
I have MF with JAK2 V617F for 10 years, now is taking Ruxotinib and Interferon . Spleen contraction and blood control are good. Although I took a lot of hormones, at least my fibrosis degree has been reversed, and the mutation rate has also decreased a lot. But I was found I have a new bad prognosis
merlisa
in
Fight MPN
2 years ago
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