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Interstitial lung disease (ILD)
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Originally I was diagnosed with lung fibrosis and earlier this year I received confirmation that I have CPFE combined pulmonary fibrosis and emphysema.I suffer from shortness of breath and some everyday tasks are becoming more difficult. Even putting my socks on can leave me short of breath. I have noticed
Originally I was diagnosed with lung fibrosis and earlier this year I received confirmation that I have CPFE combined pulmonary fibrosis and emphysema.I suffer from shortness of breath and some everyday tasks are becoming more difficult. Even putting my socks on can leave me short of breath. I have noticed
Wibble28
in
Lung Conditions Community Forum
5 months ago
atrial fibrillation then high heart rate
I started in AF last week and after 5 days of AF I have now gone into a regular high heart rate for the past 2 days. Under the instruction of the arrhythmia nurse I have increased my bisoprolol but it doesn’t seem to helping much. I have an appointment on Wednesday to discuss treatment plan while I
I started in AF last week and after 5 days of AF I have now gone into a regular high heart rate for the past 2 days. Under the instruction of the arrhythmia nurse I have increased my bisoprolol but it doesn’t seem to helping much. I have an appointment on Wednesday to discuss treatment plan while I
Dizzy3
in
Atrial Fibrillation Support
5 months ago
Looking at DHEA again and the Cortisol link popped up...
[i]"When one takes DHEA it can combat the production of another hormone called cortisol. Cortisol is the stress hormone. Higher levels of cortisol is usually present in the body when the levels of DHEA decline. If a high level of cortisol is allowed to circulate freely in the body it can damage the endocrine
[i]"When one takes DHEA it can combat the production of another hormone called cortisol. Cortisol is the stress hormone. Higher levels of cortisol is usually present in the body when the levels of DHEA decline. If a high level of cortisol is allowed to circulate freely in the body it can damage the endocrine
TiggerMe
in
Thyroid UK
8 months ago
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There is hope
This is on my bio but thought I would copy you all in. I've never posted before but wanted to share this. I have never asked a question but have learnt so much on here that has helped me to support my husband through a very rough time in our 35 year marriage. A total change in life style and we are
This is on my bio but thought I would copy you all in. I've never posted before but wanted to share this. I have never asked a question but have learnt so much on here that has helped me to support my husband through a very rough time in our 35 year marriage. A total change in life style and we are
Oldbits
in
British Liver Trust
8 months ago
worrying heart rate through the night
I have started to wear my Fitbit to bed after my AF diagnosis but I am very worried that it says, while in AF all night, my heart beat ranges from39 to 169. I take Carvedilol 12.5mg and Apixaban 5mg twice a day. It has taken me ages to be brave enough to wear it at night but I’m thinking I might be
I have started to wear my Fitbit to bed after my AF diagnosis but I am very worried that it says, while in AF all night, my heart beat ranges from39 to 169. I take Carvedilol 12.5mg and Apixaban 5mg twice a day. It has taken me ages to be brave enough to wear it at night but I’m thinking I might be
Wilky57
in
Atrial Fibrillation Support
5 months ago
My brother got into a car acciddent and nurses put him back to sleep eveytime he gets agitated (please help)
Hi guys over the weekend my brother crashed into the free way with the wall concrete that divides the cars its been reported he wasnt able to breath properly so they medically induced him into coma the 2 day they finally removed his breathing tube and seems like he had a minor injury in his head and
Hi guys over the weekend my brother crashed into the free way with the wall concrete that divides the cars its been reported he wasnt able to breath properly so they medically induced him into coma the 2 day they finally removed his breathing tube and seems like he had a minor injury in his head and
casleyva
in
ICUsteps
8 months ago
Do you know your pulse?
Your heartbeat is the most fundamental rhythm in your life, signalling the regular pumping of your heart as it propels blood carrying oxygen and nutrients to the rest of your body. We take the regular beating completely for granted, never giving it a second thought until the elegant control process
Your heartbeat is the most fundamental rhythm in your life, signalling the regular pumping of your heart as it propels blood carrying oxygen and nutrients to the rest of your body. We take the regular beating completely for granted, never giving it a second thought until the elegant control process
TracyAdmin
ArrhythmiaAlliance
in
Heart Rhythm Disorders Support
7 months ago
T3 only and heart rate
Hi all, I was started on liothyronine only 6 months ago and it has been life changing. It has resolved 4 years of debilitating symptoms, including chronic fatigue. I have faulty D102 and am a poor converter. I was finally taken off levothyroxine following abnormal ECG and tachycardia. I had a scan and
Hi all, I was started on liothyronine only 6 months ago and it has been life changing. It has resolved 4 years of debilitating symptoms, including chronic fatigue. I have faulty D102 and am a poor converter. I was finally taken off levothyroxine following abnormal ECG and tachycardia. I had a scan and
Mhaire
in
Thyroid UK
5 months ago
Would you like to know more about your antiarrhythmic medication?
Upon diagnosis of Atrial fibrillation (AF) many are prescribed antiarrhythmic medication(s). These help to restore the normal (sinus) heart rhythm. They work by blocking specific electrical conduction channels in the heart. Some can slow the activation of the heart muscle, and others slow the recovery
Upon diagnosis of Atrial fibrillation (AF) many are prescribed antiarrhythmic medication(s). These help to restore the normal (sinus) heart rhythm. They work by blocking specific electrical conduction channels in the heart. Some can slow the activation of the heart muscle, and others slow the recovery
TracyAdmin
Partner
in
Atrial Fibrillation Support
5 months ago
Thank god patients live longer, so we need new surrogate parameters to avoid slowing down research
As Patients Live Longer, New Criteria Needed for Prostate Cancer Trials https://news.feinberg.northwestern.edu/2024/01/25/as-patients-live-longer-new-criteria-needed-for-prostate-cancer-trials/
As Patients Live Longer, New Criteria Needed for Prostate Cancer Trials https://news.feinberg.northwestern.edu/2024/01/25/as-patients-live-longer-new-criteria-needed-for-prostate-cancer-trials/
Maxone73
in
Advanced Prostate Cancer
8 months ago
What is my best treatment option?
Details in bio. Summary - Diagnosed June 2021 PSA 331, mets to spine Started Lupron and Abiraterone [u]Stopped treatment June 2023[/u] Since stopping treatment in June 2023, my [u]PSA has risen[/u] along with my testosterone.
PSA 11/2023 1.3
PSA 12/2023
Details in bio. Summary - Diagnosed June 2021 PSA 331, mets to spine Started Lupron and Abiraterone [u]Stopped treatment June 2023[/u] Since stopping treatment in June 2023, my [u]PSA has risen[/u] along with my testosterone.
PSA 11/2023 1.3
PSA 12/2023
davidw777
in
Advanced Prostate Cancer
8 months ago
Atrial Fibrillation
I'm in the process of finding out which blood thinner is best for me. Started with bisoprolol 1.25mg twice daily and feeling ill so have changed to Edoxaban causing cold hands and feet and breathlessness. I feel that my Cardiologist hasn't taken into consideration my other health conditions, i.e. Asthma
I'm in the process of finding out which blood thinner is best for me. Started with bisoprolol 1.25mg twice daily and feeling ill so have changed to Edoxaban causing cold hands and feet and breathlessness. I feel that my Cardiologist hasn't taken into consideration my other health conditions, i.e. Asthma
magriff1
in
Pain Concern
5 months ago
blood test
could anyone help my daughter has liver cirrhosis due to alcohol when she went for her last scan she had her bloods done he said they were slightly better he said when she was due again for her scan he wouldn’t do her bloods as he said if they were better she might drink more surly they should be done
could anyone help my daughter has liver cirrhosis due to alcohol when she went for her last scan she had her bloods done he said they were slightly better he said when she was due again for her scan he wouldn’t do her bloods as he said if they were better she might drink more surly they should be done
Lisad52
in
British Liver Trust
8 months ago
Low O2
CAPS survivor here. Lately my O2 has been consistently between 87% -93% resting and walking. A trip to the ER the other day showed no PE and clear lungs. They want to follow up with pulmonologist but I think it's my blood flow. My lungs feel fine! I'm on warfarin. Anybody else going through this?
CAPS survivor here. Lately my O2 has been consistently between 87% -93% resting and walking. A trip to the ER the other day showed no PE and clear lungs. They want to follow up with pulmonologist but I think it's my blood flow. My lungs feel fine! I'm on warfarin. Anybody else going through this?
grandmagigitovivi
in
Hughes Syndrome APS Forum
5 months ago
Secondary Cancers after CAR-T Cell Therapy
From New England Journal of Medicine dated 24th Jan 2024 (article is for subscribers only) This brief report states: [i]The demonstrated efficacy of the current generation of approved CAR-T products comes along with several well-described safety concerns, including risks of cytokine release syndrome
From New England Journal of Medicine dated 24th Jan 2024 (article is for subscribers only) This brief report states: [i]The demonstrated efficacy of the current generation of approved CAR-T products comes along with several well-described safety concerns, including risks of cytokine release syndrome
Jm954
Administrator
in
CLL Support
8 months ago
Hello
Hello :) My name is Jon and i am a 54 year old man living with Palindromic rheumatism and also now recently diagnosed with Rheumatoid Arthritis as well. I have started taking steroids and naproxen but still struggle in the mornings and wake up in the night with severe pain in my hands and ankle's.
Hello :) My name is Jon and i am a 54 year old man living with Palindromic rheumatism and also now recently diagnosed with Rheumatoid Arthritis as well. I have started taking steroids and naproxen but still struggle in the mornings and wake up in the night with severe pain in my hands and ankle's.
StOsyths1970
in
NRAS
6 months ago
Two weeks after ablation and I'm on the list for a cardioversion
It's two weeks today since I had an ablation for AF. I wasn't in AF before or immediately after the procedure but felt bad on day two with racing irregular pulse, dizziness etc. I had an ecg last week which showed me to be in AF and the arrhythmia nurse has called to let me know and tell me that I've
It's two weeks today since I had an ablation for AF. I wasn't in AF before or immediately after the procedure but felt bad on day two with racing irregular pulse, dizziness etc. I had an ecg last week which showed me to be in AF and the arrhythmia nurse has called to let me know and tell me that I've
JoDogBlue
in
Atrial Fibrillation Support
5 months ago
Malar rash caused by heat?
Hello, just wondering if this looks like a malar rash, and if so, can be triggered by heat as opposed to sunlight? I'm suspected of having cutaneous lupus (awaiting further biopsy) but when I'm very hot e.g. out of the bath, in a warm building, my face will flush. I'm careful in the sun anyway - hats
Hello, just wondering if this looks like a malar rash, and if so, can be triggered by heat as opposed to sunlight? I'm suspected of having cutaneous lupus (awaiting further biopsy) but when I'm very hot e.g. out of the bath, in a warm building, my face will flush. I'm careful in the sun anyway - hats
Nome11
in
LUPUS UK
6 months ago
Orgovyx and its side effects on the heart's electrical system
I've been taking Orgovyx for over two years with few side effects. But I have been experiencing episodes of dizziness and light-headedness over the last few months. My cardiologist has diagnosed bradycardia (a slow heart beat that can cause such episodes). I will need a pacemaker. I know a side effect
I've been taking Orgovyx for over two years with few side effects. But I have been experiencing episodes of dizziness and light-headedness over the last few months. My cardiologist has diagnosed bradycardia (a slow heart beat that can cause such episodes). I will need a pacemaker. I know a side effect
Boonster
in
Advanced Prostate Cancer
5 months ago
INR meter
Hi all, I had a stroke when I was 27 years old and 10 years later I got diagnosed with Palindromic Rheumatism, a form or Arthritis. With both, current medication is Warfarin and X is required. I feel limited about the regular INR control lead by coagulation variability. Thinking to get an INR meter
Hi all, I had a stroke when I was 27 years old and 10 years later I got diagnosed with Palindromic Rheumatism, a form or Arthritis. With both, current medication is Warfarin and X is required. I feel limited about the regular INR control lead by coagulation variability. Thinking to get an INR meter
HectorManzanoDiaz
in
Anticoagulation Support
5 months ago
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