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Has anyone been diagnosed with an autoimmune condition without having positive blood tests? I've been trying in vain since 2006, got most of lupus symptoms but Ana either 1:180 or negative and other tests negative .
Has anyone been diagnosed with an autoimmune condition without having positive blood tests? I've been trying in vain since 2006, got most of lupus symptoms but Ana either 1:180 or negative and other tests negative .
catblue1865
in
LUPUS UK
6 months ago
Haematologists consultant
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Windyway
in
Pernicious Anaemia Society
6 months ago
I am still struggling with treatment decisions - Help please.
I am struggling to decide on my treatment. The main point of conflict is HT or not, and LDR Brachytherapy (if I am eligible - because of a previous HOLEP) or IMRT. I also wonder if I should push hard for a 10-day earlier consultation at the risk of bad feeling. I welcome advice. In the UK - Referral
I am struggling to decide on my treatment. The main point of conflict is HT or not, and LDR Brachytherapy (if I am eligible - because of a previous HOLEP) or IMRT. I also wonder if I should push hard for a 10-day earlier consultation at the risk of bad feeling. I welcome advice. In the UK - Referral
Nordman
in
Advanced Prostate Cancer
8 months ago
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Testosterone and adrenal glands
Hello all, so I finished 10 rounds of chemo docetaxel last year in September. My PSA was down to 2.8 Oct 5th. I had an orchiectomy Oct 15. My PSA started to rise. Nov 5th PSA 5.15. Dec 6th PSA 7.85. Jan 11 PSA 16.23 I have had CT and bone scan early October and another set of scans early January
Hello all, so I finished 10 rounds of chemo docetaxel last year in September. My PSA was down to 2.8 Oct 5th. I had an orchiectomy Oct 15. My PSA started to rise. Nov 5th PSA 5.15. Dec 6th PSA 7.85. Jan 11 PSA 16.23 I have had CT and bone scan early October and another set of scans early January
Eugmn
in
Advanced Prostate Cancer
8 months ago
Mirtazapine
I am taking Mirtazapine for anxiety and it has reduced my tremor quite a bit has anyone else found this?
I am taking Mirtazapine for anxiety and it has reduced my tremor quite a bit has anyone else found this?
percalona
in
Cure Parkinson's
8 months ago
Traclamus levels are high
I'm taking traclamus 3mg in the morning and 2mg at night consultant phoned 2day and says the level has gone up to 6 got to have another blood test in next 6wks he didn't mention he was worried about it but i am had my transplant in 2018 anyone on here to help also if he lowers the traclamus will it
I'm taking traclamus 3mg in the morning and 2mg at night consultant phoned 2day and says the level has gone up to 6 got to have another blood test in next 6wks he didn't mention he was worried about it but i am had my transplant in 2018 anyone on here to help also if he lowers the traclamus will it
Shaunwood
in
British Liver Trust
8 months ago
Barry
Hi, Diagnosed with advanced prostate cancer gleeson score 4+4, psa level 77, about 10 months ago on testosterone injections every 6 months (degarelix) , wondering how long i can go on like this before cancer comes back to bones and what will be my options then, can you survive for many years on just
Hi, Diagnosed with advanced prostate cancer gleeson score 4+4, psa level 77, about 10 months ago on testosterone injections every 6 months (degarelix) , wondering how long i can go on like this before cancer comes back to bones and what will be my options then, can you survive for many years on just
littlemount
in
Advanced Prostate Cancer
8 months ago
PCA Cure and when?
7 months into my fight against castration sensitive prostate cancer. PSA is 0 on ADT and Abiraterone and methylprednisolone. Averaged 8,600 steps/day. I have just started to add occasional sprinting. I am taking multiple supplements. I am greatful that my PSA is 0. I work everyday and pray for
7 months into my fight against castration sensitive prostate cancer. PSA is 0 on ADT and Abiraterone and methylprednisolone. Averaged 8,600 steps/day. I have just started to add occasional sprinting. I am taking multiple supplements. I am greatful that my PSA is 0. I work everyday and pray for
Nowhereman9
in
Advanced Prostate Cancer
8 months ago
14 months post Successful Ablation & increasing Arrythmias.
Hi I am getting Arrythmias with increasing regularity after ablation Feb 23.Last talk with Arrythmia Nurse was Atrial ectopics with pause.My readings now seem to have chucked in a couple of premature beats. It feels like I am having AFib symptoms.Light headed,dizzy, exhausted but not all the time. Where
Hi I am getting Arrythmias with increasing regularity after ablation Feb 23.Last talk with Arrythmia Nurse was Atrial ectopics with pause.My readings now seem to have chucked in a couple of premature beats. It feels like I am having AFib symptoms.Light headed,dizzy, exhausted but not all the time. Where
kkatz
in
Atrial Fibrillation Support
5 months ago
A return of the dreaded mongrel .......... ????? Part 2
Well, made contact with surgery ( I was 10th in the queue ) couldn't talk to anyone ( GP or Pharmacist ). Left a message and a return phone call a few hours later told me to take 2 blood pressure readings am and pm. for the next 7 days. Excellent stalling practice ! So, I've decided on a more aggressive
Well, made contact with surgery ( I was 10th in the queue ) couldn't talk to anyone ( GP or Pharmacist ). Left a message and a return phone call a few hours later told me to take 2 blood pressure readings am and pm. for the next 7 days. Excellent stalling practice ! So, I've decided on a more aggressive
BenHall1
in
Atrial Fibrillation Support
5 months ago
PBC/AIH
Hi I habe PBC crossovered with AiH . I understand it’s not hereditary but can run in families . Nobody else in my family has this (that I know of ) should my siblings / children go and get their bloods done ? I wasn’t diagnosed until i had stage 4 cirrhosis… as i had no symptoms , this was picked
Hi I habe PBC crossovered with AiH . I understand it’s not hereditary but can run in families . Nobody else in my family has this (that I know of ) should my siblings / children go and get their bloods done ? I wasn’t diagnosed until i had stage 4 cirrhosis… as i had no symptoms , this was picked
She-66
in
British Liver Trust
8 months ago
PBC/AIH
Hi I habe PBC crossovered with AiH . I understand it’s not hereditary but can run in families . Nobody else in my family has this (that I know of ) should my siblings / children go and get their bloods done ? I wasn’t diagnosed until i had stage 4 cirrhosis… as i had no symptoms , this was picked up
Hi I habe PBC crossovered with AiH . I understand it’s not hereditary but can run in families . Nobody else in my family has this (that I know of ) should my siblings / children go and get their bloods done ? I wasn’t diagnosed until i had stage 4 cirrhosis… as i had no symptoms , this was picked up
She-66
in
PBC Foundation
8 months ago
A quick update for those that remember my recent posts about the Ablation complications!
Ablation 16/3, artery got damaged, 3 outpatient appointments, 2 failed attempts at thrombin infusion under ultrasound, emergency 3 day admission to hospital with emergency pseudoaneurysm and arteriovenous fistula repair (pretty major surgery involving patching the damaged artery with cow veins) . Most
Ablation 16/3, artery got damaged, 3 outpatient appointments, 2 failed attempts at thrombin infusion under ultrasound, emergency 3 day admission to hospital with emergency pseudoaneurysm and arteriovenous fistula repair (pretty major surgery involving patching the damaged artery with cow veins) . Most
AmandaLouise77
in
Atrial Fibrillation Support
5 months ago
Rheumatoid arthritis
Hi I'm on prednisone and leflunomide vid d and jyseleca I have come up with a high temp and a fever, please tell me can I take any pain killers my body is killing me
Hi I'm on prednisone and leflunomide vid d and jyseleca I have come up with a high temp and a fever, please tell me can I take any pain killers my body is killing me
Alisa123
in
NRAS
6 months ago
How maternal lupus affects the child
All moms, please fill out this survey. It won't take long and you'll be the part of a research aimed at determining how maternal lupus may be related to the development of allergies in the child.Your help will be very appreciated. Thank you! ☺ https://forms.gle/kRVd79WSpzA6Gf3n9
All moms, please fill out this survey. It won't take long and you'll be the part of a research aimed at determining how maternal lupus may be related to the development of allergies in the child.Your help will be very appreciated. Thank you! ☺ https://forms.gle/kRVd79WSpzA6Gf3n9
gabriele_klim
in
LUPUS UK
6 months ago
Is it harmful if you have an autoimmune disease and take Low Dose Naltrexone (LDN) twice a day?
Is it harmful if you have an autoimmune disease and take Low Dose Naltrexone (LDN) twice a day? Answered by Michelle Kilmer Moser RPh https://youtu.be/Wtr69oDmM7Q
Is it harmful if you have an autoimmune disease and take Low Dose Naltrexone (LDN) twice a day? Answered by Michelle Kilmer Moser RPh https://youtu.be/Wtr69oDmM7Q
Shewulf
Administrator
in
LDN Research Trust
6 months ago
Advanced Prostate Cancer
I have Advanced prostate cancer. Prostate removed, radiation, lupron for the last 4 years, Now I am on abiraterone with the lupron, because PSA was up . See Dr in Feb to see if PSA is stable Is anyone else on the 2 drugs Thank you Mark
I have Advanced prostate cancer. Prostate removed, radiation, lupron for the last 4 years, Now I am on abiraterone with the lupron, because PSA was up . See Dr in Feb to see if PSA is stable Is anyone else on the 2 drugs Thank you Mark
Retrievertrainer
in
Advanced Prostate Cancer
8 months ago
Bob @ 100
Hello group Some time since I posted as I had a flutter ablation 4 years ago and have had no symptoms since. Recently I have started to get a high heart rate about 140 beats which I can control with Verapamil 120 mg taken as pip. which I was given after my flutter procedure, (out of date now but all
Hello group Some time since I posted as I had a flutter ablation 4 years ago and have had no symptoms since. Recently I have started to get a high heart rate about 140 beats which I can control with Verapamil 120 mg taken as pip. which I was given after my flutter procedure, (out of date now but all
bobpitt
in
Atrial Fibrillation Support
5 months ago
Nebivolol and cold toes/fingers?
I'm still suffering badly with cold extremities on Bisoprolol, does anyone that takes Nebivolol experience similar issues at all?
I'm still suffering badly with cold extremities on Bisoprolol, does anyone that takes Nebivolol experience similar issues at all?
kitenski
in
Atrial Fibrillation Support
5 months ago
I am 53 and require an ICD
I am 53 and require an ICD and scared but also want and need to continue an active life. Currently in Atrial Fibrillation and a degree of heart block. I also have a cardiac Gene that causes issues with conduction and cardiomyopathy. Looking for reassurance and normality and would like to live till at
I am 53 and require an ICD and scared but also want and need to continue an active life. Currently in Atrial Fibrillation and a degree of heart block. I also have a cardiac Gene that causes issues with conduction and cardiomyopathy. Looking for reassurance and normality and would like to live till at
Pottsgene
in
Heart Rhythm Disorders Support
5 months ago
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