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Interstitial lung disease (ILD)
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Bevacizumab v Niraparib
I've had chemo/debulking surgery/ chemo, and have just come to the end of the post surgery chemo. I've been told all along that I will continue with Bevacizumab as a maintenance treatment (I've had 3 rounds of it alongside chemo, 2 before the surgery and 1 after). I caught COVID towards the end of
I've had chemo/debulking surgery/ chemo, and have just come to the end of the post surgery chemo. I've been told all along that I will continue with Bevacizumab as a maintenance treatment (I've had 3 rounds of it alongside chemo, 2 before the surgery and 1 after). I caught COVID towards the end of
LovemyJackRussell
in
My Ovacome
5 months ago
Vasculitis Specialist Advice/Direction Please
Hi,I was diagnosed with IGA Vasculitis mid -December. This was diagnosed after a hospital stay and kidney biopsy. Upon reflection I think I have had this for some time and am trying to piece everything together. Have started a 6 month treatment course in a bid to get it to remission stage at which point
Hi,I was diagnosed with IGA Vasculitis mid -December. This was diagnosed after a hospital stay and kidney biopsy. Upon reflection I think I have had this for some time and am trying to piece everything together. Have started a 6 month treatment course in a bid to get it to remission stage at which point
Daisyboodle
in
Vasculitis UK
8 months ago
Rising PSA
Going into 7 years. No prostate. ADT on and off. Recently while on Lupron & NUBEQA PSA continues to rise. Now at 10.1 and Testosterone nondectable. PSMA/PET/CT scan last weeks states no metastases present. We meet with Dr. Aggarwal next week. Last month at our visit he told us at this point “Scans
Going into 7 years. No prostate. ADT on and off. Recently while on Lupron & NUBEQA PSA continues to rise. Now at 10.1 and Testosterone nondectable. PSMA/PET/CT scan last weeks states no metastases present. We meet with Dr. Aggarwal next week. Last month at our visit he told us at this point “Scans
JolleySprings
in
Advanced Prostate Cancer
8 months ago
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Hi.....again
Hi everyone, My partners liver cirrhosis had disappeared - to look at him you wouldn't know anything was wrong, he's on medication and for a while everything was good. Now he's developing a hard tummy again, I'm now worried that something is very wrong as he hasn't drank since he went to hospital back
Hi everyone, My partners liver cirrhosis had disappeared - to look at him you wouldn't know anything was wrong, he's on medication and for a while everything was good. Now he's developing a hard tummy again, I'm now worried that something is very wrong as he hasn't drank since he went to hospital back
Stephsmumlou
in
British Liver Trust
8 months ago
chemo and genetic testing questions
My husband’s genetic testing of the biopsies came back. It’s 19 pages and I am having a super difficult time interpreting. His Oncologist Urologist is overwhelmed with duties and we probably won’t get reviewed at the level we need. attaching the executive summary. They said he tests positive for SPOP
My husband’s genetic testing of the biopsies came back. It’s 19 pages and I am having a super difficult time interpreting. His Oncologist Urologist is overwhelmed with duties and we probably won’t get reviewed at the level we need. attaching the executive summary. They said he tests positive for SPOP
Sunnysailor
in
Advanced Prostate Cancer
5 months ago
newbie
hello there, I’m Steve. I have been living with auto immune liver disease for 20+ years now and I was recommended to join by a social prescriber at my local doctors surgery today! I’m just looking for support from people with autoimmune hepatitis and other liver conditions, who have found it difficult
hello there, I’m Steve. I have been living with auto immune liver disease for 20+ years now and I was recommended to join by a social prescriber at my local doctors surgery today! I’m just looking for support from people with autoimmune hepatitis and other liver conditions, who have found it difficult
Northernsouthener31
in
British Liver Trust
6 months ago
Hydroxychloroquine toxic retinopathy
Hi. I have had Lupus for 22 years and been on Hydroxychloroquine 400mg daily since then plus 2mg Prednisolone. Recent eye tests have shown that the Hydroxy is affecting the retina. I was warned at the outset, that it can affect eyes, but it still a bit of a shock. Opthamology Consultant says I must
Hi. I have had Lupus for 22 years and been on Hydroxychloroquine 400mg daily since then plus 2mg Prednisolone. Recent eye tests have shown that the Hydroxy is affecting the retina. I was warned at the outset, that it can affect eyes, but it still a bit of a shock. Opthamology Consultant says I must
Juniperm
in
LUPUS UK
6 months ago
Statins
Back in 2008, I was diagnosed with AFIB and, after an echo, was also told that I had a bicuspid aortic valve. An ablation in 2018 lasted only 8 months and I was soon back in afib and back on rhythm and rate meds. Fast forward to this past March when I got Covid and my paroxysmal afib turned to persistent
Back in 2008, I was diagnosed with AFIB and, after an echo, was also told that I had a bicuspid aortic valve. An ablation in 2018 lasted only 8 months and I was soon back in afib and back on rhythm and rate meds. Fast forward to this past March when I got Covid and my paroxysmal afib turned to persistent
Jafib
in
Atrial Fibrillation Support
6 days ago
Paul's last day today
Today is Paul Howard's last day at LUPUS UK after 13 years at the charity. Please join us in sending him our very best wishes for the future. Thank you for everything you have done for the lupus community. You will be very much missed!
Today is Paul Howard's last day at LUPUS UK after 13 years at the charity. Please join us in sending him our very best wishes for the future. Thank you for everything you have done for the lupus community. You will be very much missed!
Debbie_kinsey
Administrator
in
LUPUS UK
6 months ago
Losartan
Have been on Losartan 100mg for a long time and most mornings I seem to be often clearing my throat. I looked up on Google was this a symptom of the drug and read to my horror that Losartan had been recalled because of cancer scares! I haven't been told by the pharmacist of any such problem. I hope it
Have been on Losartan 100mg for a long time and most mornings I seem to be often clearing my throat. I looked up on Google was this a symptom of the drug and read to my horror that Losartan had been recalled because of cancer scares! I haven't been told by the pharmacist of any such problem. I hope it
valthomas15
in
Atrial Fibrillation Support
11 days ago
AF ‘paranoia’ - echocardiogram
I don’t really know what to call it but I’m suffering from the feeling you get when you’ve had a test, know the tester can’t tell you anything but are trying to work out whether they gave you a hint or not 🤔 I was just about to phone cardiology to ask whether my echo had been booked at all as I’d had
I don’t really know what to call it but I’m suffering from the feeling you get when you’ve had a test, know the tester can’t tell you anything but are trying to work out whether they gave you a hint or not 🤔 I was just about to phone cardiology to ask whether my echo had been booked at all as I’d had
Buffafly
in
Atrial Fibrillation Support
12 days ago
Fatty Liver -Pain
Hi, I have had NAFLD for several years but have just started to get pain with it. I think it may have moved to NASH and possibly fibrosis or cirrhosis (nothing has confirmed that officially yet). I had a blood test and the doctor said that the liver function number was raised more so than usual. It
Hi, I have had NAFLD for several years but have just started to get pain with it. I think it may have moved to NASH and possibly fibrosis or cirrhosis (nothing has confirmed that officially yet). I had a blood test and the doctor said that the liver function number was raised more so than usual. It
IronPilgrim
in
British Liver Trust
8 months ago
is this possible?
My son died at the age of 36 in the USA in September 2023. He had been alcohol dependent but had finally managed to stop drinking a month before, and his liver results were steadily improving . He woke up one Sunday bright yellow but feeling fine and it took his wife 48 hours to persuade him to go to
My son died at the age of 36 in the USA in September 2023. He had been alcohol dependent but had finally managed to stop drinking a month before, and his liver results were steadily improving . He woke up one Sunday bright yellow but feeling fine and it took his wife 48 hours to persuade him to go to
Tortoise57
in
British Liver Trust
8 months ago
Rising PSA -
Diagnosed: May 2021 age 53 otherwise no health issues. Only symptom was increased urination that progressed to painful urination and inability to fully empty bladder. Highest PSA was 5. MRI showed Mets to pelvic lymph, seminal vessels, and pelvic bone. Gleason 4+3 (80% of samples) 4+5 for 10%. CT
Diagnosed: May 2021 age 53 otherwise no health issues. Only symptom was increased urination that progressed to painful urination and inability to fully empty bladder. Highest PSA was 5. MRI showed Mets to pelvic lymph, seminal vessels, and pelvic bone. Gleason 4+3 (80% of samples) 4+5 for 10%. CT
MPCSUX
in
Advanced Prostate Cancer
8 months ago
ASCO GU 2024 program
Ok! Here you go, but prostate cancer is only on day 1 https://conferences.asco.org/gu/program
Ok! Here you go, but prostate cancer is only on day 1 https://conferences.asco.org/gu/program
Maxone73
in
Advanced Prostate Cancer
8 months ago
Support Group for Dialysis Patients Thursday night 6pm EST
This is YaMarie from Virtual Dialysis Support Center sending you an invitation to our Support Group Meeting on Thursday at 6pm. This time, we are featuring Dr. Olaf Kroneman, who will answer any kidney questions you might have. He is a board-certified nephrologist, and we will also have random drawings
This is YaMarie from Virtual Dialysis Support Center sending you an invitation to our Support Group Meeting on Thursday at 6pm. This time, we are featuring Dr. Olaf Kroneman, who will answer any kidney questions you might have. He is a board-certified nephrologist, and we will also have random drawings
Bassetmommer
in
Kidney Dialysis
8 months ago
Fighting for corrections is so hard.
I am coming up on the one year of my wife's passing. On this day last year, she was sitting in her hospital bed eating frozen fruit. She was at 99% Sat with 1l of O2, and the plan was to turn it off in the morning. LFT's bang on Normal. Indirect Billi is still high, direct normal. Albumin low Plat low
I am coming up on the one year of my wife's passing. On this day last year, she was sitting in her hospital bed eating frozen fruit. She was at 99% Sat with 1l of O2, and the plan was to turn it off in the morning. LFT's bang on Normal. Indirect Billi is still high, direct normal. Albumin low Plat low
ceward204
in
British Liver Trust
8 months ago
A proposed metabolic treatment for prostate cancer, (theoretical only) using drugs approved for other conditions
See the PaSTe regimen below: pantoprozole (a drug currently used to reduce stomach acid), simvastatin (a statin used to reduce cholesterol), trimetazidine (a drug used to treat angina attacks). PaSTe. Blockade of the Lipid Phenotype of Prostate Cancer as Metabolic Therapy: A Theoretical Proposal
See the PaSTe regimen below: pantoprozole (a drug currently used to reduce stomach acid), simvastatin (a statin used to reduce cholesterol), trimetazidine (a drug used to treat angina attacks). PaSTe. Blockade of the Lipid Phenotype of Prostate Cancer as Metabolic Therapy: A Theoretical Proposal
Graham49
in
Advanced Prostate Cancer
8 months ago
Husband's heart issues
My husband has a long history of heart issues, angioplasty and stents 2005 after 2nd MI (we have no idea when the first was as no symptoms), Permanent AF 2012. Aortic incompetence/ stenosis for years, sleep apnoea.Sep 23 cardiologist felt intervention for aortic valve necessary but needed angiogram before
My husband has a long history of heart issues, angioplasty and stents 2005 after 2nd MI (we have no idea when the first was as no symptoms), Permanent AF 2012. Aortic incompetence/ stenosis for years, sleep apnoea.Sep 23 cardiologist felt intervention for aortic valve necessary but needed angiogram before
Bagrat
in
Atrial Fibrillation Support
17 days ago
Plant-based raw food diet eases symptoms of SLE, Sjögren’s: Report
More research needed into diet's role in autoimmune disease Three women with the autoimmune conditions systemic lupus erythematosus (SLE) and Sjögren’s syndrome saw their symptoms ease after starting a diet rich in plant-based raw foods, according to a recent case series report. The diet included
More research needed into diet's role in autoimmune disease Three women with the autoimmune conditions systemic lupus erythematosus (SLE) and Sjögren’s syndrome saw their symptoms ease after starting a diet rich in plant-based raw foods, according to a recent case series report. The diet included
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
6 months ago
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