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Experiences with
Interferon
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Problems with the sun/heat
I used to love the sun when I used to live in southern Italy it got to the forty's in the summer but since I changed years ago from hydrea to
interferon
then pegasys and now jakafi, I just seem to get really sick and have really bad headaches that last for days after being out say fishing or just going
I used to love the sun when I used to live in southern Italy it got to the forty's in the summer but since I changed years ago from hydrea to
interferon
then pegasys and now jakafi, I just seem to get really sick and have really bad headaches that last for days after being out say fishing or just going
Rastavapa
in
MPN Voice
6 years ago
Anybody pregnant and on Interferon
Hello, I am Valentina, diagnosed ET, currently 10 week pregnant and just started Iterferon alpha 2b (Intron A). I am a bit scared for my baby and the side effect first time were pretty rough. I could be very happy if there are some women who went or are going thru simmilar...
Hello, I am Valentina, diagnosed ET, currently 10 week pregnant and just started Iterferon alpha 2b (Intron A). I am a bit scared for my baby and the side effect first time were pretty rough. I could be very happy if there are some women who went or are going thru simmilar...
Rani36
in
MPN Voice
6 years ago
This is sort of obvious
I will try to keep the old stuff brief. 1. wear your protective underwear, DEPENDS are my choice. 2. take a Disease Modifying Therapy (DMT) My 3rd one is Tecfidera, originally Betaferon then
interferon
beta 1a, not Avonex the 3x a week one, Now Tecfidera.
I will try to keep the old stuff brief. 1. wear your protective underwear, DEPENDS are my choice. 2. take a Disease Modifying Therapy (DMT) My 3rd one is Tecfidera, originally Betaferon then
interferon
beta 1a, not Avonex the 3x a week one, Now Tecfidera.
RoyceNewton
in
My MSAA Community
6 years ago
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VonWillebrand and Pegasys Interferon
At the appointment they said I should remain on my baby aspirin a day and wouldn't need treatment until I was older for my ET (CALR+) (I am 41) This week they called back saying that my Von Willbrand factor was on the low end and wanted to start treatment right away with Pegasys
Interferon
.
At the appointment they said I should remain on my baby aspirin a day and wouldn't need treatment until I was older for my ET (CALR+) (I am 41) This week they called back saying that my Von Willbrand factor was on the low end and wanted to start treatment right away with Pegasys
Interferon
.
2017S
in
MPN Voice
6 years ago
Encouraging trial results re MF
Remember Ropeg is around the corner which should reduce
Interferon
related side effects. “Follow‐up was 12 months. Partial remission (PR) and sustained CHR were achieved in 9% and 44% of PV patients, respectively.
Remember Ropeg is around the corner which should reduce
Interferon
related side effects. “Follow‐up was 12 months. Partial remission (PR) and sustained CHR were achieved in 9% and 44% of PV patients, respectively.
Paul123456
in
MPN Voice
6 years ago
Hydroxy intolerant - Pegylated Interferon next?
I am just wondering if I should try Pegylated
Interferon
because I have been so debilitated by the hydroxy and fed up of my haema telling me it's nothing to do with the drug or the condition.
I am just wondering if I should try Pegylated
Interferon
because I have been so debilitated by the hydroxy and fed up of my haema telling me it's nothing to do with the drug or the condition.
JackLina
in
MPN Voice
6 years ago
Dr's give me no hope. I need help!
Everson at UCH CO. 5 rounds of
interferon
A, pegalated
interferon
and riboviran and betaseron and my genotype 2 didn't respond. Dr.
Everson at UCH CO. 5 rounds of
interferon
A, pegalated
interferon
and riboviran and betaseron and my genotype 2 didn't respond. Dr.
TaraRae
in
Hughes Syndrome APS Forum
6 years ago
Lilly1958
I have Et for 26 years only on aspirin and platets was 400-500, but after holidej (long flight) my hct go up to 48 and put me on venosection for8 month , was bad and put me on
interferon
weakly (only 5 weaks) and my old hemo. Told me I have PV, witaut BMB. He sad no need Bmb.Now I have new hemo.
I have Et for 26 years only on aspirin and platets was 400-500, but after holidej (long flight) my hct go up to 48 and put me on venosection for8 month , was bad and put me on
interferon
weakly (only 5 weaks) and my old hemo. Told me I have PV, witaut BMB. He sad no need Bmb.Now I have new hemo.
Lilly1958
in
MPN Voice
6 years ago
severe fibrosis of the liver And Hep c
on the 13 June , As I have gone through the
interferon
injunctions which was no so plasant experience now I am worried despite they saying there is no side effects etc , Will I be able to work and do my daily activities?
on the 13 June , As I have gone through the
interferon
injunctions which was no so plasant experience now I am worried despite they saying there is no side effects etc , Will I be able to work and do my daily activities?
Yousafk
in
Hepatitis C Trust
6 years ago
A nasty inconvenience or a monster, you choose
My wife of the time immediately divorced me I changed countries and was put on
Interferon
Beta1B. I really had no choice, my Grandmother and Mother said so, I was at their houses at the time. From their I started to learn everything I could about this illness.
My wife of the time immediately divorced me I changed countries and was put on
Interferon
Beta1B. I really had no choice, my Grandmother and Mother said so, I was at their houses at the time. From their I started to learn everything I could about this illness.
RoyceNewton
in
My MSAA Community
6 years ago
My TSH is apparently in the abnormal range at 0.24. Does this mean i am being over medicated?
The
interferon
injections, which boost the body's immune system to kill of the virus, unfortunately also attacked my thyroid. I thought i felt so ill due to the treatment, but when they finally checked my thyroid, my TSH was 86.1!
The
interferon
injections, which boost the body's immune system to kill of the virus, unfortunately also attacked my thyroid. I thought i felt so ill due to the treatment, but when they finally checked my thyroid, my TSH was 86.1!
Hidden
in
Thyroid UK
6 years ago
Ramblings on Pre-PMF and early stage MF
Can I suggest that anyone thinking about Pegasys watches this recent video panel discussion between two
Interferon
bulls.
Can I suggest that anyone thinking about Pegasys watches this recent video panel discussion between two
Interferon
bulls.
Paul123456
in
MPN Voice
6 years ago
Interferon vs viral drugs - side effects/ experiences/impact on every day life
Hi all My consultant asked me to choose if I wish to start injections (interferons) or tablets (viral drugs). Information online is overwhelming. I would like to hear some real life experiences and how you coped with the side-effects/ changes you had to make to your life-style etc. Thank you
Hi all My consultant asked me to choose if I wish to start injections (interferons) or tablets (viral drugs). Information online is overwhelming. I would like to hear some real life experiences and how you coped with the side-effects/ changes you had to make to your life-style etc. Thank you
Hidden
in
Hepatitis B Trust
6 years ago
Travel with Interferon plus other things
I was diagnosed with CALR ET two years ago and was on Hydroxrea and the last 6 weeks have been on Pegasys. I have a couple of queries: When you travel with the injections and they need to be kept cool how have you done this? Someone suggested a small car fridge, someone else said a cool bag with ice
I was diagnosed with CALR ET two years ago and was on Hydroxrea and the last 6 weeks have been on Pegasys. I have a couple of queries: When you travel with the injections and they need to be kept cool how have you done this? Someone suggested a small car fridge, someone else said a cool bag with ice
AnitaJ
in
MPN Voice
6 years ago
Help needed pls
And when they do I will have
interferon
injection to lower my platelets again. I also got some bad news today regarding my bone marrow biopsy. Apparently I have an early stage of Myelofibrosis called prefibrotic Primary Myelofibrosis. I am really scared and confused.
And when they do I will have
interferon
injection to lower my platelets again. I also got some bad news today regarding my bone marrow biopsy. Apparently I have an early stage of Myelofibrosis called prefibrotic Primary Myelofibrosis. I am really scared and confused.
Elab
in
MPN Voice
6 years ago
EMA approval for ropeginterferon alpha2b?
Hi, I found a article dated 11/06 on businesswire.com with the headline : AOP Orphan Announces Progress of its European Marketing Authorization Procedure of Ropeginterferon alfa-2b The article mentions that The EUropean Medical Agency will make a final decision on whether Ropeg can be marketed in the
Hi, I found a article dated 11/06 on businesswire.com with the headline : AOP Orphan Announces Progress of its European Marketing Authorization Procedure of Ropeginterferon alfa-2b The article mentions that The EUropean Medical Agency will make a final decision on whether Ropeg can be marketed in the
JohnSC
in
MPN Voice
6 years ago
Interferon alpha /babies
My partner is 35 and on
interferon
alpha 3 times a week , he is prv,et, jak2 pos . Does anyone know about fathering babies whilst on injections as this was never mentioned to us when he was diagnosed and we are now wanting to try for another baby
My partner is 35 and on
interferon
alpha 3 times a week , he is prv,et, jak2 pos . Does anyone know about fathering babies whilst on injections as this was never mentioned to us when he was diagnosed and we are now wanting to try for another baby
Brook04
in
MPN Voice
6 years ago
First Treatment of Peg
I had no initial reaction to the
interferon
jab, and after 30 mins of sitting in the clinic I left feeling nicely stoned. Within about 20 mins I was really hot but this subsided and I reached home in good form. I’ve had some side effects mostly slow coming on.
I had no initial reaction to the
interferon
jab, and after 30 mins of sitting in the clinic I left feeling nicely stoned. Within about 20 mins I was really hot but this subsided and I reached home in good form. I’ve had some side effects mostly slow coming on.
Mackydee123
in
MPN Voice
6 years ago
I'm new here, Interferon and ear ringing (ototoxicity)?
As some research points to superiority of
Interferon
in terms of disease progression I've tried Pegintron (90mcg) right after diagnosis and tried it another time (this time Roferon-A 3x3) last week.
As some research points to superiority of
Interferon
in terms of disease progression I've tried Pegintron (90mcg) right after diagnosis and tried it another time (this time Roferon-A 3x3) last week.
adiummy
in
MPN Voice
6 years ago
Ropeginterferon
Remember the problem with
Interferon
has been some patients really struggle with the side effects https://www.youtube.com/watch?v=nDVFEnYu7xk&sns=em
Remember the problem with
Interferon
has been some patients really struggle with the side effects https://www.youtube.com/watch?v=nDVFEnYu7xk&sns=em
Paul123456
in
MPN Voice
6 years ago
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