Search
Search
About
Log in
Join
Experiences with
Interferon
Posts
Communities
1,095 public posts
Filter results
Interferon
I'm about to start
interferon
treatment for ET. I need to learn to inject myself. I'm a bit overwhelmed right now and concerned about side effects. Will I need time off work? Any helpful hints on how best to manage?
I'm about to start
interferon
treatment for ET. I need to learn to inject myself. I'm a bit overwhelmed right now and concerned about side effects. Will I need time off work? Any helpful hints on how best to manage?
Otis23
in
MPN Voice
7 days ago
Pain in heels.. Interferon related or not?
Hi, just wondering if anyone has had painful heels especially when walking while being on
Interferon
? I’ve been on
interferon
for around 9 months and every so often I struggle to walk due to the pain, it does ease off and it happens randomly. I didn’t have this before taking
interferon
.
Hi, just wondering if anyone has had painful heels especially when walking while being on
Interferon
? I’ve been on
interferon
for around 9 months and every so often I struggle to walk due to the pain, it does ease off and it happens randomly. I didn’t have this before taking
interferon
.
beckyluck
in
MPN Voice
2 months ago
Depression and peg interferon
Just wondered if anyone in a similar boat has started on the
interferon
as I know it has a known side effect of causing depressive moods. Tim
Just wondered if anyone in a similar boat has started on the
interferon
as I know it has a known side effect of causing depressive moods. Tim
Timjonze
in
MPN Voice
27 days ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Interferon alpha
My doctor has suggested putting me on
Interferon
Alpha and sent me the leaflet guide from MPN voice. The side affects seem vast and in all honesty, quite scary.
My doctor has suggested putting me on
Interferon
Alpha and sent me the leaflet guide from MPN voice. The side affects seem vast and in all honesty, quite scary.
Carlalawoo
in
MPN Voice
2 months ago
”low risk” interferon trials
Hi all, just wondering if any folks who have been tagged “low risk” by your care team have tried
interferon
treatment. I’m a 36 y/o female with PV (60% jak2 mutation), otherwise good health.
Hi all, just wondering if any folks who have been tagged “low risk” by your care team have tried
interferon
treatment. I’m a 36 y/o female with PV (60% jak2 mutation), otherwise good health.
TwinMom88
in
MPN Voice
6 days ago
interferon
Happy new year to all Now Christmas is over my next appointment is looming on January 5th. I am to discuss whether to start Peg . I have ET and have been on 500 hydroxycarbomide daily for over 3 years Although this brought my platelets down from over 1000 they have stayed around late 700s mid 800s
Happy new year to all Now Christmas is over my next appointment is looming on January 5th. I am to discuss whether to start Peg . I have ET and have been on 500 hydroxycarbomide daily for over 3 years Although this brought my platelets down from over 1000 they have stayed around late 700s mid 800s
jodary
in
MPN Voice
5 months ago
Allele Burden
Doe PV or
Interferon
affect the liver?
Doe PV or
Interferon
affect the liver?
shiftzz
in
MPN Voice
3 months ago
Interferon reaction
I started
interferon
back in August and it's going okay. I am having a reaction at the injection site. My skin is rash looking, bright red and dry. Is there anything that works?
I started
interferon
back in August and it's going okay. I am having a reaction at the injection site. My skin is rash looking, bright red and dry. Is there anything that works?
RuaSaoirse
in
MPN Voice
3 months ago
9 months on interferon
Does anybody have experience of their counts stabilising on
interferon
and if so, how long did you stay with the same dose or how long before you started to reduce the dose a bit? I'm naturally curious about the different experiences people have on
interferon
.
Does anybody have experience of their counts stabilising on
interferon
and if so, how long did you stay with the same dose or how long before you started to reduce the dose a bit? I'm naturally curious about the different experiences people have on
interferon
.
Skyehope
in
MPN Voice
26 days ago
Interferon dose.
I started peg
interferon
on Jan 2nd this year. I seen a haemotologist, not the one that had prescribed it, on the 31st Jan. I was injecting 45mcg a week for them four weeks. My platelets showed no change so he immediately upped the dose to 90mcg a week.
I started peg
interferon
on Jan 2nd this year. I seen a haemotologist, not the one that had prescribed it, on the 31st Jan. I was injecting 45mcg a week for them four weeks. My platelets showed no change so he immediately upped the dose to 90mcg a week.
conno61
in
MPN Voice
3 months ago
Peg Interferon
Hello everyone.I check into this site every day because your input has helped me on my journey with Jak2 pos. I have been on hydroxycarmide 500mg daily for 4yrs, along with clopidogrel, side effects, hair thinning, along with skin, nails and 20lbs weight gain. Platelets have remained between 450- 550
Hello everyone.I check into this site every day because your input has helped me on my journey with Jak2 pos. I have been on hydroxycarmide 500mg daily for 4yrs, along with clopidogrel, side effects, hair thinning, along with skin, nails and 20lbs weight gain. Platelets have remained between 450- 550
Charliemills
in
MPN Voice
4 months ago
Interferon
I’m collecting my
Interferon
therapy today after seeing my Specialist in Oxford (UK) yesterday. Recent platelet count is 506 and my BMB is showing no fibrosis. I’m feeling a little apprehensive but hopefully won’t have too many side effects. I also have to take Allopurinol for the first month.
I’m collecting my
Interferon
therapy today after seeing my Specialist in Oxford (UK) yesterday. Recent platelet count is 506 and my BMB is showing no fibrosis. I’m feeling a little apprehensive but hopefully won’t have too many side effects. I also have to take Allopurinol for the first month.
Carol0925
in
MPN Voice
5 months ago
does anyone out there have histamine intolerance?
hi I’ve just changed from hydroxicarbamide to
interferon
. Seems ok, fingers crossed, but I also have histamine intolerance amd the absence of Hydroxicarbamide seems to be allowing my mast cells to have a high old time churning out histamine. Has anyone else experienced this? Louise
hi I’ve just changed from hydroxicarbamide to
interferon
. Seems ok, fingers crossed, but I also have histamine intolerance amd the absence of Hydroxicarbamide seems to be allowing my mast cells to have a high old time churning out histamine. Has anyone else experienced this? Louise
Loubprv
Volunteer
in
MPN Voice
1 month ago
Splenomegaly and Interferon
Did anyone who has been treated with
Interferon
for PV or MF and got their allele burden down see any reduction in splenomegaly? And if so, to what extent?
Did anyone who has been treated with
Interferon
for PV or MF and got their allele burden down see any reduction in splenomegaly? And if so, to what extent?
Dovakin
in
MPN Voice
3 months ago
Peg Interferon Journey
Just to encourage those starting on Peg
Interferon
to be patient & to be your own advocate on your treatment. I started on Peg 2 years ago after asking for it due to my intolerance of HU after my ET Jak2 diagnosis following a shoulder sports injury.
Just to encourage those starting on Peg
Interferon
to be patient & to be your own advocate on your treatment. I started on Peg 2 years ago after asking for it due to my intolerance of HU after my ET Jak2 diagnosis following a shoulder sports injury.
Exeter21
in
MPN Voice
3 months ago
Anagrelide success 😃
I thought I tolerated
interferon
well but now it’s out of my system I feel so much better 😃😃
I thought I tolerated
interferon
well but now it’s out of my system I feel so much better 😃😃
Maxamber
in
MPN Voice
1 month ago
Advice about Hydroxycarbamide/ Anagrelide please
I have been taking 135 micro of
interferon
every two weeks with a 90 dose on the other week. The consultant asked me to increase to 135 micro every week. I'm worried because he said I'm being resistant to the
interferon
and only 10% of people don't respond to
interferon
at all.
I have been taking 135 micro of
interferon
every two weeks with a 90 dose on the other week. The consultant asked me to increase to 135 micro every week. I'm worried because he said I'm being resistant to the
interferon
and only 10% of people don't respond to
interferon
at all.
Blonde25
in
MPN Voice
5 months ago
whiplash pain and interferon
hi everyone I started
interferon
about 6 weeks ago and apart from a bit of nausea and the odd ache the day after seem ( fingers crossed) to be tolerating it ok.
hi everyone I started
interferon
about 6 weeks ago and apart from a bit of nausea and the odd ache the day after seem ( fingers crossed) to be tolerating it ok.
Loubprv
Volunteer
in
MPN Voice
6 days ago
hydroxy/ interferon treatment questions
Hello. I understand that as (currently) incurable disorders PV and ET require long term management via venesection, anti-platelet and cytoreductive drugs. Does this mean constant cytroreductive treatment or can there be breaks if a patient’s bloods respond sufficiently, with a return to the drugs when
Hello. I understand that as (currently) incurable disorders PV and ET require long term management via venesection, anti-platelet and cytoreductive drugs. Does this mean constant cytroreductive treatment or can there be breaks if a patient’s bloods respond sufficiently, with a return to the drugs when
RoundTheWorld
in
MPN Voice
10 days ago
Interferon impact on fertility
Does
interferon
have any side effects for those individuals trying to conceive? 2. If I came off it does that also have an impact on fertility?
Does
interferon
have any side effects for those individuals trying to conceive? 2. If I came off it does that also have an impact on fertility?
Biscuitlove
in
MPN Voice
28 days ago
1
2
...
55
Next page
10
20
30
40
50
Filter results
Clear filters
Posted in
All communities
MPN Voice
820 results
My MSAA Community
41 results
LUpus Patients Understanding and Support
30 results
View top 10 communities
Sort by
Most Relevant
Newest